Jenn Wieworka DNP, OCN
@jwiew.bsky.social
Patient Advocate and Educator, #MultipleMyeloma, #IMF, roller derby #MNRD, my views are my own, (She/Her)
Reposted by Jenn Wieworka DNP, OCN
If you're facing myeloma, you are not alone. ❤️ This #GivingTuesday, will you stand with us to support the myeloma community every step of the way? Your gift matters. Help the myeloma community thrive at https://fundraise.myeloma.org/campaign/728167/donate
November 23, 2025 at 5:31 PM
If you're facing myeloma, you are not alone. ❤️ This #GivingTuesday, will you stand with us to support the myeloma community every step of the way? Your gift matters. Help the myeloma community thrive at https://fundraise.myeloma.org/campaign/728167/donate
Reposted by Jenn Wieworka DNP, OCN
✨IT’S BOUT WEEK!✨
THIS SATURDAY our home teams will face off in two, action-pack bouts at the Roy Wilkins Auditorium.
Be sure to get there early to catch the junior roller derby pre-show bout between the MN Frostbite and Sioux Falls Junior Derby!
Doors open at 5pm, the home team bouts start at 6pm
THIS SATURDAY our home teams will face off in two, action-pack bouts at the Roy Wilkins Auditorium.
Be sure to get there early to catch the junior roller derby pre-show bout between the MN Frostbite and Sioux Falls Junior Derby!
Doors open at 5pm, the home team bouts start at 6pm
November 16, 2025 at 5:54 PM
✨IT’S BOUT WEEK!✨
THIS SATURDAY our home teams will face off in two, action-pack bouts at the Roy Wilkins Auditorium.
Be sure to get there early to catch the junior roller derby pre-show bout between the MN Frostbite and Sioux Falls Junior Derby!
Doors open at 5pm, the home team bouts start at 6pm
THIS SATURDAY our home teams will face off in two, action-pack bouts at the Roy Wilkins Auditorium.
Be sure to get there early to catch the junior roller derby pre-show bout between the MN Frostbite and Sioux Falls Junior Derby!
Doors open at 5pm, the home team bouts start at 6pm
Reposted by Jenn Wieworka DNP, OCN
Looking for a night out for the whole family? Kids 9 and under get in free to Minnesota Roller Derby bouts with an adult general admission ticket.
Join us on November 22nd for two games, a junior roller derby pre-show, halftime dance party, chicken toss and more, all wrapping up by 9pm.
Join us on November 22nd for two games, a junior roller derby pre-show, halftime dance party, chicken toss and more, all wrapping up by 9pm.
November 7, 2025 at 9:55 PM
Looking for a night out for the whole family? Kids 9 and under get in free to Minnesota Roller Derby bouts with an adult general admission ticket.
Join us on November 22nd for two games, a junior roller derby pre-show, halftime dance party, chicken toss and more, all wrapping up by 9pm.
Join us on November 22nd for two games, a junior roller derby pre-show, halftime dance party, chicken toss and more, all wrapping up by 9pm.
Reposted by Jenn Wieworka DNP, OCN
TERROR OF TWO CITIES, our first bout of season 22, is happening October 18th at the legendary Roy Wilkins Auditorium in downtown Saint Paul!
Doors open at 5pm with the first whistle at 6pm.
Get your tickets now: www.mnrollerderby.com/events-ticke...
Doors open at 5pm with the first whistle at 6pm.
Get your tickets now: www.mnrollerderby.com/events-ticke...
October 6, 2025 at 3:26 PM
TERROR OF TWO CITIES, our first bout of season 22, is happening October 18th at the legendary Roy Wilkins Auditorium in downtown Saint Paul!
Doors open at 5pm with the first whistle at 6pm.
Get your tickets now: www.mnrollerderby.com/events-ticke...
Doors open at 5pm with the first whistle at 6pm.
Get your tickets now: www.mnrollerderby.com/events-ticke...
