Henrik Scheel
@langemand.bsky.social
Living with Myalgic Encephalomyelitis and Postural Orthostatic Tachycardi Syndrome, so no longer working. Married, and have two grown up daughters.
Reposted by Henrik Scheel
Have the Epstein files been fully released yet?
January 6, 2026 at 5:59 PM
Have the Epstein files been fully released yet?
Reposted by Henrik Scheel
This is happening everyday, everywhere.
Read the story of Rosie and Alice.
Everyone who has been hospitalised with ME, knows it.
"Hospitals should be places of healing – but for people with severe ME, they are often sources of harm".
#GreatestMEdicalScandal
www.thereforme.uk/p/sensory-he...
Read the story of Rosie and Alice.
Everyone who has been hospitalised with ME, knows it.
"Hospitals should be places of healing – but for people with severe ME, they are often sources of harm".
#GreatestMEdicalScandal
www.thereforme.uk/p/sensory-he...
Sensory hell and medical harm
My sister’s experience of very severe ME in the NHS
www.thereforme.uk
October 21, 2025 at 8:57 AM
This is happening everyday, everywhere.
Read the story of Rosie and Alice.
Everyone who has been hospitalised with ME, knows it.
"Hospitals should be places of healing – but for people with severe ME, they are often sources of harm".
#GreatestMEdicalScandal
www.thereforme.uk/p/sensory-he...
Read the story of Rosie and Alice.
Everyone who has been hospitalised with ME, knows it.
"Hospitals should be places of healing – but for people with severe ME, they are often sources of harm".
#GreatestMEdicalScandal
www.thereforme.uk/p/sensory-he...
While the danish health authorities have stopped diagnosing ME (G93.3A), and offers no effective treatments; Jesper Mehlsen, who privately has diagnosed and treated thousands with ME (incl. myself), is working on a European treatment plan, as well as assisting the US health authorities, about ME.
1) During his presentation at the 2025 Invest in ME conference in May, Dr. Jesper Mehlsen from Denmark said that he was working on a European treatment plan for ME/CFS.
He's collaborating on this with colleagues Dag Gundersen Storla (Norway) and Jonas Axelsson (Sweden).
He's collaborating on this with colleagues Dag Gundersen Storla (Norway) and Jonas Axelsson (Sweden).
October 15, 2025 at 2:01 PM
While the danish health authorities have stopped diagnosing ME (G93.3A), and offers no effective treatments; Jesper Mehlsen, who privately has diagnosed and treated thousands with ME (incl. myself), is working on a European treatment plan, as well as assisting the US health authorities, about ME.
Har sundhedsministeren tillid til sundhedsstyrelsens direktør?
ME-foreningen sender i dag den 4. bekymringsskrivelse, om sundhedsstyrelsens forældede opfattelse af hvad ME er, og manglende inddragelse af relevante somatiske læger der forsker / behandler ME (DG933A)
me-foreningen.dk/me-og-politik/
ME-foreningen sender i dag den 4. bekymringsskrivelse, om sundhedsstyrelsens forældede opfattelse af hvad ME er, og manglende inddragelse af relevante somatiske læger der forsker / behandler ME (DG933A)
me-foreningen.dk/me-og-politik/
test
test
me-foreningen.dk
October 15, 2025 at 1:55 PM
Har sundhedsministeren tillid til sundhedsstyrelsens direktør?
ME-foreningen sender i dag den 4. bekymringsskrivelse, om sundhedsstyrelsens forældede opfattelse af hvad ME er, og manglende inddragelse af relevante somatiske læger der forsker / behandler ME (DG933A)
me-foreningen.dk/me-og-politik/
ME-foreningen sender i dag den 4. bekymringsskrivelse, om sundhedsstyrelsens forældede opfattelse af hvad ME er, og manglende inddragelse af relevante somatiske læger der forsker / behandler ME (DG933A)
me-foreningen.dk/me-og-politik/
Reposted by Henrik Scheel
It would be nice if the danish politicians interested in health care would view this: More than 10% of the sick in Denmark are offered BPS-based "care" exclusively.
1) This lecture by Prof dr Vivienne Matthies-Boon is a good introduction to the problems with the biopsychosocial (BPS) model and the harms it has caused in the ME/CFS community.
September 27, 2025 at 10:58 AM
It would be nice if the danish politicians interested in health care would view this: More than 10% of the sick in Denmark are offered BPS-based "care" exclusively.
Reposted by Henrik Scheel
1) There's a new review on the impact of ME/CFS.
It concludes that "ME/CFS imposes a substantial health, social and economic burden of disease" but argues that its true burden may be even higher because many patients likely remain undiagnosed.
