Devin Shuman (she/her)
@mitogc.bsky.social
Smithie 2014, mitochondrial disease, spoonie, rare disease, genetic counselor, 🏳️🌈 ♿️ opinions are my own
Reposted by Devin Shuman (she/her)
After three months in Immigration and Customs Enforcement custody, a Filipino green-card holder who had been arrested at Seattle-Tacoma Airport has finally gone home.
One more for the "WTF" quota...
This lady has been legally in the U.S. for 50 years. She was detained by ICE in *February* when coming home from a trip to the Philippines and only just released last week.
"It was horrific; it was awful, it is crowded—super crowded."
www.nbcnews.com/news/amp/rcn...
This lady has been legally in the U.S. for 50 years. She was detained by ICE in *February* when coming home from a trip to the Philippines and only just released last week.
"It was horrific; it was awful, it is crowded—super crowded."
www.nbcnews.com/news/amp/rcn...
ICE releases health worker arrested at airport despite living in the U.S. legally for 50 years
Lewelyn Dixon had been arrested at the Seattle airport after a trip to her native Philippines in late February. She was released from ICE custody after three months.
www.nbcnews.com
June 2, 2025 at 12:37 AM
After three months in Immigration and Customs Enforcement custody, a Filipino green-card holder who had been arrested at Seattle-Tacoma Airport has finally gone home.
Today I got to start taking an experimental drug that hopefully will treat my form of mito. Who knows if it'll work but my family & medical team have worked hard for this moment. I feel incredibly lucky to have the oppurtunity to at least try!
I'll be posting more here: www.devinshuman.com/guk1
I'll be posting more here: www.devinshuman.com/guk1
May 10, 2025 at 1:17 AM
Today I got to start taking an experimental drug that hopefully will treat my form of mito. Who knows if it'll work but my family & medical team have worked hard for this moment. I feel incredibly lucky to have the oppurtunity to at least try!
I'll be posting more here: www.devinshuman.com/guk1
I'll be posting more here: www.devinshuman.com/guk1
Are you the flavor of chronically ill that bakes cookies for all of your doctors and delivers them to their offices on your day off as a thank you for taking care of your brother during his 1 month admission? #SpoonieStressBaker
April 21, 2025 at 6:13 PM
Are you the flavor of chronically ill that bakes cookies for all of your doctors and delivers them to their offices on your day off as a thank you for taking care of your brother during his 1 month admission? #SpoonieStressBaker
Reposted by Devin Shuman (she/her)
My dear friend’s niece, who in October developed sepsis when a Georgia hospital refused her a D&C after a miscarriage, will be taken off life support tomorrow.
I don’t know the names of the countless others who have suffered and will suffered because of anti-abortion laws.
But her name was Haley.
I don’t know the names of the countless others who have suffered and will suffered because of anti-abortion laws.
But her name was Haley.
March 19, 2025 at 5:28 AM
My dear friend’s niece, who in October developed sepsis when a Georgia hospital refused her a D&C after a miscarriage, will be taken off life support tomorrow.
I don’t know the names of the countless others who have suffered and will suffered because of anti-abortion laws.
But her name was Haley.
I don’t know the names of the countless others who have suffered and will suffered because of anti-abortion laws.
But her name was Haley.
Reposted by Devin Shuman (she/her)
The FBI is trying to criminalize Habitat for Humanity for receiving climate grants from the EPA.
Yes, the nonprofit that builds houses for low-income people.
This clearly demonstrates just how absurd and extreme the Trump regime has become.
It's targeted harassment.
Yes, the nonprofit that builds houses for low-income people.
This clearly demonstrates just how absurd and extreme the Trump regime has become.
It's targeted harassment.
March 15, 2025 at 9:01 PM
The FBI is trying to criminalize Habitat for Humanity for receiving climate grants from the EPA.
Yes, the nonprofit that builds houses for low-income people.
This clearly demonstrates just how absurd and extreme the Trump regime has become.
It's targeted harassment.
Yes, the nonprofit that builds houses for low-income people.
This clearly demonstrates just how absurd and extreme the Trump regime has become.
It's targeted harassment.
Reposted by Devin Shuman (she/her)
“For all this talk about free speech, this is direct censorship of scientific research.” www.nature.com/articles/d41...