After a successful events this weekend in Massachusetts and NYC, the @imfmyeloma.bsky.social heads to the Chicago area for a Patient Family Seminar on October 3-4. Please join us! #knowmyeloma #mmsm www.myeloma.org/events/imf-p...
IMF Patient and Family Seminar 2025 — Chicago, IL
Register NOW for the FREE Patient and Family Seminar in Chicago, IL. We are excited to announce that the 2025 Chicago Patient and Family Seminar will take place on October 3-4, 2025, in Chicago, Illi...
www.myeloma.org
September 29, 2025 at 4:33 PM
After a successful events this weekend in Massachusetts and NYC, the @imfmyeloma.bsky.social heads to the Chicago area for a Patient Family Seminar on October 3-4. Please join us! #knowmyeloma #mmsm www.myeloma.org/events/imf-p...
Reposted by Jenn Wieworka DNP, OCN
#BloodCancerAwarenessMonth is in full swing—isn't it time your followers #KnowMyeloma too? Share your myeloma story with our new easy-to-use custom graphic creator to make an impact on your community. Make yours at knowmyeloma.org & don't forget to share with #KnowMyeloma!
September 21, 2025 at 7:12 PM
#BloodCancerAwarenessMonth is in full swing—isn't it time your followers #KnowMyeloma too? Share your myeloma story with our new easy-to-use custom graphic creator to make an impact on your community. Make yours at knowmyeloma.org & don't forget to share with #KnowMyeloma!
Reposted by Jenn Wieworka DNP, OCN
Mark your calendars, we're coming to #Chicago for a free 2025 IMF Patient & Family Seminar on 10/3–10/4! Learn about the latest developments in treatment, ask our panel of myeloma experts your questions. Save your seat: https://mmsm.link/4hzascT
August 30, 2025 at 8:48 PM
Mark your calendars, we're coming to #Chicago for a free 2025 IMF Patient & Family Seminar on 10/3–10/4! Learn about the latest developments in treatment, ask our panel of myeloma experts your questions. Save your seat: https://mmsm.link/4hzascT
#kNOwMyeloma, while most individuals with myeloma are diagnosed at age >65 we know that individuals may have a myeloma precursor disease (SMM, MGUS) for decades before diagnosis. Earlier diagnosis, earlier treatment, better outcomes.
@imfmyeloma.bsky.social
@imfmyeloma.bsky.social
September 5, 2025 at 3:27 PM
#kNOwMyeloma, while most individuals with myeloma are diagnosed at age >65 we know that individuals may have a myeloma precursor disease (SMM, MGUS) for decades before diagnosis. Earlier diagnosis, earlier treatment, better outcomes.
@imfmyeloma.bsky.social
@imfmyeloma.bsky.social
Reposted by Jenn Wieworka DNP, OCN
Enjoy TWO high-energy bouts in one night, get your hands on exclusive merch, and boogie your heart out during the halftime dance party!
Which team are you rooting for this season; Bodies of Water, Maul Rats, Roller Vortex, or Wednesday Warnings?
Drop your pick in the comments!
Which team are you rooting for this season; Bodies of Water, Maul Rats, Roller Vortex, or Wednesday Warnings?
Drop your pick in the comments!
We’re rolling toward season 22!
Join us on October 18th, 2025, at the Legendary Roy Wilkins Auditorium in downtown St. Paul for the first bout of the season.
Doors open at 5:00 p.m., and the first whistle blows at 6:00!
Snag your season passes and tickets now! 👇
www.ticketmaster.com/venue/49287
Join us on October 18th, 2025, at the Legendary Roy Wilkins Auditorium in downtown St. Paul for the first bout of the season.
Doors open at 5:00 p.m., and the first whistle blows at 6:00!
Snag your season passes and tickets now! 👇
www.ticketmaster.com/venue/49287
August 6, 2025 at 4:00 PM
Enjoy TWO high-energy bouts in one night, get your hands on exclusive merch, and boogie your heart out during the halftime dance party!
