Sarah Richardson
@sarahrichardson.bsky.social
Reposted by Sarah Richardson
Clip: BBC Look North 10-year-old Asa has been named Young Person of the Year by SENSE. Asa supports his mum with daily tasks at home after they became disabled with ME/CFS after Covid-19.
November 26, 2025 at 8:11 PM
Clip: BBC Look North 10-year-old Asa has been named Young Person of the Year by SENSE. Asa supports his mum with daily tasks at home after they became disabled with ME/CFS after Covid-19.
Reposted by Sarah Richardson
Alison Hume MP shares an account of severe #MECFS and warns that many healthcare professionals lack understanding of severe ME — especially its hallmark symptom, post, exertional malaise PEM — and that patients are too often pushed into pathways that simply aren’t appropriate.
November 21, 2025 at 12:28 PM
Alison Hume MP shares an account of severe #MECFS and warns that many healthcare professionals lack understanding of severe ME — especially its hallmark symptom, post, exertional malaise PEM — and that patients are too often pushed into pathways that simply aren’t appropriate.
Reposted by Sarah Richardson
Tessa Munt MP highlights how Germany is taking post-infectious diseases seriously, committing €500m over 10 years to research #MECFS & #LongCOVID. She asks if the UK Government will make a comparable commitment, or wait a decade for the Germans’ conclusions before taking action?
November 20, 2025 at 7:04 AM
Tessa Munt MP highlights how Germany is taking post-infectious diseases seriously, committing €500m over 10 years to research #MECFS & #LongCOVID. She asks if the UK Government will make a comparable commitment, or wait a decade for the Germans’ conclusions before taking action?
Reposted by Sarah Richardson
Tessa Munt MP highlights the economic impact of ME: based on a 2014–15 estimate, adjusted for inflation and increased case numbers, ME is estimated to cost the UK around £7 billion a year — rising to ~£20 billion including people who meet the criteria for ME with long COVID
November 19, 2025 at 8:51 PM
Tessa Munt MP highlights the economic impact of ME: based on a 2014–15 estimate, adjusted for inflation and increased case numbers, ME is estimated to cost the UK around £7 billion a year — rising to ~£20 billion including people who meet the criteria for ME with long COVID
Reposted by Sarah Richardson
Clip - Tessa Munt MP opens the #MECFS debate, noting ~400,000 have ME in the UK, & the total could be much higher including people with with long COVID. She highlights decades of substandard, sometimes harmful care, pitiful funding, and the outdated view of ME as psychiatric.
November 19, 2025 at 7:01 PM
Clip - Tessa Munt MP opens the #MECFS debate, noting ~400,000 have ME in the UK, & the total could be much higher including people with with long COVID. She highlights decades of substandard, sometimes harmful care, pitiful funding, and the outdated view of ME as psychiatric.
Reposted by Sarah Richardson
Today’s Westminster Hall debate on government support for people with #MECFS is now on YouTube. Led by Tessa Munt MP (Wells and Mendip Hills, Liberal Democrat), and lasts around an hour.
youtu.be/wZFEUnjWgOA?...
youtu.be/wZFEUnjWgOA?...
Westminster Hall Debate on Support for People with ME/CFS - November 2025
YouTube video by Broken Battery
youtu.be
November 19, 2025 at 6:25 PM
Today’s Westminster Hall debate on government support for people with #MECFS is now on YouTube. Led by Tessa Munt MP (Wells and Mendip Hills, Liberal Democrat), and lasts around an hour.
youtu.be/wZFEUnjWgOA?...
youtu.be/wZFEUnjWgOA?...
Reposted by Sarah Richardson
UK: Westminster Hall debate: #MEcfs
Wednesday 19 November at 4:30pm.
This debate will be led by Tessa Munt MP
Live
www.parliamentlive.tv/Event/Index/...
Replay
www.parliamentlive.tv/Search?Keywo...
References
commonslibrary.parliament.uk/research-bri...
whatson.parliament.uk/event/cal53589
#PwME
Wednesday 19 November at 4:30pm.
This debate will be led by Tessa Munt MP
Live
www.parliamentlive.tv/Event/Index/...
Replay
www.parliamentlive.tv/Search?Keywo...
