Epilepsy Sparks
banner
epilepsysparks.bsky.social
Epilepsy Sparks
@epilepsysparks.bsky.social
Educating re the #epilepsies 🧠⚡🔬🧬! Check out our podcast & website! We bridge the comms gaps between clinicians, academics, & people with an epilepsy!
Reposted by Epilepsy Sparks
👏 Congratulations to FutureNeuro Investigator Dr @dowlingjk.bsky.social at @rcsi.bsky.social awarded €791,428 by the @researchireland.ie Frontiers for the Future Programme to investigate Arginase-2 as a novel therapeutic target for epilepsy.

Read more: futureneurocentre.ie/futureneuro-...
November 14, 2025 at 10:47 AM
Epilepsy: what happens when the Blood-Brain Barrier (BBB) leaks?! 🩸🧠
Dr. Claire Behan 🤩🇮🇪 & Dr. Chris Greene 🤩🇮🇪 reveal fascinating insights into how issues with the BBB can lead to seizures and #epilepsy! Availalbe now on the Epilepsy Sparks Insights podcast! 👉 youtu.be/rBpI_-daWjw

#neurology
November 13, 2025 at 5:15 PM
How does the blood-brain barrier influence epilepsy? 🤔🧠 Join Dr. Claire Behan 🤩🇮🇪 & Dr. Chris Greene 🤩🇮🇪 on the podcast to hear all about it as they chat with Torie!👇

🎬 youtu.be/rBpI_-daWjw

#epilepsyawareness #epilepsyresearch #bloodbrainbarrier #epilepsysurgery #epilepsyawarenessmonth
The Blood-Brain Barrier and Epilepsy! - Dr. Claire Behan & Dr. Chris Greene
YouTube video by Epilepsy Sparks Insights - with Torie Robinson
youtu.be
November 13, 2025 at 2:36 PM
Reposted by Epilepsy Sparks
Great to see our researcher @chrisgreene.bsky.social & Dr Claire Behan discuss their latest research with @torierobinson.bsky.social on the @epilepsysparks.bsky.social Sparks podcast — exploring how blood-brain barrier dysfunction links to epilepsy & future therapies.

🎧 youtu.be/rBpI_-daWjw
The Blood-Brain Barrier and Epilepsy! - Dr. Claire Behan & Dr. Chris Greene
YouTube video by Epilepsy Sparks Insights - with Torie Robinson
youtu.be
November 13, 2025 at 9:50 AM
“We have to protect one area of the brain & remove another.” - Dr. Ricardo Morcos 🤩 🇬🇧!

A hopeful, very educational chat about the epilepsy surgery journey 🔪🧠 - clear, empowering, & informative!

Watch the full episode here! 👇
youtu.be/QzIoLlRG1Lw

#epilepsysurgery #epilepsy #neurosurgery
November 6, 2025 at 5:23 PM
Approx. 30% of people with an epilepsy don’t respond well to meds – so what happens next? 🧠

On #Epilepsy Sparks Insights🎙️, Torie Robinson chats with Dr. Ricardo Morcos 🤩🇬🇧 about the #epilepsysurgery pathway – from EEGs & MRIs to MDT meetings & life after surgery! 👇

🎬 Watch here: youtu.be/QzIoLlRG1
Understanding the EPILEPSY SURGERY Journey - Dr. Ricardo Morcos
YouTube video by Epilepsy Sparks Insights - with Torie Robinson
youtu.be
November 6, 2025 at 1:01 PM
🧑‍🤝‍🧑 Our fellow humans in prison ⛓️ - are not getting the epilepsy care or even the prescriptions they need - because they're in prison. This isn't only impacting quality of life but increasing risk of #SUDEP!
Check out our trailer for this week's podcast here 👇!

