Maggie
@heytheremaggs.bsky.social
Sooo… I really like dessert
Applied Maths (BS), Data Science (MS), Graphic Design
Wear a mask
“Too young for that”
#NEISvoid
Applied Maths (BS), Data Science (MS), Graphic Design
Wear a mask
“Too young for that”
#NEISvoid
Pinned
Maggie
@heytheremaggs.bsky.social
· Mar 8
I’m fairly certain that people who don’t empty the lint trap in the dryer have no sense of how the real world works.
Reposted by Maggie
“Don’t let the bastards grind you down. I love you all.”
November 15, 2025 at 6:15 AM
“Don’t let the bastards grind you down. I love you all.”
Holy pain-relief, Batman!? #AsIfThisWasNotHardEnoughAlready
That being said... this is what #they slipped in there.
November 10, 2025 at 8:25 PM
Holy pain-relief, Batman!? #AsIfThisWasNotHardEnoughAlready
Reposted by Maggie
People tend to think of discomfort as less bothersome than pain, but in some circumstances it can be much worse. Something to think about.
It's BAD. The noise and discomfort and pollution are triggering seizures and other issues. Please help me get her through the next couple of days, even if that's all we can do 🥺
October 24, 2025 at 12:14 AM
People tend to think of discomfort as less bothersome than pain, but in some circumstances it can be much worse. Something to think about.
Reposted by Maggie
Shoutout to my fellow maskers!
September 25, 2025 at 8:01 PM
Shoutout to my fellow maskers!
“…health as discipline, illness as lapse.”
A little too close to home.
A little too close to home.
At a state-sponsored cancer forum, Casey DeSantis, the First Lady of Florida, touted ivermectin, an antiparasitic drug commonly used to deworm livestock, and indicated that Florida should explore its potential repurposing for cancer research.
theintellectualistofficial.substack.com/p/florida-fi...
theintellectualistofficial.substack.com/p/florida-fi...
Florida First Lady Suggests Horse Dewormer as Possible Cancer Treatment
At a Florida cancer event, Casey DeSantis suggested ivermectin — debunked as a COVID cure — despite fatal misuse cases showing the dangers of promoting the “horse dewormer” as medicine.
theintellectualistofficial.substack.com
September 26, 2025 at 12:35 AM
“…health as discipline, illness as lapse.”
A little too close to home.
A little too close to home.
Excuse me as I build a castle out of all the bricks they threw at me #NEISvoid #ThisISMeTrying #TaylorSwift #ThisMetaphorWorks
September 23, 2025 at 7:50 PM
Excuse me as I build a castle out of all the bricks they threw at me #NEISvoid #ThisISMeTrying #TaylorSwift #ThisMetaphorWorks
Reposted by Maggie
As I scream into a new void:
- Is it the result of the vaccine or the Covid-19 infection, itself?
- Is that idea practical or fiscally responsible?
- How much testing do you think is actually happening?
- Why do you only care about those who were hospitalized?
#ACIP #Covid-19 #LongCovid #WearAMask
- Is it the result of the vaccine or the Covid-19 infection, itself?
- Is that idea practical or fiscally responsible?
- How much testing do you think is actually happening?
- Why do you only care about those who were hospitalized?
#ACIP #Covid-19 #LongCovid #WearAMask
September 19, 2025 at 5:03 PM
As I scream into a new void:
- Is it the result of the vaccine or the Covid-19 infection, itself?
- Is that idea practical or fiscally responsible?
- How much testing do you think is actually happening?
- Why do you only care about those who were hospitalized?
#ACIP #Covid-19 #LongCovid #WearAMask
- Is it the result of the vaccine or the Covid-19 infection, itself?
- Is that idea practical or fiscally responsible?
- How much testing do you think is actually happening?
- Why do you only care about those who were hospitalized?
