Torie Robinson
@torierobinson.bsky.social
🎬 Epilepsy Sparks Insights Podcast Host & YouTuber 🧠🧬 | International Speaker | PPI Lead | #Epilepsy & #MentalHealth Research fiend | All views my own
🩸🧠 The Blood-Brain Barrier can influence/cause epilepsy! 😱 In this week’s @epilepsysparks.bsky.social Insights podcast, we hear about what happens when this barrier leaks! What gets through?!
Hear all about it from our brill guests Dr. Claire Behan and Dr. Chris Greene! 👇🏻
🎬 youtu.be/rBpI_-daWjw
Hear all about it from our brill guests Dr. Claire Behan and Dr. Chris Greene! 👇🏻
🎬 youtu.be/rBpI_-daWjw
November 13, 2025 at 5:22 PM
🩸🧠 The Blood-Brain Barrier can influence/cause epilepsy! 😱 In this week’s @epilepsysparks.bsky.social Insights podcast, we hear about what happens when this barrier leaks! What gets through?!
Hear all about it from our brill guests Dr. Claire Behan and Dr. Chris Greene! 👇🏻
🎬 youtu.be/rBpI_-daWjw
Hear all about it from our brill guests Dr. Claire Behan and Dr. Chris Greene! 👇🏻
🎬 youtu.be/rBpI_-daWjw
🧠 Absolute pleasure presenting at the 3rd Advanced Course on the Pharmacological Treatment of Drug-Resistant Epilepsies (DRE) in Palma 🇪🇸!
Topics: QoL, mood, cognition, interictal behaviour, language & labels, med efficacy vs tolerability, psychiatric morbidities, social & environmental determinants!
Topics: QoL, mood, cognition, interictal behaviour, language & labels, med efficacy vs tolerability, psychiatric morbidities, social & environmental determinants!
November 12, 2025 at 4:53 PM
🧠 Absolute pleasure presenting at the 3rd Advanced Course on the Pharmacological Treatment of Drug-Resistant Epilepsies (DRE) in Palma 🇪🇸!
Topics: QoL, mood, cognition, interictal behaviour, language & labels, med efficacy vs tolerability, psychiatric morbidities, social & environmental determinants!
Topics: QoL, mood, cognition, interictal behaviour, language & labels, med efficacy vs tolerability, psychiatric morbidities, social & environmental determinants!
🌍 Fab symposium: the Brain Health Innovation Summit Thinking about Cognition and the Future of Care 🇮🇹!
Discussions with those working in #psychiatry, #neuropsychiatry, #neurology, covering #epilepsy, #cognition, #ALS, #dementia, #psychosis, #physicalfitness, #AI, & #digitalinnovation!
Discussions with those working in #psychiatry, #neuropsychiatry, #neurology, covering #epilepsy, #cognition, #ALS, #dementia, #psychosis, #physicalfitness, #AI, & #digitalinnovation!
November 5, 2025 at 12:22 PM
🌍 Fab symposium: the Brain Health Innovation Summit Thinking about Cognition and the Future of Care 🇮🇹!
Discussions with those working in #psychiatry, #neuropsychiatry, #neurology, covering #epilepsy, #cognition, #ALS, #dementia, #psychosis, #physicalfitness, #AI, & #digitalinnovation!
Discussions with those working in #psychiatry, #neuropsychiatry, #neurology, covering #epilepsy, #cognition, #ALS, #dementia, #psychosis, #physicalfitness, #AI, & #digitalinnovation!
😲 I was shocked! On Epilepsy Sparks Insights I chat with Dr Ewan Nurse 🤩🇦🇺 about #seizure diaries 📝.
How accurate are they really? Many seizures go unrecognised or misreported - even with a witness! That has a huge impact on treatment & quality of life.
Watch here 👉🏻 shorturl.at/SJLxN
#Epilepsy
How accurate are they really? Many seizures go unrecognised or misreported - even with a witness! That has a huge impact on treatment & quality of life.
Watch here 👉🏻 shorturl.at/SJLxN
#Epilepsy
September 25, 2025 at 11:49 AM
😲 I was shocked! On Epilepsy Sparks Insights I chat with Dr Ewan Nurse 🤩🇦🇺 about #seizure diaries 📝.
How accurate are they really? Many seizures go unrecognised or misreported - even with a witness! That has a huge impact on treatment & quality of life.
Watch here 👉🏻 shorturl.at/SJLxN
#Epilepsy
How accurate are they really? Many seizures go unrecognised or misreported - even with a witness! That has a huge impact on treatment & quality of life.
