Lilly
@lillyjade.bsky.social
Autistic. Interested in autism and broader neurodivergence/disability topics + misinformation. Former cog neuro/psych researcher. Attempting to write.
She/her
Curates @autisticbooks.bsky.social
On Gadigal Land
She/her
Curates @autisticbooks.bsky.social
On Gadigal Land
Reposted by Lilly
To honor Alice—and all our disability ancestors—is to keep building that connective tissue she described. To love fiercely, politically, on purpose. To ensure the filaments they left behind continue to glow in us, and through us, long after the world has forgotten their names. We won’t.
November 16, 2025 at 12:08 AM
To honor Alice—and all our disability ancestors—is to keep building that connective tissue she described. To love fiercely, politically, on purpose. To ensure the filaments they left behind continue to glow in us, and through us, long after the world has forgotten their names. We won’t.
Reposted by Lilly
Alice Wong taught us that disabled people don’t just leave memories behind—they leave infrastructure. Lineages of care. Methods of collectivity, survival. She named the connective tissue that holds our communities together, even across death, even across the losses that come too fast and too often.
November 16, 2025 at 12:08 AM
Alice Wong taught us that disabled people don’t just leave memories behind—they leave infrastructure. Lineages of care. Methods of collectivity, survival. She named the connective tissue that holds our communities together, even across death, even across the losses that come too fast and too often.
Reposted by Lilly
“Don’t let the bastards grind you down. I love you all.”
November 15, 2025 at 6:15 AM
“Don’t let the bastards grind you down. I love you all.”
Reposted by Lilly
📣New research
Q: What do neurodivergent people think about words like "neurodiversity".
A: it's complicated; they use it, but it has limitations and could stigmatise.
Full paper: journals.sagepub.com/doi/10.1177/...
(1 of 2)
Q: What do neurodivergent people think about words like "neurodiversity".
A: it's complicated; they use it, but it has limitations and could stigmatise.
Full paper: journals.sagepub.com/doi/10.1177/...
(1 of 2)
‘A Lovely Safe Umbrella to Describe Yourself With’ or ‘Meaningless’: An Online Survey of UK-Based Neurodivergent Adults’ Views of Neurodiversity-Related Terminology - Aimee Grant, Jennifer Leigh, Moni...
Background: Neurodivergence refers to people with ways of behaving and thinking that diverge from the norm. Examples include Autism, Attention Deficit Hyperacti...
journals.sagepub.com
November 10, 2025 at 2:13 PM
📣New research
Q: What do neurodivergent people think about words like "neurodiversity".
A: it's complicated; they use it, but it has limitations and could stigmatise.
Full paper: journals.sagepub.com/doi/10.1177/...
(1 of 2)
Q: What do neurodivergent people think about words like "neurodiversity".
A: it's complicated; they use it, but it has limitations and could stigmatise.
Full paper: journals.sagepub.com/doi/10.1177/...
(1 of 2)
Reposted by Lilly
The ASA welcomes the Albanese Government’s decision to rule out a Text and Data Mining (TDM) exception to Australian copyright law, which would have allowed for AI training on authors’ work.
aapnews.aap.com.au/news/copyrig...
aapnews.aap.com.au/news/copyrig...
Copyright laws to protect creatives from AI data mining
Tech developers will not have a "free pass" to use creative works to train AI systems, but advocates say more protections are needed against copyright theft.
aapnews.aap.com.au
October 26, 2025 at 10:43 PM
The ASA welcomes the Albanese Government’s decision to rule out a Text and Data Mining (TDM) exception to Australian copyright law, which would have allowed for AI training on authors’ work.
aapnews.aap.com.au/news/copyrig...
aapnews.aap.com.au/news/copyrig...
