@andreajoliat.bsky.social
MEcfs advocate, parent of son with MEcfs.
Reposted
We're back to business with our January Newsletter
massme.monkeypod.io/mailcoach/we...
#massmecfs #chronicfatigue #MyalgicEncephalomyelitis #fibromyalgia #chronicillness #invisibleillness #longcovid
massme.monkeypod.io/mailcoach/we...
#massmecfs #chronicfatigue #MyalgicEncephalomyelitis #fibromyalgia #chronicillness #invisibleillness #longcovid
January 11, 2026 at 5:18 PM
We're back to business with our January Newsletter
massme.monkeypod.io/mailcoach/we...
#massmecfs #chronicfatigue #MyalgicEncephalomyelitis #fibromyalgia #chronicillness #invisibleillness #longcovid
massme.monkeypod.io/mailcoach/we...
#massmecfs #chronicfatigue #MyalgicEncephalomyelitis #fibromyalgia #chronicillness #invisibleillness #longcovid
Reposted
The Guardian: 'Trump administration escalates attack on Minnesota with more immigration agents'
“I don’t think any government in history has had to fight a war against the federal government every single day,” the state’s governor said
“We are under assault.."
www.theguardian.com/us-news/2026...
“I don’t think any government in history has had to fight a war against the federal government every single day,” the state’s governor said
“We are under assault.."
www.theguardian.com/us-news/2026...
Trump administration escalates attack on Minnesota with more immigration agents
Another 2,000 ICE and homeland security agents will reportedly head to the state, targeting immigrant populations
www.theguardian.com
January 11, 2026 at 4:19 PM
The Guardian: 'Trump administration escalates attack on Minnesota with more immigration agents'
“I don’t think any government in history has had to fight a war against the federal government every single day,” the state’s governor said
“We are under assault.."
www.theguardian.com/us-news/2026...
“I don’t think any government in history has had to fight a war against the federal government every single day,” the state’s governor said
“We are under assault.."
www.theguardian.com/us-news/2026...
Reposted
ME Research UK:
Netherlands research body (ZonMw) has launched a c€3.5m call for research applications into clinical research into effectiveness of existing medicines (off-patent and available in the Netherlands) which may prove effective for ME/CFS. tinyurl.com/kzrxwbwp
#MEcfs #CFS #PwME
Netherlands research body (ZonMw) has launched a c€3.5m call for research applications into clinical research into effectiveness of existing medicines (off-patent and available in the Netherlands) which may prove effective for ME/CFS. tinyurl.com/kzrxwbwp
#MEcfs #CFS #PwME
January 11, 2026 at 4:19 PM
ME Research UK:
Netherlands research body (ZonMw) has launched a c€3.5m call for research applications into clinical research into effectiveness of existing medicines (off-patent and available in the Netherlands) which may prove effective for ME/CFS. tinyurl.com/kzrxwbwp
#MEcfs #CFS #PwME
Netherlands research body (ZonMw) has launched a c€3.5m call for research applications into clinical research into effectiveness of existing medicines (off-patent and available in the Netherlands) which may prove effective for ME/CFS. tinyurl.com/kzrxwbwp
#MEcfs #CFS #PwME
Reposted
The Guardian: '‘This is not normal’: Minneapolis on edge and angry after ICE killing of woman amid federal surge'
'City targeted by Trump has seen swarm of immigration agents on the streets – and residents say the tension is palpable'
www.theguardian.com/us-news/2026...
'City targeted by Trump has seen swarm of immigration agents on the streets – and residents say the tension is palpable'
www.theguardian.com/us-news/2026...
‘This is not normal’: Minneapolis on edge and angry after ICE killing of woman amid federal surge
City targeted by Trump has seen swarm of immigration agents on the streets – and residents say the tension is palpable
www.theguardian.com
January 11, 2026 at 4:29 PM
The Guardian: '‘This is not normal’: Minneapolis on edge and angry after ICE killing of woman amid federal surge'
'City targeted by Trump has seen swarm of immigration agents on the streets – and residents say the tension is palpable'
www.theguardian.com/us-news/2026...
