LateDxAutistic
@latedxautistic.bsky.social
discovered #actuallyautistic at 53, mom, physician, oncologist, scientist. She/her. Books, movies, SF/fantasy, dogs, nature, knitting. Here for community and education
Reposted by LateDxAutistic
Things I have learned since starting to unmask my autism so much that autism is now the default setting.
1. I really need to know why for everything. Everything.
2. Neurodivergent kids flock to me wherever I go.
3. 9/10 people shrug it off when I let them know. 1/10 tell me I'm brave...
1. I really need to know why for everything. Everything.
2. Neurodivergent kids flock to me wherever I go.
3. 9/10 people shrug it off when I let them know. 1/10 tell me I'm brave...
November 24, 2024 at 1:12 AM
Things I have learned since starting to unmask my autism so much that autism is now the default setting.
1. I really need to know why for everything. Everything.
2. Neurodivergent kids flock to me wherever I go.
3. 9/10 people shrug it off when I let them know. 1/10 tell me I'm brave...
1. I really need to know why for everything. Everything.
2. Neurodivergent kids flock to me wherever I go.
3. 9/10 people shrug it off when I let them know. 1/10 tell me I'm brave...
Reposted by LateDxAutistic
So exciting to find a #podcast on #autism and #ageing which is such a neglected topic.
Lots of good insights and suggestions here, and there’s a written summary if you prefer to get information that way. Thanks so much for posting this @nickihastie.bsky.social
Lots of good insights and suggestions here, and there’s a written summary if you prefer to get information that way. Thanks so much for posting this @nickihastie.bsky.social
I found The Neurodivergent Woman podcast today, particularly the interview with AutisticProfessor Sandra Thom-Jones. Don't think she's at Bluesky (yet) but let me know if I'm wrong.
Really worth a listen. Thank you.
URL suggests a different speaker but is correct
www.ndwomanpod.com/blog/entrepr...
Really worth a listen. Thank you.
URL suggests a different speaker but is correct
www.ndwomanpod.com/blog/entrepr...
Season 6, Episode 7: Aging as an Autistic Person with Prof. Sandra Thom-Jones — The Neurodivergent Woman Podcast
In this insightful interview, Monique speaks with Professor Sandra Thom-Jones—an Autistic author, artisan, academic, and advocate—about navigating life as an Autistic person in later stages. They disc...
www.ndwomanpod.com
November 24, 2024 at 1:17 AM
So exciting to find a #podcast on #autism and #ageing which is such a neglected topic.
Lots of good insights and suggestions here, and there’s a written summary if you prefer to get information that way. Thanks so much for posting this @nickihastie.bsky.social
Lots of good insights and suggestions here, and there’s a written summary if you prefer to get information that way. Thanks so much for posting this @nickihastie.bsky.social
Reposted by LateDxAutistic
#Cancer #BreastCancer #InflammatoryBreastCancer #Mastectomy #Lumpectomy #SingleMastectomy #Chemo #DoubleMastectomy #Radiotherapy #MentalHealth #Neurodivergent #Autistic #AuDHD #ADHD #Support #NHS #Treatment #HairLoss #Scar #Therapy #trans #LGBTQIA+ #transmen #transwomen #Oestrogen #BreastTissue
#BreastCancer can affect any #human, no matter your #identity/ #heritage
Check yourself and if in doubt seek #medical.
#BeKind #tumour #chemo #NHS #neurodivergent #men #women #surgery #trans #transwomen #transmen #oestrogen #TransLivesMatter #HealthCare
www.breastcanceruk.org.uk/resource-for...
Check yourself and if in doubt seek #medical.
#BeKind #tumour #chemo #NHS #neurodivergent #men #women #surgery #trans #transwomen #transmen #oestrogen #TransLivesMatter #HealthCare
www.breastcanceruk.org.uk/resource-for...
Resource for transgender people | Breast Cancer UK
Breast Cancer UK has created a helpful resource for transgender people to help understand breast cancer risk.
www.breastcanceruk.org.uk
November 24, 2024 at 2:25 AM
Reposted by LateDxAutistic
#BreastCancer in #men is more common than you might think. #Cancer can affect any #human being #cis #trans #NonBinary: no matter your #identity or #heritage
#BeKind #tumour #chemo #NHS #neurodivergent #men #women #surgery
www.macmillan.org.uk/cancer-infor...
#BeKind #tumour #chemo #NHS #neurodivergent #men #women #surgery
www.macmillan.org.uk/cancer-infor...
