@bethesolution.bsky.social
ALS advocate. Transitioning from Xesspool. Believer in democracy, science, and the Constitution. Save social security and Medicare.
Reposted
If you've heard about the Tim Lowrey ALS Panel Series but haven't had an opportunity to attend a panel, we have awesome news: now is your chance! Join us for a public ALS Panel as part of our #PushforProgress Week of Action on September 8. Register now: https://bit.ly/40Sy46D
August 23, 2025 at 8:48 PM
If you've heard about the Tim Lowrey ALS Panel Series but haven't had an opportunity to attend a panel, we have awesome news: now is your chance! Join us for a public ALS Panel as part of our #PushforProgress Week of Action on September 8. Register now: https://bit.ly/40Sy46D
how do I undo a repost on blueksy
April 11, 2025 at 11:35 PM
how do I undo a repost on blueksy
Reposted
What if your mom was diagnosed with breast cancer & Medicaid could have saved her life, but Republicans cut it?
This isn't just a budget cut, it's a death sentence for thousands of mom's...
Hands Off Our Medicaid
This isn't just a budget cut, it's a death sentence for thousands of mom's...
Hands Off Our Medicaid
February 7, 2025 at 6:14 PM
What if your mom was diagnosed with breast cancer & Medicaid could have saved her life, but Republicans cut it?
This isn't just a budget cut, it's a death sentence for thousands of mom's...
Hands Off Our Medicaid
This isn't just a budget cut, it's a death sentence for thousands of mom's...
Hands Off Our Medicaid
Reposted
While it's not quite baseball weather yet, the Youth Lou Gehrig Day Team is gearing up for this Little League season! If you are involved with a Little League team and want to spread awareness about the great Lou Gehrig, inquire with the team! www.iamals.org/youth-lou-ge...
Youth Lou Gehrig Day Team - I AM ALS - ALS is Relentless. So Are We!
Help youth T-ball, little league and softball leagues throughout the country hold Lou Gehrig Day celebrations to raise awareness of ALS and celebrate Lou’s ...
www.iamals.org
January 31, 2025 at 7:56 PM
While it's not quite baseball weather yet, the Youth Lou Gehrig Day Team is gearing up for this Little League season! If you are involved with a Little League team and want to spread awareness about the great Lou Gehrig, inquire with the team! www.iamals.org/youth-lou-ge...
Reposted
With Appropriations season quickly approaching, the team needs constituents in districts across the country to allow them to use their names as part of their appropriations requests. Become a constituent today and share this post! www.iamals.org/action/help-...
Help The Legislative Team - I AM ALS - ALS is Relentless. So Are We!
ALS Advocates! I AM ALS’ Legislative Affairs Community Team needs your help. Every single day, this team reaches out to legislators to convince them to beco ...
www.iamals.org
February 4, 2025 at 4:20 PM
With Appropriations season quickly approaching, the team needs constituents in districts across the country to allow them to use their names as part of their appropriations requests. Become a constituent today and share this post! www.iamals.org/action/help-...
Reposted
Sign up for this webinar to learn more about how to interpret clinical trials for ALS.
www.iamals.org/interpreting...
www.iamals.org/interpreting...
Interpreting Clinical Trials Webinar - I AM ALS - ALS is Relentless. So Are We!
On Thursday, February 6th at 7pm EST, Dr. Lyle Ostrow, Associate Professor of Neurology at the Lewis Katz School of Medicine at Temple University will join ...
www.iamals.org
February 3, 2025 at 9:57 PM
Sign up for this webinar to learn more about how to interpret clinical trials for ALS.
www.iamals.org/interpreting...
www.iamals.org/interpreting...
Reposted
Please watch this today and when you do please volunteer with @iamals.bsky.social.
www.primevideo.com/detail/For-L...
www.primevideo.com/detail/For-L...
Watch For Love & Life: No Ordinary Campaign online – Prime Video
A deeply moving documentary illustrating the transformative power of love, hope and activism. The film follows Brian Wallach and his wife Sandra after his ALS diagnosis at age 37. Anchored by a deep l...
www.primevideo.com
February 4, 2025 at 9:48 PM
Please watch this today and when you do please volunteer with @iamals.bsky.social.
www.primevideo.com/detail/For-L...
www.primevideo.com/detail/For-L...
Reposted
No one voted to hand Social Security and Medicare over to billionaires.
No one voted to pay the highest drug prices in the world.
