Gro
@mesnag.bsky.social
Clarinettist. Conductor. Caregiver.
4 cats, 2 kids, 1 husband.
4 cats, 2 kids, 1 husband.
Reposted by Gro
Would this have happened to a white resident? Asking for the First Nations.
November 28, 2025 at 8:41 PM
Would this have happened to a white resident? Asking for the First Nations.
Reposted by Gro
Have you wondered how you can help a caregiver in your life?
If you’re a caregiver, have you ever had a friend say, “Let me know how I can help,” and your mind just goes blank?
Check out Supporting Family Caregivers by Caregiver Wisdom: www.caregiverwisdom.net/post/support...
#Caregiver
If you’re a caregiver, have you ever had a friend say, “Let me know how I can help,” and your mind just goes blank?
Check out Supporting Family Caregivers by Caregiver Wisdom: www.caregiverwisdom.net/post/support...
#Caregiver
Supporting Family Caregivers: 25 Heartwarming Ways You Can Make a Difference
Have you wondered how you can help a caregiver in your life - specific, actionable ways you can help? Here are 25 thoughtful ways you can provide meaningful support to family caregivers.
www.caregiverwisdom.net
November 11, 2025 at 5:49 PM
Have you wondered how you can help a caregiver in your life?
If you’re a caregiver, have you ever had a friend say, “Let me know how I can help,” and your mind just goes blank?
Check out Supporting Family Caregivers by Caregiver Wisdom: www.caregiverwisdom.net/post/support...
#Caregiver
If you’re a caregiver, have you ever had a friend say, “Let me know how I can help,” and your mind just goes blank?
Check out Supporting Family Caregivers by Caregiver Wisdom: www.caregiverwisdom.net/post/support...
#Caregiver
Reposted by Gro
I dag sa KrFU-lederen på #dax18 at hun selv ikke ville tatt en angrepille. Så da tar vi litt folkeopplysning. Nødprevensjon virker ved å utsette eggløsning, har ingen effekt hvis eggløsning allerede har vært. Nødprevensjon avbryter ikke svangerskap. Angrepille er ikke en tidlig abort. Si det videre.
October 29, 2025 at 9:03 PM
I dag sa KrFU-lederen på #dax18 at hun selv ikke ville tatt en angrepille. Så da tar vi litt folkeopplysning. Nødprevensjon virker ved å utsette eggløsning, har ingen effekt hvis eggløsning allerede har vært. Nødprevensjon avbryter ikke svangerskap. Angrepille er ikke en tidlig abort. Si det videre.
Reposted by Gro
"Graded exercise" is neither supported by evidence nor recommended for people with an illness defined by worsening with exercise. #mecfs #longcovid www.medscape.com/viewarticle/...
No Evidence Supports Using Graded Exercise for ME/CFS
Studies examining the effects of activity-based interventions haven’t required post-exertional malaise as a core criterion for the now-termed ‘myalgic encephalomyelitis/chronic fatigue syndrome.’
www.medscape.com
October 31, 2025 at 1:18 PM
"Graded exercise" is neither supported by evidence nor recommended for people with an illness defined by worsening with exercise. #mecfs #longcovid www.medscape.com/viewarticle/...
Reposted by Gro
ok, først litt fakta:
1. syke har rett til og behov for hjelp
2. BPA er rimeligere og mer effektivt enn andre løsninger
Men kommunen nekter. Resultat?
1. Den syke blir sykere
2. Pårørende faller ut av jobb
3. Kommunen svikter sine kjerneoppgaver og sparer IKKE penger
1. syke har rett til og behov for hjelp
2. BPA er rimeligere og mer effektivt enn andre løsninger
Men kommunen nekter. Resultat?
1. Den syke blir sykere
2. Pårørende faller ut av jobb
3. Kommunen svikter sine kjerneoppgaver og sparer IKKE penger
ME-syke Ingrid (23) i Stjørdal har mistet den brukerstyrte personlige assistenten
Målet er å bli frisk og studere, men nå har ME-syke Ingrid mistet assistenten og blitt sykere.
www.nrk.no
October 15, 2025 at 7:15 PM
ok, først litt fakta:
1. syke har rett til og behov for hjelp
2. BPA er rimeligere og mer effektivt enn andre løsninger
Men kommunen nekter. Resultat?
1. Den syke blir sykere
2. Pårørende faller ut av jobb
3. Kommunen svikter sine kjerneoppgaver og sparer IKKE penger
1. syke har rett til og behov for hjelp
2. BPA er rimeligere og mer effektivt enn andre løsninger
Men kommunen nekter. Resultat?
1. Den syke blir sykere
2. Pårørende faller ut av jobb
3. Kommunen svikter sine kjerneoppgaver og sparer IKKE penger
Reposted by Gro
1) 🇳🇴 A new Norwegian study looked at the health and economic impact on caregivers of people with ME/CFS.