Watch here 👉🏻 shorturl.at/SJLxN
#Epilepsy
Chatting with neurologist Dr Phillip Pearl 🤩🇺🇸 from Boston Children’s Hospital re:
〰️ Metabolic epilepsies & the future
〰️ Patients we can’t yet help 😞
〰️ Advocacy, gene therapy, SUDEP & mental health
Listen/watch, here 👇🏻!
🎙️ shorturl.at/LbjyF
🎬 shorturl.at/z7VzU
#epilepsy #neurology #podcast
〰️ Metabolic epilepsies & the future
〰️ Patients we can’t yet help 😞
〰️ Advocacy, gene therapy, SUDEP & mental health
Listen/watch, here 👇🏻!
🎙️ shorturl.at/LbjyF
🎬 shorturl.at/z7VzU
#epilepsy #neurology #podcast
September 18, 2025 at 1:52 PM
Chatting with neurologist Dr Phillip Pearl 🤩🇺🇸 from Boston Children’s Hospital re:
〰️ Metabolic epilepsies & the future
〰️ Patients we can’t yet help 😞
〰️ Advocacy, gene therapy, SUDEP & mental health
Listen/watch, here 👇🏻!
🎙️ shorturl.at/LbjyF
🎬 shorturl.at/z7VzU
#epilepsy #neurology #podcast
〰️ Metabolic epilepsies & the future
〰️ Patients we can’t yet help 😞
〰️ Advocacy, gene therapy, SUDEP & mental health
Listen/watch, here 👇🏻!
🎙️ shorturl.at/LbjyF
🎬 shorturl.at/z7VzU
#epilepsy #neurology #podcast
The fabulous Prof Georgia Ramantani and I meet again! At the #IEC2025 conference! Georgia’s podcast episodes were:
- Slicing a Brain In Half to Treat Epilepsy”(!) 🧠🔪, and;
- The Sacrifices & Benefits of a Hemispherectomy”.
Check them out here 👇🏻!
youtu.be/u6Sjsh5TuDo
- Slicing a Brain In Half to Treat Epilepsy”(!) 🧠🔪, and;
- The Sacrifices & Benefits of a Hemispherectomy”.
Check them out here 👇🏻!
youtu.be/u6Sjsh5TuDo
September 16, 2025 at 10:24 AM
The fabulous Prof Georgia Ramantani and I meet again! At the #IEC2025 conference! Georgia’s podcast episodes were:
- Slicing a Brain In Half to Treat Epilepsy”(!) 🧠🔪, and;
- The Sacrifices & Benefits of a Hemispherectomy”.
Check them out here 👇🏻!
youtu.be/u6Sjsh5TuDo
- Slicing a Brain In Half to Treat Epilepsy”(!) 🧠🔪, and;
- The Sacrifices & Benefits of a Hemispherectomy”.
Check them out here 👇🏻!
youtu.be/u6Sjsh5TuDo
😃 Did you know about metabolic epilepsies? Did you know that a lack of vitamin B6 💊 can lead to an #epilepsy 😱?! Hear from Dr Phillip Pearl 🤩🇺🇸 from Boston Children's Hospital & Harvard Medical School about inherited #metabolic epilepsies! 👇🏻
🎙️ Podcast shorturl.at/5entK
🎬 YouTube shorturl.at/ghltc
🎙️ Podcast shorturl.at/5entK
🎬 YouTube shorturl.at/ghltc
September 11, 2025 at 1:18 PM
😃 Did you know about metabolic epilepsies? Did you know that a lack of vitamin B6 💊 can lead to an #epilepsy 😱?! Hear from Dr Phillip Pearl 🤩🇺🇸 from Boston Children's Hospital & Harvard Medical School about inherited #metabolic epilepsies! 👇🏻
🎙️ Podcast shorturl.at/5entK
🎬 YouTube shorturl.at/ghltc
🎙️ Podcast shorturl.at/5entK
🎬 YouTube shorturl.at/ghltc
Check him out! The cool neurologist (and upcoming podcast guest 🥳) Ching Soong Khoo from Malaysia 🇲🇾 - at the International Epilepsy Congress in Lisbon 🇵🇹!
And yes, in case you hadn’t noticed 😁 - CS’s pic is right there on the stand!
#epilepsy #neurology #IEC2025
And yes, in case you hadn’t noticed 😁 - CS’s pic is right there on the stand!
#epilepsy #neurology #IEC2025
September 9, 2025 at 3:24 PM
Check him out! The cool neurologist (and upcoming podcast guest 🥳) Ching Soong Khoo from Malaysia 🇲🇾 - at the International Epilepsy Congress in Lisbon 🇵🇹!
