CURE Epilepsy
@cureepilepsy.bsky.social
CURE Epilepsy is the leading nongovernmental funder of epilepsy research, with over 300 grants funded in 19 countries to date.
🚨 Take a look at the practical guide to #seizure rescue #medications, what they are, when to use them & what to ask your #neurologist. Dive in: https://bit.ly/4qWJAZO. Made possible by support from Neurelis. #rescuemedication #epilepsy #epilepsytreatment
Seizure Rescue Meds – CURE Epilepsy
Learn about seizure recuse medications, including who they can help and what they do. Includes educational resources.
bit.ly
November 13, 2025 at 6:30 PM
🚨 Take a look at the practical guide to #seizure rescue #medications, what they are, when to use them & what to ask your #neurologist. Dive in: https://bit.ly/4qWJAZO. Made possible by support from Neurelis. #rescuemedication #epilepsy #epilepsytreatment
Research from the Human Epilepsy Project offers hope for people newly diagnosed with focal epilepsy, showing that seizure control takes time, teamwork, and personalized care. Early specialist support and precision medicine are key to better outcomes.
🔗 https://bit.ly/46sZsuV
🔗 https://bit.ly/46sZsuV
New Study Brings Hope and Guidance for People Newly Diagnosed with Focal Epilepsy - Westchester Medical Center Health Network
A WMCHealth-led study finds most people with newly diagnosed focal epilepsy can achieve seizure freedom, but it often takes over a year and multiple treatments. The research offers hope, clearer expec...
www.wmchealth.org
November 10, 2025 at 5:13 PM
Research from the Human Epilepsy Project offers hope for people newly diagnosed with focal epilepsy, showing that seizure control takes time, teamwork, and personalized care. Early specialist support and precision medicine are key to better outcomes.
🔗 https://bit.ly/46sZsuV
🔗 https://bit.ly/46sZsuV
Happy Epilepsy Awareness Month! Join us celebrating the breakthroughs that help people live better—and reminding everyone why supporting research matters. 💜 #EpilepsyAwareness #CUREepilepsy https://bit.ly/436dtgg
Epilepsy Awareness Month
Celebrate Epilepsy Awareness Month in November with CURE Epilepsy—help educate, advocate, and inspire action toward a world without epilepsy.
bit.ly
November 3, 2025 at 9:42 PM
Happy Epilepsy Awareness Month! Join us celebrating the breakthroughs that help people live better—and reminding everyone why supporting research matters. 💜 #EpilepsyAwareness #CUREepilepsy https://bit.ly/436dtgg
When a genetic test in epilepsy returns a VUS, what’s next? 🧬 Dr. Gemma Carvill and the #ILAE team explain how clinical context + data sharing + the right tools can narrow the uncertainty. #Epilepsy #Genetics #VUS
Learn more: https://bit.ly/47uFyiI
Learn more: https://bit.ly/47uFyiI
Genetic testing in epilepsy: Variants of uncertain significance (VUS) - Dr. Gemma Carvill // International League Against Epilepsy
bit.ly
October 29, 2025 at 5:00 PM
When a genetic test in epilepsy returns a VUS, what’s next? 🧬 Dr. Gemma Carvill and the #ILAE team explain how clinical context + data sharing + the right tools can narrow the uncertainty. #Epilepsy #Genetics #VUS
Learn more: https://bit.ly/47uFyiI
Learn more: https://bit.ly/47uFyiI
Reposted by CURE Epilepsy
It's not too late to register for #AES2025! #epilepsy #neurology
📍 Atlanta | Dec 5–9
✅ Register now: buff.ly/LfiKcir
📍 Atlanta | Dec 5–9
✅ Register now: buff.ly/LfiKcir
October 23, 2025 at 6:54 PM
It's not too late to register for #AES2025! #epilepsy #neurology
📍 Atlanta | Dec 5–9
✅ Register now: buff.ly/LfiKcir
📍 Atlanta | Dec 5–9
✅ Register now: buff.ly/LfiKcir
📢 News on the National Plan for Epilepsy! The draft document outlining the goals is here for your feedback. Review the draft plan and provide feedback via online form by Friday, 11/31/2025: https://www.epilepsy-national-plan.org/submit-feedback/meeting/register/tZcrc-qgpzIpGNBbqqO0X0ocIzhzl99Sgv2H
Submit Feedback | Epilepsy National Plan
www.epilepsy-national-plan.org
October 22, 2025 at 2:16 PM
📢 News on the National Plan for Epilepsy! The draft document outlining the goals is here for your feedback. Review the draft plan and provide feedback via online form by Friday, 11/31/2025: https://www.epilepsy-national-plan.org/submit-feedback/meeting/register/tZcrc-qgpzIpGNBbqqO0X0ocIzhzl99Sgv2H
📣 This month on Epilepsy Explained, Dr. Kelly Knupp explains Juvenile Myoclonic Epilepsy (JME), one of the most common epilepsy syndromes in teens and young adults. 📽️ Tune in now and learn more about JME: https://bit.ly/4hfY1Uw
Juvenile Myoclonic Epilepsy Explained
Dr. Kelly Knupp, MD, answers your questions about Juvenile Myoclonic Epilepsy, or JME. Dr. Knupp, Pediatric Epileptologist at Children's Hospital of Colorado, explains what Juvenile Myoclonic Epilepsy is, how seizures present in JME, who is most often i...