Exclusive: NIH to terminate hundreds of active research grants
Studies that touch on LGBT+ health, gender identity and DEI in the biomedical workforce could be terminated, according to documents obtained by Nature.
www.nature.com
March 6, 2025 at 4:32 AM
“For all this talk about free speech, this is direct censorship of scientific research.” www.nature.com/articles/d41...
Reposted by Devin Shuman (she/her)
After we published a public audit on Saturday, Elon Musk’s DOGE deleted hundreds more claims from its mistake-plagued “wall of receipts,” wiping out an additional $4 billion in so-called savings that the group had claimed to secure for U.S. taxpayers.
March 3, 2025 at 7:19 PM
After we published a public audit on Saturday, Elon Musk’s DOGE deleted hundreds more claims from its mistake-plagued “wall of receipts,” wiping out an additional $4 billion in so-called savings that the group had claimed to secure for U.S. taxpayers.
I am beyond thrilled to see this group grow out of the unofficial I created previous years by offering to send cards to those who didn't pass a cycle and then connecting them via email. Madison Burns, MS, CGC is amazing for doing this! *I am still here to send cards too
March 2, 2025 at 8:31 PM
I am beyond thrilled to see this group grow out of the unofficial I created previous years by offering to send cards to those who didn't pass a cycle and then connecting them via email. Madison Burns, MS, CGC is amazing for doing this! *I am still here to send cards too
Reposted by Devin Shuman (she/her)
Re: misleading claims that disabled people "love" sheltered workshops: Journalists found that "The seemingly widespread support among sheltered workshop employees & their families masked the failure of the state to provide them with meaningful employment options."
www.propublica.org/article/what...
www.propublica.org/article/what...
What the Disability Community Told Us About Sheltered Workshops
Reporter Madison Hopkins tells us how she learned the context behind what she was hearing from Missouri’s disabled workers and their families.
www.propublica.org
February 27, 2025 at 5:23 AM
Re: misleading claims that disabled people "love" sheltered workshops: Journalists found that "The seemingly widespread support among sheltered workshop employees & their families masked the failure of the state to provide them with meaningful employment options."
www.propublica.org/article/what...
www.propublica.org/article/what...
honor of #RareDiseaseDay, GSF will be hosting a "Disability Community Connections" monthly Zoom meetup for GC with disabilities to connect and support one another. Join them on the fourth Tuesday of every month at 12pm PST. Register here: shorturl.at/FeFTV GC grad students welcome!
Welcome! You are invited to join a meeting: Disability Community Connection: An informal hour to meet with other Disabled GCs to bond, share, and mentor.. After registering, you will receive a confirm...
Meeting the 4th Tuesday of every month at 12 pm PST/3 pm EST. Having connections to other disabled GCs is invaluable and so we wanted to create an informal, safe space where GCs and students with all ...
shorturl.at
February 28, 2025 at 11:49 PM
honor of #RareDiseaseDay, GSF will be hosting a "Disability Community Connections" monthly Zoom meetup for GC with disabilities to connect and support one another. Join them on the fourth Tuesday of every month at 12pm PST. Register here: shorturl.at/FeFTV GC grad students welcome!
perspectives.nsgc.org/Article/its-.... For rare disease day we ask, stop doubting GCs with genetic conditions in our ability to counsel patients about our condition
It's Time to Start Trusting Our Disabled Genetic Counselors
The article below reflects the personal opinions of the author(s) and does not reflect the views or opinions of the Perspectives editors or committee, or the National Society of Genetic Counselors (NS...
perspectives.nsgc.org
February 28, 2025 at 9:12 PM
perspectives.nsgc.org/Article/its-.... For rare disease day we ask, stop doubting GCs with genetic conditions in our ability to counsel patients about our condition
I was today years old when I remembered that the founder of ABA therapy was also a founder of conversion therapy...which tracks... but YIKES
en.m.wikipedia.org/wiki/Ole_Iva...
en.m.wikipedia.org/wiki/Ole_Iva...
Ole Ivar Lovaas - Wikipedia
en.m.wikipedia.org
February 11, 2025 at 4:04 AM
I was today years old when I remembered that the founder of ABA therapy was also a founder of conversion therapy...which tracks... but YIKES
en.m.wikipedia.org/wiki/Ole_Iva...
en.m.wikipedia.org/wiki/Ole_Iva...