No one voted to pay the highest drug prices in the world.
February 2, 2025 at 1:23 AM
No one voted to hand Social Security and Medicare over to billionaires.
No one voted to pay the highest drug prices in the world.
No one voted to pay the highest drug prices in the world.
People living with #ALS (PLWALS) need #socialsecurity disability. They are unable to work with loss of arms, legs, eating, and breathing.
February 2, 2025 at 3:28 PM
People living with #ALS (PLWALS) need #socialsecurity disability. They are unable to work with loss of arms, legs, eating, and breathing.
People living with #ALS (PWLALS) count on #Medicare and Medicaid.
Medicare needs to be expanded to cover at least 40 hours of caregiving per week for PWALS.
The cost of care is outrageous and unaffordable. You can't leave someone at home who can't walk, breath,eat or use their hands.
Medicare needs to be expanded to cover at least 40 hours of caregiving per week for PWALS.
The cost of care is outrageous and unaffordable. You can't leave someone at home who can't walk, breath,eat or use their hands.
February 2, 2025 at 3:26 PM
Reposted
We have some truly amazing peer mentors who are waiting to be matched with someone who they can support with their unique experiences. Apply to become a mentee, or share this post with your networks in case someone else could benefit from this form of support: www.surveymonkey.com/r/IAA-Mentee
I AM ALS Peer Support Initiative: Mentee Application
Connect with an I AM ALS Peer Mentor.
www.surveymonkey.com
January 27, 2025 at 7:32 PM
We have some truly amazing peer mentors who are waiting to be matched with someone who they can support with their unique experiences. Apply to become a mentee, or share this post with your networks in case someone else could benefit from this form of support: www.surveymonkey.com/r/IAA-Mentee
Reposted
An ALS diagnosis often comes with a steep learning curve. Our Newly Diagnosed Email Series will bring you four emails over eight weeks, bringing you everything you need to know in manageable chunks. Sign up today and share this link - it could help someone else! www.iamals.org/sign-up-to-r...
Sign Up to Receive our Newly Diagnosed Email Series - I AM ALS - ALS is Relentless. So Are We!
Being diagnosed with ALS can bring a lot of unknowns, and trying to figure them out can feel overwhelming. Remember: we are here to help.
www.iamals.org
January 30, 2025 at 9:04 PM
An ALS diagnosis often comes with a steep learning curve. Our Newly Diagnosed Email Series will bring you four emails over eight weeks, bringing you everything you need to know in manageable chunks. Sign up today and share this link - it could help someone else! www.iamals.org/sign-up-to-r...
Reposted
"Insulin shouldn't be expensive." – Senator Raphael Warnock
Exactly. The patent for insulin was sold for ONE DOLLAR.
Medicine is for people, not for profit.
Exactly. The patent for insulin was sold for ONE DOLLAR.
Medicine is for people, not for profit.
January 29, 2025 at 9:32 PM
"Insulin shouldn't be expensive." – Senator Raphael Warnock
Exactly. The patent for insulin was sold for ONE DOLLAR.
Medicine is for people, not for profit.
Exactly. The patent for insulin was sold for ONE DOLLAR.
Medicine is for people, not for profit.
Reposted
FYI, the answer to the first question is 41%.
41% of all births in the United States are paid for by Medicaid.
41% of all births in the United States are paid for by Medicaid.
Sen. Lujan asks RFK if he knows how many babies born in the U.S. are covered by Medicaid. RFK does not know. He asks RFK if Medicaid is a critical program. He says yes but "the premiums are too high, the deductibles are too high." Sir Medicaid is free
January 29, 2025 at 6:14 PM
FYI, the answer to the first question is 41%.
41% of all births in the United States are paid for by Medicaid.
41% of all births in the United States are paid for by Medicaid.
Reposted
President Donald Trump on Wednesday signed a memorandum directing the federal government to prepare the US Naval base at Guantanamo Bay, Cuba, to house tens of thousands of migrants.
Trump directs Guantanamo Bay to be prepared to host up to 30,000 migrants | CNN Politics
President Donald Trump on Wednesday signed a memorandum directing the federal government to prepare the US Naval base at Guantanamo Bay, Cuba, to house tens of thousands of migrants.
www.cnn.com
January 29, 2025 at 11:10 PM
President Donald Trump on Wednesday signed a memorandum directing the federal government to prepare the US Naval base at Guantanamo Bay, Cuba, to house tens of thousands of migrants.