References
commonslibrary.parliament.uk/research-bri...
whatson.parliament.uk/event/cal53589
#PwME
Parliamentlive.tv
Westminster Hall
www.parliamentlive.tv
November 18, 2025 at 6:06 PM
UK: Westminster Hall debate: #MEcfs
Wednesday 19 November at 4:30pm.
This debate will be led by Tessa Munt MP
Live
www.parliamentlive.tv/Event/Index/...
Replay
www.parliamentlive.tv/Search?Keywo...
References
commonslibrary.parliament.uk/research-bri...
whatson.parliament.uk/event/cal53589
#PwME
Wednesday 19 November at 4:30pm.
This debate will be led by Tessa Munt MP
Live
www.parliamentlive.tv/Event/Index/...
Replay
www.parliamentlive.tv/Search?Keywo...
References
commonslibrary.parliament.uk/research-bri...
whatson.parliament.uk/event/cal53589
#PwME
Reposted by Sarah Richardson
I think what it shows is how our national institutions are failing #pwME - as demonstrated by the PFD report following #MaeveInquest in 2024.
Nothing has changed since the PFD, afaik, but reinforcement of systemic failings described/quoted in government led Final Delivery Plan - and Justice4ME.uk
Nothing has changed since the PFD, afaik, but reinforcement of systemic failings described/quoted in government led Final Delivery Plan - and Justice4ME.uk
November 19, 2025 at 10:55 AM
I think what it shows is how our national institutions are failing #pwME - as demonstrated by the PFD report following #MaeveInquest in 2024.
Nothing has changed since the PFD, afaik, but reinforcement of systemic failings described/quoted in government led Final Delivery Plan - and Justice4ME.uk
Nothing has changed since the PFD, afaik, but reinforcement of systemic failings described/quoted in government led Final Delivery Plan - and Justice4ME.uk
Reposted by Sarah Richardson
The British Association of Clinicians in ME/CFS have published an updated guide. Forum discussion raises serious concerns about their therapist-led rehab approach including pacing-up.
bacme.info/wp-content/u...
www.s4me.info/threads/uk-b...
Screenshot from Science for ME update
#MEcfs #CFS
bacme.info/wp-content/u...
www.s4me.info/threads/uk-b...
Screenshot from Science for ME update
#MEcfs #CFS
November 17, 2025 at 2:31 AM
The British Association of Clinicians in ME/CFS have published an updated guide. Forum discussion raises serious concerns about their therapist-led rehab approach including pacing-up.
bacme.info/wp-content/u...
www.s4me.info/threads/uk-b...
Screenshot from Science for ME update
#MEcfs #CFS
bacme.info/wp-content/u...
www.s4me.info/threads/uk-b...
Screenshot from Science for ME update
#MEcfs #CFS
Reposted by Sarah Richardson
ME Research UK is delighted to announce that we have awarded funding to Prof. Bhupesh Prusty at Riga Stradins University in Latvia for a project investigating the role of autoimmunity in ME/CFS. bit.ly/prusty070
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
November 12, 2025 at 3:58 PM
ME Research UK is delighted to announce that we have awarded funding to Prof. Bhupesh Prusty at Riga Stradins University in Latvia for a project investigating the role of autoimmunity in ME/CFS. bit.ly/prusty070
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
Reposted by Sarah Richardson
After a number of requests I’ve made all of the TV clips on my YouTube channel public. They’re now searchable on and will appear on my homepage and in the videos tab.
youtube.com/@brokenbattery
youtube.com/@brokenbattery
Broken Battery
Severe ME patient currently on a 10% battery, the gas goes out more than I do. I also compile ME/CFS Awareness videos.
youtube.com
November 6, 2025 at 7:28 PM
After a number of requests I’ve made all of the TV clips on my YouTube channel public. They’re now searchable on and will appear on my homepage and in the videos tab.
youtube.com/@brokenbattery
youtube.com/@brokenbattery
Reposted by Sarah Richardson
“Most of the people I’ve seen with #MECFS are so much sicker than my cancer patients.”
Dr. Fridbjörn Sigurdsson, a former medical oncologist now focused on ME/CFS, speaking at the 2025 @investinmeresearch.bsky.social conference.
Thanks to @mecfsskeptic.bsky.social for finding the clip.
Dr. Fridbjörn Sigurdsson, a former medical oncologist now focused on ME/CFS, speaking at the 2025 @investinmeresearch.bsky.social conference.
Thanks to @mecfsskeptic.bsky.social for finding the clip.
