Sazana Jayadeva
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sazanajayadeva.bsky.social
Sazana Jayadeva
@sazanajayadeva.bsky.social
960 followers 630 following 28 posts
Researcher @ University of Surrey| Higher education, student mobilities & social media | Associate Editor of the Sociology journal| Co-convenor of SRHE International Research and Researchers Network
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sazanajayadeva.bsky.social
Sazana Jayadeva @sazanajayadeva.bsky.social · Jul 21
Pleased to share a new article, co-authored with @dalupton.bsky.social, just published in the journal Sociology: '"Most People with Long COVID Are Their Own Doctors": Self-Tracking and Online Patient Groups as Pathways to Challenging Epistemic Injustice'.

journals.sagepub.com/doi/10.1177/...

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The illustration shows a woman lying in bed, wearing pyjamas and a lab coat. She is trying to make sense of data coming out of her smartwatch. The illustration shows a woman lying in bed who is wearing a smartwatch. She is surrounded by smaller images of people lying in bed, all wearing smartwatches - there are speech bubbles containing data coming from these people, suggesting that they are speaking about their self-tracking data.
Reposted by Sazana Jayadeva
c02.sfb1472.uni-siegen.de
After introducing this research project via our past publications, we now start an ongoing thread on a key concept in our work: lay expertise. In the weeks ahead, we’ll present classics and brand-new texts we consider central and relevant – and welcome your comments and suggestions! #layexpertise
August 25, 2025 at 3:22 PM
Reposted by Sazana Jayadeva
c02.sfb1472.uni-siegen.de
“Most People with Long COVID Are Their Own Doctors” by @sazanajayadeva.bsky.social & @dalupton.bsky.social (2025) shows vividly how self-help and self-tracking turn patients into experts for themselves while problematising medical authority.

journals.sagepub.com/doi/10.1177/...

#layexpertise
‘Most People with Long COVID Are Their Own Doctors’: Self-Tracking and Online Patient Groups as Pathways to Challenging Epistemic Injustice - Sazana Jayadeva, Deborah Lupton, 2025
This article focuses on the struggles of people with Long COVID to obtain diagnoses and treatment in the face of medical dismissal and ignorance. Drawing on int...
journals.sagepub.com
August 27, 2025 at 6:17 PM
Reposted by Sazana Jayadeva
lucibee.bsky.social
This is a really interesting article. Well worth reading in full.

It's such a shame that GPs are so resistant to the use of self-tracking technologies, as they could so easily be used to empower their patients to manage their conditions better.

Let's hope things start changing soon on this.
sazanajayadeva.bsky.social Sazana Jayadeva @sazanajayadeva.bsky.social · Jul 21
Pleased to share a new article, co-authored with @dalupton.bsky.social, just published in the journal Sociology: '"Most People with Long COVID Are Their Own Doctors": Self-Tracking and Online Patient Groups as Pathways to Challenging Epistemic Injustice'.

journals.sagepub.com/doi/10.1177/...

1/2
The illustration shows a woman lying in bed, wearing pyjamas and a lab coat. She is trying to make sense of data coming out of her smartwatch. The illustration shows a woman lying in bed who is wearing a smartwatch. She is surrounded by smaller images of people lying in bed, all wearing smartwatches - there are speech bubbles containing data coming from these people, suggesting that they are speaking about their self-tracking data.
August 23, 2025 at 4:57 PM
Reposted by Sazana Jayadeva
ninahatfield.bsky.social
As someone with ME/CFS who has to guard my cognitive exertion, I'm going to be reading the linked article in bits over time, but already want to share it just a little of the way in. So far, really appreciating the clarity, patient respect, and framing.
sazanajayadeva.bsky.social Sazana Jayadeva @sazanajayadeva.bsky.social · Jul 21
Pleased to share a new article, co-authored with @dalupton.bsky.social, just published in the journal Sociology: '"Most People with Long COVID Are Their Own Doctors": Self-Tracking and Online Patient Groups as Pathways to Challenging Epistemic Injustice'.

journals.sagepub.com/doi/10.1177/...

