Anna Ahveninen (she/her)
@aahven.bsky.social
Chronically ill writer and science communicator ♿ Living on stolen Wurundjeri Woi Wurrung land. Ask me about books!
Pinned
Part of #ChronicIllness for me is the constant tweaking of supplement regimens
I distrust the supplement industry, but I've had doctors, pharmacists and patient forums recommend stuff to me
And sometimes I feel bad enough to give anything a go
Maybe the placebo will placebo hard enough this time
I distrust the supplement industry, but I've had doctors, pharmacists and patient forums recommend stuff to me
And sometimes I feel bad enough to give anything a go
Maybe the placebo will placebo hard enough this time
October 27, 2025 at 11:44 PM
Part of #ChronicIllness for me is the constant tweaking of supplement regimens
I distrust the supplement industry, but I've had doctors, pharmacists and patient forums recommend stuff to me
And sometimes I feel bad enough to give anything a go
Maybe the placebo will placebo hard enough this time
I distrust the supplement industry, but I've had doctors, pharmacists and patient forums recommend stuff to me
And sometimes I feel bad enough to give anything a go
Maybe the placebo will placebo hard enough this time
Though I've avoided the dentist for a few years, I still had nothing wrong with any of my teeth
Bless the fluoridated drinking water I've drunk my whole life, both in Finland and Australia
Bless the fluoridated drinking water I've drunk my whole life, both in Finland and Australia
October 20, 2025 at 3:31 AM
Though I've avoided the dentist for a few years, I still had nothing wrong with any of my teeth
Bless the fluoridated drinking water I've drunk my whole life, both in Finland and Australia
Bless the fluoridated drinking water I've drunk my whole life, both in Finland and Australia
nothing like going to look at a rental
and overhearing that your competition owns their own home and works three days a week because they own their own practice, but wants to live closer to the city
and overhearing that your competition owns their own home and works three days a week because they own their own practice, but wants to live closer to the city
October 15, 2025 at 9:32 AM
nothing like going to look at a rental
and overhearing that your competition owns their own home and works three days a week because they own their own practice, but wants to live closer to the city
and overhearing that your competition owns their own home and works three days a week because they own their own practice, but wants to live closer to the city
Reposted by Anna Ahveninen (she/her)
I don't understand (well, I do, but... yeah) why folks are talking this research down.
I think it's very positive.
All parties (particularly competitors 👀) should be cheering everyone else on and moving forward with *treatments*.
#MECFS
www.theguardian.com/society/2025...
I think it's very positive.
All parties (particularly competitors 👀) should be cheering everyone else on and moving forward with *treatments*.
#MECFS
www.theguardian.com/society/2025...
Scientists develop first ‘accurate blood test’ to detect chronic fatigue syndrome
Research could offer hope for ME patients – but some experts urge caution and say more studies needed
www.theguardian.com
October 8, 2025 at 6:24 PM
I don't understand (well, I do, but... yeah) why folks are talking this research down.
I think it's very positive.
All parties (particularly competitors 👀) should be cheering everyone else on and moving forward with *treatments*.
#MECFS
www.theguardian.com/society/2025...
I think it's very positive.
All parties (particularly competitors 👀) should be cheering everyone else on and moving forward with *treatments*.
#MECFS
www.theguardian.com/society/2025...
Reposted by Anna Ahveninen (she/her)
ME/CFS is a devastating condition that has long been denied, dismissed, psychologised and underdiagnosed. Research is at last starting to catch up with it, with glimmers of hope for those who have been left untreated for so long.
There's a huge BUT coming ...🧵
www.theguardian.com/society/2025...
There's a huge BUT coming ...🧵
www.theguardian.com/society/2025...
Scientists develop first ‘accurate blood test’ to detect chronic fatigue syndrome
Research could offer hope for ME patients – but some experts urge caution and say more studies needed
www.theguardian.com
October 8, 2025 at 6:09 AM
ME/CFS is a devastating condition that has long been denied, dismissed, psychologised and underdiagnosed. Research is at last starting to catch up with it, with glimmers of hope for those who have been left untreated for so long.
