Epilepsy Sparks
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epilepsysparks.bsky.social
Epilepsy Sparks
@epilepsysparks.bsky.social
Educating re the #epilepsies 🧠⚡🔬🧬! Check out our podcast & website! We bridge the comms gaps between clinicians, academics, & people with an epilepsy!
Epilepsy: what happens when the Blood-Brain Barrier (BBB) leaks?! 🩸🧠
Dr. Claire Behan 🤩🇮🇪 & Dr. Chris Greene 🤩🇮🇪 reveal fascinating insights into how issues with the BBB can lead to seizures and #epilepsy! Availalbe now on the Epilepsy Sparks Insights podcast! 👉 youtu.be/rBpI_-daWjw

#neurology
November 13, 2025 at 5:15 PM
“We have to protect one area of the brain & remove another.” - Dr. Ricardo Morcos 🤩 🇬🇧!

A hopeful, very educational chat about the epilepsy surgery journey 🔪🧠 - clear, empowering, & informative!

Watch the full episode here! 👇
youtu.be/QzIoLlRG1Lw

#epilepsysurgery #epilepsy #neurosurgery
November 6, 2025 at 5:23 PM
🧑‍🤝‍🧑 Our fellow humans in prison ⛓️ - are not getting the epilepsy care or even the prescriptions they need - because they're in prison. This isn't only impacting quality of life but increasing risk of #SUDEP!
Check out our trailer for this week's podcast here 👇!

🎬 YouTube shorturl.at/qNwkX

#epilepsy
October 24, 2025 at 3:44 PM
Who knew that #epilepsy was soooo much more common in prisons⛓️? Up to 4 times as many people in prison have an epilepsy compared to the regular public 🫨!
Learn about why this is and what can be done to sort things out! 👇

🎙️ shorturl.at/sywif
🎬 shorturl.at/qNwkX

#prisonhealth #neurology
October 23, 2025 at 2:05 PM
❗️Are they just disregarded? Not valued? #Epilepsy is up to FOUR TIMES more common in prisons ⛓️.

People are way more likely to have had Traumatic Brain Injury, have substance misuse, mental health illnesses and more.

Check out this week’s episode all about it! 👉🏻 youtu.be/2yKOxliR1pY
October 23, 2025 at 10:50 AM
Interactive, self-paced & global - the ILAE Academy is transforming clinician education in the epilepsies! 🎓 Hear from Prof. Gagandeep Singh 🤩 🇮🇳.

🎙️ Podcast shorturl.at/QdjMR
🎬 YouTube shorturl.at/4gvmM

#EpilepsyEducation #ILAEAcademy #Neurology @ilae-epilepsy.bsky.social
October 16, 2025 at 4:12 PM
How is the ILAE Academy reshaping epileptology training worldwide? 🌍 Hear from Prof. Gagandeep Singh 🤩 🇮🇳 on Torie’s show!

🎙️ Podcast shorturl.at/QdjMR
🎬 YouTube shorturl.at/4gvmM
📄 Show notes shorturl.at/c8SyD
👤 Gagandeep profile shorturl.at/48lSb

@ilae-epilepsy.bsky.social @uclh.bsky.social
October 16, 2025 at 11:56 AM
Snapshots of the fun mini docu about the International Epilepsy Congress in Lisbon 🇵🇹! All by Landis Weidner 🤩🇺🇸 - host of the What The EF podcast about the epilepsies! Check it out here: youtu.be/8jDWeFI_gAw?...

#epilepsy #neurology #whattheef #seizures
October 14, 2025 at 5:00 PM
What can it *really* be like to care for someone with an epilepsy? 🤔
Dr. Florien Boele 🤩🇳🇱🇬🇧 shares why carers’ wellbeing must not be overlooked - and how to take part in her research all about it! 👇

🎬 shorturl.at/7iv2e

#EpilepsySparks #EpilepsyAwareness #Carers #HealthResearch #EpilepsyResearch
October 9, 2025 at 3:42 PM
Unpaid carers save the UK £184B a year - but at what cost to their health? 🤯

Dr. Florien Boele 🇳🇱🇬🇧 talks with Torie Robinson about quality of life, stress, & why carers matter. Check out the episode here 👇.

