Angela White
@crankyapricot.bsky.social
Encapsulated in mylar. Archivist and historian, living with recurrent chordoma and early-stage mesothelioma. Growing tumors is my BAP1 mutant superpower. Semi-expert in philanthropic studies. Asexual/agender, she/her. Vegan. 😷
Reposted by Angela White
‘Death remains my intimate shadow partner. It has been with me since birth, always hovering close by. I understand one day we will finally waltz together into the ether. I hope when that time comes, I die with the satisfaction of a life well-lived, unapologetic, joyful, & full of love.’
—Alice Wong
—Alice Wong
November 15, 2025 at 6:12 AM
‘Death remains my intimate shadow partner. It has been with me since birth, always hovering close by. I understand one day we will finally waltz together into the ether. I hope when that time comes, I die with the satisfaction of a life well-lived, unapologetic, joyful, & full of love.’
—Alice Wong
—Alice Wong
Reposted by Angela White
She was extraordinary, and extraordinarily generous. Alice Wong: I am so grateful to have been alive in her lifetime. She was one of our species' best. She deserved better. My her legacy be for a blessing.
November 15, 2025 at 11:31 AM
She was extraordinary, and extraordinarily generous. Alice Wong: I am so grateful to have been alive in her lifetime. She was one of our species' best. She deserved better. My her legacy be for a blessing.
I never knew her, but I loved how she loved the disability community. RIP, Alice.
The incredible, indomitable, inspirational Alice Wong has left us.
I'm so grateful to have known her on social media, and so grateful for all the words she shared with us and all the actions she encouraged us into making.
May we live up to her example.
(so you don't have to go to Instagram)
I'm so grateful to have known her on social media, and so grateful for all the words she shared with us and all the actions she encouraged us into making.
May we live up to her example.
(so you don't have to go to Instagram)
November 15, 2025 at 12:32 PM
I never knew her, but I loved how she loved the disability community. RIP, Alice.
@bsky.app I live I’m Memphis, not Mississippi, but I’m blocked from Bluesky on my laptop. Unlike on my phone app, I don’t get a location verification pop up
October 27, 2025 at 9:05 PM
@bsky.app I live I’m Memphis, not Mississippi, but I’m blocked from Bluesky on my laptop. Unlike on my phone app, I don’t get a location verification pop up
Reposted by Angela White
The pottery from the lastest restock! I'm planning one more for November 💕
October 26, 2025 at 10:46 AM
The pottery from the lastest restock! I'm planning one more for November 💕
Reposted by Angela White
Commentary by @needhibhalla.bsky.social et al. on the recent attacks on DEI in biomedical research. Data show that diversity in the science increases creativity & success in tackling challenging problems.
🧪 www.nature.com/articles/s41...
🧪 www.nature.com/articles/s41...
October 25, 2025 at 8:42 PM
Commentary by @needhibhalla.bsky.social et al. on the recent attacks on DEI in biomedical research. Data show that diversity in the science increases creativity & success in tackling challenging problems.
🧪 www.nature.com/articles/s41...
🧪 www.nature.com/articles/s41...
Reposted by Angela White
We’ve seen where this ends.
The Nazis targeted disabled people.
Those in power rely on society’s fear and misunderstanding of disability.
The truth is there’s nothing to be afraid of.
We aren’t less than. We aren’t “better off dead”.
We’re worth fighting for.
The Nazis targeted disabled people.
Those in power rely on society’s fear and misunderstanding of disability.
The truth is there’s nothing to be afraid of.
We aren’t less than. We aren’t “better off dead”.
We’re worth fighting for.
September 25, 2025 at 5:36 AM
We’ve seen where this ends.
The Nazis targeted disabled people.
Those in power rely on society’s fear and misunderstanding of disability.
The truth is there’s nothing to be afraid of.
We aren’t less than. We aren’t “better off dead”.
We’re worth fighting for.
The Nazis targeted disabled people.
Those in power rely on society’s fear and misunderstanding of disability.
The truth is there’s nothing to be afraid of.
We aren’t less than. We aren’t “better off dead”.
We’re worth fighting for.
Reposted by Angela White
Just published in JOSS: 'PyPaperRetriever: A Python Tool for Finding and Downloading Scientific Literature' https://doi.org/10.21105/joss.08135
September 19, 2025 at 8:38 AM
Just published in JOSS: 'PyPaperRetriever: A Python Tool for Finding and Downloading Scientific Literature' https://doi.org/10.21105/joss.08135
Help me build the St. Jude Archives and Special Collections as our new Digital Collections Archivist! This new position will be responsible for managing our oral history collection, our future Electronic Theses and Dissertations, and some digitization. It's a great early career archivist job.
