LoveWarriorHugs
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lovewarriorhugs.bsky.social
LoveWarriorHugs
@lovewarriorhugs.bsky.social
Smiles for miles-not letting #ChronicIllness stop me

My opponents-
#Epilepsy, #MultipleSclerosis, #chronicpain #TrigeminalNeuralgia #OccipitalNeuralgia, #Asthma, #IBS

Allies
#spoonie #spoonies

Https//:linktr.ee/lovewarriorhugs
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Next time someone asks you how you are doing:

—Really gassy

—Just getting over a yeast infection

—Terribly Randy ( 😂 )

—Better than u

#chronicillnessHumor for the end of the day.
#chronicillnesssky
#spoonie
#spooniesky
Not sure where to go with this. No joy. Pain and suffering currently.

How are u doing?
#chronicillness #spoonie
April 14, 2025 at 3:44 PM
Reposted by LoveWarriorHugs
On March 26th, #EpilepsyAwarenessDay, Dr. Lara Marcuse, co-director of the Mount Sinai Epilepsy Program & Kristin Baker, who has #Epilepsy & gave birth to a healthy baby girl a few months ago, joined @cbsnews.com New York to shine a light on epilepsy and pregnancy. www.cbsnews.com/newyork/vide...
Shining light on epilepsy and pregnancy on Epilepsy Awareness Day
Dr. Lara Marcuse, co-director of the Mount Sinai Epilepsy Program and Kristin Baker, who has epilepsy and gave birth to a healthy baby girl a few months ago joins CBS New York to talk about epilepsy a...
www.cbsnews.com
March 28, 2025 at 2:09 PM
#chronicillness is not contagious.

If I breathe on you,
No #autoimmune
No #pain
No #ibs
No #epilepsy
#spooniestrong
March 29, 2025 at 1:09 AM
Reposted by LoveWarriorHugs
If you know anyone that takes Sprycell, please let them know !!!
🚨 𝐌𝐀𝐒𝐒𝐈𝐕𝐄 𝐏𝐑𝐈𝐂𝐄 𝐃𝐑𝐎𝐏! 📢

We just dropped the price of all Dasatinib strengths by over 90% on costplusdrugs.com!

Why? Because our pricing model is simple:
When we get a lower price, you get a lower price.

🔗 www.costplusdrugs.com/medications/...
March 28, 2025 at 8:01 PM
#thoughtoftheday #chronicillness #spoonie #spooniesky #chronicillnesssky
You are appreciated. Don’t wait for me to bend. Advocate. Bring awareness.
March 26, 2025 at 11:35 PM
Reposted by LoveWarriorHugs
Whatever happened to the "5 things " DoGe emails ? Talked to someone really smart who just left gov, who said all the emails bounced back as inbox full.

Already forgotten

Typical

Ready Fire Aim
March 26, 2025 at 11:17 PM
As I went to Walmart today,
Be safe ya’ll.