Reposted by Lilly
Autumn shares a poem:
“Nothing about us without us means all of us together
The loud, the silent, the joyous, and the somber
The future is an echo that arrives before the sound”
“Nothing about us without us means all of us together
The loud, the silent, the joyous, and the somber
The future is an echo that arrives before the sound”
October 30, 2025 at 11:16 PM
Autumn shares a poem:
“Nothing about us without us means all of us together
The loud, the silent, the joyous, and the somber
The future is an echo that arrives before the sound”
“Nothing about us without us means all of us together
The loud, the silent, the joyous, and the somber
The future is an echo that arrives before the sound”
Reposted by Lilly
The first award is the Nothing About Us Without Us Award, given to self-advocates whose work fights to make sure that our community’s voices are being heard. This year, this award goes to Autumn Lauener for their tireless work supporting both the autistic and trans community across Texas.
October 30, 2025 at 11:12 PM
The first award is the Nothing About Us Without Us Award, given to self-advocates whose work fights to make sure that our community’s voices are being heard. This year, this award goes to Autumn Lauener for their tireless work supporting both the autistic and trans community across Texas.
Reposted by Lilly
“Most of all, we know that, whatever laundry list of activities they can and cannot do, the life of every autistic person is worth living.” – Colin Killick, ASAN’s Executive Director
October 30, 2025 at 11:05 PM
“Most of all, we know that, whatever laundry list of activities they can and cannot do, the life of every autistic person is worth living.” – Colin Killick, ASAN’s Executive Director
Reposted by Lilly
“We know the world is full of autistic people, including those with high support needs, who do all those things amazingly, from nonspeaking poets, to policy experts with intellectual disabilities.”
October 30, 2025 at 11:05 PM
“We know the world is full of autistic people, including those with high support needs, who do all those things amazingly, from nonspeaking poets, to policy experts with intellectual disabilities.”
Reposted by Lilly
“When the government spreads lies about autism, these lies put the autistic community in danger. They threaten our access to health care, our right to make choices for ourselves, and our right to live in the community.”
October 30, 2025 at 11:04 PM
“When the government spreads lies about autism, these lies put the autistic community in danger. They threaten our access to health care, our right to make choices for ourselves, and our right to live in the community.”
Reposted by Lilly
ASAN’s Annual Gala awards ceremony is starting now! #ASANGala
Watch the livestream on YouTube starting NOW: youtu.be/36ZQOoLlZH8
Watch the livestream on YouTube starting NOW: youtu.be/36ZQOoLlZH8
2025 ASAN Gala Awards Ceremony
At this year’s Awards Ceremony, we will be honoring several awardees for their tireless work in advocacy, community building, and so much more. We’ll also hear remarks from ASAN’s Executive Director…
youtu.be
October 30, 2025 at 11:01 PM
ASAN’s Annual Gala awards ceremony is starting now! #ASANGala
Watch the livestream on YouTube starting NOW: youtu.be/36ZQOoLlZH8
Watch the livestream on YouTube starting NOW: youtu.be/36ZQOoLlZH8
Reposted by Lilly
Today in Hell yes, research: "Autistic children with little to no spoken language may understand more language than they produce, which means spoken vocabulary is not a good proxy for one’s understanding of words."
journals.sagepub.com/doi/10.1177/... #autism #autistic #neurodiversity
journals.sagepub.com/doi/10.1177/... #autism #autistic #neurodiversity
Conceptualizing and describing autistic language: Moving on from ‘verbal’, ‘minimally verbal’ and ‘nonverbal’ - Kristen Bottema-Beutel, Alyssa Hillary Zisk, Jordyn Zimmerman, Betty Yu, 2025
journals.sagepub.com
October 26, 2025 at 2:36 AM
Today in Hell yes, research: "Autistic children with little to no spoken language may understand more language than they produce, which means spoken vocabulary is not a good proxy for one’s understanding of words."
journals.sagepub.com/doi/10.1177/... #autism #autistic #neurodiversity
journals.sagepub.com/doi/10.1177/... #autism #autistic #neurodiversity
Reposted by Lilly
ALL Haymarket EBooks are 80% off through November 7th ✊🏾✊🏿✊🏽
Haymarket Ebooks on sale for $2!