#ACIP #Covid-19 #LongCovid #WearAMask
It’s great that people want to reuse/retool existing medication or look at drugs in development… but if insurance companies won’t cover them, all the drugs in the world won’t help. #LongCovid #Covid19 #LongCovidRoundtable #PatientsArePeopleToo
September 18, 2025 at 8:10 PM
It’s great that people want to reuse/retool existing medication or look at drugs in development… but if insurance companies won’t cover them, all the drugs in the world won’t help. #LongCovid #Covid19 #LongCovidRoundtable #PatientsArePeopleToo
““Now, if people with long COVID and severe PEM are largely stuck in their homes or beds and excluded from trials, is the long COVID research as it stands representative of the full population of people with long COVID?” ⬅️⬅️⬅️
Say it louder for the people in the back!!! #Covid #LongCovid #PEM #Stats
Say it louder for the people in the back!!! #Covid #LongCovid #PEM #Stats
NIH’s RECOVER program will launch new long COVID trials, testing drugs like GLP-1s, low dose naltrexone, and baricitinib, as well as nerve block procedures, after patients pushed for more drug-based options.
cen.acs.org/pharmaceutic...
cen.acs.org/pharmaceutic...
NIH plans to test GLP-1s, other drugs for long COVID
The RECOVER initiative is plotting new clinical trials
cen.acs.org
September 11, 2025 at 6:47 PM
““Now, if people with long COVID and severe PEM are largely stuck in their homes or beds and excluded from trials, is the long COVID research as it stands representative of the full population of people with long COVID?” ⬅️⬅️⬅️
Say it louder for the people in the back!!! #Covid #LongCovid #PEM #Stats
Say it louder for the people in the back!!! #Covid #LongCovid #PEM #Stats
Reposted by Maggie
Um, I managed to stop working before I felt like death warmed over… please applaud.
I then spilled my drink behind my bed and my side table… please cry. #PEM #LongCovid #pacing #ITried #ButWhy
I then spilled my drink behind my bed and my side table… please cry. #PEM #LongCovid #pacing #ITried #ButWhy
September 2, 2025 at 7:06 PM
Um, I managed to stop working before I felt like death warmed over… please applaud.
I then spilled my drink behind my bed and my side table… please cry. #PEM #LongCovid #pacing #ITried #ButWhy
I then spilled my drink behind my bed and my side table… please cry. #PEM #LongCovid #pacing #ITried #ButWhy
“Build your evidence base outside the medical system. Keep detailed symptom records, connect with patient communities, and research your condition independently. This creates psychological anchoring that prevents dismissive interactions from completely destabilizing your self-knowledge.” 👈
"The doctors who dismiss you today will be embarrassed by their ignorance tomorrow. Don’t let their temporary blindness become your permanent defeat":
@david.notesforfriends.com
www.notesforfriends.com/p/the-long-c...
@david.notesforfriends.com
www.notesforfriends.com/p/the-long-c...
The Long Covid Strategy Guide for Talking to Doctors
Your appointment was at 2:30.
www.notesforfriends.com
September 1, 2025 at 7:08 PM
“Build your evidence base outside the medical system. Keep detailed symptom records, connect with patient communities, and research your condition independently. This creates psychological anchoring that prevents dismissive interactions from completely destabilizing your self-knowledge.” 👈
Reposted by Maggie
ALMOST DIED: During the pandemic I almost died. I now have long COVID. I still wear my mask wherever I go. Depending on where I am I have a mask with me always. On occasion I get severe pains and I frankly never want to get sick again. I mask up so I can continue to stand up. Think about all of us.
August 29, 2025 at 9:15 AM
ALMOST DIED: During the pandemic I almost died. I now have long COVID. I still wear my mask wherever I go. Depending on where I am I have a mask with me always. On occasion I get severe pains and I frankly never want to get sick again. I mask up so I can continue to stand up. Think about all of us.
Reposted by Maggie
If you're healthy/abled, it's hard to fathom the incalculable toll it takes on disabled people to have to constantly fight for our right to stay alive and in as little pain as possible.
August 8, 2025 at 8:02 PM
If you're healthy/abled, it's hard to fathom the incalculable toll it takes on disabled people to have to constantly fight for our right to stay alive and in as little pain as possible.
Please, use Alt Text.
Turn on the reminder setting here and make life better for all !! #AccessibilityMatters #AccessForAll #WCAG #WAI #A11Y #DigitalAccess #WebDev #InternetForAll
Turn on the reminder setting here and make life better for all !! #AccessibilityMatters #AccessForAll #WCAG #WAI #A11Y #DigitalAccess #WebDev #InternetForAll
People are skipping alt text again
It's so energy-draining to try to process images/read screenshots, & to get/add alt text to posts (that the OP or ALL the Quote-posters before me should already added!) on days that I can see
It's infuriating to be excluded on the days I can't
#UseAltText
It's so energy-draining to try to process images/read screenshots, & to get/add alt text to posts (that the OP or ALL the Quote-posters before me should already added!) on days that I can see
It's infuriating to be excluded on the days I can't
#UseAltText
August 7, 2025 at 12:10 PM
Please, use Alt Text.