🎬 YouTube shorturl.at/qNwkX

#epilepsy
October 24, 2025 at 3:44 PM
Who knew that #epilepsy was soooo much more common in prisons⛓️? Up to 4 times as many people in prison have an epilepsy compared to the regular public 🫨!
Learn about why this is and what can be done to sort things out! 👇

🎙️ shorturl.at/sywif
🎬 shorturl.at/qNwkX

#prisonhealth #neurology
October 23, 2025 at 2:05 PM
❗️Are they just disregarded? Not valued? #Epilepsy is up to FOUR TIMES more common in prisons ⛓️.

People are way more likely to have had Traumatic Brain Injury, have substance misuse, mental health illnesses and more.

Check out this week’s episode all about it! 👉🏻 youtu.be/2yKOxliR1pY
October 23, 2025 at 10:50 AM
Interactive, self-paced & global - the ILAE Academy is transforming clinician education in the epilepsies! 🎓 Hear from Prof. Gagandeep Singh 🤩 🇮🇳.

🎙️ Podcast shorturl.at/QdjMR
🎬 YouTube shorturl.at/4gvmM

#EpilepsyEducation #ILAEAcademy #Neurology @ilae-epilepsy.bsky.social
October 16, 2025 at 4:12 PM
How is the ILAE Academy reshaping epileptology training worldwide? 🌍 Hear from Prof. Gagandeep Singh 🤩 🇮🇳 on Torie’s show!

🎙️ Podcast shorturl.at/QdjMR
🎬 YouTube shorturl.at/4gvmM
📄 Show notes shorturl.at/c8SyD
👤 Gagandeep profile shorturl.at/48lSb

@ilae-epilepsy.bsky.social @uclh.bsky.social
October 16, 2025 at 11:56 AM
Snapshots of the fun mini docu about the International Epilepsy Congress in Lisbon 🇵🇹! All by Landis Weidner 🤩🇺🇸 - host of the What The EF podcast about the epilepsies! Check it out here: youtu.be/8jDWeFI_gAw?...

#epilepsy #neurology #whattheef #seizures
October 14, 2025 at 5:00 PM
What can it *really* be like to care for someone with an epilepsy? 🤔
Dr. Florien Boele 🤩🇳🇱🇬🇧 shares why carers’ wellbeing must not be overlooked - and how to take part in her research all about it! 👇

🎬 shorturl.at/7iv2e

#EpilepsySparks #EpilepsyAwareness #Carers #HealthResearch #EpilepsyResearch
October 9, 2025 at 3:42 PM
Unpaid carers save the UK £184B a year - but at what cost to their health? 🤯

Dr. Florien Boele 🇳🇱🇬🇧 talks with Torie Robinson about quality of life, stress, & why carers matter. Check out the episode here 👇.

🎬 shorturl.at/7iv2e

#EpilepsyAwareness #Carers #HealthResearch #EpilepsyResearch
October 9, 2025 at 2:36 PM
Who are carers really - and why do they matter so much in the epilepsies? 💜🤔
Dr. Florien Boele 🤩 🇳🇱🇬🇧 joins Torie Robinson to talk about unpaid carers & their £184B 😮 contribution…!

🎬 shorturl.at/7iv2e
🎙 shorturl.at/ttH16

#EpilepsySparks #EpilepsyAwareness #Carers #HealthResearch #EpilepsyResearch
October 9, 2025 at 11:46 AM
New podcast episode! 📑 Dr Ewan Nurse 🤩🇦🇺 joins Torie to discuss his research re:
〰️ Missed seizures…
〰️ Flawed diaries 🤦‍♀️
〰️ Improving reporting for better care 👊
Watch/listen/read the Epilepsy Sparks Insights episode 👇

🎙️ shorturl.at/BsOVW
🎬 shorturl.at/SJLxN
📄 shorturl.at/RK1vL

#epilepsy #seizurediary
September 25, 2025 at 1:03 PM
🔥 New Ep! 🔥
Harvard’s Dr Phillip Pearl 🤩🇺🇸 (Chief of Epilepsy at Boston Children’s Hospital & Prof at Harvard) on:
⚡ Why advocacy matters
🧬 Rare epilepsy & gene therapy
💜 SUDEP & mental health

