Margaret L
@margaretlaverick.bsky.social
Caring for my daughter diagnosed #MyalgicEncephalomyelitis 25 years ago, who is surviving 24/7 bedbound. Fighting for research #ME/CFS LongCovid #MillionsMissing
Reposted by Margaret L
CHIPPING AWAY AT THE MYSTERIES OF #ME/CFS
Renowned geneticist has spent the past 12 years focused on the disease that has taken so much from his son
By Rachel Tompa
In @stanfordmedicine.bsky.social
@whitneydafoe.bsky.social
@janetdafoe.bsky.social
Renowned geneticist has spent the past 12 years focused on the disease that has taken so much from his son
By Rachel Tompa
In @stanfordmedicine.bsky.social
@whitneydafoe.bsky.social
@janetdafoe.bsky.social
Discover how Stanford Medicine is breaking the cycle of chronic diseases with innovative prevention, diagnostic and treatment approaches that empower people to thrive despite their chronic illnesses.
stan.md/46QRjAH
stan.md/46QRjAH
Innovations to help chronically ill people thrive
Stanford Medicine experts are developing innovative approaches to preventing, diagnosing and treating chronic diseases so people can live healthier lives.
stan.md
October 15, 2025 at 3:19 PM
CHIPPING AWAY AT THE MYSTERIES OF #ME/CFS
Renowned geneticist has spent the past 12 years focused on the disease that has taken so much from his son
By Rachel Tompa
In @stanfordmedicine.bsky.social
@whitneydafoe.bsky.social
@janetdafoe.bsky.social
Renowned geneticist has spent the past 12 years focused on the disease that has taken so much from his son
By Rachel Tompa
In @stanfordmedicine.bsky.social
@whitneydafoe.bsky.social
@janetdafoe.bsky.social
Reposted by Margaret L
The majority of doctors supported the recent strike. So why did the Department of Health suggest the opposite?
www.theguardian.com/commentisfre...
www.theguardian.com/commentisfre...
The majority of doctors supported the recent strike. So why did the Department of Health suggest the opposite? | Peter Kellner
It would seem that poll data was cherrypicked and then used to brief the Times. Such distortion of facts from a public body should alarm us all, says former president of YouGov Peter Kellner
www.theguardian.com
November 25, 2025 at 10:42 PM
The majority of doctors supported the recent strike. So why did the Department of Health suggest the opposite?
www.theguardian.com/commentisfre...
www.theguardian.com/commentisfre...
Reposted by Margaret L
Motability does not help you buy a car, #R4Today - it helps eligible people lease a vehicle. I pay a hefty deposit on my son’s wheelchair-adapted van, plus monthly payments from his disability benefits. Without it, he would be literally trapped in my house. Motability is essential.
October 18, 2025 at 7:26 AM
Motability does not help you buy a car, #R4Today - it helps eligible people lease a vehicle. I pay a hefty deposit on my son’s wheelchair-adapted van, plus monthly payments from his disability benefits. Without it, he would be literally trapped in my house. Motability is essential.
Reposted by Margaret L
Steve is losing his marbles
August 19, 2025 at 7:42 PM
Steve is losing his marbles
@annaturley.bsky.social
NOT what we expect from a labour government
NOT what we expect from a labour government
✍️Our statement on Labour's benefit concessions - which are not fit for purpose.
You can tag your MP in the comments for impact 🌟
MP letter template from @trusselluk.bsky.social 👇
🖇️ tinyurl.com/374uea2w
#disabilitycuts
You can tag your MP in the comments for impact 🌟
MP letter template from @trusselluk.bsky.social 👇
🖇️ tinyurl.com/374uea2w
#disabilitycuts
June 28, 2025 at 2:34 PM
@annaturley.bsky.social
NOT what we expect from a labour government
NOT what we expect from a labour government
Reposted by Margaret L
⏰ Closing soon! We’re looking for a Research Scientist to join Dr Evelien Adriaenssens's group to study bacteriophages, drug resistance and genetic evolution of Salmonella 🦠
💷 £36,720 to £39,750
🗓️ Apply by 2 July 2025
➡️ buff.ly/7M2mDaa
💷 £36,720 to £39,750
🗓️ Apply by 2 July 2025
➡️ buff.ly/7M2mDaa
June 28, 2025 at 2:02 PM
⏰ Closing soon! We’re looking for a Research Scientist to join Dr Evelien Adriaenssens's group to study bacteriophages, drug resistance and genetic evolution of Salmonella 🦠
💷 £36,720 to £39,750
🗓️ Apply by 2 July 2025
➡️ buff.ly/7M2mDaa
💷 £36,720 to £39,750
🗓️ Apply by 2 July 2025
➡️ buff.ly/7M2mDaa
Fabulous, can't stop smiling
June 5, 2025 at 10:54 PM
Fabulous, can't stop smiling
Reposted by Margaret L
More than 100 of the UK’s most high-profile disabled people, including Liz Carr, Ruth Madeley and Rosie Jones, urge the Prime Minister to abandon the “catastrophic plans to cut disability benefits”.