Reposted
You deserve to share and heal in a supportive community who understands what you're going through. Whether you're living with ALS, a caregiver, a loved one, or if your person has passed, we have a support group for you. Check them out and sign up: www.iamals.org/action/peer-...
Join A Support Group - I AM ALS - ALS is Relentless. So Are We!
I AM ALS offers weekly virtual support groups for people who are living with and impacted by ALS. Each group provides a space for people to connect with oth ...
www.iamals.org
January 23, 2025 at 4:33 PM
You deserve to share and heal in a supportive community who understands what you're going through. Whether you're living with ALS, a caregiver, a loved one, or if your person has passed, we have a support group for you. Check them out and sign up: www.iamals.org/action/peer-...
Reposted
A per capita cap on Medicaid significantly impacts people in nursing homes by reducing benefits, decreasing quality of care, & access to nursing home services, as states are forced to cut costs due to fixed amount of funding per Medicaid recipient, especially impacting those w/high healthcare needs.
January 19, 2025 at 8:14 PM
A per capita cap on Medicaid significantly impacts people in nursing homes by reducing benefits, decreasing quality of care, & access to nursing home services, as states are forced to cut costs due to fixed amount of funding per Medicaid recipient, especially impacting those w/high healthcare needs.
Reposted
‘Darkness cannot drive out darkness; only light can do that. Hate cannot drive out hate; only love can do that.’ — Dr. Martin Luther King Jr.
On #MLKDay, we honor his legacy by choosing love over hate, justice over injustice, and hope over fear.
On #MLKDay, we honor his legacy by choosing love over hate, justice over injustice, and hope over fear.
January 20, 2025 at 2:55 PM
‘Darkness cannot drive out darkness; only light can do that. Hate cannot drive out hate; only love can do that.’ — Dr. Martin Luther King Jr.
On #MLKDay, we honor his legacy by choosing love over hate, justice over injustice, and hope over fear.
On #MLKDay, we honor his legacy by choosing love over hate, justice over injustice, and hope over fear.
I want cheaper groceries and utilities. Not the Gulf of America.
January 8, 2025 at 3:06 PM
I want cheaper groceries and utilities. Not the Gulf of America.
Reposted
I just saw a post on Facebook start with ‘Convicted Rapist Mark Zuckerberg….’ Let’s see how long this no fact checking lasts.
January 8, 2025 at 12:01 AM
I just saw a post on Facebook start with ‘Convicted Rapist Mark Zuckerberg….’ Let’s see how long this no fact checking lasts.
a Question to ask Anti Vaxers including RFKjr
if you were bit by a rabid animal would you take the necessary vaccine to save you life?
if you were bit by a rabid animal would you take the necessary vaccine to save you life?
December 10, 2024 at 2:56 AM
a Question to ask Anti Vaxers including RFKjr
if you were bit by a rabid animal would you take the necessary vaccine to save you life?
if you were bit by a rabid animal would you take the necessary vaccine to save you life?
Reposted
A reminder that the Biden-Harris Admin approved a rule that required overtime pay for Americans making less than $58,600 and working more than 40 hours a week.
A Trump-appointed judge reversed it.
Despite what Republicans may claim, they are not for the working class.
A Trump-appointed judge reversed it.
Despite what Republicans may claim, they are not for the working class.
December 4, 2024 at 2:45 PM
A reminder that the Biden-Harris Admin approved a rule that required overtime pay for Americans making less than $58,600 and working more than 40 hours a week.
A Trump-appointed judge reversed it.
Despite what Republicans may claim, they are not for the working class.
A Trump-appointed judge reversed it.
Despite what Republicans may claim, they are not for the working class.
Reposted
Social Security has been 7 years from going bankrupt for the past 56 years.
This is a lie Republicans created and perpetuate to condition you into accepting the loss of an earned benefit you paid for in every check you ever earned.
This is a lie Republicans created and perpetuate to condition you into accepting the loss of an earned benefit you paid for in every check you ever earned.
December 7, 2024 at 12:49 AM
Social Security has been 7 years from going bankrupt for the past 56 years.
This is a lie Republicans created and perpetuate to condition you into accepting the loss of an earned benefit you paid for in every check you ever earned.
This is a lie Republicans created and perpetuate to condition you into accepting the loss of an earned benefit you paid for in every check you ever earned.