'City targeted by Trump has seen swarm of immigration agents on the streets – and residents say the tension is palpable'
www.theguardian.com/us-news/2026...
Reposted
December Newsletter, Holiday Edition!
Sending you warm thoughts for the holiday season.
massme.monkeypod.io/mailcoach/we...
#massmecfs #MyalgicEncephalomyelitis #MECFS #chronicfatigue #fibromyalgia #longcovid #chronicillness
Sending you warm thoughts for the holiday season.
massme.monkeypod.io/mailcoach/we...
#massmecfs #MyalgicEncephalomyelitis #MECFS #chronicfatigue #fibromyalgia #longcovid #chronicillness
December 19, 2025 at 8:32 PM
December Newsletter, Holiday Edition!
Sending you warm thoughts for the holiday season.
massme.monkeypod.io/mailcoach/we...
#massmecfs #MyalgicEncephalomyelitis #MECFS #chronicfatigue #fibromyalgia #longcovid #chronicillness
Sending you warm thoughts for the holiday season.
massme.monkeypod.io/mailcoach/we...
#massmecfs #MyalgicEncephalomyelitis #MECFS #chronicfatigue #fibromyalgia #longcovid #chronicillness
Reposted
May you find moments of beauty, connection, and gentle rest in the new year.
December 30, 2025 at 3:27 AM
May you find moments of beauty, connection, and gentle rest in the new year.
Reposted
USA Today: 'Chronic fatigue syndrome drains millions of people, and still defies easy answers'
'The core of this illness manifests as a severe and incapacitating fatigue..." says Dr. Hector Bonilla
'The hallmark symptom..is “post-exertional malaise"
www.usatoday.com/story/life/h...
'The core of this illness manifests as a severe and incapacitating fatigue..." says Dr. Hector Bonilla
'The hallmark symptom..is “post-exertional malaise"
www.usatoday.com/story/life/h...
Chronic fatigue syndrome drains millions of people, and still defies easy answers
Here’s what chronic fatigue syndrome is, why it happens and how people diagnosed with it can find relief.
www.usatoday.com
December 2, 2025 at 2:27 PM
USA Today: 'Chronic fatigue syndrome drains millions of people, and still defies easy answers'
'The core of this illness manifests as a severe and incapacitating fatigue..." says Dr. Hector Bonilla
'The hallmark symptom..is “post-exertional malaise"
www.usatoday.com/story/life/h...
'The core of this illness manifests as a severe and incapacitating fatigue..." says Dr. Hector Bonilla
'The hallmark symptom..is “post-exertional malaise"
www.usatoday.com/story/life/h...
Reposted
⏰ 3x Match Ends Today! Today is #GivingTuesday, marking the final hours of our Triple Giving November campaign!
There are just a FEW HOURS LEFT to have your donation tripled —up to $1 million! 💙 Give today and help make a difference: www.omf.ngo?form=donate-...
#pwME #pwLC #MECFS #LongCOVID
There are just a FEW HOURS LEFT to have your donation tripled —up to $1 million! 💙 Give today and help make a difference: www.omf.ngo?form=donate-...
#pwME #pwLC #MECFS #LongCOVID
December 2, 2025 at 3:39 PM
⏰ 3x Match Ends Today! Today is #GivingTuesday, marking the final hours of our Triple Giving November campaign!
There are just a FEW HOURS LEFT to have your donation tripled —up to $1 million! 💙 Give today and help make a difference: www.omf.ngo?form=donate-...
#pwME #pwLC #MECFS #LongCOVID
There are just a FEW HOURS LEFT to have your donation tripled —up to $1 million! 💙 Give today and help make a difference: www.omf.ngo?form=donate-...
#pwME #pwLC #MECFS #LongCOVID
Reposted
Yale Medicine: Quick Question: Do We Know What Causes Long COVID?
Iwasaki: "There’s been so much progress that’s been made in this area of Long COVID research...there are hypotheses that we’re testing..both at the basic science level and..through..clinical trials'
medicine.yale.edu/news-article...