Catch it here 👇
🎙️ shorturl.at/LbjyF
🎬 shorturl.at/z7VzU
📄 shorturl.at/PDSag

#Epilepsy #Neurology #SUDEP
September 18, 2025 at 1:56 PM
🎬 Podcast trailer drop!
Dr Phillip Pearl 🤩🇺🇸 shares the incredible story of Vitamin B6-dependent epilepsy 😱 - a rare condition where seizures can be treated with a vitamin 💊 - & how it opened the door to modern gene therapy! 👇

🎙️ Podcast mcdn.podbean.com/mf/web/fskua...
🎬 YouTube youtu.be/yJ31k_6xNNg
September 11, 2025 at 6:27 PM
Reposted by Epilepsy Sparks
UCLA researchers used stem cell‑derived assembloids to show how SCN8A variants trigger cortical hyperactivity (seizures) and impair hippocampal rhythms (memory). This new model may explain cognitive challenges beyond seizures and open avenues for better treatments.

Read more: https://bit.ly/41O86BE
UCLA researchers find how epilepsy genes disrupt different brain regions using stem cell models
The new research points to the distinct effects that a single disease-causing gene variation can have across different regions of the brain.
newsroom.ucla.edu
September 11, 2025 at 4:53 PM
🧬 New Epilepsy Sparks Insights podcast! 🎧🎬
Dr Phillip Pearl 🤩🇺🇸 from Boston Children’s Hospital & Harvard explains inherited metabolic epilepsies, Vitamin B6 dependency, & the future of gene therapy!
Watch/listen/read, here 👇!
🎙️ Podcast mcdn.podbean.com/mf/web/fskua...
🎬 YouTube youtu.be/yJ31k_6xNNg
September 11, 2025 at 2:00 PM
🌟 NEW PODCAST 🌟
Dr Phillip Pearl 🤩🇺🇸 explains inherited metabolic epilepsies(!), how they cause more than seizures, & how vitamin B6 💊 & diets 🥩 paved the way for gene therapy! Watch/listen/read here 👇!

🎙️ Podcast shorturl.at/5entK
🎬 YouTube shorturl.at/ghltc
📄 Show notes shorturl.at/nIFpn
#epilepsy
September 11, 2025 at 1:23 PM
Reposted by Epilepsy Sparks
The mighty @epilepsysparks.bsky.social Torie is up now!

Talking patient education and seizure management, how to improve quality of life
August 31, 2025 at 11:27 AM
Neurologist. Patient. Writer. Dr Jim Morrow 🇬🇧 shares his extraordinary story in our latest Epilepsy Sparks Insights podcast👇!

🎙️ Podcast youtu.be/T7P1-flyzpY
🎬 YouTube mcdn.podbean.com/mf/web/zihpz...
📄 Show notes www.torierobinson.com/epilepsy-spa...

#Epilepsy #NeurologyPodcast #EpilepsyResearch
August 28, 2025 at 8:06 PM
Challenge in #epilepsy care: supernatural beings like “demons” 👹 and “witches” 🧙+ 70 different languages!! See the trailer with paediatric neurologist Dr Yanin Rivera 🇲🇽 in today’s Epilepsy Sparks Insights trailer!! 👇🏻

🎙️ Podcast mcdn.podbean.com/mf/web/i7s8x...
🎬 YouTube youtu.be/l7CWytytUoc
August 21, 2025 at 7:35 PM
✨ New Epilepsy Sparks Insights 🎧!
👉 youtu.be/l7CWytytUoc

Paediatric neurologist Dr Yanin Rivera 🇲🇽 shares how cultural beliefs, 93 Epilepsy Centres 😮 & telemedicine are transforming epilepsy care! 👇

🎬 YouTube youtu.be/l7CWytytUoc

🎙️ Podcast mcdn.podbean.com/mf/web/i7s8x...

#epilepsy #mexico
August 21, 2025 at 12:00 PM