1/2
The illustration shows a woman lying in bed, wearing pyjamas and a lab coat. She is trying to make sense of data coming out of her smartwatch. The illustration shows a woman lying in bed who is wearing a smartwatch. She is surrounded by smaller images of people lying in bed, all wearing smartwatches - there are speech bubbles containing data coming from these people, suggesting that they are speaking about their self-tracking data.
August 24, 2025 at 12:31 AM
Reposted by Sazana Jayadeva
sammiemc.bsky.social
"We urge practitioners to treat patient-generated data as a valuable resource. Without this shift, patients with contested illnesses like long Covid risk remaining stuck in a system where they have to be their own doctors."
Dr Jayadeva

www.bbc.co.uk/news/article...?

#LongCovid #PatientAdvocacy
Long Covid patients gaslit by GPs, Surrey study finds - BBC News
The University of Surrey study says patients faced "gatekeeping" of medical treatment from doctors.
www.bbc.co.uk
August 22, 2025 at 4:35 PM
Reposted by Sazana Jayadeva
bhanlon15.bsky.social
BBC: “Long Covid patients gaslit by GPs, study finds”

“Dr. Sazana Jayadeva, a research fellow at the university, said a "shift was needed in medical culture" following the findings”

www.bbc.com/news/article...
Long Covid patients gaslit by GPs, Surrey study finds
The University of Surrey study says patients faced "gatekeeping" of medical treatment from doctors.
www.bbc.com
August 22, 2025 at 12:11 PM
Reposted by Sazana Jayadeva
killedbyproxy.bsky.social
"Dr Jayadeva, who co-authored the study, added: 'We found that people with #longCovid are often led to fend for themselves in a system that isn't adequately informed about their condition and doesn't offer them appropriate medical support.'"
Long Covid patients gaslit by GPs, Surrey study finds
The University of Surrey study says patients faced "gatekeeping" of medical treatment from doctors.
www.bbc.com
August 22, 2025 at 12:28 PM
Reposted by Sazana Jayadeva
icsjournal.bsky.social
#OutNow in #iCS
Jayadeva and Lupton explore how individuals with Long COVID use self-tracking to understand and manage their illness. Such practices offer empowerment and validation to individuals while challenging power differentials.
doi.org/10.1080/1369...
‘A gift and a curse’: the benefits and limitations of self-tracking Long COVID
People living with Long COVID are dealing with significant challenges related to limited understanding of this novel condition, social stigma, and lack of support from medical professionals and oth...
doi.org
April 25, 2025 at 1:08 PM
Reposted by Sazana Jayadeva
thecovidinfoguy.bsky.social
Study: ‘Most People with Long COVID Are Their Own Doctors’: Self-Tracking and Online Patient Groups as Pathways to Challenging Epistemic Injustice.

Published: July 20, 2025

journals.sagepub.com/doi/10.1177/...
Sage Journals: Discover world-class research
Subscription and open access journals from Sage, the world's leading independent academic publisher.
journals.sagepub.com
August 22, 2025 at 7:37 AM
Reposted by Sazana Jayadeva
thecovidinfoguy.bsky.social
"Despite the increasing recognition of Long COVID as a condition, many patients still face dismissal by medical professionals, misattribution of their symptoms to psychological causes, or simply being left to fend for themselves."

Source: www.surrey.ac.uk/news/patient...
Published: 19 August 2025 Patients with Long COVID forced to become their own doctors By Georgie Gould An inability to get the support they need from medical professionals is forcing Long COVID sufferers to navigate and self-manage their illness using digital self-tracking tools and online support groups, according to a new study from the University of Surrey.
August 22, 2025 at 7:37 AM
Reposted by Sazana Jayadeva
tomkindlon.bsky.social
News Release 19-Aug-2025

Patients with #LongCOVID forced to become their own doctors

www.eurekalert.org/news-release...

"participants ... are using data from smartwatches and symptom-tracking apps to evidence their symptoms to their medical practitioners and advocate for diagnostic tests"

#PASC
News Release 19-Aug-2025 Patients with Long COVID forced to become their own doctors Peer-Reviewed Publication University of Surrey Despite the increasing recognition of Long COVID as a condition, many patients still face dismissal by medical professionals, misattribution of their symptoms to psychological causes, or simply being left to fend for themselves. The study describes the response many encounter from professionals as ‘medical gaslighting’, disbelief and dismissiveness. The study, published in Sociology and conducted in collaboration with Professor Deborah Lupton from the University of New South Wales, Sydney, Australia, found that people with Long COVID are turning to wearable devices and online patient communities to make sense of their symptoms, identify patterns and triggers, and develop their own care plans.
August 20, 2025 at 12:35 PM
Reposted by Sazana Jayadeva
bhanlon15.bsky.social
'Self-tracking empowers Long COVID patients amid medical dismissal'