Iwasaki: "There’s been so much progress that’s been made in this area of Long COVID research...there are hypotheses that we’re testing..both at the basic science level and..through..clinical trials'
medicine.yale.edu/news-article...
Quick Question: Do We Know What Causes Long COVID?
During an interview on the Health & Veritas podcast, Akiko Iwasaki, PhD, discussed post-acute infection syndromes, like Long COVID, and what we’re learning
medicine.yale.edu
December 1, 2025 at 4:30 PM
Yale Medicine: Quick Question: Do We Know What Causes Long COVID?
Iwasaki: "There’s been so much progress that’s been made in this area of Long COVID research...there are hypotheses that we’re testing..both at the basic science level and..through..clinical trials'
medicine.yale.edu/news-article...
Iwasaki: "There’s been so much progress that’s been made in this area of Long COVID research...there are hypotheses that we’re testing..both at the basic science level and..through..clinical trials'
medicine.yale.edu/news-article...
Reposted
It’s time to reduce the suffering and symptom severity faced by people with #MECFS & #LongCOVID. Your donation of any amount supports collaborative research to find answers.
Let's make these final hours count. Donate today to have your gift matched 3x: www.omf.ngo?form=donate-...
Let's make these final hours count. Donate today to have your gift matched 3x: www.omf.ngo?form=donate-...
December 1, 2025 at 10:01 PM
It’s time to reduce the suffering and symptom severity faced by people with #MECFS & #LongCOVID. Your donation of any amount supports collaborative research to find answers.
Let's make these final hours count. Donate today to have your gift matched 3x: www.omf.ngo?form=donate-...
Let's make these final hours count. Donate today to have your gift matched 3x: www.omf.ngo?form=donate-...
Reposted
'I want to live my life': Fibromyalgia sufferers being failed by NHS www.bbc.com/news/article...
'I want to live my life': Fibromyalgia sufferers being failed by NHS
Researchers and patients are calling for the NHS to overhaul its care of fibromyalgia patients.
www.bbc.com
November 28, 2025 at 12:14 AM
'I want to live my life': Fibromyalgia sufferers being failed by NHS www.bbc.com/news/article...
Reposted
We want to introduce a new style of research communications that we plan on starting (on a trial basis) in 2026 when OMF publishes a research paper: OMF Journal Club. Learn more: ow.ly/iKw150XuO2G.
💛All donations to OMF are TRIPLED! Donate hope: ow.ly/3gmX50XuO2I.
💛All donations to OMF are TRIPLED! Donate hope: ow.ly/3gmX50XuO2I.
November 20, 2025 at 5:05 PM
We want to introduce a new style of research communications that we plan on starting (on a trial basis) in 2026 when OMF publishes a research paper: OMF Journal Club. Learn more: ow.ly/iKw150XuO2G.
💛All donations to OMF are TRIPLED! Donate hope: ow.ly/3gmX50XuO2I.
💛All donations to OMF are TRIPLED! Donate hope: ow.ly/3gmX50XuO2I.
Reposted
Fierce Biotech: ''NIH grant cuts have disrupted hundreds of clinical trials, study finds"
'...Bhattacharya has discussed the importance of funding research on Long COVID in interviews...'
www.fiercebiotech.com/research/nih...
'...Bhattacharya has discussed the importance of funding research on Long COVID in interviews...'
www.fiercebiotech.com/research/nih...
NIH grant cuts have disrupted hundreds of clinical trials, study finds
The second Trump administration has been defined by widespread cuts to federal spending, including at the National Institutes of Health (NIH). | The second Trump administration has been defined by wid...
www.fiercebiotech.com
November 18, 2025 at 3:13 PM
Fierce Biotech: ''NIH grant cuts have disrupted hundreds of clinical trials, study finds"
'...Bhattacharya has discussed the importance of funding research on Long COVID in interviews...'
www.fiercebiotech.com/research/nih...
'...Bhattacharya has discussed the importance of funding research on Long COVID in interviews...'
www.fiercebiotech.com/research/nih...
Reposted
In this interview, Dr. Jonas Bergquist and Dr. Alain Moreau talk about their main ideas behind #MECFS, including an immune system that is too active in the brain and spinal cord, inherited factors, and how genes are expressed.
