Hari
@harik.bsky.social
Multiple myeloma, healthcare patient advocate, compassion for all living with cancer.
Reposted by Hari
As if cancer itself wasn’t bad enough, it also creates a barrier between you and your loved ones. They’ll struggle to understand. They want to help but they’ve got their own feelings to process. So they’ll inevitably be clumsy with the words they use.
#cansky
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#cansky
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August 2, 2025 at 2:14 PM
As if cancer itself wasn’t bad enough, it also creates a barrier between you and your loved ones. They’ll struggle to understand. They want to help but they’ve got their own feelings to process. So they’ll inevitably be clumsy with the words they use.
#cansky
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#cansky
1/3
Reposted by Hari
And you, the person with cancer: you’ll be tired, scared and overwhelmed. You’ll have little patience for this clumsiness. You’ll feel isolated. You’ll wish they understood.
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August 2, 2025 at 2:15 PM
And you, the person with cancer: you’ll be tired, scared and overwhelmed. You’ll have little patience for this clumsiness. You’ll feel isolated. You’ll wish they understood.
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Reposted by Hari
We’ve all got to try and meet each other halfway.
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August 2, 2025 at 2:16 PM
We’ve all got to try and meet each other halfway.
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Reposted by Hari
“Get the tests! Get checked!”
Yes, of course you should.
But getting the tests is a stressful and disruptive process. It’s not cost-free.
As a cancer survivor, I’ve had to learn precisely *when* getting the tests is the best possible thing for my health. It’s not easy to navigate.
#cansky
Yes, of course you should.
But getting the tests is a stressful and disruptive process. It’s not cost-free.
As a cancer survivor, I’ve had to learn precisely *when* getting the tests is the best possible thing for my health. It’s not easy to navigate.
#cansky
June 17, 2025 at 11:22 AM
“Get the tests! Get checked!”
Yes, of course you should.
But getting the tests is a stressful and disruptive process. It’s not cost-free.
As a cancer survivor, I’ve had to learn precisely *when* getting the tests is the best possible thing for my health. It’s not easy to navigate.
#cansky
Yes, of course you should.
But getting the tests is a stressful and disruptive process. It’s not cost-free.
As a cancer survivor, I’ve had to learn precisely *when* getting the tests is the best possible thing for my health. It’s not easy to navigate.
#cansky
Reposted by Hari
There isn’t anything you can say to make it better. If there was, then cancer wouldn’t be a big deal.
Loved ones, friends, doctors and nurses: be with us, if you can. Sit alongside us in our pain. I know it’s hard. That’s why it means so much.
#cansky #graphicmedicine
Loved ones, friends, doctors and nurses: be with us, if you can. Sit alongside us in our pain. I know it’s hard. That’s why it means so much.
#cansky #graphicmedicine
April 27, 2025 at 2:05 PM
There isn’t anything you can say to make it better. If there was, then cancer wouldn’t be a big deal.
Loved ones, friends, doctors and nurses: be with us, if you can. Sit alongside us in our pain. I know it’s hard. That’s why it means so much.
#cansky #graphicmedicine
Loved ones, friends, doctors and nurses: be with us, if you can. Sit alongside us in our pain. I know it’s hard. That’s why it means so much.
#cansky #graphicmedicine
Reposted by Hari
I hadn't realised just how important food was to my happiness until nausea and taste bud weirdness disrupted my diet.
One of the cruel things about chemo is how it messes with your ability to enjoy food.
I felt so ill. All I wanted to do was curl up with a big bar of chocolate. But sweet things clung to the inside of my mouth and made it hurt too much.
(I’m back on the crisps now but it took a year)
#cansky
I felt so ill. All I wanted to do was curl up with a big bar of chocolate. But sweet things clung to the inside of my mouth and made it hurt too much.
(I’m back on the crisps now but it took a year)
#cansky
April 20, 2025 at 11:35 AM
I hadn't realised just how important food was to my happiness until nausea and taste bud weirdness disrupted my diet.
Reposted by Hari
Rates of Influenza and Pneumococcal Vaccination and Correlation with Survival in Multiple Myeloma Patients [Dec 6, 2022] @mtmdphd et al. @AjaiChari CLML www.clinical-lymphoma-myeloma-leukemia.com/article/S215... #NCT02761187 #mmsm #IDonc #ClinicalTrials #caxtx
February 14, 2025 at 1:37 PM
Rates of Influenza and Pneumococcal Vaccination and Correlation with Survival in Multiple Myeloma Patients [Dec 6, 2022] @mtmdphd et al. @AjaiChari CLML www.clinical-lymphoma-myeloma-leukemia.com/article/S215... #NCT02761187 #mmsm #IDonc #ClinicalTrials #caxtx
Reposted by Hari
I'm proud to have @emilyslist.bsky.social endorsement. We know that when we respect women, our families and communities are stronger.
February 13, 2025 at 4:47 PM
I'm proud to have @emilyslist.bsky.social endorsement. We know that when we respect women, our families and communities are stronger.