Which team are you rooting for this season; Bodies of Water, Maul Rats, Roller Vortex, or Wednesday Warnings?
Drop your pick in the comments!
Which team are you rooting for this season; Bodies of Water, Maul Rats, Roller Vortex, or Wednesday Warnings?
Drop your pick in the comments!
Reposted by Jenn Wieworka DNP, OCN
The #MyelomaMinute is out! Read & subscribe. We feature the state of myeloma in 2025, why quadruplet therapy is now the standard of care for newly diagnosed myeloma & upcoming events.
https://my.myeloma.org/webmail/1077653/993073649/2d6698c0ce975d3cd2b19778511a0d4cd2f985c9a2b1926d7da03ae29e7187c9
https://my.myeloma.org/webmail/1077653/993073649/2d6698c0ce975d3cd2b19778511a0d4cd2f985c9a2b1926d7da03ae29e7187c9
June 21, 2025 at 7:22 PM
The #MyelomaMinute is out! Read & subscribe. We feature the state of myeloma in 2025, why quadruplet therapy is now the standard of care for newly diagnosed myeloma & upcoming events.
https://my.myeloma.org/webmail/1077653/993073649/2d6698c0ce975d3cd2b19778511a0d4cd2f985c9a2b1926d7da03ae29e7187c9
https://my.myeloma.org/webmail/1077653/993073649/2d6698c0ce975d3cd2b19778511a0d4cd2f985c9a2b1926d7da03ae29e7187c9
Reposted by Jenn Wieworka DNP, OCN
We got some exciting news!
Your MNRD All-Stars are taking on the @rosecityrollers.bsky.social -Axles of Annihilation, and you can watch them LIVE on the All Women's Sports Network!
Catch the second part of this historic series, streaming on Pluto TV, on July 19th at 8PM (10PM central time)!
Your MNRD All-Stars are taking on the @rosecityrollers.bsky.social -Axles of Annihilation, and you can watch them LIVE on the All Women's Sports Network!
Catch the second part of this historic series, streaming on Pluto TV, on July 19th at 8PM (10PM central time)!
June 23, 2025 at 10:04 PM
We got some exciting news!
Your MNRD All-Stars are taking on the @rosecityrollers.bsky.social -Axles of Annihilation, and you can watch them LIVE on the All Women's Sports Network!
Catch the second part of this historic series, streaming on Pluto TV, on July 19th at 8PM (10PM central time)!
Your MNRD All-Stars are taking on the @rosecityrollers.bsky.social -Axles of Annihilation, and you can watch them LIVE on the All Women's Sports Network!
Catch the second part of this historic series, streaming on Pluto TV, on July 19th at 8PM (10PM central time)!
Whether you’re new to myeloma or have been receiving treatment for years, there’s something for you to learn at an @imfmyeloma.bsky.social Patient Education Series. Join us in Denver June 21st!
Will we see you in #Denver on 6/21? Join us to learn about myeloma diagnosis, maintenance therapy, relapse information, clinical trial updates & more, all from multiple myeloma experts. Completely free, but RSVP today before seats are gone: https://mmsm.link/4koSV9E
June 2, 2025 at 4:52 PM
Whether you’re new to myeloma or have been receiving treatment for years, there’s something for you to learn at an @imfmyeloma.bsky.social Patient Education Series. Join us in Denver June 21st!
What a wonderful first presentation in our patient education program today in Edina, MN. Thank you Dr. Joselle Cook (Mayo) for educating us on Understanding Myeloma Basics. @imfmyeloma.bsky.social #myeloma #patienteducation
April 26, 2025 at 2:51 PM
What a wonderful first presentation in our patient education program today in Edina, MN. Thank you Dr. Joselle Cook (Mayo) for educating us on Understanding Myeloma Basics. @imfmyeloma.bsky.social #myeloma #patienteducation
What an exciting game this is going to be, will you be there!?!
