Sam Norpel
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samnorpel.bsky.social
Sam Norpel
@samnorpel.bsky.social
43 followers 75 following 15 posts
Wife, Mom, Former Executive, now #disabled by #LongCOVID.

When I feel up to it, I try to use #ArtTherapy 🎨 to express what life is like as a LC patient 🖼️ & raise awareness. I also paint flowers 💐🌺🌻 to bring a little joy.
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samnorpel.bsky.social
Sam Norpel @samnorpel.bsky.social · Mar 20
🧵In honor of #longcovidawareness day Saturday, I’m sharing the artwork I’ve created & previously posted on X. I’ve had another one in the works for a while that just hasn’t gotten very far. On Sat, I had been sick for 1,179 days… #arttherapy #livingwithlongcovid #longcovid

You are not alone.❤️‍🩹❤️‍🩹❤️‍🩹 /1
Reposted by Sam Norpel
mvgutierrezmd.bsky.social
Congress needs to protect brain injury programs.

📣 Take Action Now: Click the link below to email your Representative. Urge them to support the Luttrell-Deluzio letter and stand up for the brain injury community.
biausa.quorum.us/campaign/12028…

🕒 Deadline: April 25, 2025
Brain Injury Association of America
Brain Injury Association of America
https://biausa.quorum.us/campaign/12028…
April 21, 2025 at 2:01 AM
samnorpel.bsky.social
🧵In honor of #longcovidawareness day Saturday, I’m sharing the artwork I’ve created & previously posted on X. I’ve had another one in the works for a while that just hasn’t gotten very far. On Sat, I had been sick for 1,179 days… #arttherapy #livingwithlongcovid #longcovid

You are not alone.❤️‍🩹❤️‍🩹❤️‍🩹 /1
March 20, 2025 at 1:15 PM
Reposted by Sam Norpel
riemerville.bsky.social
What if something as simple as walking across the room became impossible? That’s was reality for years. Once healthy& active,I’m now housebound, struggling with fatigue, brain fog, pain, heart palpitations, and breathlessness. We need research & awareness. #LongCovidAwarenessDay
March 16, 2025 at 2:44 AM
Reposted by Sam Norpel
exceedhergrasp1.bsky.social
Some resources for #LongCOVIDAwarenessDay, a thread 🧵

1. The Pacing Guides, for activity management; includes guides for adults, peds, and a cited version for clinicians. Latter two created in conjunction w @longcovidfam.bsky.social and @patientled.bsky.social.

www.meaction.net/resource/pac...
Pacing and Management Guides
Find #MEAction's original Pacing Guide and Pediatric Pacing and Management Guide for ME/CFS and Long COVID, with translations.
www.meaction.net
March 15, 2025 at 3:52 PM
Reposted by Sam Norpel
karlaliliana.bsky.social
This piece made me cry big fat tears. Thank you @heatherhogan.bsky.social.
And it's not just strangers. Long COVID introduced falling into my life, both literally and metaphorically. I fell out of favor with colleagues when I was forced to start saying "no" to keep my physical baseline in check. I fell off personal and professional invite lists when people realized they'd need to have COVID-19 mitigations in place for me to attend their events. I fell in the esteem of friends and family who could not (or would not) accept that what was happening to me was very real, and that it could happen to them too. And then — when testing, getting vaccinated, and masking stopped being the norm — I fell out of public life altogether, because airplanes and movie theaters and sports bars and basketball games and even the homes of people l love became aggressively unsafe for me
March 18, 2025 at 8:20 PM
Reposted by Sam Norpel
isabellacueto.bsky.social
NEW: Cuts to Columbia University funding have shuttered a prominent research center into ME/CFS, a debilitating condition with no FDA-approved treatments. It's a gut punch to a community that for years has been frustrated by a lack of funding. Developing... www.statnews.com/2025/03/19/m...
ME/CFS research program shuts down at Columbia after Trump cuts
ME/CFS, which affects millions of Americans, has few dedicated research centers. Now the one at Columbia has been shut down over Trump funding cuts.
www.statnews.com
March 19, 2025 at 5:44 PM
Reposted by Sam Norpel
brokenwingpoet.bsky.social
A bedbound poem on isolation and our frayed connection to the outer world that reminds us — we will always belong.