There's a huge BUT coming ...🧵
www.theguardian.com/society/2025...
There's a huge BUT coming ...🧵
www.theguardian.com/society/2025...
Reposted by Anna Ahveninen (she/her)
BREAKING: The Nobel Prize in Chemistry has been awarded to Susumu Kitagawa, Richard Robson and Omar M. Yaghi “for the development of metal-organic frameworks”
Stay tuned for more.
#NobelPrize
Stay tuned for more.
#NobelPrize
October 8, 2025 at 9:49 AM
BREAKING: The Nobel Prize in Chemistry has been awarded to Susumu Kitagawa, Richard Robson and Omar M. Yaghi “for the development of metal-organic frameworks”
Stay tuned for more.
#NobelPrize
Stay tuned for more.
#NobelPrize
Reposted by Anna Ahveninen (she/her)
Happy #chemnobel day to all who celebrate. Let's see if any of our predictions and prognostications come true, or if we're all scrabbling when the #NobelPrize announcement comes in 15 minutes.
www.youtube.com/live/0d02ONE...
www.youtube.com/live/0d02ONE...
Announcement of the 2025 Nobel Prize in Chemistry
YouTube video by Nobel Prize
www.youtube.com
October 8, 2025 at 9:35 AM
Happy #chemnobel day to all who celebrate. Let's see if any of our predictions and prognostications come true, or if we're all scrabbling when the #NobelPrize announcement comes in 15 minutes.
www.youtube.com/live/0d02ONE...
www.youtube.com/live/0d02ONE...
HOLY SHIT RICHARD ROBSON GOT HIS #CHEMNOBEL
October 8, 2025 at 9:49 AM
HOLY SHIT RICHARD ROBSON GOT HIS #CHEMNOBEL
I've had an "evolving mole" cut out from the back of my ankle (#JustAustralianThings) and need to avoid flexing my foot
I was limping uncomfortably on my toes on the one foot until I realised nobody could stop me from walking around like this
I was limping uncomfortably on my toes on the one foot until I realised nobody could stop me from walking around like this
a video game shows three burglars jumping over a wooden fence
Alt: A burglar from The Sims video game wears the classic cat burglar outfit of a striped black and white shirt, a black beanie, gloves and pants. They walk across the screen on their toes at an exaggerated creep, hands held out for balance.
media.tenor.com
September 18, 2025 at 1:03 AM
I've had an "evolving mole" cut out from the back of my ankle (#JustAustralianThings) and need to avoid flexing my foot
I was limping uncomfortably on my toes on the one foot until I realised nobody could stop me from walking around like this
I was limping uncomfortably on my toes on the one foot until I realised nobody could stop me from walking around like this
proof that i have the patience to stab something more than 73,920 times over the course of three years
and counting, with 21 pattern pages still remaining #CrossStitch
and counting, with 21 pattern pages still remaining #CrossStitch
September 3, 2025 at 6:41 AM
proof that i have the patience to stab something more than 73,920 times over the course of three years
and counting, with 21 pattern pages still remaining #CrossStitch
and counting, with 21 pattern pages still remaining #CrossStitch
A Song of Ice and Fire would be so good if it weren't so
🗣️📢 "isn't fantasy medieval Europe ✨✨HORRIBLE✨✨"
🗣️📢 "isn't fantasy medieval Europe ✨✨HORRIBLE✨✨"
August 19, 2025 at 8:53 AM
A Song of Ice and Fire would be so good if it weren't so
🗣️📢 "isn't fantasy medieval Europe ✨✨HORRIBLE✨✨"
🗣️📢 "isn't fantasy medieval Europe ✨✨HORRIBLE✨✨"
"The NDIS was never envisaged that 40 per cent of the population would be on it. It's about giving people support who need it."