⭐️ TONIGHT ⭐️
Minnesota Nice will face off against Philly Roller Derby.
Then MNRD All-Stars will take on Ohio Roller derby!
Doors open at 5:00pm and all the action starts at 6:00pm.
There’s still time to get tickets —> bit.ly/MNRDallstars...
*photos by Ron Wilbur
Minnesota Nice will face off against Philly Roller Derby.
Then MNRD All-Stars will take on Ohio Roller derby!
Doors open at 5:00pm and all the action starts at 6:00pm.
There’s still time to get tickets —> bit.ly/MNRDallstars...
*photos by Ron Wilbur
April 26, 2025 at 2:47 PM
What an exciting game this is going to be, will you be there!?!
Reposted by Jenn Wieworka DNP, OCN
Roller derby, but make it cosmic 💫
This isn’t your average derby night—it’s Bout of This World!
On April 26, Minnesota Roller Derby will host its first All-Stars games of 2025 at the Roy Wilkins Auditorium. Two matchups are set for liftoff:
GAME 1: Philly vs. MN Nice
GAME 2: Ohio vs. MN All-Stars
This isn’t your average derby night—it’s Bout of This World!
On April 26, Minnesota Roller Derby will host its first All-Stars games of 2025 at the Roy Wilkins Auditorium. Two matchups are set for liftoff:
GAME 1: Philly vs. MN Nice
GAME 2: Ohio vs. MN All-Stars
![Image of a derby bout poster, advertising the MNRD event on April 26th at The Roy Wilkins Auditorium. The drawn image is of two skaters in space suits floating above a blue and green dappled planet. The skater on the left is head-up, with the skater on the right head down. The poster has the league logos of MNRD, Philly Roller Derby, and Ohio Roller Derby.
Text is as follows:
Minnesota Roller Derby presents
BOUT OF THIS WORLD
An All Stars Extravaganza!
The Legendary Roy Wilkins
Auditorium
Tickets and more info at mnrollerderby.com
Doors at 5pm First Whistle at 6
Game 1 Game 2
[PRD] [ORD]
vs vs
[MNRD] [MNRD]
All-Stars All-Stars
MN Nice
Center text:
April
26
2025](https://cdn.bsky.app/img/feed_thumbnail/plain/did:plc:ymvamm7swpwnjfdrbidlanbu/bafkreibifyzz6vr7u7dq54t2vbua2mdugitwafrsqsqoejqitrre6ffkm4@jpeg)
April 12, 2025 at 5:16 PM
Roller derby, but make it cosmic 💫
This isn’t your average derby night—it’s Bout of This World!
On April 26, Minnesota Roller Derby will host its first All-Stars games of 2025 at the Roy Wilkins Auditorium. Two matchups are set for liftoff:
GAME 1: Philly vs. MN Nice
GAME 2: Ohio vs. MN All-Stars
This isn’t your average derby night—it’s Bout of This World!
On April 26, Minnesota Roller Derby will host its first All-Stars games of 2025 at the Roy Wilkins Auditorium. Two matchups are set for liftoff:
GAME 1: Philly vs. MN Nice
GAME 2: Ohio vs. MN All-Stars
Wellness is such an important part of survivorship. 1st session I’m attending at #ONS50, great to see hundreds of oncology nurses talking about sexual health, and how we have health conversations around it. Proud to be a part of the #IMFSGteam addressing wellness in #myeloma
April 9, 2025 at 9:36 PM
Wellness is such an important part of survivorship. 1st session I’m attending at #ONS50, great to see hundreds of oncology nurses talking about sexual health, and how we have health conversations around it. Proud to be a part of the #IMFSGteam addressing wellness in #myeloma
Reposted by Jenn Wieworka DNP, OCN
Next weekend, our home teams will play their final bout of the season, and you’re going to want to get there early!