My exclusive in today’s Guardian: www.theguardian.com/society/2025...
My exclusive in today’s Guardian: www.theguardian.com/society/2025...
Disabled celebrities urge Keir Starmer to scrap ‘inhumane’ benefit cuts
Exclusive: More than 100 people including Liz Carr and Rosie Jones sign letter criticising Pip and universal credit changes
www.theguardian.com
May 27, 2025 at 6:46 PM
More than 100 of the UK’s most high-profile disabled people, including Liz Carr, Ruth Madeley and Rosie Jones, urge the Prime Minister to abandon the “catastrophic plans to cut disability benefits”.
My exclusive in today’s Guardian: www.theguardian.com/society/2025...
My exclusive in today’s Guardian: www.theguardian.com/society/2025...
Reposted by Margaret L
Well worth a watch, this BBC series on Michelle Mone. Our work features heavily in Episode 2, The Fall. www.bbc.co.uk/iplayer/episode/m002ctw2
The Rise and Fall of Michelle Mone - Series 1: 1. The Rise
The life of Michelle Mone was a rags-to-riches story that seemed too good to be true. Now, she is under investigation for fraud and facing a possible prison sentence.
www.bbc.co.uk
May 27, 2025 at 7:36 PM
Well worth a watch, this BBC series on Michelle Mone. Our work features heavily in Episode 2, The Fall. www.bbc.co.uk/iplayer/episode/m002ctw2
Reposted by Margaret L
Today’s story: Rachel Reeves’ own CLP will call her to abandon plans to cut disability benefits as rebellion among MPs grows.
There’s increasing anger at Starmer’s office ignoring concerns over the policy. One MP told me: “They almost see it as a virility test.” www.theguardian.com/politics/202...
There’s increasing anger at Starmer’s office ignoring concerns over the policy. One MP told me: “They almost see it as a virility test.” www.theguardian.com/politics/202...
Reeves faces anger from her local party over plans to cut disability benefits
Labour members from Leeds West and Pudsey to write letter to chancellor over plans to reduce Pip payments
www.theguardian.com
May 17, 2025 at 5:29 PM
Today’s story: Rachel Reeves’ own CLP will call her to abandon plans to cut disability benefits as rebellion among MPs grows.
There’s increasing anger at Starmer’s office ignoring concerns over the policy. One MP told me: “They almost see it as a virility test.” www.theguardian.com/politics/202...
There’s increasing anger at Starmer’s office ignoring concerns over the policy. One MP told me: “They almost see it as a virility test.” www.theguardian.com/politics/202...
Reposted by Margaret L
Keir Starmer Is Braced For A Huge Labour Rebellion Over Welfare Cuts
More than 100 MPs have signed a letter urging the government to think again
I’m joining @trusselluk.bsky.social
in calling on the government to change course. This is how you can help👇
action.trussell.org.uk/disability-cuts
More than 100 MPs have signed a letter urging the government to think again
I’m joining @trusselluk.bsky.social
in calling on the government to change course. This is how you can help👇
action.trussell.org.uk/disability-cuts
May 17, 2025 at 7:59 AM
Keir Starmer Is Braced For A Huge Labour Rebellion Over Welfare Cuts
More than 100 MPs have signed a letter urging the government to think again
I’m joining @trusselluk.bsky.social
in calling on the government to change course. This is how you can help👇
action.trussell.org.uk/disability-cuts
More than 100 MPs have signed a letter urging the government to think again
I’m joining @trusselluk.bsky.social
in calling on the government to change course. This is how you can help👇
action.trussell.org.uk/disability-cuts
Reposted by Margaret L
Please can we have a bluesky 🌊 of reposts. Last day to try to get 3,000 signatures to help keep everyone safer in healthcare. Especially Cancer patients and elderly. Please sign our petition below 🙏
May 10, 2025 at 4:41 PM
Please can we have a bluesky 🌊 of reposts. Last day to try to get 3,000 signatures to help keep everyone safer in healthcare. Especially Cancer patients and elderly. Please sign our petition below 🙏
Reposted by Margaret L
"The balance here is off the scale"
The government's proposed cuts to disability benefits will deepen poverty and hardship, and push many further from work.