And yes, in case you hadn’t noticed 😁 - CS’s pic is right there on the stand!
#epilepsy #neurology #IEC2025
And yes, in case you hadn’t noticed 😁 - CS’s pic is right there on the stand!
#epilepsy #neurology #IEC2025
Meeting in person really makes a difference! 😀 I meet our Epilepsy Sparks Insights podcast guest Consultant Neurologist Elisabeth Doran 🤩 🇮🇪 face to face for the first time! 😀😀 Along with upcoming guest Claire Behan 🇮🇪! All the at International Epilepsy Congress in Lisbon 🇵🇹!
#IEC2025 #epilepsy
#IEC2025 #epilepsy
September 9, 2025 at 9:38 AM
Had an absolute blast chatting with Asst. Prof. Simona Balestrini 🤩🌍🇬🇧 🇮🇹 for the latest episode of Epilepsy Sparks Insights!
Learn about Transcranial Magnetic Stimulation here 👇🏻 and its potential as a future epilepsy treatment!
Watch here 🎬 youtu.be/hyLxVtc6ud8
Learn about Transcranial Magnetic Stimulation here 👇🏻 and its potential as a future epilepsy treatment!
Watch here 🎬 youtu.be/hyLxVtc6ud8
September 5, 2025 at 12:05 PM
Had an absolute blast chatting with Asst. Prof. Simona Balestrini 🤩🌍🇬🇧 🇮🇹 for the latest episode of Epilepsy Sparks Insights!
Learn about Transcranial Magnetic Stimulation here 👇🏻 and its potential as a future epilepsy treatment!
Watch here 🎬 youtu.be/hyLxVtc6ud8
Learn about Transcranial Magnetic Stimulation here 👇🏻 and its potential as a future epilepsy treatment!
Watch here 🎬 youtu.be/hyLxVtc6ud8
🤩 Our team at the International Epilepsy Congress 2025 in Lisbon 🇵🇹! It was such fun, with laughs and great questions from the audience! It was in interactive 1.5 hour session with topics including sex, SUDEP, suicide, and more!
#epilepsy #suicide #neurology #SUDEP #mentalhealth #sex #psychology
#epilepsy #suicide #neurology #SUDEP #mentalhealth #sex #psychology
September 3, 2025 at 6:15 AM
🤩 Our team at the International Epilepsy Congress 2025 in Lisbon 🇵🇹! It was such fun, with laughs and great questions from the audience! It was in interactive 1.5 hour session with topics including sex, SUDEP, suicide, and more!
#epilepsy #suicide #neurology #SUDEP #mentalhealth #sex #psychology
#epilepsy #suicide #neurology #SUDEP #mentalhealth #sex #psychology
Day 2 at the International Epilepsy Congress in Lisbon!
Tomorrow I’m part of a fun talk “From Awkward to Empowered: Having truly 'patient-centered' conversations in epilepsy care and research” with Milena Gandy, Heidi Munger Clary, Lucas Orellana, & Brad Kamitaki!
Join us!!
#epilepsy #iec2025
Tomorrow I’m part of a fun talk “From Awkward to Empowered: Having truly 'patient-centered' conversations in epilepsy care and research” with Milena Gandy, Heidi Munger Clary, Lucas Orellana, & Brad Kamitaki!
Join us!!
#epilepsy #iec2025
August 31, 2025 at 8:17 PM
👏🏻 Honestly, a fab talk by Reeta Kälviäinen, Manuel Toledo, and Lawrence Hirsch at the Satellite Symposium - Medscape: “The Clock Is Ticking: Optimizing Ongoing Seizure Response!”
Topics: #statusepilepticus, prolonged seizures, seizure clusters, & Rapid Early Seizure Termination (REST)!
#epilepsy
Topics: #statusepilepticus, prolonged seizures, seizure clusters, & Rapid Early Seizure Termination (REST)!
#epilepsy
August 30, 2025 at 7:12 PM
👏🏻 Honestly, a fab talk by Reeta Kälviäinen, Manuel Toledo, and Lawrence Hirsch at the Satellite Symposium - Medscape: “The Clock Is Ticking: Optimizing Ongoing Seizure Response!”
Topics: #statusepilepticus, prolonged seizures, seizure clusters, & Rapid Early Seizure Termination (REST)!
#epilepsy
Topics: #statusepilepticus, prolonged seizures, seizure clusters, & Rapid Early Seizure Termination (REST)!