MNRD’s training program, the Windchill, are scrimmaging in the pre-show bout during CIRQUE DU DERBY 🎪 They’ll be taking the track shortly after doors open!
(1/2)
MNRD’s training program, the Windchill, are scrimmaging in the pre-show bout during CIRQUE DU DERBY 🎪 They’ll be taking the track shortly after doors open!
(1/2)
March 22, 2025 at 6:03 PM
Next weekend, our home teams will play their final bout of the season, and you’re going to want to get there early!
MNRD’s training program, the Windchill, are scrimmaging in the pre-show bout during CIRQUE DU DERBY 🎪 They’ll be taking the track shortly after doors open!
(1/2)
MNRD’s training program, the Windchill, are scrimmaging in the pre-show bout during CIRQUE DU DERBY 🎪 They’ll be taking the track shortly after doors open!
(1/2)
Great article Cancer & the measles outbreak. What it doesn't say is for the unvaccined-- an N95 will protect you from measles but you must be vigilant about wearing as droplets can stay active for over 2 hours.
And PLEASE WASH YOUR HANDS! #myelomamilestone www.mdanderson.org/cancerwise/i....
And PLEASE WASH YOUR HANDS! #myelomamilestone www.mdanderson.org/cancerwise/i....
Infectious diseases specialist: 10 things to know about measles
MD Anderson’s Chief Infection Control Officer Amy Spallone, M.D., shares 10 facts about measles, including how to protect yourself, your loved ones and the community from the disease.
www.mdanderson.org
March 12, 2025 at 3:05 PM
Great article Cancer & the measles outbreak. What it doesn't say is for the unvaccined-- an N95 will protect you from measles but you must be vigilant about wearing as droplets can stay active for over 2 hours.
And PLEASE WASH YOUR HANDS! #myelomamilestone www.mdanderson.org/cancerwise/i....
And PLEASE WASH YOUR HANDS! #myelomamilestone www.mdanderson.org/cancerwise/i....
Reposted by Jenn Wieworka DNP, OCN
It’s #MyelomaActionMonth! My #MyelomaMilestone is that I started leading a support group for #myeloma patients and their care partners at the start of the COVID-19 pandemic. When ground-breaking research is combined with education, the result is HOPE! Basic science saves lives! 💜😊 #Grateful 🩷💚
March 8, 2025 at 8:13 PM
It’s #MyelomaActionMonth! My #MyelomaMilestone is that I started leading a support group for #myeloma patients and their care partners at the start of the COVID-19 pandemic. When ground-breaking research is combined with education, the result is HOPE! Basic science saves lives! 💜😊 #Grateful 🩷💚
Reposted by Jenn Wieworka DNP, OCN
One week from today, our home team skaters will clash in a dino-mite showdown of prehistoric proportions! 🦖🦕
Game 1: Maul Rats vs Wednesday Warnings
Game 2: Bodies of Water vs Roller Vortex
Who are you cheering for? 💚🩷🩵💜
There’s still time to get tickets👉 bit.ly/MNRDb4s21
Game 1: Maul Rats vs Wednesday Warnings
Game 2: Bodies of Water vs Roller Vortex
Who are you cheering for? 💚🩷🩵💜
There’s still time to get tickets👉 bit.ly/MNRDb4s21
February 1, 2025 at 7:03 PM
One week from today, our home team skaters will clash in a dino-mite showdown of prehistoric proportions! 🦖🦕
Game 1: Maul Rats vs Wednesday Warnings
Game 2: Bodies of Water vs Roller Vortex
Who are you cheering for? 💚🩷🩵💜
There’s still time to get tickets👉 bit.ly/MNRDb4s21
Game 1: Maul Rats vs Wednesday Warnings
Game 2: Bodies of Water vs Roller Vortex
Who are you cheering for? 💚🩷🩵💜
There’s still time to get tickets👉 bit.ly/MNRDb4s21
For any myeloma patient impacted by the fires, needing a secure place to have your medications sent. The
#IMF is here to help.
mmsm.link/4fUaOtt
#IMF is here to help.
mmsm.link/4fUaOtt
January 16, 2025 at 5:35 PM
For any myeloma patient impacted by the fires, needing a secure place to have your medications sent. The
#IMF is here to help.
mmsm.link/4fUaOtt
#IMF is here to help.
mmsm.link/4fUaOtt
Reposted by Jenn Wieworka DNP, OCN
The PANGEA 2.0 model leverages trajectory data to improve the risk stratification of individuals with #SmolderingMyeloma.