Reposted by Devin Shuman (she/her)
Thousands of ICE press releases about decade-old enforcement actions topped search results, all updated with a timestamp from after Trump’s inauguration
www.theguardian.com/us-news/2025...
www.theguardian.com/us-news/2025...
US immigration is gaming Google to create a mirage of mass deportations
Thousands of press releases about decade-old enforcement actions topped search results, all updated with a timestamp from after Trump’s inauguration
www.theguardian.com
February 6, 2025 at 2:20 PM
Thousands of ICE press releases about decade-old enforcement actions topped search results, all updated with a timestamp from after Trump’s inauguration
www.theguardian.com/us-news/2025...
www.theguardian.com/us-news/2025...
Reposted by Devin Shuman (she/her)
"We will not retract published articles on request by an author on the basis that they contain so-called banned words"
@bmj.com takes a stand: "Medical journal editors must resist CDC order and anti-gender ideology"
www.bmj.com/content/388/...
@bmj.com takes a stand: "Medical journal editors must resist CDC order and anti-gender ideology"
www.bmj.com/content/388/...
Medical journal editors must resist CDC order and anti-gender ideology
The news that on 31 January 2025 the Trump administration instructed scientists employed by the US Centers for Disease Control and Prevention (CDC) to withdraw or retract articles from medical and sci...
www.bmj.com
February 4, 2025 at 7:08 PM
"We will not retract published articles on request by an author on the basis that they contain so-called banned words"
@bmj.com takes a stand: "Medical journal editors must resist CDC order and anti-gender ideology"
www.bmj.com/content/388/...
@bmj.com takes a stand: "Medical journal editors must resist CDC order and anti-gender ideology"
www.bmj.com/content/388/...
Reposted by Devin Shuman (she/her)
Huge protest outside the USAID building today against Trump and Musk's illegal shutdown.
February 3, 2025 at 8:22 PM
Huge protest outside the USAID building today against Trump and Musk's illegal shutdown.
Disability is not the cause of that crash. Go screw yourself white house. 🤬
January 30, 2025 at 7:12 PM
Disability is not the cause of that crash. Go screw yourself white house. 🤬
Reposted by Devin Shuman (she/her)
Thank you @seattletimes-rss.bsky.social for publishing my Op-Ed today.
RFK Jr.’s “confirmation would undermine public health and betray hardworking health care professionals and researchers who work relentlessly to keep our patients safe and healthy”
www.seattletimes.com/opinion/a-nu...
RFK Jr.’s “confirmation would undermine public health and betray hardworking health care professionals and researchers who work relentlessly to keep our patients safe and healthy”
www.seattletimes.com/opinion/a-nu...
I saw during COVID what RFK Jr.'s brand of skepticism could do | Op-Ed
During COVID, when health professionals needed support from the public with vaccinations, I saw firsthand how misinformation led to death and trauma.
www.seattletimes.com
January 25, 2025 at 12:03 AM
Thank you @seattletimes-rss.bsky.social for publishing my Op-Ed today.
RFK Jr.’s “confirmation would undermine public health and betray hardworking health care professionals and researchers who work relentlessly to keep our patients safe and healthy”
www.seattletimes.com/opinion/a-nu...
RFK Jr.’s “confirmation would undermine public health and betray hardworking health care professionals and researchers who work relentlessly to keep our patients safe and healthy”
www.seattletimes.com/opinion/a-nu...
Reposted by Devin Shuman (she/her)
Teen Vogue coming through with excellent reporting on pressing issues:
“When ICE agents stake out neighborhoods, it affects everyone — families living in fear, businesses struggling to retain workers, schools wondering why children are missing class, & communities watching their social fabric fray”
“When ICE agents stake out neighborhoods, it affects everyone — families living in fear, businesses struggling to retain workers, schools wondering why children are missing class, & communities watching their social fabric fray”
How to Keep Tabs on ICE Agents Who May Be Surveilling Your Neighborhood
Here’s a step-by-step guide.
www.teenvogue.com
January 22, 2025 at 8:36 PM
Teen Vogue coming through with excellent reporting on pressing issues:
“When ICE agents stake out neighborhoods, it affects everyone — families living in fear, businesses struggling to retain workers, schools wondering why children are missing class, & communities watching their social fabric fray”
“When ICE agents stake out neighborhoods, it affects everyone — families living in fear, businesses struggling to retain workers, schools wondering why children are missing class, & communities watching their social fabric fray”
Reposted by Devin Shuman (she/her)
This whole interview @maanvisingh.bsky.social did with @sfdirewolf.bsky.social is good, and this bit in particular stood out to me as such an essential perspective on belonging, community care, and disability justice www.theguardian.com/society/2025...