#epilepsy
🥳 Reetta Kalviainen led the fab session about Epilepsy Experience Experts/Consultants and how researchers can and should work with them! Great questions and conversation had between Reetta, Jacqueline, Eli Cripps, I, & the audience at the International Epilepsy Congress in Lisbon!
#IEC2025 #epilepsy
#IEC2025 #epilepsy
August 30, 2025 at 3:12 PM
Thank you so much to João Ferreira & Miguel França for a brilliant NEUROSENSE EU summit in Porto 🇵🇹! I was chuffed to be part of the round table where I spoke of my Public Patient Involvement, along with fellow leads Prof Sándor Beniczky, Jose Angel Aibar, and Prof. Torbjörn Tomson.
#epilepsy #sudep
#epilepsy #sudep
August 28, 2025 at 11:08 AM
Thank you so much to João Ferreira & Miguel França for a brilliant NEUROSENSE EU summit in Porto 🇵🇹! I was chuffed to be part of the round table where I spoke of my Public Patient Involvement, along with fellow leads Prof Sándor Beniczky, Jose Angel Aibar, and Prof. Torbjörn Tomson.
#epilepsy #sudep
#epilepsy #sudep
Join us today in Porto 🇵🇹 at the NEUROSENSE EU summit where we hear all about the project, our results so far, and the potential to predict and help prevent #SUDEP!
#epilepsy #neurotech #neurology
#epilepsy #neurotech #neurology
August 27, 2025 at 10:26 AM
Join us today in Porto 🇵🇹 at the NEUROSENSE EU summit where we hear all about the project, our results so far, and the potential to predict and help prevent #SUDEP!
#epilepsy #neurotech #neurology
#epilepsy #neurotech #neurology
🎙️ Just released a new Epilepsy Sparks episode: “They Aren’t FAKE! Non-Epileptic Events” with Dr Parthvi Ravat 🤩 - a brill chat about #FND & #DissociativeSeizures / #NonEpilepticEvents, and the overlap with #epilepsy!
Real symptoms. Real science. Real hope. 👇🏻
🎧 shorturl.at/iiRc1
🎬 shorturl.at/dzczm
Real symptoms. Real science. Real hope. 👇🏻
🎧 shorturl.at/iiRc1
🎬 shorturl.at/dzczm
July 31, 2025 at 10:59 AM
🎙️ Just released a new Epilepsy Sparks episode: “They Aren’t FAKE! Non-Epileptic Events” with Dr Parthvi Ravat 🤩 - a brill chat about #FND & #DissociativeSeizures / #NonEpilepticEvents, and the overlap with #epilepsy!
Real symptoms. Real science. Real hope. 👇🏻
🎧 shorturl.at/iiRc1
🎬 shorturl.at/dzczm
Real symptoms. Real science. Real hope. 👇🏻
🎧 shorturl.at/iiRc1
🎬 shorturl.at/dzczm
Reposted by Torie Robinson
Exciting Announcement‼️
Thrilled to be working on the program for the 7th Dianalund International Conference on #Epilepsy 🤩
⭐️ The topic is "Developmental and Epileptic Encephalopathies: From Mechanisms to Action" 🤩
📅 May 6-8, 2026, in Køge, Denmark 🇩🇰
#DICE2026
@torierobinson.bsky.social
Thrilled to be working on the program for the 7th Dianalund International Conference on #Epilepsy 🤩
⭐️ The topic is "Developmental and Epileptic Encephalopathies: From Mechanisms to Action" 🤩
📅 May 6-8, 2026, in Køge, Denmark 🇩🇰
#DICE2026
@torierobinson.bsky.social
July 5, 2025 at 3:40 PM
Exciting Announcement‼️
Thrilled to be working on the program for the 7th Dianalund International Conference on #Epilepsy 🤩
⭐️ The topic is "Developmental and Epileptic Encephalopathies: From Mechanisms to Action" 🤩
📅 May 6-8, 2026, in Køge, Denmark 🇩🇰
#DICE2026
@torierobinson.bsky.social
Thrilled to be working on the program for the 7th Dianalund International Conference on #Epilepsy 🤩
⭐️ The topic is "Developmental and Epileptic Encephalopathies: From Mechanisms to Action" 🤩
📅 May 6-8, 2026, in Køge, Denmark 🇩🇰
#DICE2026
@torierobinson.bsky.social
The fabulous neurologist Tissa Wijeratne and I at the #Helsinki - for the European Academy of Neurology conference 2025!
Check out Tissa’s QR code for the World Federation of Neurology 👇🏻!
