If you haven't heard of #MastCellActivationSyndrome - that's not surprising but it is shocking.
This condition is estimated to affect around 20% of the population, yet is missed because it is mistaken for other conditions, many of which it causes or makes worse.
Learn more & join the dots here!
This condition is estimated to affect around 20% of the population, yet is missed because it is mistaken for other conditions, many of which it causes or makes worse.
Learn more & join the dots here!
Have you heard of MCAS? Mast cell activation disorder ? Watch more about symptomatic hypermobility neurodivergence here at @bendybrain.bsky.social you tube channel
youtu.be/Pr2ZFJOYPYw?...
youtu.be/Pr2ZFJOYPYw?...
February 1, 2026 at 5:24 PM
If you haven't heard of #MastCellActivationSyndrome - that's not surprising but it is shocking.
This condition is estimated to affect around 20% of the population, yet is missed because it is mistaken for other conditions, many of which it causes or makes worse.
Learn more & join the dots here!
This condition is estimated to affect around 20% of the population, yet is missed because it is mistaken for other conditions, many of which it causes or makes worse.
Learn more & join the dots here!
Daily dinner. I'm lucky it's delicious! Sweet potato and chicken. Grateful to have it not give me anaphylaxis 🙌
#mcas #mastcellactivationsyndrome #mecfs #disablednerd
#mcas #mastcellactivationsyndrome #mecfs #disablednerd
January 11, 2026 at 2:39 AM
Daily dinner. I'm lucky it's delicious! Sweet potato and chicken. Grateful to have it not give me anaphylaxis 🙌
#mcas #mastcellactivationsyndrome #mecfs #disablednerd
#mcas #mastcellactivationsyndrome #mecfs #disablednerd
so…
not only do I certainly have #ME/CFS triggered by second hand cigarette smoke, but I’m pretty sure its the condition which got me started in my medical journey before I was “diagnosed” with #hypermobileEhlersDanlosSyndrome, #PosturalOrthostaticTachicardiasyndrome, and #MastCellActivationSyndrome
not only do I certainly have #ME/CFS triggered by second hand cigarette smoke, but I’m pretty sure its the condition which got me started in my medical journey before I was “diagnosed” with #hypermobileEhlersDanlosSyndrome, #PosturalOrthostaticTachicardiasyndrome, and #MastCellActivationSyndrome
December 28, 2025 at 11:02 PM
so…
not only do I certainly have #ME/CFS triggered by second hand cigarette smoke, but I’m pretty sure its the condition which got me started in my medical journey before I was “diagnosed” with #hypermobileEhlersDanlosSyndrome, #PosturalOrthostaticTachicardiasyndrome, and #MastCellActivationSyndrome
not only do I certainly have #ME/CFS triggered by second hand cigarette smoke, but I’m pretty sure its the condition which got me started in my medical journey before I was “diagnosed” with #hypermobileEhlersDanlosSyndrome, #PosturalOrthostaticTachicardiasyndrome, and #MastCellActivationSyndrome
'Return to the Roots' captures a feeling #songlyrics #behindthesong #producer #mastcellactivationsyndrome #loveyourself #therapy ##trumpettok #multiinstrumentalist #roots #songwriting #tourlife #austrialia #europe #northamerica #bts #record #EP #stream #allplatforms #repost #global #trend #explore
December 26, 2025 at 10:05 AM
'Return to the Roots' captures a feeling #songlyrics #behindthesong #producer #mastcellactivationsyndrome #loveyourself #therapy ##trumpettok #multiinstrumentalist #roots #songwriting #tourlife #austrialia #europe #northamerica #bts #record #EP #stream #allplatforms #repost #global #trend #explore
Part 3 of 3: Mast Cell (MCAS) testing, diagnosis and treatments.
#mastcellactivationsyndrome #mcas #mastcell #mastcellactivationdisorder #Cipro #Ciprofloxacin #floxed #educationalpurposes #educational #informational #MedicalTesting #medicaldiagnosis #medicaltreatment
#mastcellactivationsyndrome #mcas #mastcell #mastcellactivationdisorder #Cipro #Ciprofloxacin #floxed #educationalpurposes #educational #informational #MedicalTesting #medicaldiagnosis #medicaltreatment
December 11, 2025 at 1:03 PM
Part 3 of 3: Mast Cell (MCAS) testing, diagnosis and treatments.
#mastcellactivationsyndrome #mcas #mastcell #mastcellactivationdisorder #Cipro #Ciprofloxacin #floxed #educationalpurposes #educational #informational #MedicalTesting #medicaldiagnosis #medicaltreatment
#mastcellactivationsyndrome #mcas #mastcell #mastcellactivationdisorder #Cipro #Ciprofloxacin #floxed #educationalpurposes #educational #informational #MedicalTesting #medicaldiagnosis #medicaltreatment
Part 2 of 3: Mast Cell (MCAS) testing, diagnosis and treatments.