🎬 shorturl.at/7iv2e

#EpilepsyAwareness #Carers #HealthResearch #EpilepsyResearch
October 9, 2025 at 2:36 PM
Who are carers really - and why do they matter so much in the epilepsies? 💜🤔
Dr. Florien Boele 🤩 🇳🇱🇬🇧 joins Torie Robinson to talk about unpaid carers & their £184B 😮 contribution…!

🎬 shorturl.at/7iv2e
🎙 shorturl.at/ttH16

#EpilepsySparks #EpilepsyAwareness #Carers #HealthResearch #EpilepsyResearch
October 9, 2025 at 11:46 AM
New podcast episode! 📑 Dr Ewan Nurse 🤩🇦🇺 joins Torie to discuss his research re:
〰️ Missed seizures…
〰️ Flawed diaries 🤦‍♀️
〰️ Improving reporting for better care 👊
Watch/listen/read the Epilepsy Sparks Insights episode 👇

🎙️ shorturl.at/BsOVW
🎬 shorturl.at/SJLxN
📄 shorturl.at/RK1vL

#epilepsy #seizurediary
September 25, 2025 at 1:03 PM
🔥 New Ep! 🔥
Harvard’s Dr Phillip Pearl 🤩🇺🇸 (Chief of Epilepsy at Boston Children’s Hospital & Prof at Harvard) on:
⚡ Why advocacy matters
🧬 Rare epilepsy & gene therapy
💜 SUDEP & mental health

Catch it here 👇
🎙️ shorturl.at/LbjyF
🎬 shorturl.at/z7VzU
📄 shorturl.at/PDSag

#Epilepsy #Neurology #SUDEP
September 18, 2025 at 1:56 PM
🎬 Podcast trailer drop!
Dr Phillip Pearl 🤩🇺🇸 shares the incredible story of Vitamin B6-dependent epilepsy 😱 - a rare condition where seizures can be treated with a vitamin 💊 - & how it opened the door to modern gene therapy! 👇

🎙️ Podcast mcdn.podbean.com/mf/web/fskua...
🎬 YouTube youtu.be/yJ31k_6xNNg
September 11, 2025 at 6:27 PM
🧬 New Epilepsy Sparks Insights podcast! 🎧🎬
Dr Phillip Pearl 🤩🇺🇸 from Boston Children’s Hospital & Harvard explains inherited metabolic epilepsies, Vitamin B6 dependency, & the future of gene therapy!
Watch/listen/read, here 👇!
🎙️ Podcast mcdn.podbean.com/mf/web/fskua...
🎬 YouTube youtu.be/yJ31k_6xNNg
September 11, 2025 at 2:00 PM
🌟 NEW PODCAST 🌟
Dr Phillip Pearl 🤩🇺🇸 explains inherited metabolic epilepsies(!), how they cause more than seizures, & how vitamin B6 💊 & diets 🥩 paved the way for gene therapy! Watch/listen/read here 👇!

🎙️ Podcast shorturl.at/5entK
🎬 YouTube shorturl.at/ghltc
📄 Show notes shorturl.at/nIFpn
#epilepsy
September 11, 2025 at 1:23 PM
Neurologist. Patient. Writer. Dr Jim Morrow 🇬🇧 shares his extraordinary story in our latest Epilepsy Sparks Insights podcast👇!

🎙️ Podcast youtu.be/T7P1-flyzpY
🎬 YouTube mcdn.podbean.com/mf/web/zihpz...
📄 Show notes www.torierobinson.com/epilepsy-spa...