Turn on the reminder setting here and make life better for all !! #AccessibilityMatters #AccessForAll #WCAG #WAI #A11Y #DigitalAccess #WebDev #InternetForAll
Turn on the reminder setting here and make life better for all !! #AccessibilityMatters #AccessForAll #WCAG #WAI #A11Y #DigitalAccess #WebDev #InternetForAll
Reposted by Maggie
Please consider a donation so that parents currently incarcerated in Cook County Jail can still give badly needed school supplies to their kids. bit.ly/Back2SchoolChi
August 6, 2025 at 5:31 PM
Please consider a donation so that parents currently incarcerated in Cook County Jail can still give badly needed school supplies to their kids. bit.ly/Back2SchoolChi
📢 THIS ‼️
"Pre-exisiting conditions" is a framework put on disabled people to diminish our deaths.
That's why some disabled people are very mad about the NYT note, and we were also very mad at the CDC under Biden saying only people with four or more pre-exisiting conditions are dying from Covid.
That's why some disabled people are very mad about the NYT note, and we were also very mad at the CDC under Biden saying only people with four or more pre-exisiting conditions are dying from Covid.
July 30, 2025 at 8:08 PM
📢 THIS ‼️
Here’s how you tell if someone is disabled or not…
youtube.com/shorts/ZD--q...
youtube.com/shorts/ZD--q...
How Can You Tell If Someone Is Disabled?
YouTube video by PoliticsGirl
youtube.com
July 19, 2025 at 2:51 PM
“A deeper question is what constitutes a ‘rare’ disease,” commented Zha. “Are certain diseases actually rare, do they just more frequently affect women, people of color, transgender patients, or patients from other cultures?”
👆👆👆
👆👆👆
This is the review I worked with @acbontempo.bsky.social!
It focuses on impacts on patients with Ehlers Danlos, endometriosis, fibromyalgia, Gulf War syndrome, irritable bowel syndrome, Long Covid, multiple chemical sensitivity, ME/CFS, POTS, systemic lupus erythematosus, and vulvodynia
It focuses on impacts on patients with Ehlers Danlos, endometriosis, fibromyalgia, Gulf War syndrome, irritable bowel syndrome, Long Covid, multiple chemical sensitivity, ME/CFS, POTS, systemic lupus erythematosus, and vulvodynia
Medscape: 'The Antidote to Medical Gaslighting: Validating Patients’ Concerns'
'A new review focuses on harm caused by medical gaslighting..researchers examined 151 qualitative studies...including long COVID..postural orthostatic tachycardia syndrome..'
www.medscape.com/viewarticle/...
'A new review focuses on harm caused by medical gaslighting..researchers examined 151 qualitative studies...including long COVID..postural orthostatic tachycardia syndrome..'
www.medscape.com/viewarticle/...
July 15, 2025 at 10:47 PM
“A deeper question is what constitutes a ‘rare’ disease,” commented Zha. “Are certain diseases actually rare, do they just more frequently affect women, people of color, transgender patients, or patients from other cultures?”
👆👆👆
👆👆👆
Reposted by Maggie
A large part of why your ill friends are low-key pissed off all the time is we're forced to interact with quite literally like ten times more sludge than you, all the time, nonstop, with only a fraction of your energy to deal with it all.
It feels like drowning, when we should be resting.
It feels like drowning, when we should be resting.
I knew it! “Some companies may actually find it profitable to create hassles for complaining customers.” (Harvard Business Review) www.theatlantic.com/ideas/archiv...
That Dropped Call With Customer Service? It Was on Purpose.
Endless wait times and excessive procedural fuss—it’s all part of a tactic called “sludge.”
www.theatlantic.com
July 13, 2025 at 11:16 PM
A large part of why your ill friends are low-key pissed off all the time is we're forced to interact with quite literally like ten times more sludge than you, all the time, nonstop, with only a fraction of your energy to deal with it all.
It feels like drowning, when we should be resting.
It feels like drowning, when we should be resting.