@jorybak.bsky.social
Finance & Art. History & Sociology & Fashion History. ME/CFS & LC
Pinned
Three years ago - When I was in recovery from the #PulmonaryEmbolism that #COVID19 had caused.
If you follow my thread you'll see me push harder... and harder... Until I got #LongCovid #PEM.
Don't push too hard after #BloodClots - especially if you've ever had #SARScov2 😔
x.com/benking01/st...
If you follow my thread you'll see me push harder... and harder... Until I got #LongCovid #PEM.
Don't push too hard after #BloodClots - especially if you've ever had #SARScov2 😔
x.com/benking01/st...
Reminder to listen to your body and not push yourself during the first few months after you had a Covid, EBV, CMV or other virus infection🦠 Pushing yourself too hard can lead to Long Covid & ME/CFS and cause you to become disabled. Don’t take your health for granted.
Reposted
Bobcaygeon, Ont.
Isabel McLaughlin
1928
Isabel McLaughlin
1928
December 15, 2025 at 5:04 PM
Bobcaygeon, Ont.
Isabel McLaughlin
1928
Isabel McLaughlin
1928
Reposted
9-year anniversary of reanalysis paper on recovery in £5m #PACEtrial, with data the PACE team fought so hard to keep to themselves.
Shows recovery rates in all trial arms were low, using the criteria the PIs promised in their own protocol
tandfonline.com/doi/full/10....
#MEcfs #CFS
Shows recovery rates in all trial arms were low, using the criteria the PIs promised in their own protocol
tandfonline.com/doi/full/10....
#MEcfs #CFS
December 14, 2025 at 1:54 PM
9-year anniversary of reanalysis paper on recovery in £5m #PACEtrial, with data the PACE team fought so hard to keep to themselves.
Shows recovery rates in all trial arms were low, using the criteria the PIs promised in their own protocol
tandfonline.com/doi/full/10....
#MEcfs #CFS
Shows recovery rates in all trial arms were low, using the criteria the PIs promised in their own protocol
tandfonline.com/doi/full/10....
#MEcfs #CFS
Reposted
Calibri is out at the State Department while Times New Roman is in.
The Trump Administration Frames Its Second Term in Serif Fonts
Calibri is out at the State Department while Times New Roman is in. Also: What a new architect brings to the White House ballroom project.
bloom.bg
December 14, 2025 at 1:30 PM
Calibri is out at the State Department while Times New Roman is in.
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1) A recent review on assessing ME/CFS symptoms recommended the following questionnaires and tools.
It focuses on assessment tools that have been used the most in the past, but few are actually specific to ME/CFS, and some (such as the HADS and CFQ) are highly problematic.
It focuses on assessment tools that have been used the most in the past, but few are actually specific to ME/CFS, and some (such as the HADS and CFQ) are highly problematic.
December 10, 2025 at 8:50 AM
1) A recent review on assessing ME/CFS symptoms recommended the following questionnaires and tools.
It focuses on assessment tools that have been used the most in the past, but few are actually specific to ME/CFS, and some (such as the HADS and CFQ) are highly problematic.
It focuses on assessment tools that have been used the most in the past, but few are actually specific to ME/CFS, and some (such as the HADS and CFQ) are highly problematic.
Reposted
Rhys ab Owen MS shares the story of a woman with #MECFS who spent decades housebound & bedbound. Her mother describes >30 years of neglect, abuse & being ignored because professionals would not set aside their beliefs, e.g. a child protection referral that caused years of stress.
December 12, 2025 at 7:35 AM
Rhys ab Owen MS shares the story of a woman with #MECFS who spent decades housebound & bedbound. Her mother describes >30 years of neglect, abuse & being ignored because professionals would not set aside their beliefs, e.g. a child protection referral that caused years of stress.
Reposted
Can you actually lie to participants in a clinical trial and still pass ethical review? It seems so, at least at Western University in Ontario, Canada. virology.ws/2025/12/11/t...
Trial By Error: In Protocol for Long COVID Exercise Trial, Investigators Advocate Lying to Participants | Virology Blog
By David Tuller, DrPH Researchers are planning yet another trial of a rehabilitative exercise program for Long COVID—but, in this one, they propose to lie t ...
virology.ws
December 11, 2025 at 5:51 PM
Can you actually lie to participants in a clinical trial and still pass ethical review? It seems so, at least at Western University in Ontario, Canada. virology.ws/2025/12/11/t...