Reposted by Hari
May we be liberated from the causes and conditions that give rise to human cruelty. January 25, 1945, Auschwitz was liberated.
January 27, 2025 at 5:19 PM
May we be liberated from the causes and conditions that give rise to human cruelty. January 25, 1945, Auschwitz was liberated.
Reposted by Hari
I voted NO on Pete Hegseth.
January 25, 2025 at 2:52 AM
I voted NO on Pete Hegseth.
Reposted by Hari
In a mostly bleak election for American women and their rights, New Mexico was an unexpected bright spot.
Even as Harris lost her bid for the White House, NM voters elected 60 women to fill the legislature’s 112 seats, giving New Mexico the largest female legislative majority in US history.
Even as Harris lost her bid for the White House, NM voters elected 60 women to fill the legislature’s 112 seats, giving New Mexico the largest female legislative majority in US history.
New Mexico: Here’s what the largest female legislative majority in US history can accomplish
“There’s a chance for me to help protect my girls from legislators and from laws that want to control their bodies.”
www.motherjones.com
January 18, 2025 at 4:20 PM
In a mostly bleak election for American women and their rights, New Mexico was an unexpected bright spot.
Even as Harris lost her bid for the White House, NM voters elected 60 women to fill the legislature’s 112 seats, giving New Mexico the largest female legislative majority in US history.
Even as Harris lost her bid for the White House, NM voters elected 60 women to fill the legislature’s 112 seats, giving New Mexico the largest female legislative majority in US history.
Reposted by Hari
FDA purges material on clinical trial diversity from its site, showing stakes of Trump DEI ban
From me and @lizzylawrence.bsky.social
www.statnews.com/2025/01/23/f...
From me and @lizzylawrence.bsky.social
www.statnews.com/2025/01/23/f...
FDA purges material on clinical trial diversity from its site, showing stakes of Trump DEI ban
Following the Trump administration's DEI ban, the FDA's move to scrub webpages has ensnared many pages focused on ensuring diversity in drug trials.
www.statnews.com
January 24, 2025 at 6:27 AM
Reposted by Hari
A bow to courageous women speaking truth to power, not complying with harmful orders, not backing down.. Thank you, Rev Budde, Mayor Bowser, Liz Cheney, Rebecca Solnit, Terry Tempest Williams, and so many more. We will be seeing more and more women in solidarity meeting these times with integrity.
January 21, 2025 at 10:12 PM
A bow to courageous women speaking truth to power, not complying with harmful orders, not backing down.. Thank you, Rev Budde, Mayor Bowser, Liz Cheney, Rebecca Solnit, Terry Tempest Williams, and so many more. We will be seeing more and more women in solidarity meeting these times with integrity.
Reposted by Hari
Building wildlife crossings saves lives and reduces the risk of dangerous vehicle collisions. That’s why I worked to establish the Wildlife Crossings Pilot Program in the Infrastructure Law. I'm happy to see this funding delivered to Santa Ana Pueblo. www.abqjournal.com/news/article...
Santa Ana Pueblo gets millions to design wildlife corridors
I-25 is a barrier to animal migration and the scene of dangerous collisions between large animals and cars. The Pueblo of Santa Ana is getting $6.4 million in federal dollars to plan and design overpa...
www.abqjournal.com
January 18, 2025 at 7:30 PM
Building wildlife crossings saves lives and reduces the risk of dangerous vehicle collisions. That’s why I worked to establish the Wildlife Crossings Pilot Program in the Infrastructure Law. I'm happy to see this funding delivered to Santa Ana Pueblo. www.abqjournal.com/news/article...
Reposted by Hari
Tribes, traditional communities, the County of Santa Fe, sportsmen, hikers, birders, and countless New Mexicans all want to see the Caja protected as a national monument. I’m calling on the Department of the Interior and USDA to get this done.
January 17, 2025 at 7:15 PM
Tribes, traditional communities, the County of Santa Fe, sportsmen, hikers, birders, and countless New Mexicans all want to see the Caja protected as a national monument. I’m calling on the Department of the Interior and USDA to get this done.
Reposted by Hari
For any myeloma patient impacted by the fires, needing a secure place to have your medications sent. The
#IMF is here to help.
mmsm.link/4fUaOtt
#IMF is here to help.
mmsm.link/4fUaOtt
January 16, 2025 at 5:35 PM
For any myeloma patient impacted by the fires, needing a secure place to have your medications sent. The
#IMF is here to help.
mmsm.link/4fUaOtt
#IMF is here to help.
mmsm.link/4fUaOtt
Reposted by Hari
**Good News**
The New Mexico Supreme Court ruled unanimously that local governments cannot restrict abortion services, striking down ordinances adopted by 4 New Mexico counties.
The New Mexico Supreme Court ruled unanimously that local governments cannot restrict abortion services, striking down ordinances adopted by 4 New Mexico counties.
January 10, 2025 at 2:16 PM
**Good News**
The New Mexico Supreme Court ruled unanimously that local governments cannot restrict abortion services, striking down ordinances adopted by 4 New Mexico counties.
