Mark Faghy
@profmarkfaghy.bsky.social
Professor of Clinical Exercise Science - Clinical Exercise Physiologist - Researcher in #LongCOVID - Nature Research Award Winner 2024 - Derby UK
We’re really happy to be sharing our work at the @longcovidweb.bsky.social symposia in the wonderful city of St John’s, Newfoundland 🇨🇦
If you’re attending the event either online or in person, please come and say hello!!
If you’re attending the event either online or in person, please come and say hello!!
October 20, 2025 at 5:58 PM
We’re really happy to be sharing our work at the @longcovidweb.bsky.social symposia in the wonderful city of St John’s, Newfoundland 🇨🇦
If you’re attending the event either online or in person, please come and say hello!!
If you’re attending the event either online or in person, please come and say hello!!
And just like that we have completed ERASE in Derby
A patient-led study with @derbyuni.bsky.social, University Hospitals Derby and Burton, Peninsula CTU and Exeter University to help people with #LongCovid
Thanks to everyone, especially the participants who gave so much to this work.
A patient-led study with @derbyuni.bsky.social, University Hospitals Derby and Burton, Peninsula CTU and Exeter University to help people with #LongCovid
Thanks to everyone, especially the participants who gave so much to this work.
June 19, 2025 at 12:57 PM
And just like that we have completed ERASE in Derby
A patient-led study with @derbyuni.bsky.social, University Hospitals Derby and Burton, Peninsula CTU and Exeter University to help people with #LongCovid
Thanks to everyone, especially the participants who gave so much to this work.
A patient-led study with @derbyuni.bsky.social, University Hospitals Derby and Burton, Peninsula CTU and Exeter University to help people with #LongCovid
Thanks to everyone, especially the participants who gave so much to this work.
54 Patients..
270 infusion days..
A whole lot of tea and biscuits..
@derbyuni.bsky.social and @UHDBTrust are completing their last round of ERASE infusions today!
Great teamwork from all involved, and big thanks to the participants for making the last 8 months so enjoyable.
270 infusion days..
A whole lot of tea and biscuits..
@derbyuni.bsky.social and @UHDBTrust are completing their last round of ERASE infusions today!
Great teamwork from all involved, and big thanks to the participants for making the last 8 months so enjoyable.
May 16, 2025 at 9:56 AM
54 Patients..
270 infusion days..
A whole lot of tea and biscuits..
@derbyuni.bsky.social and @UHDBTrust are completing their last round of ERASE infusions today!
Great teamwork from all involved, and big thanks to the participants for making the last 8 months so enjoyable.
270 infusion days..
A whole lot of tea and biscuits..
@derbyuni.bsky.social and @UHDBTrust are completing their last round of ERASE infusions today!
Great teamwork from all involved, and big thanks to the participants for making the last 8 months so enjoyable.
Thank you to everyone who has contributed to and engaged with the #12waysofERASE
This initiative was led by our wonderful PPIE team and we are forever grateful for them and the work they do. The impact we are having is because of them!!
This initiative was led by our wonderful PPIE team and we are forever grateful for them and the work they do. The impact we are having is because of them!!
December 12, 2024 at 8:34 AM
Thank you to everyone who has contributed to and engaged with the #12waysofERASE
This initiative was led by our wonderful PPIE team and we are forever grateful for them and the work they do. The impact we are having is because of them!!
This initiative was led by our wonderful PPIE team and we are forever grateful for them and the work they do. The impact we are having is because of them!!
Kindness doesn’t sound very scientific but it means a lot to our participants who have often received terrible treatment.
We hope that our participants know that we care.
They are never just a number to us.
December 11, 2024 at 9:30 AM
Kindness doesn’t sound very scientific but it means a lot to our participants who have often received terrible treatment.
We hope that our participants know that we care.
They are never just a number to us.
We need to hear the voices of the very unwell., They can find it hard to access studies or healthcare yet they offer so much knowledge.
To create research fit for participants you first have to enable PPIE to provide their input.
To create research fit for participants you first have to enable PPIE to provide their input.
December 8, 2024 at 12:55 PM
We need to hear the voices of the very unwell., They can find it hard to access studies or healthcare yet they offer so much knowledge.
To create research fit for participants you first have to enable PPIE to provide their input.
To create research fit for participants you first have to enable PPIE to provide their input.
#12waysofERASE
Day 8
Enable PPIE to fully contribute, there is no room for tokenism.
If you want to meaningfully engage with people who have lived experience, you need to enable them to participate.
