miss_malingerer
@missmalingerer.bsky.social
absolutely zonked on the ‘oids 🥳
100% Bedbound ME/CFS/Long Covid
100% Bedbound ME/CFS/Long Covid
Pinned
becoming more autistic by the hour
Reposted by miss_malingerer
sample of what it’s like to sit on my front porch every weekend (as filmed by my husband)
November 22, 2025 at 6:26 PM
sample of what it’s like to sit on my front porch every weekend (as filmed by my husband)
Reposted by miss_malingerer
✨ We’re thrilled to share that a generous donor has increased the matching fund, allowing us to triple donations up to $1 MILLION!
Until December 2, 2025, every dollar you give to OMF will be tripled. 💙 Donate now to have your gift tripled: www.omf.ngo?form=donate-....
Until December 2, 2025, every dollar you give to OMF will be tripled. 💙 Donate now to have your gift tripled: www.omf.ngo?form=donate-....
November 18, 2025 at 5:32 PM
✨ We’re thrilled to share that a generous donor has increased the matching fund, allowing us to triple donations up to $1 MILLION!
Until December 2, 2025, every dollar you give to OMF will be tripled. 💙 Donate now to have your gift tripled: www.omf.ngo?form=donate-....
Until December 2, 2025, every dollar you give to OMF will be tripled. 💙 Donate now to have your gift tripled: www.omf.ngo?form=donate-....
Reposted by miss_malingerer
absolutely zonked on the ‘oids 🥳
November 16, 2025 at 9:51 PM
absolutely zonked on the ‘oids 🥳
Reposted by miss_malingerer
It is near impossible to convince people that I’m telling the truth when I say “exercise damages my muscles” bc it’s so counter to everything we think we know about bodies.
Update on Dr. David Systrom Study led by Harvard MECFS Collaboration
A cardiopulmonary exercise test with muscle biopsy reveals reduced mitochondrial biomass and disturbed mitochondrial function in skeletal muscle.
www.omf.ngo/investigatio...
A cardiopulmonary exercise test with muscle biopsy reveals reduced mitochondrial biomass and disturbed mitochondrial function in skeletal muscle.
www.omf.ngo/investigatio...
Investigating PEM via Muscle Biopsy in ME/CFS and Long COVID - Open Medicine Foundation
The study explores the pathophysiology of post-exertional malaise (PEM), the hallmark symptom of ME/CFS.
www.omf.ngo
November 10, 2025 at 9:56 PM
It is near impossible to convince people that I’m telling the truth when I say “exercise damages my muscles” bc it’s so counter to everything we think we know about bodies.
Reposted by miss_malingerer
I don’t want to formulate words yet, but my friend Alice Wong, @sfdirewolf.bsky.social of the Disability Visibility Project, has passed.
Here are the words she left behind:
www.instagram.com/p/DREMDNBjnq...
Here are the words she left behind:
www.instagram.com/p/DREMDNBjnq...
Alice Wong on Instagram: "ID: Yellow background with black text "This is Alice's friend Sandy Ho, posting. Per Alice's wishes, this message is being shared at the time of her passing. Hi everyone, it ...
423 likes, 73 comments - alicatsamurai on November 14, 2025: "ID: Yellow background with black text "This is Alice's friend Sandy Ho, posting. Per Alice's wishes, this message is being shared at the t...
www.instagram.com
November 15, 2025 at 5:57 AM
I don’t want to formulate words yet, but my friend Alice Wong, @sfdirewolf.bsky.social of the Disability Visibility Project, has passed.
Here are the words she left behind:
www.instagram.com/p/DREMDNBjnq...
Here are the words she left behind:
www.instagram.com/p/DREMDNBjnq...
Reposted by miss_malingerer
Marriage equality does not exist for everyone until disabled people can marry without losing their benefits.
November 14, 2025 at 4:59 PM
Marriage equality does not exist for everyone until disabled people can marry without losing their benefits.
Reposted by miss_malingerer
New from the Maureen Hanson team in the US
Temporal dynamics of the plasma proteomic landscape reveals maladaptation in ME/CFS following exertion
www.mcponline.org/article/S153...
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
1/
Temporal dynamics of the plasma proteomic landscape reveals maladaptation in ME/CFS following exertion
www.mcponline.org/article/S153...