#mastcellactivationsyndrome #mcas #mastcell #mastcellactivationdisorder #Cipro #Ciprofloxacin #floxed #educationalpurposes #educational #informational #MedicalTesting #medicaldiagnosis #medicaltreatment
#mastcellactivationsyndrome #mcas #mastcell #mastcellactivationdisorder #Cipro #Ciprofloxacin #floxed #educationalpurposes #educational #informational #MedicalTesting #medicaldiagnosis #medicaltreatment
December 10, 2025 at 1:22 PM
Part 2 of 3: Mast Cell (MCAS) testing, diagnosis and treatments.
#mastcellactivationsyndrome #mcas #mastcell #mastcellactivationdisorder #Cipro #Ciprofloxacin #floxed #educationalpurposes #educational #informational #MedicalTesting #medicaldiagnosis #medicaltreatment
#mastcellactivationsyndrome #mcas #mastcell #mastcellactivationdisorder #Cipro #Ciprofloxacin #floxed #educationalpurposes #educational #informational #MedicalTesting #medicaldiagnosis #medicaltreatment
Part 1 of 3: Mast Cell (MCAS) testing, diagnosis and treatments.
#mastcellactivationsyndrome #mcas #mastcell #mastcellactivationdisorder #Cipro #Ciprofloxacin #floxed #educationalpurposes #educational #informational #MedicalTesting #medicaldiagnosis #medicaltreatment
#mastcellactivationsyndrome #mcas #mastcell #mastcellactivationdisorder #Cipro #Ciprofloxacin #floxed #educationalpurposes #educational #informational #MedicalTesting #medicaldiagnosis #medicaltreatment
December 9, 2025 at 1:24 PM
Part 1 of 3: Mast Cell (MCAS) testing, diagnosis and treatments.
#mastcellactivationsyndrome #mcas #mastcell #mastcellactivationdisorder #Cipro #Ciprofloxacin #floxed #educationalpurposes #educational #informational #MedicalTesting #medicaldiagnosis #medicaltreatment
#mastcellactivationsyndrome #mcas #mastcell #mastcellactivationdisorder #Cipro #Ciprofloxacin #floxed #educationalpurposes #educational #informational #MedicalTesting #medicaldiagnosis #medicaltreatment
For anyone out there that has MCAS so bad and reacts to even water, this video is for you. Hope it helps.
youtu.be/MeksL_AvboQ?...
#mcas #mastcellactivationsyndrome #mastcellactivationdisorder #mastcell #Ciprofloxacin #Cipro #allergies #educational
youtu.be/MeksL_AvboQ?...
#mcas #mastcellactivationsyndrome #mastcellactivationdisorder #mastcell #Ciprofloxacin #Cipro #allergies #educational
I have MCAS. Why do I react to water?
YouTube video by Talia Smith - Finding Vulneraries
youtu.be
December 1, 2025 at 1:37 PM
For anyone out there that has MCAS so bad and reacts to even water, this video is for you. Hope it helps.
youtu.be/MeksL_AvboQ?...
#mcas #mastcellactivationsyndrome #mastcellactivationdisorder #mastcell #Ciprofloxacin #Cipro #allergies #educational
youtu.be/MeksL_AvboQ?...
#mcas #mastcellactivationsyndrome #mastcellactivationdisorder #mastcell #Ciprofloxacin #Cipro #allergies #educational
hmm. eipäs välttämättä ollutkaan kaura-allergia. (ainakaan pelkästään)
aika monta osumaa. huoh
aika monta osumaa. huoh
November 29, 2025 at 12:20 PM
hmm. eipäs välttämättä ollutkaan kaura-allergia. (ainakaan pelkästään)
aika monta osumaa. huoh
aika monta osumaa. huoh
Symptoms of
#MastCellActivationSyndrome
✔️ Skin rash or flushing
✔️ Itching or hives
✔️ Runny nose, sneezing,
congestion, or watery eyes
✔️ Abdominal cramping, nausea, or vomiting
✔️ Diarrhea or constipation
✔️ Low blood pressure, dizziness, or fainting
...
Crwdit: Not Just Bendy
#MCAS #POTS #EDS
#MastCellActivationSyndrome
✔️ Skin rash or flushing
✔️ Itching or hives
✔️ Runny nose, sneezing,
congestion, or watery eyes
✔️ Abdominal cramping, nausea, or vomiting
✔️ Diarrhea or constipation
✔️ Low blood pressure, dizziness, or fainting
...