ME/CFS strengthening traditional gender roles: female caregivers worked less and males more. All caregiver groups experienced increased personal health problems.
ME/CFS strengthening traditional gender roles: female caregivers worked less and males more. All caregiver groups experienced increased personal health problems.
September 23, 2025 at 9:26 AM
1) 🇳🇴 A new Norwegian study looked at the health and economic impact on caregivers of people with ME/CFS.
ME/CFS strengthening traditional gender roles: female caregivers worked less and males more. All caregiver groups experienced increased personal health problems.
ME/CFS strengthening traditional gender roles: female caregivers worked less and males more. All caregiver groups experienced increased personal health problems.
Ny artikkel fra Tjenesten og MEg. Fafo/Sintef ser på pårørende til ME-syke. Økonomi og helse link.springer.com/article/10.1...
The health and economic burden on family caregivers of persons with me/cfs diagnosis: a register data study from Norway - Discover Public Health
Background Myalgic encephalomyelitis is an illness that affects the labor capability and need for services among those affected. Interventions and services for comparable illnesses are either inaccess...
link.springer.com
September 22, 2025 at 6:07 PM
Ny artikkel fra Tjenesten og MEg. Fafo/Sintef ser på pårørende til ME-syke. Økonomi og helse link.springer.com/article/10.1...
Reposted by Gro
Det er lite jeg er enig med Anne-Kari Bratten om, men her treffer hun spikeren på hodet. Noe sier meg at «gutta» kommer til å slite når de får sånne som meg som leder.
www.dn.no/ledelse/lede...
www.dn.no/ledelse/lede...
Guttastemning på arbeidsplassen
«Guttastemning» skal møte voksne kvinnelige ledere som meg. Lykke til.
www.dn.no
August 25, 2025 at 10:41 PM
Det er lite jeg er enig med Anne-Kari Bratten om, men her treffer hun spikeren på hodet. Noe sier meg at «gutta» kommer til å slite når de får sånne som meg som leder.
www.dn.no/ledelse/lede...
www.dn.no/ledelse/lede...
Biomedisinsk forskning på ME gjorde
Christian frisk. Tenk om vi kunne bevilge mer penger til disse forskerne, så kanskje gåten løses? Ny studie på kreftmedisin trenger finansiering.
www.nrk.no/nordland/xl/...
Christian frisk. Tenk om vi kunne bevilge mer penger til disse forskerne, så kanskje gåten løses? Ny studie på kreftmedisin trenger finansiering.
www.nrk.no/nordland/xl/...
Christian vil inn på Stortinget: – Det meste i livet handler om flaks
Christian Torset vil ta igjen det tapte etter 15 år på sofaen. Derfor kjemper han nå om en plass på Stortinget.
www.nrk.no
August 30, 2025 at 7:09 PM
Biomedisinsk forskning på ME gjorde
Christian frisk. Tenk om vi kunne bevilge mer penger til disse forskerne, så kanskje gåten løses? Ny studie på kreftmedisin trenger finansiering.
www.nrk.no/nordland/xl/...
Christian frisk. Tenk om vi kunne bevilge mer penger til disse forskerne, så kanskje gåten løses? Ny studie på kreftmedisin trenger finansiering.
www.nrk.no/nordland/xl/...
Reposted by Gro
Late singer Kara Jane's family has released her album "In Limbo" posthumously on #SevereMEday 💙.
Read more about Kara, the album, and the impact of severe ME in this wonderful article by @naomiwhitt.bsky.social in @thesicktimes.org.
thesicktimes.org/2025/08/08/p...
Read more about Kara, the album, and the impact of severe ME in this wonderful article by @naomiwhitt.bsky.social in @thesicktimes.org.
thesicktimes.org/2025/08/08/p...
Posthumous album of singer Kara Jane released on Severe ME Awareness Day - The Sick Times
This month, on August 8, the posthumous album of a young singer was released to mark Severe ME Awareness Day. Kara Jane, from Derbyshire in the U.K., had myalgic encephalomyelitis (ME) for most of her...
thesicktimes.org
August 8, 2025 at 6:33 PM
Late singer Kara Jane's family has released her album "In Limbo" posthumously on #SevereMEday 💙.
Read more about Kara, the album, and the impact of severe ME in this wonderful article by @naomiwhitt.bsky.social in @thesicktimes.org.
thesicktimes.org/2025/08/08/p...
Read more about Kara, the album, and the impact of severe ME in this wonderful article by @naomiwhitt.bsky.social in @thesicktimes.org.
thesicktimes.org/2025/08/08/p...
