@iamals.bsky.social
I AM ALS is the largest community movement made up of the very people living with, impacted by, and highly motivated to end ALS. We’re fueled by urgency to find a cure and a track record of real impact.
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iamals.bsky.social
@iamals.bsky.social
· Sep 15
We're launching our Push for Progress campaign to accelerate ALS research, expand treatment access, & secure $1BN in federal funding over 3 years. ALS is at a tipping point CLOSE to new treatments, but thousands will lose access unless we TAKE ACTION @ iamals.org/progress
The Tim Lowrey ALS Panel Series is changing lives of all ages, including kids at Trunk or Treat! We love this creative idea to raise awareness. Request a Tim Lowrey ALS Panel of your own today: https://bit.ly/47QIo1x
November 12, 2025 at 6:13 PM
The Tim Lowrey ALS Panel Series is changing lives of all ages, including kids at Trunk or Treat! We love this creative idea to raise awareness. Request a Tim Lowrey ALS Panel of your own today: https://bit.ly/47QIo1x
Don't forget: this webinar for young caregivers is TOMORROW (November 13) at 3pm ET! There's still time to sign up. Secure your spot: https://bit.ly/4oxSewv
November 12, 2025 at 5:15 PM
Don't forget: this webinar for young caregivers is TOMORROW (November 13) at 3pm ET! There's still time to sign up. Secure your spot: https://bit.ly/4oxSewv
ACT for ALS has united allies and advocates across the aisle.
We’re closer than ever to getting this critical ALS research funding reauthorized, but we need your help to get there.
PUSH for reauthorization with us TODAY @ bit.ly/fundALS
We’re closer than ever to getting this critical ALS research funding reauthorized, but we need your help to get there.
PUSH for reauthorization with us TODAY @ bit.ly/fundALS
November 12, 2025 at 4:06 PM
ACT for ALS has united allies and advocates across the aisle.
We’re closer than ever to getting this critical ALS research funding reauthorized, but we need your help to get there.
PUSH for reauthorization with us TODAY @ bit.ly/fundALS
We’re closer than ever to getting this critical ALS research funding reauthorized, but we need your help to get there.
PUSH for reauthorization with us TODAY @ bit.ly/fundALS
Emma Heming Willis “The Unexpected Journey” offers a guide to navigating your caregiving journey.
Emma’s book provides the wisdom and guidance she wishes she had when her husband Bruce Willis was diagnosed with dementia.
Grab your copy TODAY at bit.ly/EmmasCareJourney
Emma’s book provides the wisdom and guidance she wishes she had when her husband Bruce Willis was diagnosed with dementia.
Grab your copy TODAY at bit.ly/EmmasCareJourney
November 12, 2025 at 3:55 PM
Emma Heming Willis “The Unexpected Journey” offers a guide to navigating your caregiving journey.
Emma’s book provides the wisdom and guidance she wishes she had when her husband Bruce Willis was diagnosed with dementia.
Grab your copy TODAY at bit.ly/EmmasCareJourney
Emma’s book provides the wisdom and guidance she wishes she had when her husband Bruce Willis was diagnosed with dementia.
Grab your copy TODAY at bit.ly/EmmasCareJourney
Veterans Day is about showing up for the people who sacrificed everything for us.
We DO know Vets are more likely to live with ALS.
We DON’T know why, so we’re pushing for funding to get some answers.
Support our Vets and JOIN US TODAY @ bit.ly/fundALS
We DO know Vets are more likely to live with ALS.
We DON’T know why, so we’re pushing for funding to get some answers.
Support our Vets and JOIN US TODAY @ bit.ly/fundALS
November 11, 2025 at 6:09 PM
Veterans Day is about showing up for the people who sacrificed everything for us.
We DO know Vets are more likely to live with ALS.
We DON’T know why, so we’re pushing for funding to get some answers.
Support our Vets and JOIN US TODAY @ bit.ly/fundALS
We DO know Vets are more likely to live with ALS.
We DON’T know why, so we’re pushing for funding to get some answers.
Support our Vets and JOIN US TODAY @ bit.ly/fundALS
At 28 years old, Ashley became a single mother AND sole caregiver to her father after her husband passed.
Ashley’s father was a Veteran living with ALS, and she wants to see more support for ALS Vets and their families.
If you can relate to Ashley's story, share yours below!
Ashley’s father was a Veteran living with ALS, and she wants to see more support for ALS Vets and their families.
If you can relate to Ashley's story, share yours below!
November 11, 2025 at 4:08 PM
At 28 years old, Ashley became a single mother AND sole caregiver to her father after her husband passed.
Ashley’s father was a Veteran living with ALS, and she wants to see more support for ALS Vets and their families.
If you can relate to Ashley's story, share yours below!