Breast cancer in men - Macmillan Cancer Support
Breast cancer in men is rare but important to recognise. Explore the symptoms, different types, diagnosis, and treatment options.
www.macmillan.org.uk
November 24, 2024 at 1:43 AM
#BreastCancer in #men is more common than you might think. #Cancer can affect any #human being #cis #trans #NonBinary: no matter your #identity or #heritage
#BeKind #tumour #chemo #NHS #neurodivergent #men #women #surgery
www.macmillan.org.uk/cancer-infor...
#BeKind #tumour #chemo #NHS #neurodivergent #men #women #surgery
www.macmillan.org.uk/cancer-infor...
Reposted by LateDxAutistic
Heres another #promosky post to hopefully meet more people!
Reposts are definitely appreciated! 💙
❤️Gamer
🧡Gay Guy
💛Star Wars
💚Marvel
💙X-Men
💜Dog lover
❤️Elder Scrolls
🧡Fallout
💛Dragon Age
💚Baldurs Gate
💙SciFi/Horror Movies
💜Drag Queens
❤️Animals
🧡Vegan
💛Books
Reposts are definitely appreciated! 💙
❤️Gamer
🧡Gay Guy
💛Star Wars
💚Marvel
💙X-Men
💜Dog lover
❤️Elder Scrolls
🧡Fallout
💛Dragon Age
💚Baldurs Gate
💙SciFi/Horror Movies
💜Drag Queens
❤️Animals
🧡Vegan
💛Books
November 20, 2024 at 9:41 PM
Heres another #promosky post to hopefully meet more people!
Reposts are definitely appreciated! 💙
❤️Gamer
🧡Gay Guy
💛Star Wars
💚Marvel
💙X-Men
💜Dog lover
❤️Elder Scrolls
🧡Fallout
💛Dragon Age
💚Baldurs Gate
💙SciFi/Horror Movies
💜Drag Queens
❤️Animals
🧡Vegan
💛Books
Reposts are definitely appreciated! 💙
❤️Gamer
🧡Gay Guy
💛Star Wars
💚Marvel
💙X-Men
💜Dog lover
❤️Elder Scrolls
🧡Fallout
💛Dragon Age
💚Baldurs Gate
💙SciFi/Horror Movies
💜Drag Queens
❤️Animals
🧡Vegan
💛Books
Reposted by LateDxAutistic
Nuanced discussion of standardisation in health care by @ep_qc @DrRuthHeisey @cynthiarw29 et al: https://doi.org/10.46747/cfp.6705323
Procedural standards must be localised and non-binding, leaving room for clinical judgement and shared decision making.
#carepathways #warrantedvariation
Procedural standards must be localised and non-binding, leaving room for clinical judgement and shared decision making.
#carepathways #warrantedvariation
Getting standardization right
The rise of evidence-based medicine (EBM)[1][1] during the past few decades has inspired primary care clinicians to consider the role of standardization in their practices. We have seen the proliferation of protocols and guidelines to manage an increasing variety of conditions and illnesses. While
doi.org
November 18, 2024 at 7:39 AM
Nuanced discussion of standardisation in health care by @ep_qc @DrRuthHeisey @cynthiarw29 et al: https://doi.org/10.46747/cfp.6705323
Procedural standards must be localised and non-binding, leaving room for clinical judgement and shared decision making.
#carepathways #warrantedvariation
Procedural standards must be localised and non-binding, leaving room for clinical judgement and shared decision making.
#carepathways #warrantedvariation
Reposted by LateDxAutistic
Admin/creator & sister acc @jadzia9.bsky.social
Being a ND cancer patient is so horribly, painfully hard.
Specific support for patients like us is rare. It’s insane!
Pls help me raise awareness of this acc & the need behind it.
No one should feel alone.
Special focus=breast cancer.
Pls be kind
Being a ND cancer patient is so horribly, painfully hard.
Specific support for patients like us is rare. It’s insane!
Pls help me raise awareness of this acc & the need behind it.
No one should feel alone.
Special focus=breast cancer.
Pls be kind
November 19, 2024 at 8:48 PM
Admin/creator & sister acc @jadzia9.bsky.social
Being a ND cancer patient is so horribly, painfully hard.
Specific support for patients like us is rare. It’s insane!
Pls help me raise awareness of this acc & the need behind it.
No one should feel alone.
Special focus=breast cancer.
Pls be kind
Being a ND cancer patient is so horribly, painfully hard.
Specific support for patients like us is rare. It’s insane!
Pls help me raise awareness of this acc & the need behind it.
No one should feel alone.
Special focus=breast cancer.
Pls be kind
Reposted by LateDxAutistic
"Letting customers know that you are autistic is unprofessional".
Not the first time I've heard that (paraphrased and bizarre) attitude.
What's 'unprofessional' is prejudice against marginalised groups, minorities, disabled and neurodivergent people.
Not the first time I've heard that (paraphrased and bizarre) attitude.