At Haymarket, our mission is to publish books that contribute to struggles for social and economic justice. We strive to make our books a vibrant and organic part of social movements, and we believe t...
www.haymarketbooks.org
October 27, 2025 at 7:16 PM
ALL Haymarket EBooks are 80% off through November 7th ✊🏾✊🏿✊🏽
You know you've been taken in by a book when only a few pages in to the library copy, you buy your own.
Conspiracy Nation by @arielbogle.bsky.social and @cameronwilson.bsky.social
publishing.hardiegrant.com/en-au/books/...
Conspiracy Nation by @arielbogle.bsky.social and @cameronwilson.bsky.social
publishing.hardiegrant.com/en-au/books/...
October 28, 2025 at 3:13 AM
You know you've been taken in by a book when only a few pages in to the library copy, you buy your own.
Conspiracy Nation by @arielbogle.bsky.social and @cameronwilson.bsky.social
publishing.hardiegrant.com/en-au/books/...
Conspiracy Nation by @arielbogle.bsky.social and @cameronwilson.bsky.social
publishing.hardiegrant.com/en-au/books/...
Reposted by Lilly
Me talking about why eradicating poverty isn’t just the morally correct position but it makes economic sense as well www.abc.net.au/news/2025-10...
Price of poverty hurts us all, yet research reveals an easy fix
In 2020, Australia massively increased welfare payments and conducted a live experiment in ending poverty, but when the subsidy was removed, many were thrown back into hardship. Leaving aside the mora...
www.abc.net.au
October 28, 2025 at 2:39 AM
Me talking about why eradicating poverty isn’t just the morally correct position but it makes economic sense as well www.abc.net.au/news/2025-10...
Reposted by Lilly
I'm helping to set up a community of practice to end the bullying of autistic students in Australian schools. If you'd like to participate, please get in touch using the form below. Further details in the thread following.
forms.gle/RFPJag4wffdq...
forms.gle/RFPJag4wffdq...
Expression of Interest: Community of Practice to Prevent Bullying of Autistic Students
Please use this form to express your interest in joining a community of practice to help end the bullying of Autistic students in Australia.
There are 11 questions on this form. 10 are compulsory a...
forms.gle
September 24, 2025 at 11:56 PM
I'm helping to set up a community of practice to end the bullying of autistic students in Australian schools. If you'd like to participate, please get in touch using the form below. Further details in the thread following.
forms.gle/RFPJag4wffdq...
forms.gle/RFPJag4wffdq...
Reposted by Lilly
Are you autistic? What did you think of the announcement yesterday? I want to hear from you for a Guardian US article: melodyschreiber@pm.me
September 24, 2025 at 1:37 AM
Are you autistic? What did you think of the announcement yesterday? I want to hear from you for a Guardian US article: melodyschreiber@pm.me
Reposted by Lilly
I am begging people to please seek out Autistic voices if you want to learn about autism. You will find that rather than wanting our lives to be prevented or cured, we want appropriate supports for ALL Autistic people (including those with intellectual disability and other co-occurring conditions).
September 23, 2025 at 5:40 AM
I am begging people to please seek out Autistic voices if you want to learn about autism. You will find that rather than wanting our lives to be prevented or cured, we want appropriate supports for ALL Autistic people (including those with intellectual disability and other co-occurring conditions).
Reposted by Lilly
Autistic people are not your tragedies and we should not be the subject of your conspiracies and dehumanising rhetoric. We are not mythical creatures to pity but real people with needs and desires, just like you.
September 23, 2025 at 5:40 AM
Autistic people are not your tragedies and we should not be the subject of your conspiracies and dehumanising rhetoric. We are not mythical creatures to pity but real people with needs and desires, just like you.