Ashley’s father was a Veteran living with ALS, and she wants to see more support for ALS Vets and their families.
If you can relate to Ashley's story, share yours below!
Happy Veterans Day! Know a Veteran living with ALS? Share these resources with them or one of their family members today to show them some support!
November 11, 2025 at 1:54 PM
Happy Veterans Day! Know a Veteran living with ALS? Share these resources with them or one of their family members today to show them some support!
Ashley Lee is a single mother, military and healthcare advocate, and a former caregiver to her father, a Vietnam Veteran who lived with ALS.
Watch this space for more about Ashley’s journey navigating the VA, single motherhood, and caregiving all at once!
Watch this space for more about Ashley’s journey navigating the VA, single motherhood, and caregiving all at once!
November 10, 2025 at 3:52 PM
Ashley Lee is a single mother, military and healthcare advocate, and a former caregiver to her father, a Vietnam Veteran who lived with ALS.
Watch this space for more about Ashley’s journey navigating the VA, single motherhood, and caregiving all at once!
Watch this space for more about Ashley’s journey navigating the VA, single motherhood, and caregiving all at once!
Caregivers—we have a monthly support group JUST for you.
Come and make some friends, share some laughs or a few tears, or just vibe out and build community.
JOIN US this Wednesday at 12:00 pm CST @ bit.ly/ALSgroups
Come and make some friends, share some laughs or a few tears, or just vibe out and build community.
JOIN US this Wednesday at 12:00 pm CST @ bit.ly/ALSgroups
November 10, 2025 at 1:51 PM
Caregivers—we have a monthly support group JUST for you.
Come and make some friends, share some laughs or a few tears, or just vibe out and build community.
JOIN US this Wednesday at 12:00 pm CST @ bit.ly/ALSgroups
Come and make some friends, share some laughs or a few tears, or just vibe out and build community.
JOIN US this Wednesday at 12:00 pm CST @ bit.ly/ALSgroups
ALS Caregivers—share your story for a chance to be featured in our National Family Caregiver Month stories!
VISIT bit.ly/ProgressisPersonal TODAY!
#ProgressisPersonal
VISIT bit.ly/ProgressisPersonal TODAY!
#ProgressisPersonal
November 9, 2025 at 11:48 PM
ALS Caregivers—share your story for a chance to be featured in our National Family Caregiver Month stories!
VISIT bit.ly/ProgressisPersonal TODAY!
#ProgressisPersonal
VISIT bit.ly/ProgressisPersonal TODAY!
#ProgressisPersonal
Today is Eric Dane's birthday!
You may know him from Grey's Anatomy, but he is also a tireless ally, a loving father, and a really funny, down-to-earth kinda guy.
Drop a "Happy Birthday Eric!" in the comments! 👇
You may know him from Grey's Anatomy, but he is also a tireless ally, a loving father, and a really funny, down-to-earth kinda guy.
Drop a "Happy Birthday Eric!" in the comments! 👇
November 9, 2025 at 9:11 PM
Today is Eric Dane's birthday!
You may know him from Grey's Anatomy, but he is also a tireless ally, a loving father, and a really funny, down-to-earth kinda guy.
Drop a "Happy Birthday Eric!" in the comments! 👇
You may know him from Grey's Anatomy, but he is also a tireless ally, a loving father, and a really funny, down-to-earth kinda guy.
Drop a "Happy Birthday Eric!" in the comments! 👇
One thing we’ve learned this week from our caregiver stories—we have to care for ourselves before we can care for others.
So, tell us, what fills YOUR cup? How do YOU practice self-care?
#ProgressisPersonal
So, tell us, what fills YOUR cup? How do YOU practice self-care?
#ProgressisPersonal
November 9, 2025 at 3:45 PM
One thing we’ve learned this week from our caregiver stories—we have to care for ourselves before we can care for others.
So, tell us, what fills YOUR cup? How do YOU practice self-care?
#ProgressisPersonal
So, tell us, what fills YOUR cup? How do YOU practice self-care?
#ProgressisPersonal
ACT for ALS will expand access to treatment, provide funding for research, and help us better understand ALS.
We’re SO CLOSE to getting it reauthorized when it expires in 2026, and we want to hear from you.
What will you feel when ACT for ALS passes? Tell us in the comments! ↓
We’re SO CLOSE to getting it reauthorized when it expires in 2026, and we want to hear from you.
What will you feel when ACT for ALS passes? Tell us in the comments! ↓
November 8, 2025 at 8:11 PM
ACT for ALS will expand access to treatment, provide funding for research, and help us better understand ALS.
We’re SO CLOSE to getting it reauthorized when it expires in 2026, and we want to hear from you.