October 16, 2025 at 6:36 PM
“Most of the people I’ve seen with #MECFS are so much sicker than my cancer patients.”
Dr. Fridbjörn Sigurdsson, a former medical oncologist now focused on ME/CFS, speaking at the 2025 @investinmeresearch.bsky.social conference.
Thanks to @mecfsskeptic.bsky.social for finding the clip.
Dr. Fridbjörn Sigurdsson, a former medical oncologist now focused on ME/CFS, speaking at the 2025 @investinmeresearch.bsky.social conference.
Thanks to @mecfsskeptic.bsky.social for finding the clip.
Reposted by Sarah Richardson
Clip from yesterday’s Westminster debate on PoTS, Tessa Munt MP @tessamunt.bsky.social raised the case of a constituent’s daughter with #MECFS who believes she also has PoTS. After finally seeing a consultant in Bristol, she was told PoTS was “a TikTok fashion” and refused any testing.
October 15, 2025 at 10:16 AM
Clip from yesterday’s Westminster debate on PoTS, Tessa Munt MP @tessamunt.bsky.social raised the case of a constituent’s daughter with #MECFS who believes she also has PoTS. After finally seeing a consultant in Bristol, she was told PoTS was “a TikTok fashion” and refused any testing.
Reposted by Sarah Richardson
Full Westminster debate on PoTS (28 mins), led by Cat Smith MP. MPs from across parties raised long waits for diagnosis, lack of NHS care. Minister Ashley Dalton responded for the Govt.
youtu.be/1Qj2umTb-3A?...
youtu.be/1Qj2umTb-3A?...
Westminster Debate on PoTS (Postural Tachycardia Syndrome)
YouTube video by Broken Battery
youtu.be
October 15, 2025 at 10:20 AM
Full Westminster debate on PoTS (28 mins), led by Cat Smith MP. MPs from across parties raised long waits for diagnosis, lack of NHS care. Minister Ashley Dalton responded for the Govt.
youtu.be/1Qj2umTb-3A?...
youtu.be/1Qj2umTb-3A?...
Reposted by Sarah Richardson
Reposted by Sarah Richardson
It may not solve all of problems currently facing the world, but I think we can all agree that bringing back gargoyles, mixtapes, and handwritten letters with wax seals would be an important first step.
October 9, 2025 at 7:10 PM
It may not solve all of problems currently facing the world, but I think we can all agree that bringing back gargoyles, mixtapes, and handwritten letters with wax seals would be an important first step.
Reposted by Sarah Richardson
Like the Tories, the Labour government is trying to drive down the number of people who qualify for disability benefits by insisting there has been an epidemic of “overdiagnosis”: a favourite theme of the BBC and the junktanks of Tufton Street. Never mind the science: what outcome do we want?
October 8, 2025 at 6:10 AM
Like the Tories, the Labour government is trying to drive down the number of people who qualify for disability benefits by insisting there has been an epidemic of “overdiagnosis”: a favourite theme of the BBC and the junktanks of Tufton Street. Never mind the science: what outcome do we want?
Reposted by Sarah Richardson
October is Dysautonomia Awareness Month 🩵 This condition affects at least 70M people worldwide but remains under-recognized. Learn about disorders of the autonomic nervous system: https://dysautonomiasupport.pulse.ly/4grjfcpqmv #DysautonomiaAwarenessMonth #POTS #LongCovid
What is Dysautonomia?
Dysautonomia [dis-aw-tuh-noh-mee-uh] Also called autonomic dysfunction, is an umbrella term used to describe disorders that affect the autonomic nervous system. ¹ The autonomic nervous system (ANS)…
dysautonomiasupport.pulse.ly
October 2, 2025 at 2:59 PM
October is Dysautonomia Awareness Month 🩵 This condition affects at least 70M people worldwide but remains under-recognized. Learn about disorders of the autonomic nervous system: https://dysautonomiasupport.pulse.ly/4grjfcpqmv #DysautonomiaAwarenessMonth #POTS #LongCovid
Reposted by Sarah Richardson
1) We’ve written an article about the DecodeME results: what the study measured, what the results show, and why its findings are important.
October 4, 2025 at 8:27 AM
1) We’ve written an article about the DecodeME results: what the study measured, what the results show, and why its findings are important.