Learn more in our recent interview with the lovely Irene Ghobrial:
👉https://buff.ly/49ZYSFl
#Myeloma #MMSM #ASH24 #Hematology #HemeSky #HemeOnc @ash-hematology.bsky.social
Learn more in our recent interview with the lovely Irene Ghobrial:
👉https://buff.ly/49ZYSFl
#Myeloma #MMSM #ASH24 #Hematology #HemeSky #HemeOnc @ash-hematology.bsky.social
January 8, 2025 at 10:00 AM
The PANGEA 2.0 model leverages trajectory data to improve the risk stratification of individuals with #SmolderingMyeloma.
Learn more in our recent interview with the lovely Irene Ghobrial:
👉https://buff.ly/49ZYSFl
#Myeloma #MMSM #ASH24 #Hematology #HemeSky #HemeOnc @ash-hematology.bsky.social
Learn more in our recent interview with the lovely Irene Ghobrial:
👉https://buff.ly/49ZYSFl
#Myeloma #MMSM #ASH24 #Hematology #HemeSky #HemeOnc @ash-hematology.bsky.social
Looking forward to hearing more on this, would be a game changer if it works. While radiation can help control lesions and pain it further compromises weak bones and healthy marrow producing areas. #mmsm
A new biomaterial, "boXer," shows promise in treating bone lesions in multiple myeloma by promoting bone regeneration and delivering localized anti-tumor therapy. doi.org/g8ztfc
Biomaterial shows potential for treating bone lesions in multiple myeloma
A team of researchers from the Translational Oncology Research Centre (TORC) of Vrije Universiteit Brussel (VUB), in collaboration with leading German universities, has developed a new biomaterial with high potential in the treatment of bone lesions or minimal residual disease in multiple myeloma patients.
medicalxpress.com
January 16, 2025 at 3:46 AM
Looking forward to hearing more on this, would be a game changer if it works. While radiation can help control lesions and pain it further compromises weak bones and healthy marrow producing areas. #mmsm
Reposted by Jenn Wieworka DNP, OCN
“A study published last year in JAMA Network, a publication of the Journal of the American Medical Association, found that 22% of cancer patients did not receive the care their doctors prescribed because of authorization delays or outright denials.”
Health insurers are increasingly interfering in care, an NBC News investigation has found.
Doctors say the stakes are highest in cancer care, when delays can be the difference between life and death.
Doctors say the stakes are highest in cancer care, when delays can be the difference between life and death.
'Would he have lived?' When insurance companies deny cancer care to patients
Health insurers are increasingly interfering in care, an NBC News investigation found. Doctors say the stakes are highest in cancer care, when delays can be the difference between life and death.
www.nbcnews.com
December 27, 2024 at 4:40 PM
“A study published last year in JAMA Network, a publication of the Journal of the American Medical Association, found that 22% of cancer patients did not receive the care their doctors prescribed because of authorization delays or outright denials.”
This is what #ash24 conferences are about, meeting and encouraging young learners. Both these @imfmyeloma.bsky.social scholars did a wonderful job on their posters looking into some great topics. Thank you to their mentors as well! #imfash24
December 9, 2024 at 7:58 PM
This is what #ash24 conferences are about, meeting and encouraging young learners. Both these @imfmyeloma.bsky.social scholars did a wonderful job on their posters looking into some great topics. Thank you to their mentors as well! #imfash24