The New Mexico Supreme Court ruled unanimously that local governments cannot restrict abortion services, striking down ordinances adopted by 4 New Mexico counties.
Reposted by Hari
New Mexico Wild's Mark Allison says it perfectly: "Thanks to President Carter, NM has these special wild areas that are inseparable from our identity and way of life."
President Carter left an indelible mark on NM, & it’s on us to carry his work forward.
www.santafenewmexican.com/news/local_n...
President Carter left an indelible mark on NM, & it’s on us to carry his work forward.
www.santafenewmexican.com/news/local_n...
Carter's public lands legacy left lasting mark on New Mexico
From the Continental Divide trail to the Chama River Canyon Wilderness, Carter's conservation legacy stands out in New Mexico.
www.santafenewmexican.com
January 10, 2025 at 2:42 PM
New Mexico Wild's Mark Allison says it perfectly: "Thanks to President Carter, NM has these special wild areas that are inseparable from our identity and way of life."
President Carter left an indelible mark on NM, & it’s on us to carry his work forward.
www.santafenewmexican.com/news/local_n...
President Carter left an indelible mark on NM, & it’s on us to carry his work forward.
www.santafenewmexican.com/news/local_n...
Reposted by Hari
Jan 6... I will not, cannot turn away from the horrors of this day four years ago.
January 6, 2025 at 1:15 PM
Jan 6... I will not, cannot turn away from the horrors of this day four years ago.
Beautiful New Mexico sunrise this morning.
December 31, 2024 at 2:08 PM
Beautiful New Mexico sunrise this morning.
Reposted by Hari
Reminder:
Health insurance companies don’t “provide healthcare.”
They withhold access to it.
That’s their business model.
Which is why we need Medicare for All which would guarantee healthcare for everyone, save lives, save money, cost less, and create jobs.
www.propublica.org/article/ment...
Health insurance companies don’t “provide healthcare.”
They withhold access to it.
That’s their business model.
Which is why we need Medicare for All which would guarantee healthcare for everyone, save lives, save money, cost less, and create jobs.
www.propublica.org/article/ment...
Insurers Continue to Rely on Doctors Whose Judgments Have Been Criticized by Courts
In dozens of cases ProPublica reviewed, judges found that some doctors working for these companies engaged in “selective readings” of medical evidence and “shut their eyes” to medical opinions opposin...
www.propublica.org
December 30, 2024 at 12:24 PM
Reminder:
Health insurance companies don’t “provide healthcare.”
They withhold access to it.
That’s their business model.
Which is why we need Medicare for All which would guarantee healthcare for everyone, save lives, save money, cost less, and create jobs.
www.propublica.org/article/ment...
Health insurance companies don’t “provide healthcare.”
They withhold access to it.
That’s their business model.
Which is why we need Medicare for All which would guarantee healthcare for everyone, save lives, save money, cost less, and create jobs.
www.propublica.org/article/ment...
Reposted by Hari
I need someone to explain to me why it’s always “if you can’t pay rent, buy fewer lattes and avocado toasts” and not “if you can’t pay your employees a living wage, buy fewer yachts and real estate”.
Explain it to me like I’m in kindergarten.
Explain it to me like I’m in kindergarten.
December 26, 2024 at 8:30 PM
I need someone to explain to me why it’s always “if you can’t pay rent, buy fewer lattes and avocado toasts” and not “if you can’t pay your employees a living wage, buy fewer yachts and real estate”.
Explain it to me like I’m in kindergarten.
Explain it to me like I’m in kindergarten.
Reposted by Hari
Highlights of ASH 2024: Focus on Multiple Myeloma #ASH24 #mmsm #bmtsm opmed.doximity.com/articles/hig...
Highlights of ASH 2024: Focus on Multiple Myeloma
According to the Surveillance, Epidemiology, and End Results Program registry, approximately 36,000 patients are annually diagnosed with multiple m...
opmed.doximity.com
December 23, 2024 at 10:27 PM
Highlights of ASH 2024: Focus on Multiple Myeloma #ASH24 #mmsm #bmtsm opmed.doximity.com/articles/hig...
Reposted by Hari
Patients with multiple myeloma undergoing stem cell transplants face higher infection risks if colonized with resistant bacteria, but their survival and blood recovery remain unaffected.
www.nature.com/articles/s41...
www.nature.com/articles/s41...
Impact of gut colonization by antibiotic-resistant bacteria on the outcomes of autologous stem cell transplantation in multiple myeloma - Scientific Reports
Scientific Reports - Impact of gut colonization by antibiotic-resistant bacteria on the outcomes of autologous stem cell transplantation in multiple myeloma
www.nature.com
December 28, 2024 at 10:56 AM
Patients with multiple myeloma undergoing stem cell transplants face higher infection risks if colonized with resistant bacteria, but their survival and blood recovery remain unaffected.
www.nature.com/articles/s41...
www.nature.com/articles/s41...