It concludes that "ME/CFS imposes a substantial health, social and economic burden of disease" but argues that its true burden may be even higher because many patients likely remain undiagnosed.
September 25, 2025 at 8:04 AM
1) There's a new review on the impact of ME/CFS.
It concludes that "ME/CFS imposes a substantial health, social and economic burden of disease" but argues that its true burden may be even higher because many patients likely remain undiagnosed.
It concludes that "ME/CFS imposes a substantial health, social and economic burden of disease" but argues that its true burden may be even higher because many patients likely remain undiagnosed.
Reposted by Henrik Scheel
1) 🇳🇴 A new Norwegian study looked at the health and economic impact on caregivers of people with ME/CFS.
ME/CFS strengthening traditional gender roles: female caregivers worked less and males more. All caregiver groups experienced increased personal health problems.
ME/CFS strengthening traditional gender roles: female caregivers worked less and males more. All caregiver groups experienced increased personal health problems.
September 23, 2025 at 9:26 AM
1) 🇳🇴 A new Norwegian study looked at the health and economic impact on caregivers of people with ME/CFS.
ME/CFS strengthening traditional gender roles: female caregivers worked less and males more. All caregiver groups experienced increased personal health problems.
ME/CFS strengthening traditional gender roles: female caregivers worked less and males more. All caregiver groups experienced increased personal health problems.
Reposted by Henrik Scheel
1) On May 12 2025, a group of researchers signed an International Declaration stating that "there is a moral, medical, economic and scientific imperative to invest robustly in international and collaborative research into the pathophysiology of ME/CFS and Long COVID."
September 2, 2025 at 9:32 AM
1) On May 12 2025, a group of researchers signed an International Declaration stating that "there is a moral, medical, economic and scientific imperative to invest robustly in international and collaborative research into the pathophysiology of ME/CFS and Long COVID."
Reposted by Henrik Scheel
ME is a too often ignored humanitarian crisis in many European countries
Today is #WorldHumanitarianDay – EMEA has called for EU to:
-Use proven EU mechanisms
-Fund & formalise existing efforts
-Treat ME/CFS as a legitimate public health challenge
www.europeanmealliance.org/documents/eu...
#mecfs
Today is #WorldHumanitarianDay – EMEA has called for EU to:
-Use proven EU mechanisms
-Fund & formalise existing efforts
-Treat ME/CFS as a legitimate public health challenge
www.europeanmealliance.org/documents/eu...
#mecfs
August 19, 2025 at 8:01 AM
ME is a too often ignored humanitarian crisis in many European countries
Today is #WorldHumanitarianDay – EMEA has called for EU to:
-Use proven EU mechanisms
-Fund & formalise existing efforts
-Treat ME/CFS as a legitimate public health challenge
www.europeanmealliance.org/documents/eu...
#mecfs
Today is #WorldHumanitarianDay – EMEA has called for EU to:
-Use proven EU mechanisms
-Fund & formalise existing efforts
-Treat ME/CFS as a legitimate public health challenge
www.europeanmealliance.org/documents/eu...
#mecfs
Reposted by Henrik Scheel
It’s 30 June….the ME Delivery Plan is a no-show. It’s unacceptable.
#pwME have been left in darkness for too long. I’m with @HelenMorganLibDem.bsky.social:
‘The government must think again, publish the plan without delay, and allocate it the resources it needs to make a real difference.’
#pwME have been left in darkness for too long. I’m with @HelenMorganLibDem.bsky.social:
‘The government must think again, publish the plan without delay, and allocate it the resources it needs to make a real difference.’
June 30, 2025 at 9:13 AM
Reposted by Henrik Scheel
Check out this essay by Violet Affleck - "A Chronically Ill Earth: COVID Organizing as a Model Climate Response in Los Angeles." Impressed with the understanding of ME.
yaleglobalhealthreview.com/2025/05/18/a...
#PwME #MECFS #MyalgicEncephalomyelitis #LongCovid #PublicHealth
yaleglobalhealthreview.com/2025/05/18/a...
#PwME #MECFS #MyalgicEncephalomyelitis #LongCovid #PublicHealth
May 20, 2025 at 11:04 PM
Check out this essay by Violet Affleck - "A Chronically Ill Earth: COVID Organizing as a Model Climate Response in Los Angeles." Impressed with the understanding of ME.
yaleglobalhealthreview.com/2025/05/18/a...
#PwME #MECFS #MyalgicEncephalomyelitis #LongCovid #PublicHealth
yaleglobalhealthreview.com/2025/05/18/a...
#PwME #MECFS #MyalgicEncephalomyelitis #LongCovid #PublicHealth
Reposted by Henrik Scheel
1) This is an interesting economic report that will likely be very useful for advocacy.