#Epilepsy #NeurologyPodcast #EpilepsyResearch
August 28, 2025 at 8:06 PM
Challenge in #epilepsy care: supernatural beings like “demons” 👹 and “witches” 🧙+ 70 different languages!! See the trailer with paediatric neurologist Dr Yanin Rivera 🇲🇽 in today’s Epilepsy Sparks Insights trailer!! 👇🏻

🎙️ Podcast mcdn.podbean.com/mf/web/i7s8x...
🎬 YouTube youtu.be/l7CWytytUoc
August 21, 2025 at 7:35 PM
✨ New Epilepsy Sparks Insights 🎧!
👉 youtu.be/l7CWytytUoc

Paediatric neurologist Dr Yanin Rivera 🇲🇽 shares how cultural beliefs, 93 Epilepsy Centres 😮 & telemedicine are transforming epilepsy care! 👇

🎬 YouTube youtu.be/l7CWytytUoc

🎙️ Podcast mcdn.podbean.com/mf/web/i7s8x...

#epilepsy #mexico
August 21, 2025 at 12:00 PM
🎬 Trailer! 🎬 Sexual health & epilepsy & our talk in Lisbon! With Drs Brad Kamitaki 🇺🇸 & Lucas Orellana 🇦🇷. For patients AND clinicians!

Watch/listen/read, here!! 👇
🎬 YouTube youtu.be/sPS7r0yc2mI
🎙️ Podcast mcdn.podbean.com/mf/web/rdmpx...

#Epilepsy #SexualHealth #ClinicianEducation
August 14, 2025 at 5:18 PM
🚨 New Ep! 🚨 Sexual health & epilepsy – why it matters & how clinicians can talk about it. 💜

With Drs & Epileptologists Brad Kamitaki 🤩 🇺🇸 & Lucas Orellana 🤩🇦🇷.

Watch/listen 👇!

🎬 YouTube youtu.be/sPS7r0yc2mI
🎙️ Podcast mcdn.podbean.com/mf/web/rdmpx...

#EpilepsyAwareness #SexualHealth #Neurology
August 14, 2025 at 1:25 PM
🎙️ New Episode: “Epilepsy & Suicide: Breaking the Silence” w/ clinical psychologist Milena Gandy 🤩🇦🇺 & epileptologist Heidi Munger Clary 🤩🇺🇸
Let’s talk patient-centred care & clinicians confident to talk about #mentalhealth & #suicide. 👇
🎬 youtu.be/zJuQvPkOt8U

#epilepsy #IEC
August 7, 2025 at 2:04 PM
🎙️New episode!
“They Aren’t FAKE! Non-Epileptic Events” w/ Dr Parthvi Ravat 💜
Real symptoms, real science, real hope. Watch/listen/read, right here! 👇

🎙️ Podcast shorturl.at/iiRc1
🎬 YouTube shorturl.at/dzczm
📄 Show notes shorturl.at/Xicyt

#epilepsy #FND #PNES
July 31, 2025 at 10:52 AM
🤯 Migraine or seizure – or both?
Dr. Lucas Orellana 🤩🇦🇷 joins us on Epilepsy Sparks Insights 🎙️🎬 to explore:
⚡ Why many have both #epilepsy & #migraine
🧬 Meds that help both, & key triggers
🧠 Why personalised care matters more than ever 👇👇

🎙️ Podcast: shorturl.at/kv4N2
🎬 YouTube: shorturl.at/710iW
July 24, 2025 at 3:39 PM
🚨 New episode! 🎙️🎬
Could keyrings help in epilepsy emergencies?! 🧠🔑
Dr. Daniel Goldenholz’s 🤩 3D-printable keyrings provide seizure first aid info & raise awareness globally! Watch/listen here 👇!

🎙️ Podcast shorturl.at/GPt6b
🎬 YouTube shorturl.at/oFxCj

#epilepsy #seizures #3Dprinting #safesteps
July 17, 2025 at 10:20 AM