Ask them what they need in order to be able to participate fully.
Day 8
Enable PPIE to fully contribute, there is no room for tokenism.
If you want to meaningfully engage with people who have lived experience, you need to enable them to participate.
Ask them what they need in order to be able to participate fully.
December 8, 2024 at 12:55 PM
#12waysofERASE
Day 8
Enable PPIE to fully contribute, there is no room for tokenism.
If you want to meaningfully engage with people who have lived experience, you need to enable them to participate.
Ask them what they need in order to be able to participate fully.
Day 8
Enable PPIE to fully contribute, there is no room for tokenism.
If you want to meaningfully engage with people who have lived experience, you need to enable them to participate.
Ask them what they need in order to be able to participate fully.
We have now been able to use this modified approach for ERASE. The screening processes are detailed and it excludes anyone with severe PEM as we prioritise safety, but it is allowing us to assess what is happening in a controlled environment.
December 7, 2024 at 10:02 AM
We have now been able to use this modified approach for ERASE. The screening processes are detailed and it excludes anyone with severe PEM as we prioritise safety, but it is allowing us to assess what is happening in a controlled environment.
So before heading into this study, we spent 18 months with an international group devising a modified 2-day CPET protocol.
We trialled this for safety and tolerability and only use this with participants who have been screened objectively to determine suitability.
We trialled this for safety and tolerability and only use this with participants who have been screened objectively to determine suitability.
December 7, 2024 at 10:02 AM
So before heading into this study, we spent 18 months with an international group devising a modified 2-day CPET protocol.
We trialled this for safety and tolerability and only use this with participants who have been screened objectively to determine suitability.
We trialled this for safety and tolerability and only use this with participants who have been screened objectively to determine suitability.
We’re finding ways to encourage more staff and participants to wear masks.
It takes time, conversations, patience, education and empathy.
It takes time, conversations, patience, education and empathy.
December 6, 2024 at 12:46 PM
We’re finding ways to encourage more staff and participants to wear masks.
It takes time, conversations, patience, education and empathy.
It takes time, conversations, patience, education and empathy.
#12waysofERASE
Masking
Our aim at the outset of the study was for all staff and participants (who aren’t exempt for medical reasons) to wear high-quality respirator masks.
It turns out it just isn’t that simple…
The system is against..
Masking
Our aim at the outset of the study was for all staff and participants (who aren’t exempt for medical reasons) to wear high-quality respirator masks.
It turns out it just isn’t that simple…
The system is against..
December 6, 2024 at 12:46 PM
#12waysofERASE
Masking
Our aim at the outset of the study was for all staff and participants (who aren’t exempt for medical reasons) to wear high-quality respirator masks.
It turns out it just isn’t that simple…
The system is against..
Masking
Our aim at the outset of the study was for all staff and participants (who aren’t exempt for medical reasons) to wear high-quality respirator masks.
It turns out it just isn’t that simple…
The system is against..
HEPA filters are placed in all research and treatment rooms. Beds are spread out and friends and relatives are discouraged, unless participants need carers, LFTs are supplied so staff and participants can screen themselves (as well as these tests allow).
December 5, 2024 at 2:05 PM
HEPA filters are placed in all research and treatment rooms. Beds are spread out and friends and relatives are discouraged, unless participants need carers, LFTs are supplied so staff and participants can screen themselves (as well as these tests allow).
#12waysofERASE
Day 5
Infection prevention and control is more than hand washing.
Wherever you stand on the ‘COVID-19 is airborne’ debate, preventing infection with anything is essential in our research. Hand washing and standing 2 metres away is not enough.
Day 5
Infection prevention and control is more than hand washing.
Wherever you stand on the ‘COVID-19 is airborne’ debate, preventing infection with anything is essential in our research. Hand washing and standing 2 metres away is not enough.
December 5, 2024 at 2:05 PM
#12waysofERASE
Day 5
Infection prevention and control is more than hand washing.
Wherever you stand on the ‘COVID-19 is airborne’ debate, preventing infection with anything is essential in our research. Hand washing and standing 2 metres away is not enough.
Day 5
Infection prevention and control is more than hand washing.
Wherever you stand on the ‘COVID-19 is airborne’ debate, preventing infection with anything is essential in our research. Hand washing and standing 2 metres away is not enough.
3/5
We collected thousands of pages of data on the lived experience and used this to further explore the lived experience, resulting in these publications:
bmjopen.bmj.com/content/13/4...
link.springer.com/article/10.1...
doi.org/10.1017/dmp....