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
1/
November 14, 2025 at 12:47 PM
New from the Maureen Hanson team in the US
Temporal dynamics of the plasma proteomic landscape reveals maladaptation in ME/CFS following exertion
www.mcponline.org/article/S153...
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
1/
Temporal dynamics of the plasma proteomic landscape reveals maladaptation in ME/CFS following exertion
www.mcponline.org/article/S153...
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
1/
Reposted by miss_malingerer
I’m heartbroken at the loss of Leslie & for YB who he loved deeply & fiercely. For seven years, I had the privilege of knowing him—his mind, his humor, his boundless creativity, & unflinching political clarity. The world is immeasurably poorer without his voice. All gfm will cover funeral & expenses
I've been struggling with Long COVID for about three years. I'm seeking support to access new treatments and daily maintenance. Please consider donating or sharing. Every bit helps, and thank you all so much for the support. It has meant the world to me. gofund.me/d0a10512b
Donate to Support Leslie Lee III's Long COVID Recovery, organized by Leslie Lee III
Short version: I'm a teacher and writer seeking support for medical and ot… Leslie Lee III needs your support for Support Leslie Lee III's Long COVID Recovery
gofund.me
November 14, 2025 at 10:15 PM
I’m heartbroken at the loss of Leslie & for YB who he loved deeply & fiercely. For seven years, I had the privilege of knowing him—his mind, his humor, his boundless creativity, & unflinching political clarity. The world is immeasurably poorer without his voice. All gfm will cover funeral & expenses
Reposted by miss_malingerer
[through gritted teeth, visibly trembling] I must strive to maintain a sense of whimsy
November 10, 2025 at 2:02 AM
[through gritted teeth, visibly trembling] I must strive to maintain a sense of whimsy
i’m ascending. i’ve only listened to half of LUX so far, and i’ve already been raptured. from god’s lips to rosaliá’s ear
November 9, 2025 at 1:00 AM
i’m ascending. i’ve only listened to half of LUX so far, and i’ve already been raptured. from god’s lips to rosaliá’s ear
Reposted by miss_malingerer
Reposted by miss_malingerer
ok, guys, I've gotta say I'm really desperate for help now.
ko-fi.com/moriende
paypal.me/belzomalsh
CA/ven: kookysnell
#signalboost #mutualaid #helpsky #neisvoid
💸💕
ko-fi.com/moriende
paypal.me/belzomalsh
CA/ven: kookysnell
#signalboost #mutualaid #helpsky #neisvoid
💸💕
November 9, 2025 at 12:20 AM
ok, guys, I've gotta say I'm really desperate for help now.
ko-fi.com/moriende
paypal.me/belzomalsh
CA/ven: kookysnell
#signalboost #mutualaid #helpsky #neisvoid
💸💕
ko-fi.com/moriende
paypal.me/belzomalsh
CA/ven: kookysnell
#signalboost #mutualaid #helpsky #neisvoid
💸💕
Reposted by miss_malingerer
day 39 of fuck ME/CFS.
November 8, 2025 at 7:00 PM
day 39 of fuck ME/CFS.
does anyone have an astrologist recommendation? i really need someone to praise me over the phone
November 8, 2025 at 5:20 PM
does anyone have an astrologist recommendation? i really need someone to praise me over the phone
Reposted by miss_malingerer
A moving tribute to another young life lost to severe #MEcfs. Things have to change. #SevereMEcfs #IACC #LongCovid. www.instagram.com/p/DQwyde5ADX...
November 8, 2025 at 2:18 PM
A moving tribute to another young life lost to severe #MEcfs. Things have to change. #SevereMEcfs #IACC #LongCovid. www.instagram.com/p/DQwyde5ADX...
Reposted by miss_malingerer
Holding my cats little paw in my hand as he sleeps before remembering he steps in a litter box with these same precious toe beans
November 7, 2025 at 4:45 PM
Holding my cats little paw in my hand as he sleeps before remembering he steps in a litter box with these same precious toe beans
Reposted by miss_malingerer
people making light of their post-covid infection brain damage makes me so sad. it doesn’t have to be this way. masking is *extremely* effective in helping prevent a myriad of airborn illnesses. you don’t *have^ to get covid again if you just take basic precautions. covid damage is cumulative.