Reposted
BLITZ: “.. the Fed and Treasury balance sheets are essentially one .. What Bessent/Trump want is cheap funding – flood the short end and starve the long end .. Today, the Fed announced it will be there to buy the short end. Put this one in the column for why inflation will be higher in 2026.”
December 11, 2025 at 1:17 PM
BLITZ: “.. the Fed and Treasury balance sheets are essentially one .. What Bessent/Trump want is cheap funding – flood the short end and starve the long end .. Today, the Fed announced it will be there to buy the short end. Put this one in the column for why inflation will be higher in 2026.”
Reposted
😷The real scandal isn’t masks - it’s how many people need them and are denied cultural permission to use them without ridicule.
It shows a culture deeply rooted in ableism. Disabled people had reinforced (again) that adaptions are not normalised, they are stigmatised. /13
It shows a culture deeply rooted in ableism. Disabled people had reinforced (again) that adaptions are not normalised, they are stigmatised. /13
December 11, 2025 at 9:56 AM
😷The real scandal isn’t masks - it’s how many people need them and are denied cultural permission to use them without ridicule.
It shows a culture deeply rooted in ableism. Disabled people had reinforced (again) that adaptions are not normalised, they are stigmatised. /13
It shows a culture deeply rooted in ableism. Disabled people had reinforced (again) that adaptions are not normalised, they are stigmatised. /13
Reposted
😷 Masks aren't traumatising.
Abandonment is.
Airborne denial is.
Hospital-acquired infection is.
Long Covid and severe ME is.
The most traumatising part of the ongoing pandemic and current flu surge is the refusal to care. /14
Abandonment is.
Airborne denial is.
Hospital-acquired infection is.
Long Covid and severe ME is.
The most traumatising part of the ongoing pandemic and current flu surge is the refusal to care. /14
December 11, 2025 at 9:56 AM
😷 Masks aren't traumatising.
Abandonment is.
Airborne denial is.
Hospital-acquired infection is.
Long Covid and severe ME is.
The most traumatising part of the ongoing pandemic and current flu surge is the refusal to care. /14
Abandonment is.
Airborne denial is.
Hospital-acquired infection is.
Long Covid and severe ME is.
The most traumatising part of the ongoing pandemic and current flu surge is the refusal to care. /14
Reposted
🧵PUBLIC HEALTH SHOULD NOT BE A CULTURE WAR
😷 It’s bizarre watching politicians, like Kemi Badenoch perform trauma around masks while millions live with the reality of not masking; death, disability, ME, Long Covid.
The Guardian are asking for opinions on masking 🖇️👇 /1
😷 It’s bizarre watching politicians, like Kemi Badenoch perform trauma around masks while millions live with the reality of not masking; death, disability, ME, Long Covid.
The Guardian are asking for opinions on masking 🖇️👇 /1
December 11, 2025 at 9:56 AM
🧵PUBLIC HEALTH SHOULD NOT BE A CULTURE WAR
😷 It’s bizarre watching politicians, like Kemi Badenoch perform trauma around masks while millions live with the reality of not masking; death, disability, ME, Long Covid.
The Guardian are asking for opinions on masking 🖇️👇 /1
😷 It’s bizarre watching politicians, like Kemi Badenoch perform trauma around masks while millions live with the reality of not masking; death, disability, ME, Long Covid.
The Guardian are asking for opinions on masking 🖇️👇 /1
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Reposted
This is Levi. He encountered a forbidden stick while on his walk. Decided to go for it anyway. 13/10 (TT: levisgoldenworld)
December 10, 2025 at 11:15 PM
This is Levi. He encountered a forbidden stick while on his walk. Decided to go for it anyway. 13/10 (TT: levisgoldenworld)
Reposted
If that was headed for China, watch out.
*US SEIZES OIL TANKER OFF THE COAST OF VENEZUELA
December 10, 2025 at 6:41 PM
If that was headed for China, watch out.
Reposted
Bank of Canada plays the Goldilocks card, keeps interest rates policy steady at 2.25%
www.bankofcanada.ca/2025/12/fad-...
Expect higher rates in 2026 due to price inflation from tariff impacts?
Depends on how many more jobs are lost because of tariffs.
Wouldn't want to be a central banker rn
www.bankofcanada.ca/2025/12/fad-...
Expect higher rates in 2026 due to price inflation from tariff impacts?
Depends on how many more jobs are lost because of tariffs.