Iain Porter, senior policy adviser at @jrf-uk.bsky.social gives evidence to the Work & Pensions Committee
The government's proposed cuts to disability benefits will deepen poverty and hardship, and push many further from work.
Iain Porter, senior policy adviser at @jrf-uk.bsky.social gives evidence to the Work & Pensions Committee
April 23, 2025 at 10:37 AM
"The balance here is off the scale"
The government's proposed cuts to disability benefits will deepen poverty and hardship, and push many further from work.
Iain Porter, senior policy adviser at @jrf-uk.bsky.social gives evidence to the Work & Pensions Committee
The government's proposed cuts to disability benefits will deepen poverty and hardship, and push many further from work.
Iain Porter, senior policy adviser at @jrf-uk.bsky.social gives evidence to the Work & Pensions Committee
Reposted by Margaret L
⏰TODAY - REMINDER
📅 Live Q&A with Dr. Danilo Buonsenso
@surf4children
📷 7th March | 1PM GMT
www.longcovidkids.org/post/q-a-wit...
NOW CLOSED FOR REGISTRATION DUE TO CAPACITY
#LongCovidAwareness
#LongCovidKids
📅 Live Q&A with Dr. Danilo Buonsenso
@surf4children
📷 7th March | 1PM GMT
www.longcovidkids.org/post/q-a-wit...
NOW CLOSED FOR REGISTRATION DUE TO CAPACITY
#LongCovidAwareness
#LongCovidKids
March 7, 2025 at 10:39 AM
⏰TODAY - REMINDER
📅 Live Q&A with Dr. Danilo Buonsenso
@surf4children
📷 7th March | 1PM GMT
www.longcovidkids.org/post/q-a-wit...
NOW CLOSED FOR REGISTRATION DUE TO CAPACITY
#LongCovidAwareness
#LongCovidKids
📅 Live Q&A with Dr. Danilo Buonsenso
@surf4children
📷 7th March | 1PM GMT
www.longcovidkids.org/post/q-a-wit...
NOW CLOSED FOR REGISTRATION DUE TO CAPACITY
#LongCovidAwareness
#LongCovidKids
Reposted by Margaret L
Reposted by Margaret L
Here is our Rapid Response to that hugely problematic BMJ review of treatments for #LongCovid
Delighted to have contributed with @ellecarnitine.bsky.social, @fvrhijn.bsky.social, @lauravictorine.bsky.social, and Xandra Westerhuis
We need to learn from the history of #MECFS
Delighted to have contributed with @ellecarnitine.bsky.social, @fvrhijn.bsky.social, @lauravictorine.bsky.social, and Xandra Westerhuis
We need to learn from the history of #MECFS
Long COVID needs real therapeutics: time to move past disproven approaches
www.bmj.com
December 5, 2024 at 10:46 PM
Here is our Rapid Response to that hugely problematic BMJ review of treatments for #LongCovid
Delighted to have contributed with @ellecarnitine.bsky.social, @fvrhijn.bsky.social, @lauravictorine.bsky.social, and Xandra Westerhuis
We need to learn from the history of #MECFS
Delighted to have contributed with @ellecarnitine.bsky.social, @fvrhijn.bsky.social, @lauravictorine.bsky.social, and Xandra Westerhuis
We need to learn from the history of #MECFS
Reposted by Margaret L
New Video: @georgemonbiot.bsky.social describes the treatment of #MECFS as "The Greatest Medical Scandal of the 21st century". The video explores the impact of ineffective & harmful treatments & how they were defended by the scientific & media establishment.
youtu.be/RiwX9Y0NbiQ?...
youtu.be/RiwX9Y0NbiQ?...
ME/CFS Scandal Explainer (Myalgic Encephalomyelitis/Chronic Fatigue Syndrome)
YouTube video by Broken Battery
youtu.be
November 21, 2024 at 12:42 PM
New Video: @georgemonbiot.bsky.social describes the treatment of #MECFS as "The Greatest Medical Scandal of the 21st century". The video explores the impact of ineffective & harmful treatments & how they were defended by the scientific & media establishment.
youtu.be/RiwX9Y0NbiQ?...
youtu.be/RiwX9Y0NbiQ?...