January 10, 2025 at 4:53 AM
This whole interview @maanvisingh.bsky.social did with @sfdirewolf.bsky.social is good, and this bit in particular stood out to me as such an essential perspective on belonging, community care, and disability justice www.theguardian.com/society/2025...
Reposted by Devin Shuman (she/her)
Governor Gavin Newsom at the Pacific Palisades Fire on President Biden:
"It didn't take more than a text message...no politics, no hand-wringing, no kissing of the feet. President of the United States said 'yes, what else do you need? The emergency proclamation is being drafted as we speak.'"
👏
"It didn't take more than a text message...no politics, no hand-wringing, no kissing of the feet. President of the United States said 'yes, what else do you need? The emergency proclamation is being drafted as we speak.'"
👏
January 8, 2025 at 12:09 AM
Governor Gavin Newsom at the Pacific Palisades Fire on President Biden:
"It didn't take more than a text message...no politics, no hand-wringing, no kissing of the feet. President of the United States said 'yes, what else do you need? The emergency proclamation is being drafted as we speak.'"
👏
"It didn't take more than a text message...no politics, no hand-wringing, no kissing of the feet. President of the United States said 'yes, what else do you need? The emergency proclamation is being drafted as we speak.'"
👏
Reposted by Devin Shuman (she/her)
As of January 1, Minnesotans won’t have co-pays higher than $25 per month for prescription drugs used to treat chronic diseases, and we’re putting a $50 per month cap on all related medical supplies.
We’re putting the wellbeing of our people before the profits of big pharma.
We’re putting the wellbeing of our people before the profits of big pharma.
January 3, 2025 at 7:56 PM
As of January 1, Minnesotans won’t have co-pays higher than $25 per month for prescription drugs used to treat chronic diseases, and we’re putting a $50 per month cap on all related medical supplies.
We’re putting the wellbeing of our people before the profits of big pharma.
We’re putting the wellbeing of our people before the profits of big pharma.
Reposted by Devin Shuman (she/her)
If you think you might have Covid - or you’re just feeling sick - stay home this holiday season. Don’t be the reason someone’s loved one ends up in the hospital (or worse).
If you absolutely can’t stay home - wear a well fitted respirator. You could save a life.
If you absolutely can’t stay home - wear a well fitted respirator. You could save a life.
December 21, 2024 at 4:51 AM
If you think you might have Covid - or you’re just feeling sick - stay home this holiday season. Don’t be the reason someone’s loved one ends up in the hospital (or worse).
If you absolutely can’t stay home - wear a well fitted respirator. You could save a life.
If you absolutely can’t stay home - wear a well fitted respirator. You could save a life.
May I introduce y'all to my new favorite stickers? #mitochondria #sciencestickers #pridochondria #genechat found at fresh crayon store on Etsy!
December 19, 2024 at 3:14 AM
May I introduce y'all to my new favorite stickers? #mitochondria #sciencestickers #pridochondria #genechat found at fresh crayon store on Etsy!
Such a horrible reason to have such an important discussion. Health insurance in the US is broken and is killing millions 💔
Https://www.buzzfeed.com/morgansloss1/stories-of-healthcare-claims-being-denied
Https://www.buzzfeed.com/morgansloss1/stories-of-healthcare-claims-being-denied
After The UnitedHealthcare CEO Was Killed, People Share Stories Of Their Claims Being Denied
"My mom has stage 4 breast cancer and has maxed out her insurance, and her insurance is saying they won’t cover anything again."
www.buzzfeed.com
December 10, 2024 at 1:31 AM
Such a horrible reason to have such an important discussion. Health insurance in the US is broken and is killing millions 💔
Https://www.buzzfeed.com/morgansloss1/stories-of-healthcare-claims-being-denied
Https://www.buzzfeed.com/morgansloss1/stories-of-healthcare-claims-being-denied