#LongCovid #MECFS #pwME #chronicillness
#poem #poetry
ID: A poem titled, “For These Brief Moments” with melodic piano music playing. I measure time by the angle dim slivers of light enter my room each morning from behind ever-closed curtains, by the way their faint glow subtly shifts through the day, until it fades beyond the reach of dusk. One year bedbound, I lose track of the natural world, the only place I didn’t question if I belonged. But strains of it still drift through walls in birdsong, distant banter of crows, whispered echoes of rain. Spring’s finches grow chummy in summer. Each day, around noon settling on the windowsill just above my head, bathing in the warmth of the sun for much of the afternoon. I can’t see them but hear soft scraping of claws scampering about, occasional fluttering of wings, bickerings over who sits where. And for these brief moments I am not lonely.
February 21, 2025 at 8:58 PM
Reposted by Sam Norpel
riemerville.bsky.social
📣It’s time for the Long Covid Madness Bracket Bash!🏀💙

No basketball knowledge? No problem! This is all about fun, community, and Long Covid awareness. Anything goes!

Everyone’s welcome! #LongCovidMadness

Hosted by @samnorpel.bsky.social, @justkim.bsky.social, and me.
a woman on an airplane says i 'm ready to while dancing
ALT: a woman on an airplane says i 'm ready to while dancing
media.tenor.com
March 19, 2025 at 2:42 PM
Reposted by Sam Norpel
jfischman.bsky.social
There's a myth that long COVID doesn't affect kids. Because they didn't get severe disease. But the newest research indicates 6 million kids may have long COVID-serious physical & mental problems. This--not lockdowns--can account for historic poor school performance. Read how we can fix this. 🧪🩺
Long COVID Is Harming Too Many Kids. They Need Help.
Pediatric long COVID is more common than many thought, and we keep letting kids be reinfected with new variants
www.scientificamerican.com
October 18, 2024 at 6:03 PM
Reposted by Sam Norpel
bhanlon15.bsky.social
"OITNB Star Matt McGorry Shares Warning To Followers of 'Debilitating' Long Covid Symptoms"

'The Orange Is The New Black star took to Instagram to share how long Covid has "massively impacted" his life, taking the opportunity to tell the public...'

toofab.com/2024/10/29/o...
OITNB Star Matt McGorry Shares Warning To Followers of 'Debilitating' Long Covid Symptoms
Matt McGorry is warning his followers to continue protecting themselves against COVID-19 by sharing a video to Instagram informing the public of his symptoms.
toofab.com
October 29, 2024 at 6:12 PM
Reposted by Sam Norpel
taylorlorenz.bsky.social
“The normalization of repeated infections, preventable deaths, and anti-science propaganda is tearing the fabric of society, with the most marginalized hanging by a thread.” www.teenvogue.com/story/covid-...
COVID Isn’t Going Anywhere. Masking Up Could Save My Life.
"When I am in public spaces and see most people unmasked, I feel like an expendable burden not worth saving."
www.teenvogue.com
January 17, 2024 at 10:41 PM
Reposted by Sam Norpel
mileswgriffis.bsky.social
Today @thesicktimes.bsky.social we are live blogging the Polybio Fall 2024 Long COVID Research Symposium. Check in throughout the day for updates from leading Long COVID and IACCs researchers!

thesicktimes.org/2024/11/08/l...
Live blog: Following the Fall 2024 Polybio Research Symposium on Long COVID - The Sick Times
On Friday, a number of prominent Long COVID scientists are set to present updates on their work at the PolyBio Research Foundation’s fall research symposium. PolyBio is a leading organization in suppo...
thesicktimes.org
November 8, 2024 at 6:08 PM