@xlau93.bsky.social
ICU nurse ♡ Cat mom ♡ Candle lover ♡ Dutchie in the UK ♡ Fighting chronic pain daily thanks to Endometriosis, nerve damage due to endo scar tissue, hypertonic pelvic floor, adenomyosis & fibromyalgia
How do I get a GP to look at all my symptoms as a whole instead of only one symptom/problem per appointment? Cause I feel like all my symptoms are connected, but I just need someone to look at as a whole and connect the dots! Any advice, anyone? #NHS #GP #ChronicIllness #help #advice
June 16, 2025 at 10:26 AM
How do I get a GP to look at all my symptoms as a whole instead of only one symptom/problem per appointment? Cause I feel like all my symptoms are connected, but I just need someone to look at as a whole and connect the dots! Any advice, anyone? #NHS #GP #ChronicIllness #help #advice
Reposted
There. Is. No. Autism. Epidemic.
Period.
Period.
Say it with me… “There is NO Autism Epidemic!”
Autistic People have always been here!
It’s the criteria and understanding (causing more of us to be recognized) that has changed!
Autistic People have always been here!
It’s the criteria and understanding (causing more of us to be recognized) that has changed!
April 13, 2025 at 12:13 PM
There. Is. No. Autism. Epidemic.
Period.
Period.
So true! I'd be housebound without them
"If not for #painkillers, I’d be spending more time in bed suffering for no good reason. I’d be unable to meet my friends & family, which helps with my emotional & mental #wellbeing ..humans need community in order to survive and #thrive.": buff.ly/yFVs3rB
#MondayBlogs #ChronicPain
#MondayBlogs #ChronicPain
April 15, 2025 at 5:25 PM
So true! I'd be housebound without them
Someone told me recently that I haven't accepted nor grieved the life I had before my chronic pain, suspected pots + suspected hypermobility.. but how do grief your life when you nor the doctors have the answers yet of what's going on? #ChronicIllness #Disability
April 15, 2025 at 5:19 PM
Someone told me recently that I haven't accepted nor grieved the life I had before my chronic pain, suspected pots + suspected hypermobility.. but how do grief your life when you nor the doctors have the answers yet of what's going on? #ChronicIllness #Disability
I don't know if i should pursue a diagnosis for #autism or not. I have been told by my occupational health doctor that I very likely have some form of autism. It won't solve anything but it might give me answers/explain some things.. what do you guys on blue-sky think? #neurodivergent
March 26, 2025 at 5:02 PM
I don't know if i should pursue a diagnosis for #autism or not. I have been told by my occupational health doctor that I very likely have some form of autism. It won't solve anything but it might give me answers/explain some things.. what do you guys on blue-sky think? #neurodivergent
Reposted
!["How's life"
Me:
[pic of guy falling to his death with his parachute on fire]
hahahaha weeeeeeeeeeee](https://cdn.bsky.app/img/feed_thumbnail/plain/did:plc:dbzmdmsaz6lkhb4tv3culzme/bafkreicsuzuu6vfoo3nv5z3trbt4ia3jadcztgmefzdt6t5bju3riyozwu@jpeg)
Glad that I am double checking my payslip
I've been underpaid as work forgot to mention to payroll that I returned back to work from sickness
I've been underpaid as work forgot to mention to payroll that I returned back to work from sickness
March 26, 2025 at 4:57 PM
Glad that I am double checking my payslip
I've been underpaid as work forgot to mention to payroll that I returned back to work from sickness
I've been underpaid as work forgot to mention to payroll that I returned back to work from sickness
Happy St. Patrick's Day to all my Irish friends out there! Especially to my one and only who's very proud to be from the beautiful island 💚💚
March 17, 2025 at 12:47 PM
Happy St. Patrick's Day to all my Irish friends out there! Especially to my one and only who's very proud to be from the beautiful island 💚💚
Big HR meeting regarding my long-term sickness on Monday. I got my RCN rep just in case. I feel like it's ending up in redeployment but there are literally ni band 5 nurse jobs out there atm in my trust that allow me to sit for 90% of the job as per occu health advice
March 8, 2025 at 6:40 PM
Big HR meeting regarding my long-term sickness on Monday. I got my RCN rep just in case. I feel like it's ending up in redeployment but there are literally ni band 5 nurse jobs out there atm in my trust that allow me to sit for 90% of the job as per occu health advice
I feel like being angry at everyone and everything atm
February 25, 2025 at 4:28 PM
I feel like being angry at everyone and everything atm
How long does it take to get your Calprotectin level back? I've handed in my sample on the 7th of Jan, and I've been told it is on the system, but the gp can not access it because Gastroenterology has requested it. Due to all my 2024 health issues+ appointments, my waiting patience is running out..🙈
January 27, 2025 at 6:59 PM
How long does it take to get your Calprotectin level back? I've handed in my sample on the 7th of Jan, and I've been told it is on the system, but the gp can not access it because Gastroenterology has requested it. Due to all my 2024 health issues+ appointments, my waiting patience is running out..🙈
I'm like terrified for all my upcoming medical appointments this year such as cardiology in June for suspected POTS. I'm afraid to be dismissed/not taken seriously/that my symptoms don't show on the moment it should etc, as 3L fluid/day+compression socks make my symptoms less severe #chronicillness
January 25, 2025 at 5:29 PM
I'm like terrified for all my upcoming medical appointments this year such as cardiology in June for suspected POTS. I'm afraid to be dismissed/not taken seriously/that my symptoms don't show on the moment it should etc, as 3L fluid/day+compression socks make my symptoms less severe #chronicillness
Reposted
I love board games. My favorite is when people put meat and cheese on a board. Maybe some crackers and fruit.