Reposted by Lilly
It appears the foreseeable future will be even more difficult for autistic people & their loved ones because of the heinous disinformation coming from the US government &their supporters. We should not need to reiterate the humanity of Autistic people, but here we are, watching as progress is erased
September 23, 2025 at 5:40 AM
It appears the foreseeable future will be even more difficult for autistic people & their loved ones because of the heinous disinformation coming from the US government &their supporters. We should not need to reiterate the humanity of Autistic people, but here we are, watching as progress is erased
Reposted by Lilly
@annmemmott.bsky.social posted on linkedin:
"If it is safe for you to speak out, when such an announcement happens, please do so.
If it is not safe, please take really good care of yourselves and those you love....."
"If it is safe for you to speak out, when such an announcement happens, please do so.
If it is not safe, please take really good care of yourselves and those you love....."
September 21, 2025 at 8:31 PM
@annmemmott.bsky.social posted on linkedin:
"If it is safe for you to speak out, when such an announcement happens, please do so.
If it is not safe, please take really good care of yourselves and those you love....."
"If it is safe for you to speak out, when such an announcement happens, please do so.
If it is not safe, please take really good care of yourselves and those you love....."
This is an excellent newsletter. If you haven't already subscribed, now would be the perfect time so you can discover accurate and informative information about autism.
The White House is "gonna make a big autism announcement" tomorrow. We'll be delaying our usual Monday TPGA Newsletter publication until Tuesday, so that @ejwillingham.bsky.social can give that news the scrutiny it… deserves. Why not sign up for the salty goodness (it's free!)?
buttondown.com/TPGA/
buttondown.com/TPGA/
Thinking Person's Guide to Autism Newsletter
Weekly email with autism news and resources: from autistic people, professionals, and parents, written and curated by scientist and journalist Dr. Emily Willingham. Emily, a 2022 MIT Knight Science Pr...
buttondown.com
September 22, 2025 at 5:23 AM
This is an excellent newsletter. If you haven't already subscribed, now would be the perfect time so you can discover accurate and informative information about autism.
Reposted by Lilly
Acetaminophen/paracetamol use in pregnancy doesn't cause autism, no matter what RFK says this week. This is not an unsettled question. Evidence summarized here: sciencebasedmedicine.org/tylenol-and-...
Tylenol and Autism
Earlier this year, HHS secretary RFK Jr. predicted that, "By September, we will know what has caused the autism epidemic and we'll be able to eliminate those exposures." Scientists have been researc
sciencebasedmedicine.org
September 21, 2025 at 10:40 PM
Acetaminophen/paracetamol use in pregnancy doesn't cause autism, no matter what RFK says this week. This is not an unsettled question. Evidence summarized here: sciencebasedmedicine.org/tylenol-and-...
Reposted by Lilly
"I practice self-care by turning off the news periodically, and stepping back from the world. I made the realization that in my fight for justice, I was hurting my own mental health." Autistic academic TC Waisman on self-compassion and resilience, at TPGA:
thinkingautismguide.com/2025/09/cher...
thinkingautismguide.com/2025/09/cher...
Cherishing Compassion While Autistic and Marginalized
T.C. Waisman, Monique Botha, and Wenn Lawson—three deeply compassionate autistic experts—on navigating the world while autistic.
thinkingautismguide.com
September 18, 2025 at 4:37 PM
"I practice self-care by turning off the news periodically, and stepping back from the world. I made the realization that in my fight for justice, I was hurting my own mental health." Autistic academic TC Waisman on self-compassion and resilience, at TPGA:
thinkingautismguide.com/2025/09/cher...
thinkingautismguide.com/2025/09/cher...
Reposted by Lilly
...and struggle to access appropriate medical care, therapy, and supports.
The need for neurodiversity is because we ARE struggling, not because we're not.
The need for neurodiversity is because we ARE struggling, not because we're not.
September 19, 2025 at 1:59 AM
...and struggle to access appropriate medical care, therapy, and supports.
The need for neurodiversity is because we ARE struggling, not because we're not.
The need for neurodiversity is because we ARE struggling, not because we're not.