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physiosforme.bsky.social
Physios For ME
@physiosforme.bsky.social
2.9K followers 60 following 46 posts
A group of physiotherapists with a special interest in Myalgic Encephalomyelitis (ME) with the aim to improve physiotherapy management for people with ME
Find out more at physiosforme.com
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physiosforme.bsky.social
We've had another study published 🥳

"Pacing with a heart rate monitor for people with myalgic encephalomyelitis/chronic fatigue syndrome and long COVID: a feasibility study"

Open access link here. Summary below (1)
www.tandfonline.com/doi/full/10....
Taylor & Francis Online: Peer-reviewed Journals
Search and explore the millions of quality, peer-reviewed journal articles published under the Taylor & Francis, Routledge and Dove Medical Press imprints.
tandfonline.com
October 15, 2025 at 11:46 AM
physiosforme.bsky.social
Pleased to have assisted @thecsp.bsky.social to write this piece for their magazine, which goes out to all chartered physiotherapists in the UK.
September 1, 2025 at 6:00 PM
physiosforme.bsky.social
It is #SevereMEDay

Physios in any specialism may meet people (adults or children) with severe ME during a hospital admission.

We can play a key role in education of other health professionals, to advocate for safe management and care

@thecsp.bsky.social

www.physiosforme.com/severe-me
Severe ME | Physiosforme
www.physiosforme.com
August 8, 2025 at 7:18 PM
Reposted by Physios For ME
claguenjc36.bsky.social
Just saw this in the physio frontline journal! All advocacy is important however small! Thanks @thecsp.bsky.social @physiosforme.bsky.social
June 29, 2025 at 8:48 PM
Reposted by Physios For ME
claguenjc36.bsky.social
youtu.be/vv0pUwoF9J0?si…
Well done @michelleb4.bsky.social you represented @physiosforme.bsky.social so well. Some grea#MEME talks, well done all at the ME/CFS conference, digging deeper - Norway.
Michelle Bull - Living with ME/CFS and Long Covid - Managing symptoms (Norwegian subtitles)
YouTube video by Norges ME-forening - Rogaland Fylkeslag
https://youtu.be/vv0pUwoF9J0?si…
June 29, 2025 at 4:03 PM
physiosforme.bsky.social
It's our six year anniversary!

To celebrate, the four of us spent a lovely weekend together, plotting and planning what our seventh year will look like.

You can read a whole recap of our year in our latest blog post here
www.physiosforme.com/post/we-cele...
We celebrate our six year anniversary
It is now six years since the formation of Physios for ME, when four physiotherapists with a shared goal – to improve physiotherapy care for people with ME – got together online, gave ourselves a name...
www.physiosforme.com
June 29, 2025 at 5:03 PM
physiosforme.bsky.social
Well done for @claguenjc36.bsky.social for getting 3 abstracts accepted at @thecsp.bsky.social conference. Taking every opportunity to educate physios in the care and management of people with #ME
claguenjc36.bsky.social Dr Nicola Clague-Baker @claguenjc36.bsky.social · Jun 3
Pleased to have 3 abstracts accepted for the Chartered Society of Physiotherapy conference in Nov. Thanks @thecsp.bsky.social @physiosforme.bsky.social
June 3, 2025 at 6:20 AM
Reposted by Physios For ME
michelleb4.bsky.social
Feel very privileged to have spent time with @putrinolab.bsky.social & others in the last week discussing actual evidence based robust science relating to ME and Long Covid. There is no room for this sort of nonsense @bmj_latest
putrinolab.bsky.social Putrino Lab @putrinolab.bsky.social · May 15
Quite disheartening to return from 10 days working with some of the most important and relevant #MECFS and #LongCOVID researchers in the world and to read this drivel being allowed through from @bmj_latest. Let's be unambiguous about this: BMJ has

www.bmj.com/content/389/...

1/
Patients with severe ME/CFS need hope and expert multidisciplinary care
Reframing beliefs about illness, along with specialist rehabilitation, can help recovery in people with severe ME/CFS, write Alastair Miller, Fiona Symington, Paul Garner, and Maria Pedersen Myalgic...
www.bmj.com
May 15, 2025 at 7:18 PM
physiosforme.bsky.social
You might need to try this link instead

www.physiosforme.com/onesheetprin...
May 12, 2025 at 8:34 PM
Reposted by Physios For ME
meassociation.org.uk
. @meactionuk.bsky.social @actionforme.bsky.social
@longcovidkids.bsky.social @physiosforme.bsky.social
@longcovidadvoc.com @longcovidphysio.bsky.social
@longcovidsupport.bsky.social
meassociation.org.uk ME Association @meassociation.org.uk · May 12
Today, on World ME Day, we stand with all those affected by ME to deliver a simple message to the UK government.