Should've thought about that before setting the Australian COVID-19 policy to "let her rip", huh?
www.abc.net.au/news/2025-08...
Should've thought about that before setting the Australian COVID-19 policy to "let her rip", huh?
www.abc.net.au/news/2025-08...
Productivity summit begins with a warning on NDIS spending
Treasurer Jim Chalmers opens the much-anticipated productivity round table with an appeal for participants to seek consensus. Meanwhile, the NDIS has emerged as a key "structural issue" in the budget ...
www.abc.net.au
August 18, 2025 at 11:11 PM
"The NDIS was never envisaged that 40 per cent of the population would be on it. It's about giving people support who need it."
Should've thought about that before setting the Australian COVID-19 policy to "let her rip", huh?
www.abc.net.au/news/2025-08...
Should've thought about that before setting the Australian COVID-19 policy to "let her rip", huh?
www.abc.net.au/news/2025-08...
Living with a dynamic disability is so weird
Some mornings you wake up with new symptoms and must try to divine which of your activities or behaviours in the past 24-48 hours - that have never caused these symptoms before - might have caused them
It's like my body is ruled by a capricious god
Some mornings you wake up with new symptoms and must try to divine which of your activities or behaviours in the past 24-48 hours - that have never caused these symptoms before - might have caused them
It's like my body is ruled by a capricious god
August 15, 2025 at 11:42 PM
Living with a dynamic disability is so weird
Some mornings you wake up with new symptoms and must try to divine which of your activities or behaviours in the past 24-48 hours - that have never caused these symptoms before - might have caused them
It's like my body is ruled by a capricious god
Some mornings you wake up with new symptoms and must try to divine which of your activities or behaviours in the past 24-48 hours - that have never caused these symptoms before - might have caused them
It's like my body is ruled by a capricious god
Me: What do you mean I'm a big dork?
My partner [adoringly]: You got a bunch of Lord of the Rings Magic cards and you organised them IN STORY ORDER
My partner [adoringly]: You got a bunch of Lord of the Rings Magic cards and you organised them IN STORY ORDER
August 11, 2025 at 6:15 AM
Me: What do you mean I'm a big dork?
My partner [adoringly]: You got a bunch of Lord of the Rings Magic cards and you organised them IN STORY ORDER
My partner [adoringly]: You got a bunch of Lord of the Rings Magic cards and you organised them IN STORY ORDER
I will never not be outraged that phenylephrine is marketed as a replacement for pseudoephedrine 😤😤
July 31, 2025 at 3:48 AM
I will never not be outraged that phenylephrine is marketed as a replacement for pseudoephedrine 😤😤
✨disabled avatar let's goo✨
‘Avatar: Seven Havens’ Drops First Look at New Earthbender Avatar Set After ‘Legend of Korra’
The first look at 'Avatar: Seven Havens,' the sequel to 'Avatar: The Last Airbender' and 'Korra' has been revealed.
variety.com
July 25, 2025 at 8:30 AM
✨disabled avatar let's goo✨
today a friend asked me "have you, or anyone in your house, acquired any 🏴mysterious ancient artifacts or jewellery🏴 recently?"
anyway that's how my year is going, how are you
anyway that's how my year is going, how are you
May 20, 2025 at 7:11 AM
today a friend asked me "have you, or anyone in your house, acquired any 🏴mysterious ancient artifacts or jewellery🏴 recently?"
anyway that's how my year is going, how are you
anyway that's how my year is going, how are you
I got a phone call from the office of the Labor candidate for my House of Representatives seat this week
Still regret not asking them about the flyer they sent me lying about how preferential voting works #auspol
Still regret not asking them about the flyer they sent me lying about how preferential voting works #auspol
May 1, 2025 at 12:50 AM
I got a phone call from the office of the Labor candidate for my House of Representatives seat this week
Still regret not asking them about the flyer they sent me lying about how preferential voting works #auspol
Still regret not asking them about the flyer they sent me lying about how preferential voting works #auspol
This article criticises the media's focus on the rising cost of the NDIS over how important it is to participants
and then it turns around to say "BUT ALSO! THE NDIS IS GOOD FOR THE ECONOMY!!!"
and then it turns around to say "BUT ALSO! THE NDIS IS GOOD FOR THE ECONOMY!!!"
