do you enjoy the group a lot?

hey i’ve thought about joining the pillow writers, but i am on the extremely limited side bring 100% bedbound and only able to handle phone and light for smallish periods of time

me too—it’s frustrating that you simultaneously need/want to forget but also need to not forget so you don’t overdo it and trigger everything!!! maddening

#neworleans #nola

interesting! can I ask which philosopher you are talking about?

Same. We had a long covid. remote book club, and she sent us signed bookmarks when we read Disability Visibility

haha yeah i wrote this but i also have a pile of opioids so

oh finally an epidemiologist not existing in cognitive dissonance

i’m impressed that you came all the way back to working in only a year and a half wow

yeah I mega crashed 10 months ago and haven’t been able to leave bed at all since. I radical rest a lot. It’a helped me get a lot of cognitive energy back (previously i couldn’t use phone at all or read at all). I haven’t heard of nigella, but I’m on the rest of those (haven’t tried coq10 yet)

can i ask about your mega crash? how severe did you get? did certain meds allow you to get to a level where you could work again?

And thank you for all your advocacy work!

happy birthday 🎉 can i ask about your illness progression over the decades? did you fluctuate a lot in severity?

Look I’ve been trapped in a cage shaped like a bed for 10 months now, so where is my allotted cocaine?