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Flare Freedom
@flarefreedom.com
87 followers 140 following 30 posts
CCRN | IBD Warrior | Gut Health & Autoimmune Advocate 💚

Helping others navigate chronic illness with root-cause healing, lifestyle shifts & gut repair.

Medically trained, holistically empowered. #FlareFreedom

https://linktr.ee/flarefreedom
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flarefreedom.com
Tonight, the world turns purple 💜

Not for fashion.

But for every gut warrior still fighting.

On World IBD Day, we light up buildings to say:

You are seen. You are not alone.

#worldibdday2025 #IBDhasnoborders #ChronicIllness
A world map formed by pink and white pills and capsules on a deep purple background. The text "World IBD Day 19 May 2025 #IBDhasnoborders #worldibdday2025" is overlayed in white. In the bottom right corner is a green and orange logo with the text "FLARE FREEDOM LIVING BEYOND A glowing red illustration of the human digestive system, specifically the intestines, on a dark background. To the right, white text on a dark red-purple background reads: "The strongest don't wear capes. They wear heat packs. And brave smiles. Today is for every silent warrior. We see you. We celebrate you." The Flare Freedom logo is in the bottom right corner. A split graphic comparing Crohn's Disease and Ulcerative Colitis. On the left, under "CROHN'S DISEASE", are icons and text describing it: a stomach, intestines, and text stating it can affect any part of the GI tract, may involve multiple layers of the bowel wall, and is caused by an abnormal immune response. On the right, under "ULCERATIVE COLITIS", are icons and text describing it: intestines, and text stating it affects only the colon and rectum, involves the innermost lining of the colon, and is caused by an abnormal immune response. To the right of this graphic, white text on a purple background reads: "World IBD Day 2025 marks the 15th anniversary of this important global event, dedicated to raising awareness and understanding of inflammatory bowel disease (IBD)." The Flare Freedom logo is in the bottom right corner.
May 20, 2025 at 7:09 AM
flarefreedom.com
Lupus may not always show on the outside, but it's a daily battle inside. It's misunderstood and often undiagnosed, but we're here to raise awareness and support our warriors. Let's make Lupus visible and show our support on World Lupus Day!

#WorldLupusDay #MakeLupusVisible #ChronicIllness
A purple-themed image for World Lupus Day, featuring the quote “Lupus is invisible. But the fight is real.” with the date May 10, 2025. Below the text is a stylized purple butterfly with a Lupus awareness ribbon forming its body. The words “World LUPUS DAY” are prominently displayed beneath the butterfly, with a subtle world map pattern in the butterfly wings.
May 10, 2025 at 1:55 PM
Reposted by Flare Freedom
barrowmember.bsky.social
Was reminded of this brilliant ad earlier. Well worth watching (& sharing) m.youtube.com/watch?v=92iv... #CripCoop #DisabilitySky #EndTheStereotypes
Assume That I Can | Global World Down Syndrome Day 2024 | #EndTheStereotypes
YouTube video by Canadian Down Syndrome
m.youtube.com
February 15, 2025 at 6:55 AM
flarefreedom.com
www.abc.net.au/news/2025-02...

#IBD #ChronicIllness #Disability
Inflammatory bowel diseases on increase, costing the nation billions
Severe abdominal pains, unpredictable bowel movements and fatigue are some of the serious symptoms 180,000 Australians live with every day and new research shows the often stigmatising condition is co...
www.abc.net.au
February 13, 2025 at 12:47 PM
Reposted by Flare Freedom
thelancet.com
The spread of health misinformation and disinformation poses a serious threat to public health.

How can we respond to the danger and combat the tide of misinformation and disinformation to protect public health?

Find out more in our latest Editorial: tinyurl.com/mtf95p25
Cover of The Lancet's Jan 18th, 2025 issue. Quote reads: "Disinformation has become a deliberate instrument to attack and discredit scientists and health professionals for political gains. The effects are destructive and damaging to public health."
January 17, 2025 at 12:11 PM
flarefreedom.com
This explains A LOT in my medical history, how about you? The research going on in this field right now is super exciting. Hopefully it continues 😕.

#inflammatoryboweldisease
#chronicillness
#medsky #healthygut
#mentalhealth
#inflammatoryillness
#disability

hms.harvard.edu/news/drawing...
Drawing a Line From the Gut Microbiome to Inflammation and Depression
Study provides explanation for one bacterium’s link to mental health
hms.harvard.edu
January 30, 2025 at 7:41 AM
Reposted by Flare Freedom
cococonfession.bsky.social
It's 💜GAME ON! TO END LUPUS💜season!

Join us as we hit ✨$1M✨in our 6th year raising money for @lupus.org to fund Lupus research and support programs!

💜All streamers welcome!
💜Event: 5/2-5/4
💜Fundraise anytime in May
💜Direct access to LFA staff

DMs open! RTs appreciated!
January 29, 2025 at 9:51 PM
flarefreedom.com
I echo this
January 29, 2025 at 8:42 AM
flarefreedom.com
The snake has significant symbolism in medicine. Its use in medical contexts dates back to ancient civilizations and often conveys themes of healing, rejuvenation, and wisdom.