bit.ly
October 21, 2025 at 6:08 PM
📣 This month on Epilepsy Explained, Dr. Kelly Knupp explains Juvenile Myoclonic Epilepsy (JME), one of the most common epilepsy syndromes in teens and young adults. 📽️ Tune in now and learn more about JME: https://bit.ly/4hfY1Uw
Windy City, you blew us away! 👟🏅 Over 30 runners ran right past our goal, raising a fantastic $90,000 for epilepsy research! 💪 Thank you! And a big thanks to @sklifescience.bsky.social for powering Team CURE Epilepsy this year and to Method Printing for providing the shirts.
October 21, 2025 at 6:06 PM
Windy City, you blew us away! 👟🏅 Over 30 runners ran right past our goal, raising a fantastic $90,000 for epilepsy research! 💪 Thank you! And a big thanks to @sklifescience.bsky.social for powering Team CURE Epilepsy this year and to Method Printing for providing the shirts.
Becca Seigel lives with daily seizures, but her resilience shines through. ❤️ Her family’s love fuels hope and action. Now they’re helping CURE Epilepsy fund research for a cure.
📖 Read more: https://bit.ly/4nIXhtf
#EpilepsyAwareness #EpilepsyResearch #MedicalResearch
📖 Read more: https://bit.ly/4nIXhtf
#EpilepsyAwareness #EpilepsyResearch #MedicalResearch
Fueled by Love, Driven by Purpose
For nearly 30 years, Lisa and Randy Siegel have built a beautiful life for their children filled with love, success, and connection. Their daughter, Becca, is...
bit.ly
September 26, 2025 at 9:15 PM
Becca Seigel lives with daily seizures, but her resilience shines through. ❤️ Her family’s love fuels hope and action. Now they’re helping CURE Epilepsy fund research for a cure.
📖 Read more: https://bit.ly/4nIXhtf
#EpilepsyAwareness #EpilepsyResearch #MedicalResearch
📖 Read more: https://bit.ly/4nIXhtf
#EpilepsyAwareness #EpilepsyResearch #MedicalResearch
Mark your calendar! On 9/30, meet Dr. Rachel June Smith and the budding scientists working in her lab for UNITE to CURE Epilepsy. Get the ball rolling by making a gift today: https://bit.ly/46nhYFf
September 25, 2025 at 7:49 AM
Mark your calendar! On 9/30, meet Dr. Rachel June Smith and the budding scientists working in her lab for UNITE to CURE Epilepsy. Get the ball rolling by making a gift today: https://bit.ly/46nhYFf
Thank you so much for supporting Night of Discovery and making it an evening we'll never forget!
It was a privilege to sponsor the 2025 Night of Discovery Gala by @cureepilepsy.bsky.social this weekend in Chicago.
The event brought together families, researchers, and advocates, all working toward one goal: curing #epilepsy.
www.cureepilepsy.org/annual-benef...
The event brought together families, researchers, and advocates, all working toward one goal: curing #epilepsy.
www.cureepilepsy.org/annual-benef...
September 24, 2025 at 6:50 PM
Thank you so much for supporting Night of Discovery and making it an evening we'll never forget!