Digital Collections Archivist
The Digital Collections Archivist will collaborate with the St. Jude Archivist to digitize and describe archival content for access, including photographs, publications, oral histories, and other prim...
stjude.wd1.myworkdayjobs.com
September 8, 2025 at 9:26 PM
Help me build the St. Jude Archives and Special Collections as our new Digital Collections Archivist! This new position will be responsible for managing our oral history collection, our future Electronic Theses and Dissertations, and some digitization. It's a great early career archivist job.
Reposted by Angela White
Today the internet lost Maru, cat of legend, so I'm putting out an empty cardboard box for him.
September 6, 2025 at 6:48 PM
Today the internet lost Maru, cat of legend, so I'm putting out an empty cardboard box for him.
Reposted by Angela White
Mask up, y'all!
The mechanism seems to be that 1) you still have dormant cancer cells (DCCs) when you're in remission, 2) specific T cells keep DCCs dormant, 3) COVID makes those cells not do their job right, & 4) lets the DCCs become active cancer cells and metastasize.
www.nih.gov/news-events/...
The mechanism seems to be that 1) you still have dormant cancer cells (DCCs) when you're in remission, 2) specific T cells keep DCCs dormant, 3) COVID makes those cells not do their job right, & 4) lets the DCCs become active cancer cells and metastasize.
www.nih.gov/news-events/...
September 3, 2025 at 10:53 PM
Mask up, y'all!
The mechanism seems to be that 1) you still have dormant cancer cells (DCCs) when you're in remission, 2) specific T cells keep DCCs dormant, 3) COVID makes those cells not do their job right, & 4) lets the DCCs become active cancer cells and metastasize.
www.nih.gov/news-events/...
The mechanism seems to be that 1) you still have dormant cancer cells (DCCs) when you're in remission, 2) specific T cells keep DCCs dormant, 3) COVID makes those cells not do their job right, & 4) lets the DCCs become active cancer cells and metastasize.
www.nih.gov/news-events/...
Reposted by Angela White
September 2, 2025 at 9:28 PM
Reposted by Angela White
...
Clarivate is planning to force us all to use their AI powered "smart search" by removing the opt-out option by November.
#medlibs 📚
webofscience.zendesk.com/hc/en-us/art...
Clarivate is planning to force us all to use their AI powered "smart search" by removing the opt-out option by November.
#medlibs 📚
webofscience.zendesk.com/hc/en-us/art...
August 26, 2025 at 5:02 PM
...
Clarivate is planning to force us all to use their AI powered "smart search" by removing the opt-out option by November.
#medlibs 📚
webofscience.zendesk.com/hc/en-us/art...
Clarivate is planning to force us all to use their AI powered "smart search" by removing the opt-out option by November.
#medlibs 📚
webofscience.zendesk.com/hc/en-us/art...
Reposted by Angela White
#chronicillness #covidconscious Bloody vaccinate your bloody kids, a valuable public health notice from Joel Gustaffson thanks heaps to
@qrky.bsky.social
www.youtube.com/watch?v=o2wo...
@qrky.bsky.social
www.youtube.com/watch?v=o2wo...
Vaccinate your bloody kids
YouTube video by Joel Gustafsson
www.youtube.com
August 14, 2025 at 8:24 PM
#chronicillness #covidconscious Bloody vaccinate your bloody kids, a valuable public health notice from Joel Gustaffson thanks heaps to
@qrky.bsky.social
www.youtube.com/watch?v=o2wo...
@qrky.bsky.social
www.youtube.com/watch?v=o2wo...
Reposted by Angela White
We have agency.
We can speak up. We can show up.
Advocating for cancer care means speaking to legislators, bringing patient stories to the front lines of policymakers, supporting & amplifying each other to continue to do the work that changes outcomes.
➡️ @oncoalert.bsky.social @statnews.com
We can speak up. We can show up.
Advocating for cancer care means speaking to legislators, bringing patient stories to the front lines of policymakers, supporting & amplifying each other to continue to do the work that changes outcomes.
➡️ @oncoalert.bsky.social @statnews.com
Cancer care is in crisis — but I’ve seen what hope can do
“I became a doctor because I lost someone I loved. I stayed because I believe in what we do together,” writes art director turned oncologist Fumiko Chino.
www.statnews.com
August 6, 2025 at 1:09 PM
We have agency.