November 7, 2025 at 12:22 AM
people making light of their post-covid infection brain damage makes me so sad. it doesn’t have to be this way. masking is *extremely* effective in helping prevent a myriad of airborn illnesses. you don’t *have^ to get covid again if you just take basic precautions. covid damage is cumulative.
Reposted by miss_malingerer
As a philosopher I come from a rich tradition of being annoying af
November 7, 2025 at 6:48 PM
As a philosopher I come from a rich tradition of being annoying af
Reposted by miss_malingerer
In a few minutes I'll be making some live posts during this event:
"**Clinician's Roundtable: Microdosing GLP-1/GIP Receptor Agonists in MECFS and Long Covid"**
Patients with these difficult chronic conditions & their physicians are always experimenting with FDA-approved medicines & […]
"**Clinician's Roundtable: Microdosing GLP-1/GIP Receptor Agonists in MECFS and Long Covid"**
Patients with these difficult chronic conditions & their physicians are always experimenting with FDA-approved medicines & […]
Original post on mas.to
mas.to
October 17, 2025 at 5:57 PM
In a few minutes I'll be making some live posts during this event:
"**Clinician's Roundtable: Microdosing GLP-1/GIP Receptor Agonists in MECFS and Long Covid"**
Patients with these difficult chronic conditions & their physicians are always experimenting with FDA-approved medicines & […]
"**Clinician's Roundtable: Microdosing GLP-1/GIP Receptor Agonists in MECFS and Long Covid"**
Patients with these difficult chronic conditions & their physicians are always experimenting with FDA-approved medicines & […]
Reposted by miss_malingerer
please read mori's text-based zines! life as a person with very severe MECFS who is more than just bed-bound, but bed-living, are critical perspectives you NEED as an advocate for disabled rights/justice.
support their survival however possible. share / don8
support their survival however possible. share / don8
my UN-SERIES zine texts on life with very severe ME/CFS are live. I'm bedridden & didn't meet my Oct goal. now need Nov's $500 for basics. if my writing resonates, please help.
read: moriende.com/category/the-un-series/
support: ko-fi.com/moriende
paypal: paypal.me/belzomalsh
CA/ven: kookysnell
read: moriende.com/category/the-un-series/
support: ko-fi.com/moriende
paypal: paypal.me/belzomalsh
CA/ven: kookysnell
![a webpage titled "THE UN-SERIES." four blue boxes are displayed in a grid.
top left box:
header: "THE UN-SERIES."
title: "UNBELIEVED (zine text 3)"
byline: "kookysnell / September 13, 2025."
text: "a documentation of harm. a refusal to disappear. I am so very tired. I don't want to have to fight […]"
top middle box:
header: "THE UN-SERIES."
title: "UNSUPPORTED (zine text 2)"
byline: "kookysnell / September 13, 2025."
text: "I'd do anything to be able to move through the day like it's nothing. I miss choosing what to do [...]"
top right box:
header: "THE UN-SERIES."
title: "KEY TERMS FOR THE UN-SERIES"
byline: "kookysnell / September 11, 2025."
text: "this page explains the terms and abbreviations used throughout the UN-SERIES. it's here so you can follow along without getting [...]"
bottom left box:
header: "THE UN-SERIES."
title: "UNSEEN (zine text 1)"
byline: "kookysnell / September 11, 2025."
text: "it's 2025. I'm still masking. I'm still tracking surges that I worry will never end. I'm bedridden with long COVID, which for me has meant MCAS, POTS, and ME/CFS, and people are out there choosing [...]"](https://cdn.bsky.app/img/feed_thumbnail/plain/did:plc:bdl3pfajlkmcv6by25b34mrw/bafkreicgz6rjvxb76v2pj3fiuiljgdulvzgoa2lymztsqtqskxnyimwqaq@jpeg)
November 7, 2025 at 1:25 AM
please read mori's text-based zines! life as a person with very severe MECFS who is more than just bed-bound, but bed-living, are critical perspectives you NEED as an advocate for disabled rights/justice.
support their survival however possible. share / don8
support their survival however possible. share / don8
Reposted by miss_malingerer
this is what will show up if you invite me to your ai & copyright law conference
November 6, 2025 at 6:40 PM
this is what will show up if you invite me to your ai & copyright law conference