Reposted by Margaret L
The video is broken down into 27 chapters. See image for list of chapters and how to navigate.
Timestamps in the description are best, followed by the chapter menu, the progress bar is a bit fiddly.
Timestamps in the description are best, followed by the chapter menu, the progress bar is a bit fiddly.
November 21, 2024 at 12:42 PM
The video is broken down into 27 chapters. See image for list of chapters and how to navigate.
Timestamps in the description are best, followed by the chapter menu, the progress bar is a bit fiddly.
Timestamps in the description are best, followed by the chapter menu, the progress bar is a bit fiddly.
Reposted by Margaret L
This evidence-heavy video is aimed at journalists and people who may have some knowledge of #MECFS but want to learn more about the #GreatestMedicalScandal. I’ve put the transcript on medium with links to ~100 references.
medium.com/@abrokenbatt...
medium.com/@abrokenbatt...
ME/CFS Scandal Explainer
https://youtu.be/e0FNw0z3PVw
medium.com
November 21, 2024 at 12:42 PM
This evidence-heavy video is aimed at journalists and people who may have some knowledge of #MECFS but want to learn more about the #GreatestMedicalScandal. I’ve put the transcript on medium with links to ~100 references.
medium.com/@abrokenbatt...
medium.com/@abrokenbatt...
@simonforstroud.bsky.social It would be marvellous if you could attend this APPG. As a constituent I would be incredibly grateful.
Don't forget to invite your local MP to join us for the inaugural APPG on ME meeting next week (thanks if you already have)!
📆 Tuesday 17 December
⏰ 5pm - 6.30pm
Template & update of the inaugural meeting 👇
appgme.co.uk/.../appg-ina....
#pwME #MECFS #MyalgicE #APPG
📆 Tuesday 17 December
⏰ 5pm - 6.30pm
Template & update of the inaugural meeting 👇
appgme.co.uk/.../appg-ina....
#pwME #MECFS #MyalgicE #APPG
December 13, 2024 at 5:48 PM
Reposted by Margaret L
🆕 Blog! Dr Rokas Juodeikis tells us about his research exploring how the gut microbiome interacts with dietary iron and his path to becoming a Quadram Institute Early Career Fellow
https://buff.ly/3B53zAI 🥼
https://buff.ly/3B53zAI 🥼
Exploring how the gut microbiome processes iron; Dr Rokas Juodeikis’s fellowship - Quadram Institute
Rokas Juodeikis's research exploring how the gut microbiome interacts with dietary iron and his career path to independent research
quadram.ac.uk
November 29, 2024 at 9:06 AM
🆕 Blog! Dr Rokas Juodeikis tells us about his research exploring how the gut microbiome interacts with dietary iron and his path to becoming a Quadram Institute Early Career Fellow
https://buff.ly/3B53zAI 🥼
https://buff.ly/3B53zAI 🥼
Reposted by Margaret L
Next stop Northern Ireland! Belfast Marathon on 4th May.
33rd European country for @investinmeresearch.bsky.social
I know I have lots of ME friends there already but let me know if you'd like to meet!
£50.8k raised so far. Next years goal is to get to £55k.
Www.justgiving.com/mikeseumarathons
33rd European country for @investinmeresearch.bsky.social
I know I have lots of ME friends there already but let me know if you'd like to meet!
£50.8k raised so far. Next years goal is to get to £55k.
Www.justgiving.com/mikeseumarathons
November 29, 2024 at 6:34 PM
Next stop Northern Ireland! Belfast Marathon on 4th May.
33rd European country for @investinmeresearch.bsky.social
I know I have lots of ME friends there already but let me know if you'd like to meet!
£50.8k raised so far. Next years goal is to get to £55k.
Www.justgiving.com/mikeseumarathons
33rd European country for @investinmeresearch.bsky.social
I know I have lots of ME friends there already but let me know if you'd like to meet!
£50.8k raised so far. Next years goal is to get to £55k.
Www.justgiving.com/mikeseumarathons
Reposted by Margaret L
Nigel Farage loves open borders - for the super rich
YouTube video by Led By Donkeys
youtu.be
November 28, 2024 at 7:44 AM