'Despite the increasing recognition of Long COVID as a condition, many patients still face dismissal by medical professionals...'

www.news-medical.net/news/2025081...
Self-tracking empowers Long COVID patients amid medical dismissal
Despite the increasing recognition of Long COVID as a condition, many patients still face dismissal by medical professionals, misattribution of their symptoms to psychological causes, or simply being ...
www.news-medical.net
August 19, 2025 at 2:10 PM
Reposted by Sazana Jayadeva
bhanlon15.bsky.social
University of Surrey: 'Denied support, long COVID patients turn to self-tracking and online groups for care'

'Despite the increasing recognition of long COVID as a condition, many patients still face dismissal by medical professionals...'

medicalxpress.com/news/2025-08...
Denied support, long COVID patients turn to self-tracking and online groups for care
Despite the increasing recognition of long COVID as a condition, many patients still face dismissal by medical professionals, misattribution of their symptoms to psychological causes, or simply being ...
medicalxpress.com
August 19, 2025 at 9:20 PM
Reposted by Sazana Jayadeva
heinonmatti.bsky.social
Someone said I'd probably like @dalupton.bsky.social's book Risk, and doing my due diligence, bumped into an interesting #longCovid piece:

www.tandfonline.com/doi/full/10....
‘A gift and a curse’: the benefits and limitations of self-tracking Long COVID
People living with Long COVID are dealing with significant challenges related to limited understanding of this novel condition, social stigma, and lack of support from medical professionals and oth...
www.tandfonline.com
August 3, 2025 at 11:08 AM
Reposted by Sazana Jayadeva
taniaspencer.bsky.social
1/
"We found that people with Long COVID are often left to fend for themselves in a system that isn't adequately informed about their condition and doesn't offer them appropriate medical support":

www.news-medical.net/news/2025081...
Self-tracking empowers Long COVID patients amid medical dismissal
Despite the increasing recognition of Long COVID as a condition, many patients still face dismissal by medical professionals, misattribution of their symptoms to psychological causes, or simply being ...
www.news-medical.net
August 20, 2025 at 4:37 PM
Reposted by Sazana Jayadeva
sciencex.bsky.social
Many long COVID patients are using wearable devices and online communities to track symptoms, advocate for care, and navigate a healthcare system that often lacks adequate support for their condition. doi.org/g9xj8d
Denied support, long COVID patients turn to self-tracking and online groups for care
Despite the increasing recognition of long COVID as a condition, many patients still face dismissal by medical professionals, misattribution of their symptoms to psychological causes, or simply being left to fend for themselves.
medicalxpress.com
August 19, 2025 at 6:57 PM
Reposted by Sazana Jayadeva
tomkindlon.bsky.social
‘Most People with Long COVID Are Their Own Doctors’: Self-Tracking and Online Patient Groups as Pathways to Challenging Epistemic Injustice by @sazanajayadeva.bsky.social ‪& @dalupton.bsky.social

journals.sagepub.com/doi/10.1177/...

Screenshot from Science for ME weekly update

#LongCovid #PASC
‘Most People with Long COVID Are Their Own Doctors’: Self-Tracking and Online Patient Groups as Pathways to Challenging Epistemic Injustice — Sazana Jayadeva and Deborah Lupton "Epistemic justice for people with Long COVID and other contested illnesses will never be fully achieved until the medical profession can develop greater epistemic humility and takes steps to redress testimonial and hermeneutical injustice."
July 31, 2025 at 1:03 AM
Reposted by Sazana Jayadeva
theguardian.com
UN agency says staff fainting from hunger as starvation spreads in Gaza
UN agency says staff fainting from hunger as starvation spreads in Gaza
Israeli official says Hamas’s latest ceasefire proposal is workable as two sides prepare for talks mediated by Qatar * Middle East crisis – live updates The head of the UN agency for Palestinians has said its staff were fainting from hunger, as the starvation crisis in Gaza resulting from an Israeli blockade on most aid into the territory worsens. “People in Gaza are neither dead nor alive, they are walking corpses,” Philippe Lazzarini, the head of the United Nations Relief and Works Agency (Unrwa) said in a post on X. Continue reading...
www.theguardian.com
July 24, 2025 at 3:47 PM
Reposted by Sazana Jayadeva
valebodi.bsky.social
‘Most People with Long COVID Are Their Own Doctors’: Self-Tracking and Online Patient Groups as Pathways to Challenging Epistemic Injustice journals.sagepub.com/doi/10.1177/...
@dalupton.bsky.social
‘Most People with Long COVID Are Their Own Doctors’: Self-Tracking and Online Patient Groups as Pathways to Challenging Epistemic Injustice - Sazana Jayadeva, Deborah Lupton, 2025
This article focuses on the struggles of people with Long COVID to obtain diagnoses and treatment in the face of medical dismissal and ignorance. Drawing on int...
journals.sagepub.com
July 22, 2025 at 1:14 AM
Reposted by Sazana Jayadeva
kerstinsailer.bsky.social
Brilliant new research paper by a friend of mine on the experiences of people with #LongCovid using self tracking devices and peer support in the absence of sufficient answers and help from medical professionals