👉 ow.ly/fUYM50XtwW1.
👉 ow.ly/fUYM50XtwW1.
November 18, 2025 at 3:54 PM
In this interview, Dr. Jonas Bergquist and Dr. Alain Moreau talk about their main ideas behind #MECFS, including an immune system that is too active in the brain and spinal cord, inherited factors, and how genes are expressed.
👉 ow.ly/fUYM50XtwW1.
👉 ow.ly/fUYM50XtwW1.
Reposted
The Massachusetts Port Authority (Massport) has been lying to locals about US Immigration and Customs Enforcement (ICE) operations at Hanscom Air Field.
Read more at this link: lexobserver.org/2025/11/12/l...
Read more at this link: lexobserver.org/2025/11/12/l...
Local activist catches Massport in ICE-related lie
Emails between Massport and an airfield operator at Hanscom show Massport has gotten advanced notice of ICE flights out of Hanscom. Massport has repeatedly denied getting such notice when asked.
lexobserver.org
November 16, 2025 at 10:34 PM
The Massachusetts Port Authority (Massport) has been lying to locals about US Immigration and Customs Enforcement (ICE) operations at Hanscom Air Field.
Read more at this link: lexobserver.org/2025/11/12/l...
Read more at this link: lexobserver.org/2025/11/12/l...
Reposted
A moving tribute to another young life lost to severe #MEcfs. Things have to change. #SevereMEcfs #IACC #LongCovid. www.instagram.com/p/DQwyde5ADX...
November 8, 2025 at 2:18 PM
A moving tribute to another young life lost to severe #MEcfs. Things have to change. #SevereMEcfs #IACC #LongCovid. www.instagram.com/p/DQwyde5ADX...
Reposted
Well deserved strategic funding - €50 million *per year* for a decade - on ME/CFS and Long Covid research. Spent wisely this could be a game changer. Germany now leads & other countries need to follow. Goal to “decipher the causes and mechanisms and develop new treatments”. #MEcfs #longcovid
November 14, 2025 at 11:15 AM
Well deserved strategic funding - €50 million *per year* for a decade - on ME/CFS and Long Covid research. Spent wisely this could be a game changer. Germany now leads & other countries need to follow. Goal to “decipher the causes and mechanisms and develop new treatments”. #MEcfs #longcovid
Reposted
2) The decade runs from 2026 to 2036 and and has a total budget of € 500 million, so it will be approximately € 50 million per year.
In comparison, NIH funding for ME/CFS in the US is < $15 million.
In comparison, NIH funding for ME/CFS in the US is < $15 million.
November 14, 2025 at 8:30 AM
2) The decade runs from 2026 to 2036 and and has a total budget of € 500 million, so it will be approximately € 50 million per year.
In comparison, NIH funding for ME/CFS in the US is < $15 million.
In comparison, NIH funding for ME/CFS in the US is < $15 million.
Reposted
1) 🇩🇪 Some really good news! Germany plans to invest half a billion euros in research on diseases such as ME/CFS and Long Covid.
They are calling it "The National Decade Against Post-Infectious Diseases"
They are calling it "The National Decade Against Post-Infectious Diseases"
November 14, 2025 at 8:30 AM
1) 🇩🇪 Some really good news! Germany plans to invest half a billion euros in research on diseases such as ME/CFS and Long Covid.
They are calling it "The National Decade Against Post-Infectious Diseases"
They are calling it "The National Decade Against Post-Infectious Diseases"
A moving tribute to another young life lost to severe #MEcfs. Things have to change. #SevereMEcfs #IACC #LongCovid. www.instagram.com/p/DQwyde5ADX...
November 8, 2025 at 2:18 PM
A moving tribute to another young life lost to severe #MEcfs. Things have to change. #SevereMEcfs #IACC #LongCovid. www.instagram.com/p/DQwyde5ADX...
Reposted
Registration is now open for our 2025 Annual Meeting with MIT Research Scientist, Beth Pollack!
massmecfs.org/events/annua...