#ean2025 #neurology #epilepsy #psychiatry #brainhealth #dementia #migrain
Check out Tissa’s QR code for the World Federation of Neurology 👇🏻!
#ean2025 #neurology #epilepsy #psychiatry #brainhealth #dementia #migrain
June 23, 2025 at 10:58 AM
The fabulous neurologist Tissa Wijeratne and I at the #Helsinki - for the European Academy of Neurology conference 2025!
Check out Tissa’s QR code for the World Federation of Neurology 👇🏻!
#ean2025 #neurology #epilepsy #psychiatry #brainhealth #dementia #migrain
Check out Tissa’s QR code for the World Federation of Neurology 👇🏻!
#ean2025 #neurology #epilepsy #psychiatry #brainhealth #dementia #migrain
Descending into #Helsinki - for the European Academy of Neurology conference 2025!
#ean2025 #neurology #epilepsy #psychiatry #brainhealth #dementia
#ean2025 #neurology #epilepsy #psychiatry #brainhealth #dementia
June 22, 2025 at 7:34 PM
Descending into #Helsinki - for the European Academy of Neurology conference 2025!
#ean2025 #neurology #epilepsy #psychiatry #brainhealth #dementia
#ean2025 #neurology #epilepsy #psychiatry #brainhealth #dementia
See you soon #Helsinki 🇫🇮! Can’t wait to be at, speak at, and moderate at the European Academy of Neurology Congress!
#epilepsy #ean2025 #neurology
#epilepsy #ean2025 #neurology
June 22, 2025 at 8:37 AM
See you soon #Helsinki 🇫🇮! Can’t wait to be at, speak at, and moderate at the European Academy of Neurology Congress!
#epilepsy #ean2025 #neurology
#epilepsy #ean2025 #neurology
Hear why neuroscientists 🧠🧑🔬 should be valued, globally 🗺️! Prof Helen Scharfman 🤩 explains to us her #epilepsy research using mossy cells and the potential understanding them further may bring to people with anepilepsy and #anxiety! 👇🏻
▶️ YouTube youtu.be/KHBqEYT1ThY
🎙️ Podcast shorturl.at/e7XWY
▶️ YouTube youtu.be/KHBqEYT1ThY
🎙️ Podcast shorturl.at/e7XWY
May 23, 2025 at 9:50 AM
Hear why neuroscientists 🧠🧑🔬 should be valued, globally 🗺️! Prof Helen Scharfman 🤩 explains to us her #epilepsy research using mossy cells and the potential understanding them further may bring to people with anepilepsy and #anxiety! 👇🏻
▶️ YouTube youtu.be/KHBqEYT1ThY
🎙️ Podcast shorturl.at/e7XWY
▶️ YouTube youtu.be/KHBqEYT1ThY
🎙️ Podcast shorturl.at/e7XWY
🧑⚕️📺 For ~30 years, Dr. Zarine
Mogal 🤩 has been a force in epilepsy care & awareness in Pakistan 🇵🇰 - even using TV ads to fight stigma and encourage diagnoses & treatment!
Zarine’s story is inspiring. Watch/listen/read her inspiring story 👇🏻!
📹 YouTube youtu.be/zHio3etPTt0
🎙️ Podcast shorturl.at/fDgYs
Mogal 🤩 has been a force in epilepsy care & awareness in Pakistan 🇵🇰 - even using TV ads to fight stigma and encourage diagnoses & treatment!
Zarine’s story is inspiring. Watch/listen/read her inspiring story 👇🏻!
📹 YouTube youtu.be/zHio3etPTt0
🎙️ Podcast shorturl.at/fDgYs
Revolutionising Epilepsy Perceptions & Care in Pakistan - Dr. Zarine Mogal
YouTube video by Epilepsy Sparks Insights
youtu.be
May 15, 2025 at 3:30 PM
🧑⚕️📺 For ~30 years, Dr. Zarine
Mogal 🤩 has been a force in epilepsy care & awareness in Pakistan 🇵🇰 - even using TV ads to fight stigma and encourage diagnoses & treatment!
Zarine’s story is inspiring. Watch/listen/read her inspiring story 👇🏻!
📹 YouTube youtu.be/zHio3etPTt0
🎙️ Podcast shorturl.at/fDgYs
Mogal 🤩 has been a force in epilepsy care & awareness in Pakistan 🇵🇰 - even using TV ads to fight stigma and encourage diagnoses & treatment!
Zarine’s story is inspiring. Watch/listen/read her inspiring story 👇🏻!
📹 YouTube youtu.be/zHio3etPTt0
🎙️ Podcast shorturl.at/fDgYs