🧬 The NIH awards $8.6M to renew the Rare Diseases Clinical Research Network for neurodevelopmental studies, led by OHSU. The project will study more than 15 different rare genetic brain disorders to improve diagnosis and care. #RareDisease #NIH #Neurogenetics
🔗 Read more: https://bit.ly/4nGMJur
🔗 Read more: https://bit.ly/4nGMJur
NIH Awards $8.6 Million Grant to Renew Rare Disease Clinical Research
In a groundbreaking advancement for the field of neurodevelopmental genetics, Mustafa Sahin, MD, PhD, Neurologist-in-Chief and Chair of the Department of Neurology at Boston Children’s Hospital, a
bit.ly
September 23, 2025 at 6:14 PM
🧬 The NIH awards $8.6M to renew the Rare Diseases Clinical Research Network for neurodevelopmental studies, led by OHSU. The project will study more than 15 different rare genetic brain disorders to improve diagnosis and care. #RareDisease #NIH #Neurogenetics
🔗 Read more: https://bit.ly/4nGMJur
🔗 Read more: https://bit.ly/4nGMJur
This Epilepsy Explained answers questions about PTE, like:
🧠 Treatments and how effective they are
🧠 If a person suffers head trauma, are they at risk for the rest of their lives?
🧠 Are some meds better at treating depression in people with PTE?
Watch: https://bit.ly/3I0O6VS
🧠 Treatments and how effective they are
🧠 If a person suffers head trauma, are they at risk for the rest of their lives?
🧠 Are some meds better at treating depression in people with PTE?
Watch: https://bit.ly/3I0O6VS
September 19, 2025 at 8:54 PM
This Epilepsy Explained answers questions about PTE, like:
🧠 Treatments and how effective they are
🧠 If a person suffers head trauma, are they at risk for the rest of their lives?
🧠 Are some meds better at treating depression in people with PTE?
Watch: https://bit.ly/3I0O6VS
🧠 Treatments and how effective they are
🧠 If a person suffers head trauma, are they at risk for the rest of their lives?
🧠 Are some meds better at treating depression in people with PTE?
Watch: https://bit.ly/3I0O6VS
📢 Cautious optimism for #NIH: A House subcommittee advanced a FY26 bill with $46.9B for NIH, slightly above current levels and far better than the 40% cut proposed earlier. The full #House and #Senate must still agree, and a CR may be needed to avoid a shutdown on Sept. 30. #epilepsyresearch
September 18, 2025 at 9:04 PM
📢 Cautious optimism for #NIH: A House subcommittee advanced a FY26 bill with $46.9B for NIH, slightly above current levels and far better than the 40% cut proposed earlier. The full #House and #Senate must still agree, and a CR may be needed to avoid a shutdown on Sept. 30. #epilepsyresearch
Infections at birth like neonatal sepsis or meningitis may up the odds of childhood epilepsy. Stronger effects seen in focal vs generalized epilepsy. Early prevention & treatment of newborn infections could help reduce this risk. 🔍
🔗 More details: https://bit.ly/3Vi5RTu
🔗 More details: https://bit.ly/3Vi5RTu
Early-Onset Neonatal Infection and Epilepsy in Children
Exploration of the association between early-onset neonatal infection, specifically sepsis and meningitis, and childhood epilepsy.
bit.ly
September 17, 2025 at 5:05 PM
Infections at birth like neonatal sepsis or meningitis may up the odds of childhood epilepsy. Stronger effects seen in focal vs generalized epilepsy. Early prevention & treatment of newborn infections could help reduce this risk. 🔍
🔗 More details: https://bit.ly/3Vi5RTu
🔗 More details: https://bit.ly/3Vi5RTu
You made a big impact!
💜 $5.2M+ in research
🔬 30 active grants
📚 2 staff publications
🏃 28 Champion events nationwide
Together, we're driving change in epilepsy research. THANK YOU for standing with us! 🙌 More: https://www.cureepilepsy.org/our-research/impact-reports/researching-for-a-cure-2025/
💜 $5.2M+ in research
🔬 30 active grants
📚 2 staff publications
🏃 28 Champion events nationwide
Together, we're driving change in epilepsy research. THANK YOU for standing with us! 🙌 More: https://www.cureepilepsy.org/our-research/impact-reports/researching-for-a-cure-2025/
September 16, 2025 at 5:05 PM
You made a big impact!