#lunarnewyear #yearofthesnake #medicaltrivia
A festive graphic for Lunar New Year with a black background featuring a repeating wave pattern. Neon green decorative clouds and lantern illustrations are prominently displayed. The text reads 'Happy Lunar New Year' in large green letters and 'May the New Year Bring You Good Luck and Prosperity' in smaller green text below. In the top right corner, a pink and green logo for 'Flare Freedom' with the tagline 'Living Beyond IBD' is visible.
January 29, 2025 at 6:33 AM
Reposted by Flare Freedom
chrisolivieri.bsky.social
As someone also suffering from #AnkylosingSpondylitis, ⁦@korndiddy⁩’s film is a fantastic visual representation.

My ★★★★ review of Ouch! on @letterboxd:
Review of ‘Ouch!’ (2024) ★★★★
As someone also living with AS, this is a pretty great visual representation. The side-by-side scenes at the party were perfect. The lighting and cinematography were fantastic as well, I’m glad Zach...
buff.ly
January 28, 2025 at 4:17 PM
flarefreedom.com
Looking for something new to read? Check out this list of books written by #ADCI

#booksky #books #advocacy

uk.bookshop.org/lists/author...
Authors with Disabilities and Chronic Illnesses (ADCI)
Check out this list on Bookshop.org
uk.bookshop.org
January 28, 2025 at 12:55 PM
Reposted by Flare Freedom
lupus.org
💜 In 2024 1,200+ people joined RAY, the LFA's patient and caregiver registry, advancing #lupus research. Together, we supported clinical trials in lupus nephritis, discoid lupus, and cell therapy, bringing us closer to better treatments and cures.

Join RAY today: https://buff.ly/3rHnFsZ
January 28, 2025 at 12:00 PM
Reposted by Flare Freedom
suew.bsky.social
This needs to happen. People with #Parkinsons and #Demetia MUST be given the choice to end their suffering. The #AssistedDyingBill absolutely needs expanding to include those with Parkinsons and those with forms of and Dementias. The #RightToChoose is ESSENTIAL.

www.theguardian.com/society/2025...
Expand assisted dying bill to help those with Parkinson’s and dementia, MPs to hear
Current terms of the law for England and Wales passing through parliament will only aid those with terminal cancer, former judge to say
www.theguardian.com
January 28, 2025 at 12:15 PM
flarefreedom.com
Fantastic, keen to follow this over time to evaluate longer term outcomes.

#Parkisons
January 28, 2025 at 11:25 AM
Reposted by Flare Freedom
teachrprecarity.bsky.social
COVID lung damage evident in up to 1/3 of cases 12 months after infection #covid #covid19 #LongCovid
healthimaging.com/topics/clini...
COVID lung damage evident in up to 1/3 of cases 12 months after infection
These findings are not exclusive to severe cases of the virus and have been observed in individuals who reported having more moderate infections.
healthimaging.com
January 28, 2025 at 10:46 AM
Reposted by Flare Freedom
uncleduke1969.bsky.social
David Attenborough [whispering]:

“Like a grain of sand in a vast desert, the predator blends seamlessly into its environment, nearly imperceptible to the naked eye.”
The top half of a cat is concealed behind a gold curtain, its bottom half exposed.
January 22, 2025 at 7:03 PM
flarefreedom.com
Anyone else watching #Severance get a huge #StanleyParable vibe? I love it! 😃

#Games #Movies #TV
January 24, 2025 at 12:32 PM
Reposted by Flare Freedom
amyraehill.bsky.social
For all the new artists joining up: please use alt text. A brief description of your photo for those who need it. More people will share your work too because we try to value accessibility here.

You can also change your settings so you don't forget.
Screenshot of settings: Accessibility Alt text Require alt text before posting (triggered on) Display larger alt text badges (triggered off)
January 22, 2025 at 6:10 PM
flarefreedom.com
#PrimaryHealthcare #PublicHealth #DiseasePrevention
bmj.com The BMJ @bmj.com · Jan 22
The exponential expansion of preventive medicine over recent decades is a major contributor to the primary care crisis in many high income countries, argues this Analysis.

Responsibility for primary disease prevention should return to public health
www.bmj.com/content/388/...
Time needed to provide adult primary care per clinical day
January 22, 2025 at 12:50 PM
Reposted by Flare Freedom
abilityalliance.bsky.social
We raise #DisabilityAwareness, but we are also an advocate for the ability spectrum so we use #AbilityAdvocate. See our struggle, but also see us as unique people who matter. Most people use some type of adaptive item: glasses/sunglasses, arch supports, screen brightners. #BeKind #HelpOthers
January 21, 2025 at 2:44 PM
Reposted by Flare Freedom
achronicvoice.com
“Despite people with #disabilities being among the most #vulnerable during a #climatedisaster, specific plans for them are often not built into public #emergency response systems”: https://buff.ly/40GXnIY #Climatechange
How Persons with Disabilities Are Uniquely Vulnerable To Climate Change
Learn more about the challenges climate change brings for persons with disabilities.
buff.ly
January 22, 2025 at 4:30 AM
Reposted by Flare Freedom
equipment4kids.bsky.social
We're proud to have served families of children living with #disabilities all across #Maryland, #DC, and #NVA for the last 15 years. Help us help them with a #donation!
www.equipforchildren.org/celebrating-...
Celebrating 15 years!
It’s our 15th Anniversary this year and we’re trying to raise $18,000 for our Equipment Donation Program to celebrate. Show your support to children living with disabilities in need by helping us...
www.equipforchildren.org
January 22, 2025 at 1:13 AM
flarefreedom.com
Compelling evidence for adopting an anti-inflammatory diet.
January 20, 2025 at 11:08 AM