What's 'unprofessional' is prejudice against marginalised groups, minorities, disabled and neurodivergent people.
November 20, 2024 at 11:21 AM
"Letting customers know that you are autistic is unprofessional".
Not the first time I've heard that (paraphrased and bizarre) attitude.
What's 'unprofessional' is prejudice against marginalised groups, minorities, disabled and neurodivergent people.
Not the first time I've heard that (paraphrased and bizarre) attitude.
What's 'unprofessional' is prejudice against marginalised groups, minorities, disabled and neurodivergent people.
Reposted by LateDxAutistic
I hope @teamlabouruk.bsky.social takes a leftward turn and clearly, unequivocally state that we all contribute to society through our humanity and in countless ways-from caring to creativity. Fetishising #work as a cure is dangerous on so many levels, not least to individual souls.
#whitepaper #dwp
#whitepaper #dwp
November 20, 2024 at 12:12 PM
I hope @teamlabouruk.bsky.social takes a leftward turn and clearly, unequivocally state that we all contribute to society through our humanity and in countless ways-from caring to creativity. Fetishising #work as a cure is dangerous on so many levels, not least to individual souls.
#whitepaper #dwp
#whitepaper #dwp
Reposted by LateDxAutistic
Reposted by LateDxAutistic
Like and Repost if you agree?
November 17, 2024 at 7:51 PM
Like and Repost if you agree?
It’s said that many #autistic people have excellent pattern recognition. For me it’s also pattern *seeking*. I hate when something seems like it should fit a pattern but doesn’t. Makes my brain itch. Can’t stop trying to make it fit (tho impossible). Any autistic folks know what I’m talking about?
November 20, 2024 at 6:43 AM
It’s said that many #autistic people have excellent pattern recognition. For me it’s also pattern *seeking*. I hate when something seems like it should fit a pattern but doesn’t. Makes my brain itch. Can’t stop trying to make it fit (tho impossible). Any autistic folks know what I’m talking about?
Reposted by LateDxAutistic
Our new paper just out, experiences of autistic psychiatrists
www.bsms.ac.uk/about/news/2...
www.bsms.ac.uk/about/news/2...
Autistic psychiatrists who don't realise they are autistic may fail to spot autism in patients, study finds - BSMS
www.bsms.ac.uk
October 31, 2024 at 8:09 PM
Our new paper just out, experiences of autistic psychiatrists
www.bsms.ac.uk/about/news/2...
www.bsms.ac.uk/about/news/2...
Reposted by LateDxAutistic
"Although it is important to avoid speculation in relation to individual colleagues, it should not be assumed that a psychiatrist not disclosing an autism diagnosis is not autistic." (@autisticdoctor.bsky.social, @autisticdoc.bsky.social & al., 2024) More details here 👇
autidacts.org/en/pg-ref/293
autidacts.org/en/pg-ref/293
Autistic psychiatrists’ experiences of recognising themselves and others as autistic: a qualitative study
Learn more
autidacts.org
November 2, 2024 at 7:21 AM
"Although it is important to avoid speculation in relation to individual colleagues, it should not be assumed that a psychiatrist not disclosing an autism diagnosis is not autistic." (@autisticdoctor.bsky.social, @autisticdoc.bsky.social & al., 2024) More details here 👇
autidacts.org/en/pg-ref/293
autidacts.org/en/pg-ref/293
Reposted by LateDxAutistic
ICYMI, here's my Starter Park re: autism research - please share, and let me know if there's anyone else I need to add!
go.bsky.app/B9XV8UA #AutRes
go.bsky.app/B9XV8UA #AutRes
September 25, 2024 at 7:34 AM
ICYMI, here's my Starter Park re: autism research - please share, and let me know if there's anyone else I need to add!
go.bsky.app/B9XV8UA #AutRes
go.bsky.app/B9XV8UA #AutRes
Reposted by LateDxAutistic
Vox actually last month did this great piece on this specific thing and other issues in Autism research...
There’s no such thing as an autistic mouse
Animal models of autism haven’t helped autistic people enough. So why do scientists still use them?
www.vox.com
November 19, 2024 at 8:47 AM
Vox actually last month did this great piece on this specific thing and other issues in Autism research...
Reposted by LateDxAutistic
“The state of autism research is pretty uniformly terrible. There is good research, but most is bad. The bad research includes some of the most popular research used to support the most popular theories about how autistic people think & why.” -Mel Baggs
ballastexistenz.wordpress.com/2016/05/01/d...
ballastexistenz.wordpress.com/2016/05/01/d...
November 16, 2024 at 2:04 AM
“The state of autism research is pretty uniformly terrible. There is good research, but most is bad. The bad research includes some of the most popular research used to support the most popular theories about how autistic people think & why.” -Mel Baggs
ballastexistenz.wordpress.com/2016/05/01/d...
ballastexistenz.wordpress.com/2016/05/01/d...