We can speak up. We can show up.
Advocating for cancer care means speaking to legislators, bringing patient stories to the front lines of policymakers, supporting & amplifying each other to continue to do the work that changes outcomes.
➡️ @oncoalert.bsky.social @statnews.com
We can speak up. We can show up.
Advocating for cancer care means speaking to legislators, bringing patient stories to the front lines of policymakers, supporting & amplifying each other to continue to do the work that changes outcomes.
➡️ @oncoalert.bsky.social @statnews.com
Reposted by Angela White
Potentially catastrophic behind-the-scenes news about the Network of the National Library of Medicine (www.nnlm.gov) shared with me today.
While some NNLM host institutions were able to float the offices while funding was paused or delayed in 2025... it is unlikely that happens again.
#medlibs 📚
While some NNLM host institutions were able to float the offices while funding was paused or delayed in 2025... it is unlikely that happens again.
#medlibs 📚
July 31, 2025 at 6:32 PM
Potentially catastrophic behind-the-scenes news about the Network of the National Library of Medicine (www.nnlm.gov) shared with me today.
While some NNLM host institutions were able to float the offices while funding was paused or delayed in 2025... it is unlikely that happens again.
#medlibs 📚
While some NNLM host institutions were able to float the offices while funding was paused or delayed in 2025... it is unlikely that happens again.
#medlibs 📚
Reposted by Angela White
NIH comment request for public access fees on NIH grants:
🧪BREAKING: NIH has laid out 5 options for funding publications costs on grants (yes, FIVE!). This is hugely impactful.
Make your opinions known by September 15, fellow scientists.
🧪
grants.nih.gov/grants/guide...
Make your opinions known by September 15, fellow scientists.
🧪
grants.nih.gov/grants/guide...
NOT-OD-25-138: Request for Information on Maximizing Research Funds by Limiting Allowable Publishing Costs
NIH Funding Opportunities and Notices in the NIH Guide for Grants and Contracts: Request for Information on Maximizing Research Funds by Limiting Allowable Publishing Costs NOT-OD-25-138. NIH
grants.nih.gov
July 30, 2025 at 8:51 PM
NIH comment request for public access fees on NIH grants:
This is incredible. Not only is it beautiful work, it's a reminder that there is no shame in being increasingly disabled as multiple cancers slowly take my health and my life. This, too, is a process. Thank you @philsinabind.bsky.social and @sfdirewolf.bsky.social.
In this video I reflect on the importance of the book on helping me accept my disabled identity whilst showing the process of rebinding the paperback book.
Thank you Alice ( @sfdirewolf.bsky.social ) for creating such an impactful book!
youtu.be/-H7hmglYhqA?...
Thank you Alice ( @sfdirewolf.bsky.social ) for creating such an impactful book!
youtu.be/-H7hmglYhqA?...
Disability Visibility
YouTube video by Phil's in a bind
youtu.be
July 20, 2025 at 6:24 PM
This is incredible. Not only is it beautiful work, it's a reminder that there is no shame in being increasingly disabled as multiple cancers slowly take my health and my life. This, too, is a process. Thank you @philsinabind.bsky.social and @sfdirewolf.bsky.social.
Reposted by Angela White
Drift into the weekend in full colour! This dreamy pink & green kaftan from the Dame #zandra_rhodes_ collection is made for balmy #FashionFriday vibes #fashionhistory #dmufashion #a_stitch_in_time_13 #historicfashion #dmufashionmarketing #fashion
July 18, 2025 at 8:01 AM
Drift into the weekend in full colour! This dreamy pink & green kaftan from the Dame #zandra_rhodes_ collection is made for balmy #FashionFriday vibes #fashionhistory #dmufashion #a_stitch_in_time_13 #historicfashion #dmufashionmarketing #fashion
Reposted by Angela White
As a #childhoodcancer doctor, I'm proud to be able to advocate for children with cancer in any way that I can.
Here is a piece that I recently wrote for #TheDetroitNews, who kindly published it.
#PEDCan
#CANSky
www.detroitnews.com/story/opinio...
Here is a piece that I recently wrote for #TheDetroitNews, who kindly published it.
#PEDCan
#CANSky
www.detroitnews.com/story/opinio...
Prensner: ‘Big Beautiful Bill’ betrays children with cancer
In the United States, we’ve fought to achieve the world’s best care for children with cancer.
www.detroitnews.com
July 10, 2025 at 4:37 PM
As a #childhoodcancer doctor, I'm proud to be able to advocate for children with cancer in any way that I can.
