anirow.bsky.social
@anirow.bsky.social
Posts about #LongCovid and #MECFS
Reposted
"Covid is over. It ended years ago." No it's not. Covid is still disabling thousands of people every day. You just stopped caring.
May 3, 2025 at 10:05 PM
Reposted
The Human Genome Project cost taxpayers $3 Billion.

Two decades on, it has generated a staggering return on investment of $1 Trillion, with benefits in medicine, agriculture, energy, the environment, & more.

If you want to boost the economy, funding science is one of the best things you could do.
May 2, 2025 at 7:00 PM
Reposted
Hi, @motherjones.com disabled disability reporter here, I really want to hear about how tariffs are impacting disabled, chronically ill, and aging folks. Reposts appreciated and my email is jmetraux@motherjones.com.
April 29, 2025 at 3:50 PM
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Psychology Today: “I'm the Mom, But No One Listened to Me”

www.psychologytoday.com/us/blog/risk...

Becky Diamond describes repeated experiences of teachers & clinicians not believing her child was sick, including with Long Covid.

#LCKid #LongCovidKids #LongCovid #invisibleillness #chronicillness
I'm the Mom, But No One Listened to Me
My son had Long COVID. I assumed his situation would be understood, thanks to science. But I discovered that my voice wasn't heard even though it mattered most.
www.psychologytoday.com
April 22, 2025 at 3:08 PM
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PharmaVoice: 'Genetic breakthroughs could point pharma to a long COVID drug'

'The discoveries also hold potential benefits for patients with other conditions, such as chronic fatigue syndrome'

'We’re finding genetic signatures...'

www.pharmavoice.com/news/genetic...
Genetic breakthroughs could point pharma to a long COVID drug
The discoveries also hold potential benefits for patients with other conditions, such as chronic fatigue syndrome.
www.pharmavoice.com
April 22, 2025 at 2:57 PM
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My adult daughter Rachel works everyday, pays taxes, loves going to movies with her friends, and listens to awful (IMO) music.

Our U.S. Dept HHS has lost all of its humanity, compassion, and intellectual curiosity
April 17, 2025 at 11:22 AM
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What do yall know about Plasma replacement therapy? Does it help?
April 17, 2025 at 2:27 PM
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We’re truly excited that the PolyBio supported Low-dose Rapamycin trial is now recruiting in the NYC area.

Interested in learning more? Here’s the full study summary: polybio.org/projects/lon...
April 15, 2025 at 3:16 PM
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Long COVID is real. It’s common. It’s disabling millions.
And no one talks about it—because if we looked too closely, we’d have to change

So instead, we decided:
Let people get sick.
Let kids struggle.
Let the vulnerable disappear.
Let the numbers stop counting.
April 15, 2025 at 12:50 PM
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Stop saying “post covid”. People are confusing the end of the public health emergency with the end of the pandemic.

The pandemic is not over. “During COVID” is now.

If we want to end it, we need to first acknowledge this fact. Then mask up, clean the air & develop better vaccines & treatments.
Suggesting the world is “post COVID” contributes to an unwitting shift in research priorities
www.bmj.com
April 11, 2025 at 8:52 PM
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"Post pandemic"
"During the pandemic"
"During lockdowns"
"Back in Covid times"
"Covid is over"

These statements all sound ridiculous given the >23 million U.S. adults reporting long Covid with no treatments
April 10, 2025 at 2:30 PM
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MMR vaccine doesn’t just prevent measles, mumps, and rubella. It also prevents RFK Jr. from showing up at your child’s funeral to exploit your grief at your most vulnerable moment.
April 7, 2025 at 2:57 PM
What gives with #altruan #pluslife no longer shipping to the US? This is such a crucial tool as someone with #longcovid.
April 4, 2025 at 11:52 PM
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New York Times - Wirecutter: 'Most Wearables Prompt You to Move More. This One Helps You Avoid Overdoing It.'

'Pacing is key to Visible’s approach'

'The signature symptom of long COVID and ME/CFS is post-exertional malaise'

www.nytimes.com/wirecutter/r...
Most Wearables Prompt You to Move More. This One Helps You Avoid Overdoing It.
The Visible platform uses continuous heart-rate monitoring and pacing techniques to help people with energy-limiting conditions avoid overexertion.
www.nytimes.com
April 4, 2025 at 6:30 PM
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Wall Street Journal editorial board:

"Our worst fears about Mr. Kennedy are coming true..."

www.wsj.com/opinion/rfk-...
Opinion | RFK Jr. Is Already Vindicating His Critics
Shrinking HHS makes sense, but giving power to antivaccine crusader David Geier doesn’t.
www.wsj.com
March 31, 2025 at 12:59 AM
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San Francisco Chronicle: 'Women are at much higher risk of long COVID than men. Why?'

'Women have significantly higher rates of long COVID than men, according to federal data, research studies and doctors who treat long COVID patients'

www.sfchronicle.com/health/artic...
Women are at much higher risk of long COVID than men. Why?
Scientists are still trying to uncover why long COVID affects women significantly more than men. Potential explanations are emerging.
www.sfchronicle.com
March 25, 2025 at 1:16 PM
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1/23/25: 'East Alabama Health partners with Duke, NIH to study Long COVID Treatments'

'We are involved in the RECOVER-Autonomic arm...we are looking at the autonomic symptoms of Long COVID such as fast heart rate, dizziness, and fatigue" - Dr. Douthit

www.eastalabamahealth.org/news-and-med...
East Alabama Health partners with Duke, NIH to study Long COVID Treatments
OPELIKA, Ala.— Alabama has one of the highest incidences of Long COVID in the United States. Alabamians facing the condition often deal with persistent symptoms long after recovering from the initial ...
www.eastalabamahealth.org
March 23, 2025 at 8:48 PM
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The Seven Best Specialists To See When You Don’t Have Long Covid
March 23, 2025 at 3:46 PM
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Nearly 1 in 10 report they have Long Covid.

The study "adds further evidence of the unfairness of Long Covid", with people who are "already disadvantaged in society more likely to be affected"

www.bbc.com/news/article...
Long Covid: Almost one in 10 may have condition, research finds
University of Southampton researchers say NHS England shows 9.1% of people think they may have the condition.
www.bbc.com
March 22, 2025 at 2:52 PM
Reposted
BBC: ''I've been bedbound since catching Covid in 2022'

'A doctor who was left bedbound following a Covid infection has said he feels "abandoned" by the government'

"Suddenly I was so fatigued I couldn't get out of bed," Dr Gilbert said

www.bbc.com/news/article...
Leeds doctor still 'bedbound' three years after Covid infection
Dr Alexis Gilbert was working in public health when he fell ill and now struggles with daily tasks.
www.bbc.com
March 20, 2025 at 2:58 PM
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This is wonderful. Thank you, Science Magazine for elevating Long Covid Awareness #LongCovidAwarenessDay
A #SciencePerspective by @zalaly.bsky.social and @erictopol.bsky.social identifies key issues that need to be prioritized in the study of #LongCovid.

Learn more on #LongCovidAwarenessDay: scim.ag/3XKbds3
March 15, 2025 at 7:43 PM
Reposted
March 15, 2025 at 9:34 PM
Reposted
March 15, 2025 at 2:56 PM