What will you feel when ACT for ALS passes? Tell us in the comments! ↓
We’re SO CLOSE to getting it reauthorized when it expires in 2026, and we want to hear from you.
What will you feel when ACT for ALS passes? Tell us in the comments! ↓
As part of National Caregiver Month, the Cures Collective is hosting an important session for young caregivers. Join them on Thursday, November 13! RSVP: https://bit.ly/4oxSewv
November 8, 2025 at 6:55 PM
As part of National Caregiver Month, the Cures Collective is hosting an important session for young caregivers. Join them on Thursday, November 13! RSVP: https://bit.ly/4oxSewv
“Thank you” is not enough to capture the hard work, sacrifice, and love that caregivers pour into our community every day.
Caregivers—THANK YOU for everything!
Hit “share” to spread this message with a caregiver who needs to hear it!
#ProgressisPersonal
Caregivers—THANK YOU for everything!
Hit “share” to spread this message with a caregiver who needs to hear it!
#ProgressisPersonal
November 8, 2025 at 2:05 PM
“Thank you” is not enough to capture the hard work, sacrifice, and love that caregivers pour into our community every day.
Caregivers—THANK YOU for everything!
Hit “share” to spread this message with a caregiver who needs to hear it!
#ProgressisPersonal
Caregivers—THANK YOU for everything!
Hit “share” to spread this message with a caregiver who needs to hear it!
#ProgressisPersonal
All the caregiver stories we heard this week make one thing clear—we need to do more.
We need to PUSH more.
And ACT for ALS will provide real access to treatment and lighten the load, not just for people living with ALS but also for caregivers.
Push with us TODAY @ bit.ly/fundALS
We need to PUSH more.
And ACT for ALS will provide real access to treatment and lighten the load, not just for people living with ALS but also for caregivers.
Push with us TODAY @ bit.ly/fundALS
November 7, 2025 at 4:08 PM
All the caregiver stories we heard this week make one thing clear—we need to do more.
We need to PUSH more.
And ACT for ALS will provide real access to treatment and lighten the load, not just for people living with ALS but also for caregivers.
Push with us TODAY @ bit.ly/fundALS
We need to PUSH more.
And ACT for ALS will provide real access to treatment and lighten the load, not just for people living with ALS but also for caregivers.
Push with us TODAY @ bit.ly/fundALS
Through prayer, writing, and thoughtful teamwork with her family, Maya finds love and strength in caregiving.
And she has a message for any new caregivers out there: “give yourself grace”.
Caregivers, share YOUR story → bit.ly/ProgressisPersonal
#ProgressisPersonal
And she has a message for any new caregivers out there: “give yourself grace”.
Caregivers, share YOUR story → bit.ly/ProgressisPersonal
#ProgressisPersonal
November 7, 2025 at 1:53 PM
Through prayer, writing, and thoughtful teamwork with her family, Maya finds love and strength in caregiving.
And she has a message for any new caregivers out there: “give yourself grace”.
Caregivers, share YOUR story → bit.ly/ProgressisPersonal
#ProgressisPersonal
And she has a message for any new caregivers out there: “give yourself grace”.
Caregivers, share YOUR story → bit.ly/ProgressisPersonal
#ProgressisPersonal
Meet Maya! She’s a wife, mother, published author, and caregiver to her husband, Maceo, who’s living with ALS.
Trust us, Maya has a way with words. We can’t wait to share her POWERFUL story with you.
VISIT bit.ly/ProgressisPersonal to learn more.
#ProgressisPersonal
Trust us, Maya has a way with words. We can’t wait to share her POWERFUL story with you.
VISIT bit.ly/ProgressisPersonal to learn more.
#ProgressisPersonal
November 6, 2025 at 4:05 PM
Meet Maya! She’s a wife, mother, published author, and caregiver to her husband, Maceo, who’s living with ALS.
Trust us, Maya has a way with words. We can’t wait to share her POWERFUL story with you.
VISIT bit.ly/ProgressisPersonal to learn more.
#ProgressisPersonal
Trust us, Maya has a way with words. We can’t wait to share her POWERFUL story with you.
VISIT bit.ly/ProgressisPersonal to learn more.
#ProgressisPersonal
Carmen quiere más ayuda para los cuidadores de ELA.
Cuidadores, comparte tu historia en bit.ly/ProgressisPersonal
#ElProgresoesPersonal
Cuidadores, comparte tu historia en bit.ly/ProgressisPersonal
#ElProgresoesPersonal
November 6, 2025 at 2:15 PM
Carmen quiere más ayuda para los cuidadores de ELA.