💜 $5.2M+ in research
🔬 30 active grants
📚 2 staff publications
🏃 28 Champion events nationwide
Together, we're driving change in epilepsy research. THANK YOU for standing with us! 🙌 More: https://www.cureepilepsy.org/our-research/impact-reports/researching-for-a-cure-2025/
💜 $5.2M+ in research
🔬 30 active grants
📚 2 staff publications
🏃 28 Champion events nationwide
Together, we're driving change in epilepsy research. THANK YOU for standing with us! 🙌 More: https://www.cureepilepsy.org/our-research/impact-reports/researching-for-a-cure-2025/
UCLA researchers used stem cell‑derived assembloids to show how SCN8A variants trigger cortical hyperactivity (seizures) and impair hippocampal rhythms (memory). This new model may explain cognitive challenges beyond seizures and open avenues for better treatments.
Read more: https://bit.ly/41O86BE
Read more: https://bit.ly/41O86BE
UCLA researchers find how epilepsy genes disrupt different brain regions using stem cell models
The new research points to the distinct effects that a single disease-causing gene variation can have across different regions of the brain.
newsroom.ucla.edu
September 11, 2025 at 4:53 PM
UCLA researchers used stem cell‑derived assembloids to show how SCN8A variants trigger cortical hyperactivity (seizures) and impair hippocampal rhythms (memory). This new model may explain cognitive challenges beyond seizures and open avenues for better treatments.
Read more: https://bit.ly/41O86BE
Read more: https://bit.ly/41O86BE
🔬 Epilepsy Research News:
Hippocampal low-frequency stimulation (LFS) in a mouse model of drug-resistant focal epilepsy (MTLE) led to:
🔻 Reduced seizures
🧬 Reversed memory deficits
🧠 Better synaptic health
🔗 Read more: https://bit.ly/4pekViu
Hippocampal low-frequency stimulation (LFS) in a mouse model of drug-resistant focal epilepsy (MTLE) led to:
🔻 Reduced seizures
🧬 Reversed memory deficits
🧠 Better synaptic health
🔗 Read more: https://bit.ly/4pekViu
Long-term Hippocampal Low-Frequency Stimulation Alleviates Focal Seizures, Memory Deficits and Synaptic Pathology in Epileptic Mice
Insights into the seizure type-specific effects of hippocampal low-frequency stimulation, and support for the idea that it could contribute to enhanced seizure control and quality of life in Mesial te...
bit.ly
September 9, 2025 at 5:04 PM
🔬 Epilepsy Research News:
Hippocampal low-frequency stimulation (LFS) in a mouse model of drug-resistant focal epilepsy (MTLE) led to:
🔻 Reduced seizures
🧬 Reversed memory deficits
🧠 Better synaptic health
🔗 Read more: https://bit.ly/4pekViu
Hippocampal low-frequency stimulation (LFS) in a mouse model of drug-resistant focal epilepsy (MTLE) led to:
🔻 Reduced seizures
🧬 Reversed memory deficits
🧠 Better synaptic health
🔗 Read more: https://bit.ly/4pekViu
This weekend at #IEC2025, our CSO Dr. Laura Lubbers joined Dr. Dan Lowenstein for the Presidential Symposium on inclusive, patient-centered epilepsy care. She also shared updates on SUDEP Common Data Elements led by CURE Epilepsy. #ILAE #SUDEP #epilepsyresearch
September 5, 2025 at 9:05 PM
This weekend at #IEC2025, our CSO Dr. Laura Lubbers joined Dr. Dan Lowenstein for the Presidential Symposium on inclusive, patient-centered epilepsy care. She also shared updates on SUDEP Common Data Elements led by CURE Epilepsy. #ILAE #SUDEP #epilepsyresearch
Brain #insulin resistance may link #Alzheimer’s and #epilepsy — new research supports the "type 3 diabetes" hypothesis and its role in both memory loss and #seizures. A promising step toward better understanding and #treatment. 🧠✨
Learn more: https://bit.ly/44I1ypW
Learn more: https://bit.ly/44I1ypW
Insulin Resistance in the Brain may Link Alzheimer’s and Epilepsy
New research has shown that the process of insulin resistance in the brain affects both Alzheimer's disease and epilepsy and may be a linking factor between the two diseases.
bit.ly
September 4, 2025 at 4:52 PM
Brain #insulin resistance may link #Alzheimer’s and #epilepsy — new research supports the "type 3 diabetes" hypothesis and its role in both memory loss and #seizures. A promising step toward better understanding and #treatment. 🧠✨
Learn more: https://bit.ly/44I1ypW
Learn more: https://bit.ly/44I1ypW
Join PAME and Association of Neuroscience Nurses Sept 26 @ 1PM ET for a powerful webinar on suicide prevention, screening, and #mentalhealth in #epilepsy.