Crwdit: Not Just Bendy
#MCAS #POTS #EDS
November 18, 2025 at 4:19 AM
Symptoms of
#MastCellActivationSyndrome
✔️ Skin rash or flushing
✔️ Itching or hives
✔️ Runny nose, sneezing,
congestion, or watery eyes
✔️ Abdominal cramping, nausea, or vomiting
✔️ Diarrhea or constipation
✔️ Low blood pressure, dizziness, or fainting
...
Crwdit: Not Just Bendy
#MCAS #POTS #EDS
#MastCellActivationSyndrome
✔️ Skin rash or flushing
✔️ Itching or hives
✔️ Runny nose, sneezing,
congestion, or watery eyes
✔️ Abdominal cramping, nausea, or vomiting
✔️ Diarrhea or constipation
✔️ Low blood pressure, dizziness, or fainting
...
Crwdit: Not Just Bendy
#MCAS #POTS #EDS
MCAS is definitely one thing, and that’s confusing! #MCAS #mastcellactivationsyndrome
October 20, 2025 at 7:16 PM
MCAS is definitely one thing, and that’s confusing! #MCAS #mastcellactivationsyndrome
Today is Mast Cell Awareness Day, and Doctor Clair talks us through what mast cells are, root causes, and what you can do about them.
Watch now: youtu.be/r_UClhQBtRM?... #mcas #mastcellactivationsyndrome
Watch now: youtu.be/r_UClhQBtRM?... #mcas #mastcellactivationsyndrome
Mast Cell Activation: Symptoms, Root Causes, and What You Can Do About It
YouTube video by Doctor Clair
youtu.be
October 20, 2025 at 3:33 PM
Today is Mast Cell Awareness Day, and Doctor Clair talks us through what mast cells are, root causes, and what you can do about them.
Watch now: youtu.be/r_UClhQBtRM?... #mcas #mastcellactivationsyndrome
Watch now: youtu.be/r_UClhQBtRM?... #mcas #mastcellactivationsyndrome
For our #autism co-occurring condition topic today: #MastCellActivationSyndrome ( #MCAS). To start simple, mast cells (MC) are a part of the immune system that respond to foreign entities in the body. A necessary part of survival, MCs are responsible for allergic reactions. 1/8
September 8, 2025 at 11:34 AM
For our #autism co-occurring condition topic today: #MastCellActivationSyndrome ( #MCAS). To start simple, mast cells (MC) are a part of the immune system that respond to foreign entities in the body. A necessary part of survival, MCs are responsible for allergic reactions. 1/8
If all you do today is survive, that’s ok, I’ll be doing the same. ❤️🩹🫂#survival #giveyourselfgrace #mentalhealth #chronicillness #healingjourney #Cipro #Ciprofloxacin #floxed #selflovejourney #fqtoxicity #mcas #mastcellactivationsyndrome
September 5, 2025 at 12:37 PM
If all you do today is survive, that’s ok, I’ll be doing the same. ❤️🩹🫂#survival #giveyourselfgrace #mentalhealth #chronicillness #healingjourney #Cipro #Ciprofloxacin #floxed #selflovejourney #fqtoxicity #mcas #mastcellactivationsyndrome
was already strong, I didn’t need to be stronger. #lifechanging #cipro #ciprofloxacin #floxed #mcas #mastcellactivationsyndrome #trauma #healingjourney #neverbethesame #beforeandafter #fxtoxicity
August 31, 2025 at 12:41 PM
was already strong, I didn’t need to be stronger. #lifechanging #cipro #ciprofloxacin #floxed #mcas #mastcellactivationsyndrome #trauma #healingjourney #neverbethesame #beforeandafter #fxtoxicity
When your body decides to turn you into a medical WTF!?!? Let's just say I've been keeping the specialists busy. Some days, you just gotta laugh at the ridiculousness of it all.
#chronicillness #mastcellactivationsyndrome #hae #hereditaryangioedema #cidp #CARPA #fuchs
#chronicillness #mastcellactivationsyndrome #hae #hereditaryangioedema #cidp #CARPA #fuchs
August 26, 2025 at 12:06 PM
When your body decides to turn you into a medical WTF!?!? Let's just say I've been keeping the specialists busy. Some days, you just gotta laugh at the ridiculousness of it all.
#chronicillness #mastcellactivationsyndrome #hae #hereditaryangioedema #cidp #CARPA #fuchs
#chronicillness #mastcellactivationsyndrome #hae #hereditaryangioedema #cidp #CARPA #fuchs
You’d be surprised who’s watching your journey & being inspired by it. #dontquit #healingjourney #cipro #ciprofloxacin #floxed #mystory #inspiration #selflove #fqtoxicity #mcas #mastcellactivationsyndrome
August 22, 2025 at 10:42 PM
You’d be surprised who’s watching your journey & being inspired by it. #dontquit #healingjourney #cipro #ciprofloxacin #floxed #mystory #inspiration #selflove #fqtoxicity #mcas #mastcellactivationsyndrome
When your chronic illnessness and neuro disorder decide to throw a party.