Wouldn't want to be a central banker rn
Rate announcement to come at 9:45 (ET)
Automatically view the rate announcement the moment it is published.
www.bankofcanada.ca
December 10, 2025 at 2:48 PM
Bank of Canada plays the Goldilocks card, keeps interest rates policy steady at 2.25%
www.bankofcanada.ca/2025/12/fad-...
Expect higher rates in 2026 due to price inflation from tariff impacts?
Depends on how many more jobs are lost because of tariffs.
Wouldn't want to be a central banker rn
www.bankofcanada.ca/2025/12/fad-...
Expect higher rates in 2026 due to price inflation from tariff impacts?
Depends on how many more jobs are lost because of tariffs.
Wouldn't want to be a central banker rn
Reposted
Representative Haley Stevens of Michigan, a Democrat running for Senate, filed articles of impeachment on Wednesday against Health Secretary Robert F. Kennedy Jr. Democratic leaders haven’t backed the move, and it’s all but certain to fail.
House Democrat Seeks to Impeach RFK Jr. for Undercutting Public Health
The move by Representative Haley Stevens, a Michigan Democrat who is running for Senate, does not have the support of her party’s leaders and is all but certain to fail.
nyti.ms
December 10, 2025 at 2:50 PM
Representative Haley Stevens of Michigan, a Democrat running for Senate, filed articles of impeachment on Wednesday against Health Secretary Robert F. Kennedy Jr. Democratic leaders haven’t backed the move, and it’s all but certain to fail.
Reposted
BofAI: Not O"K"? Lower-income households' spending growth was 0.6% YoY in November.
+2.6% YoY for higher-income peers
+2.6% YoY for higher-income peers
December 10, 2025 at 2:30 PM
BofAI: Not O"K"? Lower-income households' spending growth was 0.6% YoY in November.
+2.6% YoY for higher-income peers
+2.6% YoY for higher-income peers
Reposted
NEW investigative report: "Things will get really nasty." Hedge funds. Brokerages. Billionaires. Jeffrey Epstein’s financial ties on and off Wall Street were broader than previously known, a cache of emails @bloomberg.com obtained earlier this year reveals
🧵
www.bloomberg.com/features/202...
🧵
www.bloomberg.com/features/202...
How Epstein’s Wall Street Contacts Helped Him Build Wealth and Power
The disgraced financier maintained an abundance of access across the finance industry and was willing to play hardball to secure wealth and influence.
www.bloomberg.com
December 10, 2025 at 2:52 PM
NEW investigative report: "Things will get really nasty." Hedge funds. Brokerages. Billionaires. Jeffrey Epstein’s financial ties on and off Wall Street were broader than previously known, a cache of emails @bloomberg.com obtained earlier this year reveals
🧵
www.bloomberg.com/features/202...
🧵
www.bloomberg.com/features/202...
Reposted
3/
Heard of #LongCOVID?
The only surefire way to prevent Long COVID is to avoid COVID. And the risk of developing this chronically, debilitating condition, for which there still is no cure, stacks up with each #Reinfection -
Justin's Long Covid Story:
youtu.be/p8HPBmtHzEg?...
Heard of #LongCOVID?
The only surefire way to prevent Long COVID is to avoid COVID. And the risk of developing this chronically, debilitating condition, for which there still is no cure, stacks up with each #Reinfection -
Justin's Long Covid Story:
youtu.be/p8HPBmtHzEg?...
Justin's Long Covid Story - Canadian Covid Society
YouTube video by Canadian Covid Society
youtu.be
December 10, 2025 at 2:53 PM
3/
Heard of #LongCOVID?
The only surefire way to prevent Long COVID is to avoid COVID. And the risk of developing this chronically, debilitating condition, for which there still is no cure, stacks up with each #Reinfection -
Justin's Long Covid Story:
youtu.be/p8HPBmtHzEg?...
Heard of #LongCOVID?
The only surefire way to prevent Long COVID is to avoid COVID. And the risk of developing this chronically, debilitating condition, for which there still is no cure, stacks up with each #Reinfection -
Justin's Long Covid Story:
youtu.be/p8HPBmtHzEg?...
Reposted
Rutgers Univ.: 'Could Hidden Infections Be Fueling Long COVID?'
'A review published in eLife by 17 experts, including those from Rutgers Health, argues that co-infections acquired before or during COVID could cause symptoms to persist indefinitely for many people'
www.newswise.com/articles/cou...
'A review published in eLife by 17 experts, including those from Rutgers Health, argues that co-infections acquired before or during COVID could cause symptoms to persist indefinitely for many people'
www.newswise.com/articles/cou...