It estimates the costs of Long Covid and ME/CFS in Germany to be €63.1 billion (1.5% of GDP) in 2024.
It estimates the costs of Long Covid and ME/CFS in Germany to be €63.1 billion (1.5% of GDP) in 2024.
May 15, 2025 at 9:26 AM
1) This is an interesting economic report that will likely be very useful for advocacy.
It estimates the costs of Long Covid and ME/CFS in Germany to be €63.1 billion (1.5% of GDP) in 2024.
It estimates the costs of Long Covid and ME/CFS in Germany to be €63.1 billion (1.5% of GDP) in 2024.
Reposted by Henrik Scheel
On #WorldMEDay the UK ME community faces a twofold threat: the loss of critical welfare benefits, and a lack of meaningful treatments to pave their way back to work.
This must change.
We’re asking the government to back the new ME Delivery Plan with the resources it deserves.
This must change.
We’re asking the government to back the new ME Delivery Plan with the resources it deserves.
May 12, 2025 at 8:02 AM
On #WorldMEDay the UK ME community faces a twofold threat: the loss of critical welfare benefits, and a lack of meaningful treatments to pave their way back to work.
This must change.
We’re asking the government to back the new ME Delivery Plan with the resources it deserves.
This must change.
We’re asking the government to back the new ME Delivery Plan with the resources it deserves.
Reposted by Henrik Scheel
It is 𝗜𝗻𝘁𝗲𝗿𝗻𝗮𝘁𝗶𝗼𝗻𝗮𝗹 𝗠𝗘 𝗔𝘄𝗮𝗿𝗲𝗻𝗲𝘀𝘀 𝗗𝗮𝘆
𝗗𝗼 𝗻𝗼𝘁 𝗱𝗶𝘀𝗺𝗶𝘀𝘀 𝗺𝘆𝗮𝗹𝗴𝗶𝗰 𝗲𝗻𝗰𝗲𝗽𝗵𝗮𝗹𝗼𝗺𝘆𝗲𝗹𝗶𝘁𝗶𝘀 (𝗠𝗘)
The science does not!
Listen to the voices of patients
Share the video
#mecfs #InternationalMEawarenessDay #MedEd #MEAwareness #EndME
youtube.com/shorts/16vBt...
𝗗𝗼 𝗻𝗼𝘁 𝗱𝗶𝘀𝗺𝗶𝘀𝘀 𝗺𝘆𝗮𝗹𝗴𝗶𝗰 𝗲𝗻𝗰𝗲𝗽𝗵𝗮𝗹𝗼𝗺𝘆𝗲𝗹𝗶𝘁𝗶𝘀 (𝗠𝗘)
The science does not!
Listen to the voices of patients
Share the video
#mecfs #InternationalMEawarenessDay #MedEd #MEAwareness #EndME
youtube.com/shorts/16vBt...
European International ME Awareness 2025 Video 1
YouTube video by European ME Alliance
youtube.com
May 11, 2025 at 10:51 PM
It is 𝗜𝗻𝘁𝗲𝗿𝗻𝗮𝘁𝗶𝗼𝗻𝗮𝗹 𝗠𝗘 𝗔𝘄𝗮𝗿𝗲𝗻𝗲𝘀𝘀 𝗗𝗮𝘆
𝗗𝗼 𝗻𝗼𝘁 𝗱𝗶𝘀𝗺𝗶𝘀𝘀 𝗺𝘆𝗮𝗹𝗴𝗶𝗰 𝗲𝗻𝗰𝗲𝗽𝗵𝗮𝗹𝗼𝗺𝘆𝗲𝗹𝗶𝘁𝗶𝘀 (𝗠𝗘)
The science does not!
Listen to the voices of patients
Share the video
#mecfs #InternationalMEawarenessDay #MedEd #MEAwareness #EndME
youtube.com/shorts/16vBt...
𝗗𝗼 𝗻𝗼𝘁 𝗱𝗶𝘀𝗺𝗶𝘀𝘀 𝗺𝘆𝗮𝗹𝗴𝗶𝗰 𝗲𝗻𝗰𝗲𝗽𝗵𝗮𝗹𝗼𝗺𝘆𝗲𝗹𝗶𝘁𝗶𝘀 (𝗠𝗘)
The science does not!
Listen to the voices of patients
Share the video
#mecfs #InternationalMEawarenessDay #MedEd #MEAwareness #EndME
youtube.com/shorts/16vBt...
Reposted by Henrik Scheel
Most of our community are not well enough to protest on the street but we are making our voices heard from our beds about why cuts to ME/CFS research funding is so devastating to our community.
Wilhelmina Jenkins is one of the #MillionsMissing showing up from home!
youtube.com/shorts/ypEHp...