Reposted by Sarah Richardson
Baroness Hayter passionately summarises what this law would mean for dying people:
'This bill is not about people choosing to die. They are dying. This bill is about helping them make those final days easier for those who so choose.'
'This bill is not about people choosing to die. They are dying. This bill is about helping them make those final days easier for those who so choose.'
September 19, 2025 at 1:39 PM
Baroness Hayter passionately summarises what this law would mean for dying people:
'This bill is not about people choosing to die. They are dying. This bill is about helping them make those final days easier for those who so choose.'
'This bill is not about people choosing to die. They are dying. This bill is about helping them make those final days easier for those who so choose.'
Reposted by Sarah Richardson
Ask your MP to sign the Early Day Motion!
The ME Association is pleased to see this EDM has been tabled by Tom Morrison MP.
meassociation.org.uk/gdid
The ME Association is pleased to see this EDM has been tabled by Tom Morrison MP.
meassociation.org.uk/gdid
Ask your MP to sign the Early Day Motion! - The ME Association
Ask your MP to sign the Early Day Motion (EDM) […]
meassociation.org.uk
September 10, 2025 at 10:06 AM
Ask your MP to sign the Early Day Motion!
The ME Association is pleased to see this EDM has been tabled by Tom Morrison MP.
meassociation.org.uk/gdid
The ME Association is pleased to see this EDM has been tabled by Tom Morrison MP.
meassociation.org.uk/gdid
Reposted by Sarah Richardson
as her advocates.
As a reg SW, I have emailed to share PFD report, NHS Devon clinical guidance, and newly published NHS e-Learning module 3: a lot to digest for any busy hospital.
As yet no invitation to join Zoom or MSTeams meeting.
#pwME, please post support to Savannah. She is afraid for her life
As a reg SW, I have emailed to share PFD report, NHS Devon clinical guidance, and newly published NHS e-Learning module 3: a lot to digest for any busy hospital.
As yet no invitation to join Zoom or MSTeams meeting.
#pwME, please post support to Savannah. She is afraid for her life
September 8, 2025 at 6:12 PM
as her advocates.
As a reg SW, I have emailed to share PFD report, NHS Devon clinical guidance, and newly published NHS e-Learning module 3: a lot to digest for any busy hospital.
As yet no invitation to join Zoom or MSTeams meeting.
#pwME, please post support to Savannah. She is afraid for her life
As a reg SW, I have emailed to share PFD report, NHS Devon clinical guidance, and newly published NHS e-Learning module 3: a lot to digest for any busy hospital.
As yet no invitation to join Zoom or MSTeams meeting.
#pwME, please post support to Savannah. She is afraid for her life
Reposted by Sarah Richardson
🧵 Savannah update - please share widely.
Formerly known as Gigi, Savannah (S) is in Room 4, Ward 1, Queen Elizabeth Hospital, Woolwich with very severe ME.
All her energy is being spent on calling for help.
There is a virtual MDT 10.30 tomorrow. S has asked that Dr Weir and I be invited to join
1/2
Formerly known as Gigi, Savannah (S) is in Room 4, Ward 1, Queen Elizabeth Hospital, Woolwich with very severe ME.
All her energy is being spent on calling for help.
There is a virtual MDT 10.30 tomorrow. S has asked that Dr Weir and I be invited to join
1/2
September 8, 2025 at 6:12 PM
🧵 Savannah update - please share widely.
Formerly known as Gigi, Savannah (S) is in Room 4, Ward 1, Queen Elizabeth Hospital, Woolwich with very severe ME.
All her energy is being spent on calling for help.
There is a virtual MDT 10.30 tomorrow. S has asked that Dr Weir and I be invited to join
1/2
Formerly known as Gigi, Savannah (S) is in Room 4, Ward 1, Queen Elizabeth Hospital, Woolwich with very severe ME.
All her energy is being spent on calling for help.
There is a virtual MDT 10.30 tomorrow. S has asked that Dr Weir and I be invited to join
1/2
Reposted by Sarah Richardson
The official trailer for ‘SLOW HORSES’ Season 5 has been released.
Premiering on Apple TV+ on September 24.
Premiering on Apple TV+ on September 24.
September 3, 2025 at 1:36 PM
The official trailer for ‘SLOW HORSES’ Season 5 has been released.
Premiering on Apple TV+ on September 24.
Premiering on Apple TV+ on September 24.