Could Hidden Infections Be Fueling Long COVID? | Newswise
Leading microbiologists from Rutgers Health and other institutes say the condition may be driven by the company the coronavirus keeps.
www.newswise.com
December 10, 2025 at 2:53 PM
Rutgers Univ.: 'Could Hidden Infections Be Fueling Long COVID?'
'A review published in eLife by 17 experts, including those from Rutgers Health, argues that co-infections acquired before or during COVID could cause symptoms to persist indefinitely for many people'
www.newswise.com/articles/cou...
'A review published in eLife by 17 experts, including those from Rutgers Health, argues that co-infections acquired before or during COVID could cause symptoms to persist indefinitely for many people'
www.newswise.com/articles/cou...
Reposted
just riffing on this, in 1944 my grandad's friend Paddy, who would go on to become a very distinguished writer, kidnapped a German general in occupied Crete and took him up into the mountains with a resistance team, from where he was sent on to the UK by submarine. Now, up in the mountains ...
there is not any particularly strong evidence that study of the humanities make people good people. the elites of many brutal empires were extremely well-read!
December 9, 2025 at 10:36 PM
just riffing on this, in 1944 my grandad's friend Paddy, who would go on to become a very distinguished writer, kidnapped a German general in occupied Crete and took him up into the mountains with a resistance team, from where he was sent on to the UK by submarine. Now, up in the mountains ...
Reposted
Terrific thread
just riffing on this, in 1944 my grandad's friend Paddy, who would go on to become a very distinguished writer, kidnapped a German general in occupied Crete and took him up into the mountains with a resistance team, from where he was sent on to the UK by submarine. Now, up in the mountains ...
there is not any particularly strong evidence that study of the humanities make people good people. the elites of many brutal empires were extremely well-read!
December 10, 2025 at 1:05 AM
Terrific thread
Reposted
NEW investigative report: "Things will get really nasty." Hedge funds. Brokerages. Billionaires. Jeffrey Epstein’s financial ties on and off Wall Street were broader than previously known, a cache of emails @bloomberg.com obtained earlier this year reveals
🧵
www.bloomberg.com/features/202...
🧵
www.bloomberg.com/features/202...
How Epstein’s Wall Street Contacts Helped Him Build Wealth and Power
The disgraced financier maintained an abundance of access across the finance industry and was willing to play hardball to secure wealth and influence.
www.bloomberg.com
December 10, 2025 at 2:53 PM
NEW investigative report: "Things will get really nasty." Hedge funds. Brokerages. Billionaires. Jeffrey Epstein’s financial ties on and off Wall Street were broader than previously known, a cache of emails @bloomberg.com obtained earlier this year reveals
🧵
www.bloomberg.com/features/202...
🧵
www.bloomberg.com/features/202...
Reposted
The Sick Times: 'Doctors who refuse to engage with administrative work are abandoning their poorest and sickest patients'
Written by Miranda DeNovo
'For more than a year, I’ve been helping take care of multiple community members with very severe Long COVID & ME..'
thesicktimes.org/2025/12/09/d...
Written by Miranda DeNovo
'For more than a year, I’ve been helping take care of multiple community members with very severe Long COVID & ME..'
thesicktimes.org/2025/12/09/d...
Doctors who refuse to engage with administrative work are abandoning their poorest and sickest patients - The Sick Times
Having a Long COVID or ME doctor who is willing and available to engage with survival admin makes the difference between being able to access necessities and going without, and can be the only lifelin...
thesicktimes.org
December 9, 2025 at 9:53 PM
The Sick Times: 'Doctors who refuse to engage with administrative work are abandoning their poorest and sickest patients'
Written by Miranda DeNovo
'For more than a year, I’ve been helping take care of multiple community members with very severe Long COVID & ME..'
thesicktimes.org/2025/12/09/d...
Written by Miranda DeNovo
'For more than a year, I’ve been helping take care of multiple community members with very severe Long COVID & ME..'
thesicktimes.org/2025/12/09/d...
Reposted
"The eventual American woman will be even more beautiful than the woman of to-day. Her claims to that distinction will result from a fine combination of the best points of all those many races which have helped to make our population." -- Charles Dana Gibson, 1910
December 10, 2025 at 2:34 AM
"The eventual American woman will be even more beautiful than the woman of to-day. Her claims to that distinction will result from a fine combination of the best points of all those many races which have helped to make our population." -- Charles Dana Gibson, 1910