Cuidadores, comparte tu historia en bit.ly/ProgressisPersonal
#ElProgresoesPersonal
Cuidadores, comparte tu historia en bit.ly/ProgressisPersonal
#ElProgresoesPersonal
The ALS Comedy Crew starts up again TOMORROW, November 6! If you want to be part of this session, be sure to sign up. The ALS Comedy Crew is a place for people living with ALS to process and receive support through humor. Previous participants are welcome! https://bit.ly/4nDKaKq
ALS Comedy Crew: A Community Support Series - I AM ALS - ALS is Relentless. So Are We!
I AM ALS is excited to announce the return of the ALS Comedy Crew! The ALS Comedy Crew brings together individuals living with ALS, fostering meaningful con ...
bit.ly
November 5, 2025 at 4:17 PM
The ALS Comedy Crew starts up again TOMORROW, November 6! If you want to be part of this session, be sure to sign up. The ALS Comedy Crew is a place for people living with ALS to process and receive support through humor. Previous participants are welcome! https://bit.ly/4nDKaKq
Carmen’s story comes with many lessons, but one thing stood out to us: ALS caregivers deserve more support.
Any other caregivers out there? Share YOUR story @ bit.ly/ProgressisPersonal
#ProgressisPersonal
Any other caregivers out there? Share YOUR story @ bit.ly/ProgressisPersonal
#ProgressisPersonal
November 5, 2025 at 3:51 PM
Carmen’s story comes with many lessons, but one thing stood out to us: ALS caregivers deserve more support.
Any other caregivers out there? Share YOUR story @ bit.ly/ProgressisPersonal
#ProgressisPersonal
Any other caregivers out there? Share YOUR story @ bit.ly/ProgressisPersonal
#ProgressisPersonal
Caregivers—need support but couldn’t make it to the group yesterday?
We’ve got you. @@caregiveraction.bsky.social is hosting a series of webinars for ALL caregivers, all month long.
VISIT bit.ly/NCMgroups to sign up!
We’ve got you. @@caregiveraction.bsky.social is hosting a series of webinars for ALL caregivers, all month long.
VISIT bit.ly/NCMgroups to sign up!
November 5, 2025 at 1:54 PM
Caregivers—need support but couldn’t make it to the group yesterday?
We’ve got you. @@caregiveraction.bsky.social is hosting a series of webinars for ALL caregivers, all month long.
VISIT bit.ly/NCMgroups to sign up!
We’ve got you. @@caregiveraction.bsky.social is hosting a series of webinars for ALL caregivers, all month long.
VISIT bit.ly/NCMgroups to sign up!
Family caregivers are a diverse group, but they all have one thing in common—they push every day through exhaustion, heartbreak, and hope.
For them, #ProgressisPersonal.
For them, #ProgressisPersonal.
November 4, 2025 at 4:11 PM
Family caregivers are a diverse group, but they all have one thing in common—they push every day through exhaustion, heartbreak, and hope.
For them, #ProgressisPersonal.
For them, #ProgressisPersonal.
Community, meet Carmen! She is a mother, lover of music, and was a caregiver to her husband, Walter, until he passed from ALS.
Watch this space for her story & VISIT bit.ly/ProgressisPersonal to learn more about what caregiving looks like for those impacted by ALS. #ProgressisPersonal
Watch this space for her story & VISIT bit.ly/ProgressisPersonal to learn more about what caregiving looks like for those impacted by ALS. #ProgressisPersonal
November 4, 2025 at 1:54 PM
Community, meet Carmen! She is a mother, lover of music, and was a caregiver to her husband, Walter, until he passed from ALS.
Watch this space for her story & VISIT bit.ly/ProgressisPersonal to learn more about what caregiving looks like for those impacted by ALS. #ProgressisPersonal
Watch this space for her story & VISIT bit.ly/ProgressisPersonal to learn more about what caregiving looks like for those impacted by ALS. #ProgressisPersonal
In her book “I Am Maria”, Maria Shriver reflects on her caregiving journey.
Identity, grief, love, heartbreak, healing, and her advocacy for Alzheimer's caregivers are captured in her deeply personal poetry.
Check it out NOW at bit.ly/IAmMaria
#ProgressisPersonal
Identity, grief, love, heartbreak, healing, and her advocacy for Alzheimer's caregivers are captured in her deeply personal poetry.
Check it out NOW at bit.ly/IAmMaria
#ProgressisPersonal
November 3, 2025 at 11:10 PM
In her book “I Am Maria”, Maria Shriver reflects on her caregiving journey.
Identity, grief, love, heartbreak, healing, and her advocacy for Alzheimer's caregivers are captured in her deeply personal poetry.
Check it out NOW at bit.ly/IAmMaria
#ProgressisPersonal
Identity, grief, love, heartbreak, healing, and her advocacy for Alzheimer's caregivers are captured in her deeply personal poetry.
Check it out NOW at bit.ly/IAmMaria
#ProgressisPersonal