@joplatt.bsky.social @eddavey.libdems.org.uk @tessamunt.bsky.social

Read the joint statement: meassociation.org.uk/nsts

#WorldMEDay #MEAwarenessWeek2025
At the top is the text "World ME Day 2025" on a vibrant orange background. Below, text reads: "After generations of neglect and empty promises, now is the time for action." Underneath, there is a collection of logos from various ME/CFS, fibromyalgia, and Long COVID advocacy groups, including #ME Action UK; #ThereForME; Action for ME; Cambridge ME Group; Crunch ME; Hope 4 ME & Fibro Northern Ireland; Kirklees & Calderdale IMESG; Long Covid Nurses & Midwives UK); The ME Association; ME Local Groups Network UK; MERC PAG; Not Recovered UK; Oxfordshire ME Group for Action; Physios for M.E.; Tymes Trust; The 25% ME Group; Keyworker Petition UK; Long Covid Advocacy; Long Covid Physio; Long Covid Scotland; Long Covid Support; ME positive; Sheffield ME & Fibromyalgia Group; Walsall Fibro M.E. Support; Bury & Bolton ME/CFS & Fibromyalgia Support Group; ME/CFS Friendship Group in Gloucestershire; and ME Group Staffordshire.. Below, a dark blue banner reads "JOINT STATEMENT" in white capitals.
May 12, 2025 at 8:47 AM
physiosforme.bsky.social
Today is #MEAwarenessDay

We've published a blog with some updates of our recent activities.

www.physiosforme.com/post/world-m...
World ME Day 2025
Today is World ME Day. Physios for ME continue to strive for improved awareness, education and care for people with ME, and we've had a busy few months.We are proud to support the There for ME campaig...
www.physiosforme.com
May 12, 2025 at 7:08 PM
Reposted by Physios For ME
michelleb4.bsky.social
Just back from a wonderful week in Norway
for the @meforeningen.bsky.social Digging Deeper conference & took the opportunity to ride my bike somewhere a bit different.
Fantastic to meet @putrinolab.bsky.social
@bmhughes.bsky.social in person along with others who I can't find to tag
...1/3
May 11, 2025 at 2:56 PM
physiosforme.bsky.social
Total pleasure to be part of the presenting line up @meforeningen.bsky.social conference in Stavanger
bmhughes.bsky.social Brian Hughes @bmhughes.bsky.social · May 7
Excited to be here in Stavanger, Norway, to speak at @meforeningen.bsky.social conference on ME/CFS and Long Covid

Fascinating programme planned, lots of interesting presenters

#MECFS #LongCovid #pwME
Audience of 250+ at a conference venue facing a stage and three large screens Conference booklet with the title 'ME/CFS AND LONG COVID - Digging Deeper'
May 7, 2025 at 3:20 PM
physiosforme.bsky.social
We welcome your thoughts and input.
claguenjc36.bsky.social Dr Nicola Clague-Baker @claguenjc36.bsky.social · Apr 9
We are planning another study which will potentially include blood tests for #pwme and #pwlc. What blood tests would you want and why? Thanks @physiosforme.bsky.social @longcovidphysio.bsky.social
April 24, 2025 at 6:04 AM
Reposted by Physios For ME
longcovidsupport.bsky.social
📣 1/5. The UK Government is proposing significant changes to welfare benefits.

These reforms could profoundly impact individuals with #LongCovid and #MECFS.