We collected thousands of pages of data on the lived experience and used this to further explore the lived experience, resulting in these publications:
bmjopen.bmj.com/content/13/4...
link.springer.com/article/10.1...
doi.org/10.1017/dmp....
December 2, 2024 at 10:24 AM
3/5
We collected thousands of pages of data on the lived experience and used this to further explore the lived experience, resulting in these publications:
bmjopen.bmj.com/content/13/4...
link.springer.com/article/10.1...
doi.org/10.1017/dmp....
We collected thousands of pages of data on the lived experience and used this to further explore the lived experience, resulting in these publications:
bmjopen.bmj.com/content/13/4...
link.springer.com/article/10.1...
doi.org/10.1017/dmp....
#12waysofERASE
#2 Listen to the #LongCOVID community; they are the experts.
1/5
The first dose of Remdesivir was given on 28/10/2024 but we started listening to patients in June 2020. We needed to understand what was going on from people who were at the heart of it.
#2 Listen to the #LongCOVID community; they are the experts.
1/5
The first dose of Remdesivir was given on 28/10/2024 but we started listening to patients in June 2020. We needed to understand what was going on from people who were at the heart of it.
December 2, 2024 at 10:24 AM
#12waysofERASE
#2 Listen to the #LongCOVID community; they are the experts.
1/5
The first dose of Remdesivir was given on 28/10/2024 but we started listening to patients in June 2020. We needed to understand what was going on from people who were at the heart of it.
#2 Listen to the #LongCOVID community; they are the experts.
1/5
The first dose of Remdesivir was given on 28/10/2024 but we started listening to patients in June 2020. We needed to understand what was going on from people who were at the heart of it.
People living with #LC are at the heart of our research. You are the experts in your condition & we thank you for all that you share with us.
Please join us here for the first 12 days of December for the #12waysofERASE
Think of it as an early festive treat.
Please join us here for the first 12 days of December for the #12waysofERASE
Think of it as an early festive treat.
November 30, 2024 at 10:35 AM
People living with #LC are at the heart of our research. You are the experts in your condition & we thank you for all that you share with us.
Please join us here for the first 12 days of December for the #12waysofERASE
Think of it as an early festive treat.
Please join us here for the first 12 days of December for the #12waysofERASE
Think of it as an early festive treat.
As we approach December & our final week of remdesivir infusions for 2024, we thought it timely to share how we have used and considered LC lived experience to guide our award-winning research. Each day for the next 12 days we will share our guiding principles that make the #12waysofERASE
November 30, 2024 at 10:35 AM
As we approach December & our final week of remdesivir infusions for 2024, we thought it timely to share how we have used and considered LC lived experience to guide our award-winning research. Each day for the next 12 days we will share our guiding principles that make the #12waysofERASE
This afternoon @sammiemc.bsky.social from @longcovidkids.bsky.social got a deserved standing ovation from the audience after delivering an emotional but impactful presentation highlighting the impact that #longcovid has on children and their families.
Inspirational!!
Inspirational!!
November 15, 2024 at 5:08 PM
This afternoon @sammiemc.bsky.social from @longcovidkids.bsky.social got a deserved standing ovation from the audience after delivering an emotional but impactful presentation highlighting the impact that #longcovid has on children and their families.
Inspirational!!
Inspirational!!
I’ve been to worse places!! 😍
November 15, 2024 at 10:34 AM
I’ve been to worse places!! 😍
First Bluesky Post!! 🤩
Couldn’t resist a photo with the #longcovid research hero’s at @buonsenso.bsky.social ‘s international meeting on Long COVID in Rome 🇮🇹
Excited to engage in discussions on #research and #collaboration
Couldn’t resist a photo with the #longcovid research hero’s at @buonsenso.bsky.social ‘s international meeting on Long COVID in Rome 🇮🇹
Excited to engage in discussions on #research and #collaboration
November 15, 2024 at 10:09 AM
First Bluesky Post!! 🤩
Couldn’t resist a photo with the #longcovid research hero’s at @buonsenso.bsky.social ‘s international meeting on Long COVID in Rome 🇮🇹
Excited to engage in discussions on #research and #collaboration
Couldn’t resist a photo with the #longcovid research hero’s at @buonsenso.bsky.social ‘s international meeting on Long COVID in Rome 🇮🇹
Excited to engage in discussions on #research and #collaboration
I’m here.. (just) 🙏🏼
November 15, 2024 at 9:39 AM
I’m here.. (just) 🙏🏼