Covid Longhaulers Podcast
LightNews LightNews
longhaulerspodcast.bsky.social
Covid Longhaulers Podcast
@longhaulerspodcast.bsky.social
550 followers 1.5K following 300 posts
We’re a community of Covid longhaulers who have been brought together by this illness. We share the stories of folks who have been through it, who are going through it, and how they’re surviving it. #LongCovid #CovidIsntOver #CovidIsAirborne #CovidSky
Posts Replies Media Videos
Pinned
longhaulerspodcast.bsky.social
Covid Longhaulers Podcast @longhaulerspodcast.bsky.social · Nov 26
Find our show!
Apple: podcasts.apple.com/us/podcast/c...
Spotify: open.spotify.com/show/6MDhOgK...

#CovidIsntOver #CovidLongHauler #CovidisNotOver #MECFS
Covid Longhaulers Podcast
Podcast · Covid Long Haulers Support Group Discord · This podcast is stories by and for people with long covid. We have a community discord for support and want to share the personal stories of folks ...
open.spotify.com
Reposted by Covid Longhaulers Podcast
tomkindlon.bsky.social
The Sick Times @thesicktimes.org : "we need more at-home clinical trials for Long COVID. Here’s how we designed the largest one yet"

thesicktimes.org/2025/10/30/w...

Register for trial
longcovid.scripps.edu/locitt-t/

Screenshot from latest Science for ME weekly update

#LongCovid #PASC
The Sick Times "We need more at-home clinical trials for Long COVID. Here’s how we designed the largest one yet." Article about the fully remote clinical research study (US residents only) for Long Covid patients. The study will analyze whether the drug tirzepatide can help reduce symptoms. Article | Register for trial
November 3, 2025 at 11:56 PM
Reposted by Covid Longhaulers Podcast
doxiemom07.bsky.social
🚨 Reminder to Americans as we "fall back": check your smoke alarm batteries if you lost / have a diminished sense of smell due to covid.
1-22-21 ⬇️
"Bianca Rivera, 19, quickly evacuated her family, who didn't realize the house was on fire after losing their sense of smell due to Covid-19."
#longcovid
Teen saved family members with Covid-19 from early-morning fire
Bianca Rivera, 19, quickly evacuated her family, who didn't realize the house was on fire after losing their sense of smell due to Covid-19.
www.nbcnews.com
November 2, 2025 at 9:54 PM
Reposted by Covid Longhaulers Podcast
taniaspencer.bsky.social
1/
"The reality is that we have been living in this deeply flawed landscape of 'personal choice', & you’ve made yours":

annabookwriter.medium.com/to-my-unmask...
To My Unmasked Friend in the Fifth Year of COVID
I’m going to be honest with you, because I love you, and you deserve nothing but honesty. I’m going to try really hard not to be angry…
annabookwriter.medium.com
November 2, 2025 at 1:15 AM
Reposted by Covid Longhaulers Podcast
shh-uk.bsky.social
🚨 Attention🚨

Research shows that poor ventilation and elevated CO₂ can slow decision‑making, reduce focus and even decrease output.

👉 Want to dig deeper? shh-uk.org/high-co2-... or link in bio.

#WorkplaceWellbeing #SafeAir4All #Longcovidawareness #longcovid
November 2, 2025 at 11:00 AM
longhaulerspodcast.bsky.social
The management meds that were supposed to help tanked their baseline.

#CovidIsntOver #CovidLongHauler #CovidisNotOver #MECFS
Bright orange background with ghost and bat illustrations over a haunted village skyline. Tilted white text reads “The management meds that were supposed to help tanked their baseline.”
November 1, 2025 at 12:41 AM
Reposted by Covid Longhaulers Podcast
batemanhornecenter.bsky.social
October is POTS Awareness Month, a time to spotlight BHC resources. Our Clinical Care Guide includes a full chapter on orthostatic intolerance (OI) & dysautonomia, core features of #POTS.
Download ➡️ https://batemanhornecenter.org/clinical-care-guide/ (navigate to chapter 7 for info on POTS & OI)
Clinical Care Guide on a tablet screen, highlighting Chapter 7 on managing orthostatic intolerance in ME/CFS and Long COVID.
November 1, 2025 at 12:11 AM
longhaulerspodcast.bsky.social
His workplace told him to come in anyway after testing positive for COVID.