Wilhelmina Jenkins is one of the #MillionsMissing showing up from home!
youtube.com/shorts/ypEHp...
Wilhelmina shares why she joins with the #MillionsMissing this May 12th. #DisabilitySOS #pwME
YouTube video by The ME Action Network
youtube.com
May 9, 2025 at 6:58 PM
Most of our community are not well enough to protest on the street but we are making our voices heard from our beds about why cuts to ME/CFS research funding is so devastating to our community.
Wilhelmina Jenkins is one of the #MillionsMissing showing up from home!
youtube.com/shorts/ypEHp...
Wilhelmina Jenkins is one of the #MillionsMissing showing up from home!
youtube.com/shorts/ypEHp...
Reposted by Henrik Scheel
Reposted by Henrik Scheel
Folks need to read this… we’ve forgotten Upton Sinclair and The Jungle.
April 22, 2025 at 3:20 PM
Folks need to read this… we’ve forgotten Upton Sinclair and The Jungle.
Reposted by Henrik Scheel
This looks like an interesting and much needed project.
In Neunkirchen-Seelscheid in Germany, a housing project is being planned especially for severely ME/CFS sufferers with 24-hour assistance.
sozialhummel.de/wohn...
In Neunkirchen-Seelscheid in Germany, a housing project is being planned especially for severely ME/CFS sufferers with 24-hour assistance.
sozialhummel.de/wohn...
April 19, 2025 at 8:18 AM
This looks like an interesting and much needed project.
In Neunkirchen-Seelscheid in Germany, a housing project is being planned especially for severely ME/CFS sufferers with 24-hour assistance.
sozialhummel.de/wohn...
In Neunkirchen-Seelscheid in Germany, a housing project is being planned especially for severely ME/CFS sufferers with 24-hour assistance.
sozialhummel.de/wohn...
Reposted by Henrik Scheel
Remembering ME activist (& my friend) Robert "Bob" Courtney, who passed away on March 7, 2018.
This is from the @meassociation.bsky.social
magazine.
One can read about some of the specifics of Bob's work here: me-pedia.org/wiki/Robert_...
#MyalgicEncephalomyelitis #MEcfs #CFS #MyalgicE #PwME
This is from the @meassociation.bsky.social
magazine.
One can read about some of the specifics of Bob's work here: me-pedia.org/wiki/Robert_...
#MyalgicEncephalomyelitis #MEcfs #CFS #MyalgicE #PwME
March 8, 2025 at 2:46 PM
Remembering ME activist (& my friend) Robert "Bob" Courtney, who passed away on March 7, 2018.
This is from the @meassociation.bsky.social
magazine.
One can read about some of the specifics of Bob's work here: me-pedia.org/wiki/Robert_...
#MyalgicEncephalomyelitis #MEcfs #CFS #MyalgicE #PwME
This is from the @meassociation.bsky.social
magazine.
One can read about some of the specifics of Bob's work here: me-pedia.org/wiki/Robert_...
#MyalgicEncephalomyelitis #MEcfs #CFS #MyalgicE #PwME
Den røde bark på den tibetanske kirsebær pynter godt i vintersolen.
February 18, 2025 at 1:55 PM
Den røde bark på den tibetanske kirsebær pynter godt i vintersolen.
Reposted by Henrik Scheel
I never thought a day would come when I would write a post this critical about the Cochrane Collaboration. But today was that day:
absolutelymaybe.plos.org/2025/01/24/w...
#mecfs
absolutelymaybe.plos.org/2025/01/24/w...
#mecfs
When Journal, Scientific Society, and Community Values Clash - Absolutely Maybe
A process I’ve been involved with at a journal recently exploded. It was meant to resolve a controversy about a publication, not…
absolutelymaybe.plos.org
January 24, 2025 at 5:17 AM
I never thought a day would come when I would write a post this critical about the Cochrane Collaboration. But today was that day:
absolutelymaybe.plos.org/2025/01/24/w...
#mecfs
absolutelymaybe.plos.org/2025/01/24/w...
#mecfs
Disturbing that Cochrane, the organization supposed to be a solid pillar of medical science, is re-dating an outdated low-quality and harmfull study, as if it was the latest knowledge!
chng.it/GTfxRrrsFR
chng.it/GTfxRrrsFR
Can you spare a minute to help this campaign?
Cochrane: Withdraw the harmful 2019/2024 Exercise therapy for CFS review
chng.it
January 24, 2025 at 9:35 AM
Disturbing that Cochrane, the organization supposed to be a solid pillar of medical science, is re-dating an outdated low-quality and harmfull study, as if it was the latest knowledge!
chng.it/GTfxRrrsFR
chng.it/GTfxRrrsFR