There's another problem facing the NDIS. It's probably not what you think
The NDIS is getting a lot of negative press at the moment. It’s a far cry from when the scheme first started, writes Evan Young.
www.abc.net.au
March 26, 2025 at 10:00 PM
This article criticises the media's focus on the rising cost of the NDIS over how important it is to participants
and then it turns around to say "BUT ALSO! THE NDIS IS GOOD FOR THE ECONOMY!!!"
and then it turns around to say "BUT ALSO! THE NDIS IS GOOD FOR THE ECONOMY!!!"
Reposted by Anna Ahveninen (she/her)
“The truth is paywalled, but the lies are free.”
March 19, 2025 at 10:37 PM
“The truth is paywalled, but the lies are free.”
If Australia adequately funded research, this wouldn't be such a crisis theconversation.com/trump-is-sur...
Trump is surveying Australian academics about gender diversity and China – what does this mean for unis and their research?
The Trump Administration is asking some Australian university researchers about how their work fits in with US foreign and domestic policy.
theconversation.com
March 17, 2025 at 10:22 PM
If Australia adequately funded research, this wouldn't be such a crisis theconversation.com/trump-is-sur...
Reposted by Anna Ahveninen (she/her)
A wild vaccine chase
If people still have questions about measles vaccine safety, more studies of safety aren’t the answer
- by @adamjkucharski.bsky.social
kucharski.substack.com/p/a-wild-vac...
If people still have questions about measles vaccine safety, more studies of safety aren’t the answer
- by @adamjkucharski.bsky.social
kucharski.substack.com/p/a-wild-vac...
A wild vaccine chase
If people still have questions about measles vaccine safety, more studies of safety aren’t the answer
kucharski.substack.com
March 12, 2025 at 3:14 AM
A wild vaccine chase
If people still have questions about measles vaccine safety, more studies of safety aren’t the answer
- by @adamjkucharski.bsky.social
kucharski.substack.com/p/a-wild-vac...
If people still have questions about measles vaccine safety, more studies of safety aren’t the answer
- by @adamjkucharski.bsky.social
kucharski.substack.com/p/a-wild-vac...
Reposted by Anna Ahveninen (she/her)
It’s very difficult to help people understand that if one of these rounds with Covid, you don’t make a full recovery—medicine will have *very* little to offer you.
“When I first got sick, I was like, OK, I just have to survive 3 to 5 years and I think there will be, at least, decent symptom management trial data so that we have options. But we’ve made almost no progress...it’s nowhere near the volume it should be given the burden of disease.”
2/3
2/3
March 11, 2025 at 8:32 PM
It’s very difficult to help people understand that if one of these rounds with Covid, you don’t make a full recovery—medicine will have *very* little to offer you.
Eating well takes money but also energy and time.
We talk about the price of fruits and vegetables but I wonder if anyone has studied how something like a 4-day work week affects diets?
We talk about the price of fruits and vegetables but I wonder if anyone has studied how something like a 4-day work week affects diets?
Fresh fruit down, junk food up: our modelling suggests Australians’ diets will get worse by 2030
Australians tend to eat too much junk food and not enough fruit and vegetables. But how might these trends change in the years to come?
theconversation.com
March 11, 2025 at 10:07 PM
Eating well takes money but also energy and time.
We talk about the price of fruits and vegetables but I wonder if anyone has studied how something like a 4-day work week affects diets?
We talk about the price of fruits and vegetables but I wonder if anyone has studied how something like a 4-day work week affects diets?