journals.sagepub.com/doi/10.1177/...
‘Most People with Long COVID Are Their Own Doctors’: Self-Tracking and Online Patient Groups as Pathways to Challenging Epistemic Injustice - Sazana Jayadeva, Deborah Lupton, 2025
This article focuses on the struggles of people with Long COVID to obtain diagnoses and treatment in the face of medical dismissal and ignorance. Drawing on int...
journals.sagepub.com
July 21, 2025 at 4:58 PM
Reposted by Sazana Jayadeva
taniaspencer.bsky.social
"Epistemic justice for people with Long COVID and other contested illnesses will never be fully achieved until the medical profession can develop greater epistemic humility and takes steps to redress testimonial and hermeneutical injustice":

journals.sagepub.com/doi/10.1177/...
Sage Journals: Discover world-class research
Subscription and open access journals from Sage, the world's leading independent academic publisher.
journals.sagepub.com
July 21, 2025 at 3:43 PM
sazanajayadeva.bsky.social
Pleased to share a new article, co-authored with @dalupton.bsky.social, just published in the journal Sociology: '"Most People with Long COVID Are Their Own Doctors": Self-Tracking and Online Patient Groups as Pathways to Challenging Epistemic Injustice'.

journals.sagepub.com/doi/10.1177/...

1/2
The illustration shows a woman lying in bed, wearing pyjamas and a lab coat. She is trying to make sense of data coming out of her smartwatch. The illustration shows a woman lying in bed who is wearing a smartwatch. She is surrounded by smaller images of people lying in bed, all wearing smartwatches - there are speech bubbles containing data coming from these people, suggesting that they are speaking about their self-tracking data.
July 21, 2025 at 2:49 PM
sazanajayadeva.bsky.social
Happy to share a new article, just published open access in @socresonline.bsky.social: 'Getting Back on Track: Student Migration From India to Germany as a Route to Desirable Employment'.

journals.sagepub.com/doi/10.1177/...
Getting Back on Track: Student Migration From India to Germany as a Route to Desirable Employment - Sazana Jayadeva, 2025
This article examines the rising postgraduate-level student migration of Indian engineers to Germany, drawing on interviews with 42 Indians who were applying to...
journals.sagepub.com
July 7, 2025 at 4:28 PM
Reposted by Sazana Jayadeva
ve-spa.bsky.social
📖📚 Have you registered for our upcoming ECR RIS reading group?

20 May 2025
3.00-4.30pm BST

✒️ register here: lnkd.in/edviAa_E

@risnetwork.bsky.social @sazanajayadeva.bsky.social
May 16, 2025 at 1:15 PM
Reposted by Sazana Jayadeva
tomkindlon.bsky.social
‘A gift and a curse’: the benefits and limitations of self-tracking Long COVID

Image is from latest Science for ME weekly update

www.tandfonline.com/doi/abs/10.1...

#LongCovid #PASC
Information, Communication & Society ‘A gift and a curse’: the benefits and limitations of self-tracking Long COVID — Sazana Jayadeva and Deborah Lupton "It is notable that most of our participants had not used self-tracking wearables or apps prior to developing Long COVID. Indeed, some had described themselves as having been opposed to the use of such devices. However, in the absence of adequate medical support, and despite some drawbacks and frustrations, these wearables and apps had become key tools for navigating Long COVID."
April 10, 2025 at 1:30 AM