#chronicillness
#chronicfatigue #raredisease #hereditaryangioedema #mastcellactivationsyndrome #mcas #cidp #neurologicaldisease #ehlersdanlossyndrome #carpa #ivinfusion #ivig
#chronicillness
#chronicfatigue #raredisease #hereditaryangioedema #mastcellactivationsyndrome #mcas #cidp #neurologicaldisease #ehlersdanlossyndrome #carpa #ivinfusion #ivig
August 21, 2025 at 5:58 AM
When your chronic illnessness and neuro disorder decide to throw a party.
#chronicillness
#chronicfatigue #raredisease #hereditaryangioedema #mastcellactivationsyndrome #mcas #cidp #neurologicaldisease #ehlersdanlossyndrome #carpa #ivinfusion #ivig
#chronicillness
#chronicfatigue #raredisease #hereditaryangioedema #mastcellactivationsyndrome #mcas #cidp #neurologicaldisease #ehlersdanlossyndrome #carpa #ivinfusion #ivig
#MASTCELLACTIVATIONSYNDROME Recurrent episodes of anaphylaxis caused by inappropriate release of mast cell contents
MAST CELLS
White blood cells that reside in connective tissue & release inflammatory mediators (eg: histamine) in response to allergens binding to IgE receptors on cell surface #MCAS
MAST CELLS
White blood cells that reside in connective tissue & release inflammatory mediators (eg: histamine) in response to allergens binding to IgE receptors on cell surface #MCAS
August 7, 2025 at 4:03 PM
#MASTCELLACTIVATIONSYNDROME Recurrent episodes of anaphylaxis caused by inappropriate release of mast cell contents
MAST CELLS
White blood cells that reside in connective tissue & release inflammatory mediators (eg: histamine) in response to allergens binding to IgE receptors on cell surface #MCAS
MAST CELLS
White blood cells that reside in connective tissue & release inflammatory mediators (eg: histamine) in response to allergens binding to IgE receptors on cell surface #MCAS
“Never bet against Occam is written by Dr Lawrence Afrin, one of the world’s leading #doctors on the condition #MastCellActivationSyndrome ( #MCAS)..packed with detail, which you can dip in and out of as needed.”: buff.ly/CLwM9as
via @lowhistamine.bsky.social
#spoonie #BookReviews
via @lowhistamine.bsky.social
#spoonie #BookReviews
Helpful Books on Chronic Illness - Through The Fibro Fog
When I was first diagnosed with chronic migraine, I didn’t have much familiarity with the healthcare system or know of any resources to turn to for advice. I simply went along with my doctors. In…
buff.ly
August 4, 2025 at 11:30 PM
“Never bet against Occam is written by Dr Lawrence Afrin, one of the world’s leading #doctors on the condition #MastCellActivationSyndrome ( #MCAS)..packed with detail, which you can dip in and out of as needed.”: buff.ly/CLwM9as
via @lowhistamine.bsky.social
#spoonie #BookReviews
via @lowhistamine.bsky.social
#spoonie #BookReviews
#MastCellActivationSyndrome #MCAS gets deserved attention: The mysterious condition making millions sick — and the scientist trying to prove it’s real - WIRED
July 30, 2025 at 5:05 PM
#MastCellActivationSyndrome #MCAS gets deserved attention: The mysterious condition making millions sick — and the scientist trying to prove it’s real - WIRED
If you live with #PosturalOrthostaticTachycardiaSyndrome, #Gastroparesis, #MastCellActivationSyndrome, #EhlersDanlosSyndrome, or #EosinophilicEsophagitis… then this listing is for you: www.etsy.com/listing/1714...
All designs are 20% off until July 31st!
#POTSie #Tubie #HEDS #SwallowingDisorder
All designs are 20% off until July 31st!
#POTSie #Tubie #HEDS #SwallowingDisorder
www.etsy.com
July 29, 2025 at 2:18 AM
If you live with #PosturalOrthostaticTachycardiaSyndrome, #Gastroparesis, #MastCellActivationSyndrome, #EhlersDanlosSyndrome, or #EosinophilicEsophagitis… then this listing is for you: www.etsy.com/listing/1714...
All designs are 20% off until July 31st!
#POTSie #Tubie #HEDS #SwallowingDisorder
All designs are 20% off until July 31st!
#POTSie #Tubie #HEDS #SwallowingDisorder