Devin Shuman (she/her)
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mitogc.bsky.social
Devin Shuman (she/her)
@mitogc.bsky.social
Smithie 2014, mitochondrial disease, spoonie, rare disease, genetic counselor, 🏳️‍🌈 ♿️ opinions are my own
Today I got to start taking an experimental drug that hopefully will treat my form of mito. Who knows if it'll work but my family & medical team have worked hard for this moment. I feel incredibly lucky to have the oppurtunity to at least try!

I'll be posting more here: www.devinshuman.com/guk1
May 10, 2025 at 1:17 AM
Are you the flavor of chronically ill that bakes cookies for all of your doctors and delivers them to their offices on your day off as a thank you for taking care of your brother during his 1 month admission? #SpoonieStressBaker
April 21, 2025 at 6:13 PM
I am beyond thrilled to see this group grow out of the unofficial I created previous years by offering to send cards to those who didn't pass a cycle and then connecting them via email. Madison Burns, MS, CGC is amazing for doing this! *I am still here to send cards too
March 2, 2025 at 8:31 PM
May I introduce y'all to my new favorite stickers? #mitochondria #sciencestickers #pridochondria #genechat found at fresh crayon store on Etsy!
December 19, 2024 at 3:14 AM
People have received their cards so I no longer have to keep it a secret. Community is how we survive and maintain hope so when trump won again, I made some colorful cards to send to 50 friends and remind us we're not alone. And to validate ALL of the big feels.
December 1, 2024 at 7:55 PM
It's that time of the year again - GC boards. I didn't pass mine on my 1st try. If you didn't pass your boards, I see you, I validate all emotions, and I'd love to 1. send you a card and 2. connect you with others who didn't pass this cycle as well. DM your address/email
August 23, 2024 at 4:39 PM
August 16, 2024 at 4:29 PM
Happy pride all my genetics and rare disease friends! #GeneChat #LGBTGC
June 1, 2024 at 5:37 PM
Don't just "let" disabled people lead. Make leadership roles accessible and actively prioritize #disabled candidates.
January 15, 2024 at 6:09 AM
In October, the #mitochondria is the haunted house of the cell. Let's call it, the #frightochondria
October 30, 2023 at 3:28 AM