Reposted by Gro
1) The DecodeME study compared DNA of ca. 15,000 ME/CFS patients and 250,000 controls and found significant differences in 8 regions of our genome.
The Manhattan plot below shows the genes and chromosomes involved.
Let’s unpack the results 🧵
The Manhattan plot below shows the genes and chromosomes involved.
Let’s unpack the results 🧵
August 7, 2025 at 8:05 AM
1) The DecodeME study compared DNA of ca. 15,000 ME/CFS patients and 250,000 controls and found significant differences in 8 regions of our genome.
The Manhattan plot below shows the genes and chromosomes involved.
Let’s unpack the results 🧵
The Manhattan plot below shows the genes and chromosomes involved.
Let’s unpack the results 🧵
Reposted by Gro
Science magazine’s coverage of the DecodeME initial results : www.science.org/content/arti...
Possible genetic clues to ME/chronic fatigue syndrome identified in massive study
DNA analysis of more than 15,500 people with the debilitating condition identifies eight tentative “genetic signals”
www.science.org
August 6, 2025 at 8:59 PM
Science magazine’s coverage of the DecodeME initial results : www.science.org/content/arti...
Reposted by Gro
(1/2) Key genetic differences found in people with ME/CFS > Swipe to find out more.
These findings reflect the lived experience of thousands of #pwME.
Thanks to all our participants & supporters who made this possible!
Read a summary of our results: shorturl.at/pgsjk
These findings reflect the lived experience of thousands of #pwME.
Thanks to all our participants & supporters who made this possible!
Read a summary of our results: shorturl.at/pgsjk
August 6, 2025 at 7:03 PM
(1/2) Key genetic differences found in people with ME/CFS > Swipe to find out more.
These findings reflect the lived experience of thousands of #pwME.
Thanks to all our participants & supporters who made this possible!
Read a summary of our results: shorturl.at/pgsjk
These findings reflect the lived experience of thousands of #pwME.
Thanks to all our participants & supporters who made this possible!
Read a summary of our results: shorturl.at/pgsjk
Scientists find link between genes and ME/chronic fatigue syndrome www.theguardian.com/society/2025...
Scientists find link between genes and ME/chronic fatigue syndrome
Large study suggests people’s genetics could ‘tip the balance’ on whether they would develop the illness
www.theguardian.com
August 6, 2025 at 8:07 PM
Scientists find link between genes and ME/chronic fatigue syndrome www.theguardian.com/society/2025...
Reposted by Gro
People with ME have key genetic differences to other people, study finds
The DecodeME study is described the largest of its kind in the world.
#MECFS
www.standard.co.uk/news/health/...
The DecodeME study is described the largest of its kind in the world.
#MECFS
www.standard.co.uk/news/health/...
People with ME have key genetic differences to other people, study finds
The DecodeME study is described the largest of its kind in the world.
www.standard.co.uk
August 6, 2025 at 6:27 PM
People with ME have key genetic differences to other people, study finds
The DecodeME study is described the largest of its kind in the world.
#MECFS
www.standard.co.uk/news/health/...
The DecodeME study is described the largest of its kind in the world.
#MECFS
www.standard.co.uk/news/health/...
de har funnet noe genetisk! www.research.ed.ac.uk/en/publicati...
Initial findings from the DecodeME genome-wide association study of myalgic encephalomyelitis/chronic fatigue syndrome
www.research.ed.ac.uk
August 6, 2025 at 8:02 PM
de har funnet noe genetisk! www.research.ed.ac.uk/en/publicati...
Younger har faktisk funnet betennelse i hjernen til ME-syke. youtu.be/wuzmYJxM-r0
067 - New results: The ME/CFS brain is inflamed
YouTube video by Jarred Younger, PhD
youtu.be
August 5, 2025 at 9:00 PM
Younger har faktisk funnet betennelse i hjernen til ME-syke. youtu.be/wuzmYJxM-r0
Reposted by Gro
Six months later: What their response on ME/CFS tells us about the Cochrane Collaboration.
New post at Absolutely Maybe .... 1/2
absolutelymaybe.plos.org/2025/07/31/s...
#MECFS
New post at Absolutely Maybe .... 1/2
absolutelymaybe.plos.org/2025/07/31/s...
#MECFS
Six Months Later: What Their Response on ME/CFS Tells Us About the Cochrane Collaboration - Absolutely Maybe
Six months ago, I wrote a post called “When journal, scientific society, and community values clash.” I recounted the tale of the…
absolutelymaybe.plos.org
August 1, 2025 at 1:56 AM
Six months later: What their response on ME/CFS tells us about the Cochrane Collaboration.
New post at Absolutely Maybe .... 1/2
absolutelymaybe.plos.org/2025/07/31/s...