I'm really good at that one.
I'm really good at that one.
January 20, 2025 at 10:35 AM
I love board games. My favorite is when people put meat and cheese on a board. Maybe some crackers and fruit.
I'm really good at that one.
I'm really good at that one.
So.. my calprotectin came back at 625, and with the colonoscopy, they found ulcers in my terminal ileum. Gastroenterologist said back in November if the calprotectin would come back positive, I'd get a special MRI.. I suppose I gotta be patient for an appointment, but looks like I got Crohns as well
January 20, 2025 at 2:09 PM
So.. my calprotectin came back at 625, and with the colonoscopy, they found ulcers in my terminal ileum. Gastroenterologist said back in November if the calprotectin would come back positive, I'd get a special MRI.. I suppose I gotta be patient for an appointment, but looks like I got Crohns as well
Got told today in a long-term sickness meeting that my unit can not accommodate me doing nonclinical work longer than 3 months. So if I'm not back to my hours & clinical in 3 months' time from next Monday, I will have to redeploy.. Also, not knowing if it'll be temporary or permanent is terrifying
January 14, 2025 at 10:20 PM
Got told today in a long-term sickness meeting that my unit can not accommodate me doing nonclinical work longer than 3 months. So if I'm not back to my hours & clinical in 3 months' time from next Monday, I will have to redeploy.. Also, not knowing if it'll be temporary or permanent is terrifying
Today is not a good mental day for me. I will try again tomorrow..
January 14, 2025 at 10:14 PM
Today is not a good mental day for me. I will try again tomorrow..
Can't wait for my partner to find a job and his flow in this world. Sure, it will help massively financially, but I think he really needs it to find a structure to the daily life for his mental health. Plus, he'll be around people who actually understand what he's talking about 😅
January 12, 2025 at 6:43 PM
Can't wait for my partner to find a job and his flow in this world. Sure, it will help massively financially, but I think he really needs it to find a structure to the daily life for his mental health. Plus, he'll be around people who actually understand what he's talking about 😅
God, if you can hear me; Can I please have one day without pain or almost passing out? Just one day is all I ask for please?!🙏
January 8, 2025 at 9:05 PM
God, if you can hear me; Can I please have one day without pain or almost passing out? Just one day is all I ask for please?!🙏
Reposted
Best intro to a book I’ve seen in awhile
January 6, 2025 at 11:35 PM
Best intro to a book I’ve seen in awhile
Reposted
December 27, 2024 at 5:05 PM
I wish I had money to go private in this case so I can go to a specialist centre for #endometriosis
Explain them my case and see what they say/do etc..
I kind of lost trust in my current gynecologist tbh after all this.
Explain them my case and see what they say/do etc..
I kind of lost trust in my current gynecologist tbh after all this.
January 6, 2025 at 3:28 PM
I wish I had money to go private in this case so I can go to a specialist centre for #endometriosis
Explain them my case and see what they say/do etc..
I kind of lost trust in my current gynecologist tbh after all this.
Explain them my case and see what they say/do etc..
I kind of lost trust in my current gynecologist tbh after all this.
I am disappointed in my gynecologist. Giving me verbal diagnosis of adenomyosis, but not wanting to write them down as I do not want a hysterectomy yet for him to officially have evidence of the diagnosis.
January 6, 2025 at 3:27 PM
I am disappointed in my gynecologist. Giving me verbal diagnosis of adenomyosis, but not wanting to write them down as I do not want a hysterectomy yet for him to officially have evidence of the diagnosis.