Reposted by LateDxAutistic
✨A feed for sharing autism research! ✨
bsky.app/profile/did:...
Created by the wonderful @suereviews.bsky.social , thank you!
See post 👇 for easy instructions
Pls share - it's brilliant
__
#AutRes
#Autism
#Research
bsky.app/profile/did:...
Created by the wonderful @suereviews.bsky.social , thank you!
See post 👇 for easy instructions
Pls share - it's brilliant
__
#AutRes
#Autism
#Research
Welcome to some autism research heroines! Did you know if you use the words autism and research or #AutRes, your post will appear in a feed which you can follow:
bsky.app/profile/did:...
@lauramaycrane.bsky.social @proffrancescahappe.bsky.social
@rosahoekstra.bsky.social
@autismcrisis.bsky.social
bsky.app/profile/did:...
@lauramaycrane.bsky.social @proffrancescahappe.bsky.social
@rosahoekstra.bsky.social
@autismcrisis.bsky.social
November 17, 2024 at 6:51 AM
✨A feed for sharing autism research! ✨
bsky.app/profile/did:...
Created by the wonderful @suereviews.bsky.social , thank you!
See post 👇 for easy instructions
Pls share - it's brilliant
__
#AutRes
#Autism
#Research
bsky.app/profile/did:...
Created by the wonderful @suereviews.bsky.social , thank you!
See post 👇 for easy instructions
Pls share - it's brilliant
__
#AutRes
#Autism
#Research
Reposted by LateDxAutistic
I totally agree.
Please all see @autidacts.org post below on how future autism research must benefit the #Autistic community, and be at least participatory, if not Autistic-led 👇
__
#AutRes
#Research
#Autism
#OccupationalTherapy
Please all see @autidacts.org post below on how future autism research must benefit the #Autistic community, and be at least participatory, if not Autistic-led 👇
__
#AutRes
#Research
#Autism
#OccupationalTherapy
"For autism research to be of maximum benefit to autistic people it should at least be participatory but ideally it should be autistic-led, as research led by autistics will almost always have the potential to be emancipatory (...)" (Chown et al., 2023). More info 👇 autidacts.org/en/pg-ref/720
Autism community research priorities: The potential of future research to benefit autistics
Learn more
autidacts.org
November 18, 2024 at 6:28 AM
I totally agree.
Please all see @autidacts.org post below on how future autism research must benefit the #Autistic community, and be at least participatory, if not Autistic-led 👇
__
#AutRes
#Research
#Autism
#OccupationalTherapy
Please all see @autidacts.org post below on how future autism research must benefit the #Autistic community, and be at least participatory, if not Autistic-led 👇
__
#AutRes
#Research
#Autism
#OccupationalTherapy
Reposted by LateDxAutistic
#Ageing as an #Autistic person is challenging.
We’re more likely to have health issues but often find services inaccessible.
We value independence but aren’t supported to maintain it.
We’re as deserving as other age groups but tend to get overlooked.
#AutRes
www.thetransmitter.org/spectrum/gro...
We’re more likely to have health issues but often find services inaccessible.
We value independence but aren’t supported to maintain it.
We’re as deserving as other age groups but tend to get overlooked.
#AutRes
www.thetransmitter.org/spectrum/gro...
Growing old with autism
For many autistic adults, the golden years are tarnished by poor health, poverty and, in some cases, homelessness. Their plight reveals huge gaps in care.
www.thetransmitter.org
November 18, 2024 at 11:39 AM
#Ageing as an #Autistic person is challenging.
We’re more likely to have health issues but often find services inaccessible.
We value independence but aren’t supported to maintain it.
We’re as deserving as other age groups but tend to get overlooked.
#AutRes
www.thetransmitter.org/spectrum/gro...
We’re more likely to have health issues but often find services inaccessible.
We value independence but aren’t supported to maintain it.
We’re as deserving as other age groups but tend to get overlooked.
#AutRes
www.thetransmitter.org/spectrum/gro...
Reposted by LateDxAutistic
Essential piece by @neuroscientist.bsky.social about autism and loneliness. By making "independence" the platonic ideal for all people, it can wind up breeding the type of loneliness that can harm #ActuallyAutistic people. time.com/6551520/lone...
The Pervasive Loneliness of Autism
The pursuit of independence is deeply American. But, even if inadvertently, it’s fueling disabled people's loneliness.
time.com
January 5, 2024 at 11:33 PM
Essential piece by @neuroscientist.bsky.social about autism and loneliness. By making "independence" the platonic ideal for all people, it can wind up breeding the type of loneliness that can harm #ActuallyAutistic people. time.com/6551520/lone...