#MECFS
New post at Absolutely Maybe .... 1/2
absolutelymaybe.plos.org/2025/07/31/s...
#MECFS
Reposted by Gro
🧵
Extract from a new short blogpost of mine:
"3 basic reasons why people with ME/CFS can’t be as 'academically productive' (learn as much in an academic year) as they could be before the illness"
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome
1/
Extract from a new short blogpost of mine:
"3 basic reasons why people with ME/CFS can’t be as 'academically productive' (learn as much in an academic year) as they could be before the illness"
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome
1/
July 31, 2025 at 6:46 PM
🧵
Extract from a new short blogpost of mine:
"3 basic reasons why people with ME/CFS can’t be as 'academically productive' (learn as much in an academic year) as they could be before the illness"
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome
1/
Extract from a new short blogpost of mine:
"3 basic reasons why people with ME/CFS can’t be as 'academically productive' (learn as much in an academic year) as they could be before the illness"
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome
1/
Reposted by Gro
Huge congrats to everyone who’s been advocating for support for the NIH’s ME/CFS Research Roadmap!! 🥳🥳
Senate FY26 budget language, out today, would give NIH 180 days to send the Senate a “detailed implementation plan” for the Research Roadmap! 🔥🔥
Senate FY26 budget language, out today, would give NIH 180 days to send the Senate a “detailed implementation plan” for the Research Roadmap! 🔥🔥
![Myalgic Encephalomyelitis/ Chronic Fatigue Syndrome [ME/
Fatigue/CFS] Research Roadmap.-The Committee recognizes the urgent need to advance research for ME/CFS, especially given its overlap with Long COVID and relevance across multiple ICs and com-
mends NIH for approving the ME/CFS Research Roadmap. The Committee encourages NIH to implement the roadmap's rec-
biomarker rec-ommendations, including advancing biomarker discovery, diagnostic tool development, and clinical trials. NIH is further directed to provide a detailed implementation plan to the Committee within 180 days of enactment.](https://cdn.bsky.app/img/feed_thumbnail/plain/did:plc:3imhavozmr6u6dlcnbo2g43r/bafkreicc6ptolertggtiefwjzq2x2maxrgf4ayegpceykba3x7xudjbrtu@jpeg)
July 31, 2025 at 9:38 PM
Huge congrats to everyone who’s been advocating for support for the NIH’s ME/CFS Research Roadmap!! 🥳🥳
Senate FY26 budget language, out today, would give NIH 180 days to send the Senate a “detailed implementation plan” for the Research Roadmap! 🔥🔥
Senate FY26 budget language, out today, would give NIH 180 days to send the Senate a “detailed implementation plan” for the Research Roadmap! 🔥🔥
Reposted by Gro
1) Interesting letter in The Lancet Rheumatology by Brittany Adler.
"Rheumatologists are uniquely trained to manage complex, multisystem illness. Yet the field has largely remained at the margins of infection-associated chronic illness and autonomic dysfunction..."
"Rheumatologists are uniquely trained to manage complex, multisystem illness. Yet the field has largely remained at the margins of infection-associated chronic illness and autonomic dysfunction..."
July 29, 2025 at 10:06 AM
1) Interesting letter in The Lancet Rheumatology by Brittany Adler.
"Rheumatologists are uniquely trained to manage complex, multisystem illness. Yet the field has largely remained at the margins of infection-associated chronic illness and autonomic dysfunction..."
"Rheumatologists are uniquely trained to manage complex, multisystem illness. Yet the field has largely remained at the margins of infection-associated chronic illness and autonomic dysfunction..."
Snodig følelse å ta på langbukse etter et par uker med nesten ingen klær.
July 29, 2025 at 7:27 AM
Snodig følelse å ta på langbukse etter et par uker med nesten ingen klær.
Reposted by Gro
BBC: 'Woman with ME criticises health plan for condition'
A woman living with myalgic encephalomyelitis (ME) said she has "lost faith" in receiving "meaningful support" after the government released a plan to help patients.
www.bbc.co.uk/news/article...
A woman living with myalgic encephalomyelitis (ME) said she has "lost faith" in receiving "meaningful support" after the government released a plan to help patients.
www.bbc.co.uk/news/article...
Bedfordshire woman with ME criticises health plan for condition
Maddie Walker says she is
www.bbc.co.uk
July 28, 2025 at 7:31 PM
BBC: 'Woman with ME criticises health plan for condition'
A woman living with myalgic encephalomyelitis (ME) said she has "lost faith" in receiving "meaningful support" after the government released a plan to help patients.
www.bbc.co.uk/news/article...
A woman living with myalgic encephalomyelitis (ME) said she has "lost faith" in receiving "meaningful support" after the government released a plan to help patients.
www.bbc.co.uk/news/article...