Hear from expert clinicians + a mother’s story of loss and advocacy through Widdy’s Work.
📅 Register: https://bit.ly/4mLG16t
Hear from expert clinicians + a mother’s story of loss and advocacy through Widdy’s Work.
📅 Register: https://bit.ly/4mLG16t
AANN and PAME Webinar: Seeing the Whole Patient: Suicide, Screening, and Mental Health in Epilepsy
Join us live on September 26th at 12pm CT (10am PT/11am MT/1pm ET) for this webinar, presented by AANN and PAME (Partners Against Mortality in Epilepsy). This webinarwill discuss the personal and emot...
bit.ly
September 3, 2025 at 5:14 PM
Join PAME and Association of Neuroscience Nurses Sept 26 @ 1PM ET for a powerful webinar on suicide prevention, screening, and #mentalhealth in #epilepsy.
Hear from expert clinicians + a mother’s story of loss and advocacy through Widdy’s Work.
📅 Register: https://bit.ly/4mLG16t
Hear from expert clinicians + a mother’s story of loss and advocacy through Widdy’s Work.
📅 Register: https://bit.ly/4mLG16t
New research links high blood pressure during #pregnancy to an increased risk of #seizures in children. Maternal health may play a critical role in long-term #neurological outcomes.
🔗 Read more: https://bit.ly/4kF0yHT
#EpilepsyResearch #MaternalHealth #SeizurePrevention
🔗 Read more: https://bit.ly/4kF0yHT
#EpilepsyResearch #MaternalHealth #SeizurePrevention
High Blood Pressure in Pregnancy Linked to Increased Risk of Seizure in Children
A new study has revealed a significant association between high blood pressure during pregnancy (gestational hypertension) and an increased risk of seizures in children.
bit.ly
September 3, 2025 at 4:51 PM
New research links high blood pressure during #pregnancy to an increased risk of #seizures in children. Maternal health may play a critical role in long-term #neurological outcomes.
🔗 Read more: https://bit.ly/4kF0yHT
#EpilepsyResearch #MaternalHealth #SeizurePrevention
🔗 Read more: https://bit.ly/4kF0yHT
#EpilepsyResearch #MaternalHealth #SeizurePrevention
New research links high blood pressure during #pregnancy to an increased risk of #seizures in children. Maternal health may play a critical role in long-term #neurological outcomes.
🔗 Read more: https://bit.ly/4kF0yHT
#EpilepsyResearch #MaternalHealth #SeizurePrevention
🔗 Read more: https://bit.ly/4kF0yHT
#EpilepsyResearch #MaternalHealth #SeizurePrevention
High Blood Pressure in Pregnancy Linked to Increased Risk of Seizure in Children
A new study has revealed a significant association between high blood pressure during pregnancy (gestational hypertension) and an increased risk of seizures in children.
bit.ly
September 2, 2025 at 5:30 PM
New research links high blood pressure during #pregnancy to an increased risk of #seizures in children. Maternal health may play a critical role in long-term #neurological outcomes.
🔗 Read more: https://bit.ly/4kF0yHT
#EpilepsyResearch #MaternalHealth #SeizurePrevention
🔗 Read more: https://bit.ly/4kF0yHT
#EpilepsyResearch #MaternalHealth #SeizurePrevention
Reposted by CURE Epilepsy
September is Newborn Screening Awareness Month, and we have a full calendar of opportunities for you to learn and engage!
👉 To register and find more details visit our events calendar here: everylifefoundation.org/events-sched...
#newbornscreening #awarenessmonth #nbs #policy #raredisease
👉 To register and find more details visit our events calendar here: everylifefoundation.org/events-sched...
#newbornscreening #awarenessmonth #nbs #policy #raredisease
September 2, 2025 at 2:05 PM
September is Newborn Screening Awareness Month, and we have a full calendar of opportunities for you to learn and engage!
👉 To register and find more details visit our events calendar here: everylifefoundation.org/events-sched...
#newbornscreening #awarenessmonth #nbs #policy #raredisease
👉 To register and find more details visit our events calendar here: everylifefoundation.org/events-sched...
#newbornscreening #awarenessmonth #nbs #policy #raredisease