#CovidIsntOver #CovidLongHauler #CovidisNotOver #MECFS
Orange background with playful Halloween doodles and white sparkles. Handwritten, bold black text reads “His workplace told him to come in anyway after testing positive for COVID.”
November 1, 2025 at 12:31 AM
longhaulerspodcast.bsky.social
The doctor explained that her test results were normal.

#onesentencehorror #LongCovid #MECFS #ChronicIllness #CovidIsntOver
Purple background featuring a glowing green cauldron with a jack-o’-lantern face. The text above is bright green and reads “The doctor explained that her test results were normal.”
October 31, 2025 at 8:41 PM
longhaulerspodcast.bsky.social
Migraine Aura.

That's it, that's the sentence.

#onesentencehorror #LongCovid #CovidIsntOver #MECFS
A photo of a person dressed as a ghost wearing black sunglasses, standing against a muted gray-blue background. Large white “BOO!” text and “Migraine Aura”.
October 31, 2025 at 8:34 PM
longhaulerspodcast.bsky.social
Their family refuses to take a COVID test.

#onesentencehorror #LongCovid #CovidIsntOver #MECFS
Beige background with spider webs, bats, and a spooky village silhouette. Orange text reads “Their family refuses to take a COVID test.”
October 31, 2025 at 8:32 PM
Reposted by Covid Longhaulers Podcast
julialmv.bsky.social
The Long COVID Treatment Trial – Tirzepatide (LoCITT-T) is now open for enrollment for people with Long COVID in all states but Hawaii (due to concerns about maintaining temperature control in shipping), DC, and PR:
longcovid.scripps.edu/locitt-t/?ut...
October 31, 2025 at 2:49 PM
Reposted by Covid Longhaulers Podcast
atranscendedman.bsky.social
University of North Dakota researchers found that the SARS-CoV-2 spike protein drives brain cell aging by triggering TLR7 in human astrocytes.

This could explain lingering neurological symptoms in long COVID.

jneuroinflammation.biomedcentral.com/articles/10....
SARS-CoV-2 spike triggers TLR7-dependent endolysosome dysfunction and senescence in human astrocytes - Journal of Neuroinflammation
SARS-CoV-2 infection is associated with long-lasting neuropsychiatric and cognitive symptoms, collectively referred to as neuro-PASC. Emerging studies indicates that accelerate brain aging and cellula...
jneuroinflammation.biomedcentral.com
October 31, 2025 at 7:52 PM
longhaulerspodcast.bsky.social
They ran out of electrolytes.

#onesentencehorror #LongCovid #CovidIsntOver #MECFS
October 31, 2025 at 8:19 PM
longhaulerspodcast.bsky.social
Her smartwatch gave her a high heart rate notification while sitting.

#onesentencehorror #LongCovid #CovidIsntOver #MECFS
Beige background with spider webs and bats in the corners. Centered brown-orange text reads, “Her smartwatch gave her a high heart rate notification while sitting.”
October 31, 2025 at 8:18 PM
longhaulerspodcast.bsky.social
The CO₂ levels in the windowless room were over 1600 ppm.

#onesentencehorror #LongCovid #CovidIsntOver #MECFS
White background with ghost illustrations. Playful but anxious text in black cursive says “The CO₂ levels in the windowless room were over 1600 ppm.” The ghosts’ expressions amplify the eerie tone.
October 31, 2025 at 8:17 PM
longhaulerspodcast.bsky.social
The nurse washed her hands in front of him, but didn’t wear a mask.

#onesentencehorror #LongCovid #CovidIsntOver #MECFS
A Halloween-themed graphic with a beige background, spiders, ghosts, and a witch silhouette. In the center, bold orange text reads “The nurse washed her hands in front of him, but didn’t wear a mask.”
October 31, 2025 at 8:15 PM
longhaulerspodcast.bsky.social
She talked on the phone with her bestie, forgetting about the inevitable PEM crash that would follow.