#chronicillness #spoonie #humor #chronicillnesshumor
March 17, 2025 at 12:09 AM
I have idiopathic epilepsy. Also, I have refractory epilepsy-can not be controlled by medication.
Idiopathic #epilepsy means the cause of seizures is unknown. It doesn't mean it's less real or less challenging. It just means that with no known cause, it may harder for a talented neurologist to pinpoint triggers or tailor treatment. -- Is your epilepsy idiopathic? #EpilepsyAwareness
March 15, 2025 at 6:35 PM
March 15, 2025 at 1:21 AM
Has anyone experienced a negative change in fatigue, energy from a supplement? Thank u in advance.
#chronicillness
#multiplesclerosis
#spoonie
February 22, 2025 at 12:26 PM
PNES seizures are very real and go misdiagnosed or undiagnosed all of the time.
BONUS Educational megathread #3: Psychogenic Nonepileptic Attacks. Yes, they are very real; NO, patients are NOT making up their symptoms; Yes, there are good-quality evidence-based treatments available; and we absolutely need better awareness about this. #medsky #neurosky #epilepsy
February 20, 2025 at 5:18 PM
Reposted by LoveWarriorHugs
𝘗𝘪𝘰𝘯𝘦𝘦𝘳𝘪𝘯𝘨 𝘢 𝘕𝘦𝘸 𝘞𝘦𝘢𝘳𝘢𝘣𝘭𝘦 𝘋𝘦𝘷𝘪𝘤𝘦 𝘧𝘰𝘳 𝘌𝘱𝘪𝘭𝘦𝘱𝘴𝘺 𝘛𝘳𝘦𝘢𝘵𝘮𝘦𝘯𝘵
What sets Remagine Lab's patch apart? Active control of the transdermal release of epilepsy medication, allowing for dosage adjustments based on patient needs. www.remaginelabs.com #NCRIS #MedTech #Epilepsy #microneedles #nanotech #innovation
Wearable electro-pharmaceutical transforms epilepsy care
Wearable electro-pharmaceutical transforms epilepsy care Remagine Labs has developed the world’s first smart electro-pharmaceutical capable of transporting epilepsy drugs through the skin with persona...
anff.org.au
February 20, 2025 at 12:22 AM
Reposted by LoveWarriorHugs
🔊 New Epilepay Sparks Insights episode! 🎙️
Did you know many adults with an #epilepsy also have an #IntellectualDisability - and vice versa? 🤔
Neuropsych Prof. Mike Kerr 🤩 shares expert insights on real-world care, challenges, and support for individuals & families. 💡 Links below! 👇 1/2
February 20, 2025 at 3:34 PM
@quoth-this-raven.bsky.social thanks for the repost
February 18, 2025 at 3:26 AM
#chronicillness #spoonie #chronicpain #healthcare Currently looking at my MyChart. It reads like this…
February 17, 2025 at 11:55 PM
February 17, 2025 at 2:46 AM
Reposted by LoveWarriorHugs
Whos up wishing their brain would stop with all the background noise so they can sleep?
February 16, 2025 at 9:24 AM
Reposted by LoveWarriorHugs
“People with #ChronicConditions may have to pay for more expensive seats or priority access out of necessity which can make #travel much more costly”: https://buff.ly/4eTSosX from @bezzycommunity.bsky.social #spoonies #chronicPain #ChronicallyIll
We Need to Talk About the Financial Challenges of Chronic Illness
Living with a chronic condition can be expensive. We need to do a better job of providing resources and support to those who need it. Here are some of the ways that living with a chronic condition or…
buff.ly
February 13, 2025 at 1:30 PM
Feel very strongly about this.
#chronicillness #spoonie
February 11, 2025 at 11:35 PM
If only this giant spoon could give me the energy I need today.
#spoonie #spooniesky #chronicillness #multiplesclerosis
February 11, 2025 at 5:00 PM
February 9, 2025 at 12:59 PM
Reposted by LoveWarriorHugs
✨🧠 Cutting-Edge Epilepsy Research! 🧠✨
Trés cool!! Here’s what happens when you combine donated brain tissue 🧠🙏, an ultra-powerful 11.7 😱 Tesla MRI, and some of the brightest minds in neuroscience: groundbreaking insights into #epilepsy…! New podcast episode on Epilepsy Sparks Insights 🎙️ Links 👇🏻.
February 6, 2025 at 1:19 PM
February 8, 2025 at 3:22 AM
We all have our people and I made you mine.
February 6, 2025 at 12:28 AM
Does anyone know people that do not have the flu? Asking for a friend.
#chronicillness
#spoonie
#spooniesky
a woman in a red dress is holding a microphone in her hand and says `` you get sick and you get sick '' .
ALT: a woman in a red dress is holding a microphone in her hand and says `` you get sick and you get sick '' .
media.tenor.com
February 5, 2025 at 4:50 PM