#massmecfs #MyalgicEncephalomyelitis #MECFS #fibromyalgia #chronicfatigue #longcovid #invisibleillness
massmecfs.org/events/annua...
#massmecfs #MyalgicEncephalomyelitis #MECFS #fibromyalgia #chronicfatigue #longcovid #invisibleillness
October 6, 2025 at 7:16 PM
Registration is now open for our 2025 Annual Meeting with MIT Research Scientist, Beth Pollack!
massmecfs.org/events/annua...
#massmecfs #MyalgicEncephalomyelitis #MECFS #fibromyalgia #chronicfatigue #longcovid #invisibleillness
massmecfs.org/events/annua...
#massmecfs #MyalgicEncephalomyelitis #MECFS #fibromyalgia #chronicfatigue #longcovid #invisibleillness
Reposted
Hey, #MedSky & #SciSky! New text from Elsevier out today, "The Scientific Basis of Fatigue", with multiple chapters on different diseases, including #MECFS, COVID, Parkinson's, stroke and MS.
Proud to be the co-author of the #MECFS chapter with authors from Mayo and Bateman-Horne! More info:🧪
Proud to be the co-author of the #MECFS chapter with authors from Mayo and Bateman-Horne! More info:🧪
Stellar new work from @grachstephanie.bsky.social, @exceedhergrasp1.bsky.social, @batemanhornecenter.bsky.social's Bell and Yellman & @raviganeshmd.bsky.social in the Elsevier text 'The Scientific Basis of Fatigue'! The book has chapters on #MECFS, COVID, Parkinson’s, stroke, and multiple sclerosis.
October 1, 2025 at 5:16 PM
Reposted
We are so happy to announce that we will have Beth Pollack as our guest speaker for our Annual Meeting! Details coming soon!
MassMECFS.org
MassMECFS.org
September 26, 2025 at 2:20 PM
We are so happy to announce that we will have Beth Pollack as our guest speaker for our Annual Meeting! Details coming soon!
MassMECFS.org
MassMECFS.org
Reposted
MassME is proud to sign on to this letter encouraging subgroup tracking and analysis in the NIH RECOVER TLC clinical trials for Long COVID.
massmecfs.org/advocacy/nat...
#massmecfs #MEAction #SolveMe #openmedicinefoundation #batemanhornecenter #renegaderesearch #redefiningmecfs #corecommunity
massmecfs.org/advocacy/nat...
#massmecfs #MEAction #SolveMe #openmedicinefoundation #batemanhornecenter #renegaderesearch #redefiningmecfs #corecommunity
NIH RECOVER TLC clinical trials for Long COVID. - Massachusetts ME/CFS & FM
massmecfs.org
September 17, 2025 at 1:27 PM
MassME is proud to sign on to this letter encouraging subgroup tracking and analysis in the NIH RECOVER TLC clinical trials for Long COVID.
massmecfs.org/advocacy/nat...
#massmecfs #MEAction #SolveMe #openmedicinefoundation #batemanhornecenter #renegaderesearch #redefiningmecfs #corecommunity
massmecfs.org/advocacy/nat...
#massmecfs #MEAction #SolveMe #openmedicinefoundation #batemanhornecenter #renegaderesearch #redefiningmecfs #corecommunity
Reposted
Latest news, MassME events, research studies and more...
massmecfs.org/resources/ne...
#massmecfs #MyalgicEncephalomyelitis #MECFS #fibromyalgia #longcovid #chronicfatigue #chronicillness #invisibledisablity
massmecfs.org/resources/ne...
#massmecfs #MyalgicEncephalomyelitis #MECFS #fibromyalgia #longcovid #chronicfatigue #chronicillness #invisibledisablity
September 12, 2025 at 6:36 PM
Latest news, MassME events, research studies and more...
massmecfs.org/resources/ne...
#massmecfs #MyalgicEncephalomyelitis #MECFS #fibromyalgia #longcovid #chronicfatigue #chronicillness #invisibledisablity
massmecfs.org/resources/ne...
#massmecfs #MyalgicEncephalomyelitis #MECFS #fibromyalgia #longcovid #chronicfatigue #chronicillness #invisibledisablity