#onesentencehorror #LongCovid #MECFS #CovidIsntOver
Purple haunted-house scene under a full moon with bats flying. Yellow text overlaid in a playful handwritten font reads: “She talked on the phone with her bestie, forgetting about the inevitable PEM crash that would follow.”
October 31, 2025 at 8:13 PM
Reposted by Covid Longhaulers Podcast
emergeaustralia.bsky.social
Welcome to Emerge Australia’s #mecfs and #longCOVID Action Forum event in Parliament House, Canberra, today. Our event, “From stigma to science: educating for change” is live streamed. You can register here: us02web.zoom.us/meeting/regi...

We will be live posting on this thread. 🧵
Blue and white banner with "Emerge Australia" logo on the left. Text reads "From stigma to science: educating for change. ME/CFS and long COVID Action Forum.
October 30, 2025 at 2:00 AM
longhaulerspodcast.bsky.social
🚨 New episode just dropped: Twist, Turns, & Crashes: Part 2. 🚨
Noah returns for a discussion on the grief of losing athletic dreams.

Spotify: open.spotify.com/episode/0mIj...

Apple: podcasts.apple.com/us/podcast/c...

Transcript: covidlonghaulerspodcast.substack.com/p/transcript...

#LongCovid
Episode 14 - Twists, Turns, and Crashes (Part 2)
open.spotify.com
October 28, 2025 at 3:53 PM
Reposted by Covid Longhaulers Podcast
longcovidadvoc.com
💙 Call for contributions 💙

For the book about #ME & #LongCovid we'd love to include real voices from the community about experiences with Drs

The form is short & anon

Every story matters 💙

forms.gle/jSCvZN39xAum...
Experiences with Doctors - ME & Long Covid
Thank you for taking the time to share your experience. I am writing a novel about ME & Long Covid, and I would like to include real voices from the community to make sure the story reflects lived…
docs.google.com
September 22, 2025 at 2:16 PM
Reposted by Covid Longhaulers Podcast
davidjoffe64.bsky.social
A warning for those pursuing a ketogenic diet for their Long C-19

👇🏻👇🏻👇🏻👇🏻

www.science.org/doi/10.1126/...
A long-term ketogenic diet causes hyperlipidemia, liver dysfunction, and glucose intolerance from impaired insulin secretion in mice
Although a keto diet limits weight gain and evokes weight loss in obese mice, it impairs metabolic health in males and females.
www.science.org
September 21, 2025 at 8:02 AM
Reposted by Covid Longhaulers Podcast
elhopkins.bsky.social
We have been living with unnecessary infections in hospitals for years. Ffp3 respirators work. They do outside too! No need to keep catching covid and risking #Longcovid. www.theguardian.com/world/2021/j...
Cambridge hospital’s mask upgrade appears to eliminate Covid risk to staff
Hospital infection study shows use of FFP3 respirators at Addenbrooke’s ‘may have cut ward-based infection to zero’
www.theguardian.com
September 21, 2025 at 10:02 AM
Reposted by Covid Longhaulers Podcast
leanhealth.bsky.social
Neuropsychiatric symptoms, impaired visual perception, and gray matter volume differences are evident in pediatric long COVID cases. The severity of neuropsychiatric symptoms during the acute phase may predict the degree of chronic-phase brain volume alterations.

www.pedneur.com/article/S088...
Long-term influence of pediatric long COVID syndrome on the visual perception and neuropsychiatric symptoms
Long COVID presents with a wide range of persistent symptoms and durations following COVID-19 infection. However, data on children and adolescents remain limited. This study aims to explore visual per...
www.pedneur.com
September 21, 2025 at 12:14 PM
Reposted by Covid Longhaulers Podcast
longcovidcan-co.bsky.social
✨ Did you know Long COVID can impact every part of the body?

The Lancet documented 203 symptoms across 10 body systems, and the average patient reported 56 different symptoms across 9 systems.
September 20, 2025 at 3:02 AM
Reposted by Covid Longhaulers Podcast
If you can’t take Paxlovid, Metformin is another great alternative to help prevent Long Covid. www.medicalnewstoday.com/articles/com...
Long COVID: Diabetes drug metformin may reduce risk by 64%
Starting the diabetes drug metformin within 90 days of SARS-CoV-2 infection decreased the risk for developing long COVID by 64%, according to a new study.
www.medicalnewstoday.com
September 19, 2025 at 10:25 PM