Here is a piece that I recently wrote for #TheDetroitNews, who kindly published it.
#PEDCan
#CANSky
www.detroitnews.com/story/opinio...
Here is a piece that I recently wrote for #TheDetroitNews, who kindly published it.
#PEDCan
#CANSky
www.detroitnews.com/story/opinio...
Reposted by Angela White
🚨 If you haven’t seen it yet…
📢 The NIH BioArt Source provides a library of FREE professionally designed illustrations and icons, available for anyone to use. They can be Downloaded in High Definition.
Check it out at bioart.niaid.nih.gov
📢 The NIH BioArt Source provides a library of FREE professionally designed illustrations and icons, available for anyone to use. They can be Downloaded in High Definition.
Check it out at bioart.niaid.nih.gov
November 23, 2024 at 11:30 PM
🚨 If you haven’t seen it yet…
📢 The NIH BioArt Source provides a library of FREE professionally designed illustrations and icons, available for anyone to use. They can be Downloaded in High Definition.
Check it out at bioart.niaid.nih.gov
📢 The NIH BioArt Source provides a library of FREE professionally designed illustrations and icons, available for anyone to use. They can be Downloaded in High Definition.
Check it out at bioart.niaid.nih.gov
Reposted by Angela White
Children have died who have recovered from Cancer, only to be lost to COVID. Same for so many patients. It’s not acceptable that five years on there is no correct PPE in healthcare. No clean air and restricted vaccines. One life isn’t worth less than another and this is dividing families too.
It is child abuse
It is neglect
It is endangerment to life
It is WRONG
It goes against the Hippocratic Oath
YOU DONT INFECT OTHER PEOPLE!
medicalxpress.com/news/2025-07...
It is neglect
It is endangerment to life
It is WRONG
It goes against the Hippocratic Oath
YOU DONT INFECT OTHER PEOPLE!
medicalxpress.com/news/2025-07...
Adults who survived childhood cancer are at increased risk of severe COVID-19, says new study
People who have survived cancer as children are at higher risk of developing severe COVID-19, even decades after their diagnosis. This is shown by a new study from Karolinska Institutet published in t...
medicalxpress.com
July 5, 2025 at 10:15 AM
Children have died who have recovered from Cancer, only to be lost to COVID. Same for so many patients. It’s not acceptable that five years on there is no correct PPE in healthcare. No clean air and restricted vaccines. One life isn’t worth less than another and this is dividing families too.
Reposted by Angela White
I bought my home hoping it could eventually be a point of refuge for other community members who may need a place to land
This loan stands between me and making that a reality
If you mean what you say about helping disabled folks + other marginalized groups, please consider helping me pay this off
This loan stands between me and making that a reality
If you mean what you say about helping disabled folks + other marginalized groups, please consider helping me pay this off
Donate to Help Alexandra Get Emergency Housing Repairs Covered, organized by Alex Tomlinson
Hello! My name is Alexandra Tomlinson and this year I reache… Alex Tomlinson needs your support for Help Alexandra Get Emergency Housing Repairs Covered
www.gofundme.com
July 3, 2025 at 10:54 PM
I bought my home hoping it could eventually be a point of refuge for other community members who may need a place to land
This loan stands between me and making that a reality
If you mean what you say about helping disabled folks + other marginalized groups, please consider helping me pay this off
This loan stands between me and making that a reality
If you mean what you say about helping disabled folks + other marginalized groups, please consider helping me pay this off
Reposted by Angela White
Introducing the 2025-2030 NIH Strategic Plan for Data Science: What Researchers Need to Know
datascience.nih.gov/director/dir...
"Remember the NIH Data Management and Sharing Policy that went into effect last year? NIH is doubling down on supporting and effectively implementing the policy"
datascience.nih.gov/director/dir...
"Remember the NIH Data Management and Sharing Policy that went into effect last year? NIH is doubling down on supporting and effectively implementing the policy"
Introducing the 2025-2030 NIH Strategic Plan for Data Science: What Researchers Need to Know | Data Science at NIH
datascience.nih.gov
July 3, 2025 at 10:42 AM
Introducing the 2025-2030 NIH Strategic Plan for Data Science: What Researchers Need to Know
datascience.nih.gov/director/dir...
"Remember the NIH Data Management and Sharing Policy that went into effect last year? NIH is doubling down on supporting and effectively implementing the policy"
datascience.nih.gov/director/dir...
"Remember the NIH Data Management and Sharing Policy that went into effect last year? NIH is doubling down on supporting and effectively implementing the policy"