If you’re attending the event either online or in person, please come and say hello!!
If you’re attending the event either online or in person, please come and say hello!!
The ERASE-LC trial is making steady progress. All participants have now received their infusions of remdesivir and completed their post-treatment testing.
The ERASE-LC trial is making steady progress. All participants have now received their infusions of remdesivir and completed their post-treatment testing.
A patient-led study with @derbyuni.bsky.social, University Hospitals Derby and Burton, Peninsula CTU and Exeter University to help people with #LongCovid
Thanks to everyone, especially the participants who gave so much to this work.
A patient-led study with @derbyuni.bsky.social, University Hospitals Derby and Burton, Peninsula CTU and Exeter University to help people with #LongCovid
Thanks to everyone, especially the participants who gave so much to this work.
Important preprint work from our Team Clots:
@profmarkfaghy.bsky.social and @resiapretorius.bsky.social
👏👏
www.researchsquare.com/article/rs-6...
Important preprint work from our Team Clots:
@profmarkfaghy.bsky.social and @resiapretorius.bsky.social
👏👏
www.researchsquare.com/article/rs-6...
Huge thanks to @buonsenso.bsky.social and @laelyonker.bsky.social for leading on this.
#longcovidkids
@longcovidkids.bsky.social
publications.ersnet.org/content/erj/...
Huge thanks to @buonsenso.bsky.social and @laelyonker.bsky.social for leading on this.
#longcovidkids
@longcovidkids.bsky.social
publications.ersnet.org/content/erj/...
Please share with your network!
www.derby.ac.uk/jobs/current...
Please share with your network!
www.derby.ac.uk/jobs/current...
270 infusion days..
A whole lot of tea and biscuits..
@derbyuni.bsky.social and @UHDBTrust are completing their last round of ERASE infusions today!
Great teamwork from all involved, and big thanks to the participants for making the last 8 months so enjoyable.
270 infusion days..
A whole lot of tea and biscuits..
@derbyuni.bsky.social and @UHDBTrust are completing their last round of ERASE infusions today!
Great teamwork from all involved, and big thanks to the participants for making the last 8 months so enjoyable.
'The £1.25 million trial, which is the first of its kind in the UK, is exploring whether anti-viral medications can be used as an effective treatment option...'
www.marketingderby.co.uk/news/univers...
'The £1.25 million trial, which is the first of its kind in the UK, is exploring whether anti-viral medications can be used as an effective treatment option...'
www.marketingderby.co.uk/news/univers...
@profmarkfaghy.bsky.social
@lindsayskipper.bsky.social
@sarahbarleymc.bsky.social
@longcovidadvoc.com
@mikster-derby.bsky.social
@michaeltikus.bsky.social
'The £1.25 million trial, which is the first of its kind in the UK, is exploring whether anti-viral medications can be used as an effective treatment option...'
www.marketingderby.co.uk/news/univers...
and policy advisor for @longcovidkids.bsky.social
He adds that children and young people are at a “disadvantage from the outset”.
and policy advisor for @longcovidkids.bsky.social
He adds that children and young people are at a “disadvantage from the outset”.
You might be interested in this, @jonathandaviesmp.bsky.social
#LongCovid #Derbyshire
Thanks to Ryan for his time and energy in helping with this piece!
www.bbc.co.uk/news/article...
You might be interested in this, @jonathandaviesmp.bsky.social
#LongCovid #Derbyshire
Thanks to Ryan for his time and energy in helping with this piece!
www.bbc.co.uk/news/article...
Thanks to Ryan for his time and energy in helping with this piece!
www.bbc.co.uk/news/article...
Without research, we cannot progress the mechanistic knowledge needed to develop diagnostic tests and treatments!
you.38degrees.org.uk/petitions/in...
Without research, we cannot progress the mechanistic knowledge needed to develop diagnostic tests and treatments!
you.38degrees.org.uk/petitions/in...
“It is vital research for the people who are living with LongCovid now but also the people who will go on to develop LC in the future” @profmarkfaghy.bsky.social
t.co/kfLzV0B0fy
“It is vital research for the people who are living with LongCovid now but also the people who will go on to develop LC in the future” @profmarkfaghy.bsky.social
t.co/kfLzV0B0fy
I shared many lovely moments with Ondine as part of our involvement in the
@covidinquiryuk
I am gutted and lost for words!
We will continue to advocate with Ondine looking down!
Longcovidsos.org/post/ondine-sherwood
I shared many lovely moments with Ondine as part of our involvement in the
@covidinquiryuk
I am gutted and lost for words!
We will continue to advocate with Ondine looking down!
www.itv.com/news/2025-03...
www.itv.com/news/2025-03...
www.thelancet.com/journals/lan...
Science overload that paves the way for the development of future diagnostic investigations and potential treatments for LC!
www.thelancet.com/journals/lan...
Science overload that paves the way for the development of future diagnostic investigations and potential treatments for LC!
Day 12
We have and continue to have knockbacks as a team… funding refusals, paper rejections and many more!
But we are trying to research a condition which some of the world is trying to pretend does not exist and in a life where infections are still spreading in great volumes.
Day 12
We have and continue to have knockbacks as a team… funding refusals, paper rejections and many more!
But we are trying to research a condition which some of the world is trying to pretend does not exist and in a life where infections are still spreading in great volumes.
Kindness and compassion underpin our #LongCOVID research but this should underpin ALL research.
Participants are not numbers. They are people who carry scars which reach beyond those caused by COVID-19.
Kindness and compassion underpin our #LongCOVID research but this should underpin ALL research.
Participants are not numbers. They are people who carry scars which reach beyond those caused by COVID-19.
Do no harm.
Whether it is the words you choose; the protocol you develop; the treatment you administer; or the infection prevention and control measures you select, the aim should always be ‘do no harm’.
Sounds pretty obvious, right?
Do no harm.
Whether it is the words you choose; the protocol you develop; the treatment you administer; or the infection prevention and control measures you select, the aim should always be ‘do no harm’.
Sounds pretty obvious, right?
Words Matter
Everything we say can have downstream consequences. Using the wrong words can have lasting effects for years on a personal and wider level.
The #LongCOVID community have shared experiences where others simply haven’t understood this.
Day 8
Enable PPIE to fully contribute, there is no room for tokenism.
If you want to meaningfully engage with people who have lived experience, you need to enable them to participate.
Ask them what they need in order to be able to participate fully.
Words Matter
Everything we say can have downstream consequences. Using the wrong words can have lasting effects for years on a personal and wider level.
The #LongCOVID community have shared experiences where others simply haven’t understood this.