We've launched a survey to gather your insight. ⬇️
Blue background with white text that reads Survey Have your say on welfare benefits reform. Calling people with Long Covid and ME/CFS. Four logos at the bottom of Long Covid Support, Action for ME, ME Local Network, #ThereforME.
April 16, 2025 at 11:52 AM
Reposted by Physios For ME
longcovidsupport.bsky.social
5/5Endorsed by Bury&Bolton MECFS & Fibromyalgia Support Group, Hope4ME Fibro Northern Ireland, Keyworker Petition UK, 25% ME Group, MERCPAG, Supporting Healthcare Heroes UK &
@longcovidadvoc.com
@longcovidkids.bsky.social
@meactionuk.bsky.social
@physiosforme.bsky.social
@longcovidsos.bsky.social
April 16, 2025 at 11:52 AM
Reposted by Physios For ME
claguenjc36.bsky.social
Proud to be part of this campaign for more strategic research funding for #ME and #longcovid

It's time to properly fund this vital research @physiosforme.bsky.social

psp-me.co.uk/campaign-str...
A proposal for an ME/CFS, Long Covid, and Post-Infectious Disease research platform - ME/CFS Priority Setting Partnership
A new campaign has been launched today by Action for ME, ME Research UK and the ME Association based on the work of a group of academics, practitioners, clinicians, charity representatives and people ...
psp-me.co.uk
April 22, 2025 at 6:06 PM
Reposted by Physios For ME
longcovidphysio.bsky.social
5 years have passed and millions are affected globally

All are still waiting for a cure

#LongCovidAwarenessDay
March 15, 2025 at 8:12 AM
physiosforme.bsky.social
New blog post published, with updates on current projects and some exciting news.

physiosforme.com/post/spring-...

Summary below 👇
Spring update from Physios for ME
It’s finally spring (ish) so we thought we would share an update on our current projects and latest activities. The majority of work for Physios for ME is done voluntarily in our spare time, and while...
physiosforme.com
March 2, 2025 at 11:45 AM
physiosforme.bsky.social
Dear
@rthonwesstreeting.bsky.social @ashleydaltonmp.bsky.social

We are Physios for ME and we urge you to #FundThePlan

Our video is just too long for BlueSky so you can see it here or read what we have to say in the thread below

www.facebook.com/watch/?v=166...

@thereforme.bsky.social
Redirecting...
www.facebook.com
March 2, 2025 at 11:36 AM
physiosforme.bsky.social
A new international survey has been released exploring the experiences of athletes with ME / Long Covid (with PEM)

Please share widely - all info on our website here

www.physiosforme.com/athletessurvey
ME in Athletes Survey | Physiosforme
www.physiosforme.com
February 23, 2025 at 6:02 PM
physiosforme.bsky.social
Thank you @drjogreer.bsky.social for including us in this inspiring group of researchers/clinicians and advocates.
tomkindlon.bsky.social Tom Kindlon @tomkindlon.bsky.social · Jan 5
"The Red Tree & ME" incl. 23 responses she received from scientists, researchers, clinicians & advocates involved with #MEcfs, #LongCovid & similar

theredtreeandme.substack.com/p/the-red-tr...

theredtreeandme.substack.com/p/we-shall-h...

Image is from latest Science for ME weekly update

1/
The Red Tree and M.E. In this blog Dr. Jo Greer, who is an educational psychologist and carer for a daughter with severe ME, tells of how the book "The Red Tree" by Shaun Tan has helped and provided support though a red leaf as a symbol of hope. She has asked scientists, researchers, clinicians and advocates involved with ME, Long Covid and other Infection Associated Chronic Condition to share a 'red leaf' and got 23 lovely responses. She writes: "My best hope is that these heartwarming messages about scientific progress and collaborative endeavour encourage you at some level, whatever (and maybe even despite) your circumstances, especially as we enter a new year." Article 1 'The Red Tree and M.E. - One leaf at a time Article 2 'We shall have spring again' - Messages of hope and solidarity for 2025
January 5, 2025 at 8:48 PM
Reposted by Physios For ME
michelleb4.bsky.social
Glad to have been part of this work - and the opportunity to learn from working with colleagues whose paths wouldn't usually cross mine. Exciting to see it published
December 29, 2024 at 9:50 AM
Reposted by Physios For ME
darlingems.bsky.social
This book has a lot of great insight, especially to those who are new to or relatively unfamiliar with ME/CFS.
physiosforme.bsky.social Physios For ME @physiosforme.bsky.social · Dec 23
Happy that our book continues to help educate and inform physios and other health and care professionals
You can find out more here www.physiosforme.com/our-book
December 24, 2024 at 5:40 AM
physiosforme.bsky.social
Happy that our book continues to help educate and inform physios and other health and care professionals
You can find out more here www.physiosforme.com/our-book
December 23, 2024 at 4:15 PM