Lucy K Wills
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Lucy K Wills
@lucywills.bsky.social
310 followers 480 following 35 posts
Service Design / Inclusion / Healthcare / Art

Founder https://www.getyourhealthheard.com/
Strategist www.globefox.com
Designer http://seraglia.com
RSA Fellow #ActuallyAutistic

Full Stack Human

#EhlersDanlos #MCAS #PoTS #MECFS #SomaDiversity
Posts Replies Media Videos
Too many health mysteries & not enough answers?

Find out how your #doctor can do more to help you with the FREE #GetYourHealthHeard checklist.

Get the inside track on changes in #healthcare & what that means for you & your health with our new book!

I wrote it for you!

www.getyourhealthheard.com
Health Heard
Living with health problems can be difficult. Sharing your concerns doesn’t have to be! #GetYourHealthHeard
www.getyourhealthheard.com
February 1, 2026 at 5:25 PM
If you haven't heard of #MastCellActivationSyndrome - that's not surprising but it is shocking.

This condition is estimated to affect around 20% of the population, yet is missed because it is mistaken for other conditions, many of which it causes or makes worse.

Learn more & join the dots here!
sedsconnective.org SEDSConnective @sedsconnective.org · 15d
Have you heard of MCAS? Mast cell activation disorder ? Watch more about symptomatic hypermobility neurodivergence here at @bendybrain.bsky.social you tube channel

youtu.be/Pr2ZFJOYPYw?...
February 1, 2026 at 5:24 PM
Reposted by Lucy K Wills
mrrichardnorris.bsky.social
My music memoir Strange Things Are Happening is out in paperback on the 12th Feb, and we are celebrating with a free party upstairs at The Social on THURS 19TH FEB. Dj action from Chris Camm and James Endeacott. Come on down! From 7pm 🙂
January 30, 2026 at 12:30 PM
My 1st non-fiction eBook, Get Your Health Heard, is out now!

A practical in-depth guide to UK health and care - and how our voices help new systems work better for everyone.

healthheard.com/books/get-yo...

#healthcare #NHS #Design #Accessibility #AI #independentBooks #SelfHelp #LivedExperience
November 3, 2025 at 7:40 PM
Reposted by Lucy K Wills
variola13.bsky.social
If only people worried more about the violence against women and girls as they do about who is allowed to use what toilet.

It’s been accepted as a part of everyday life, more news stories of women murdered,raped, abused at the hands of men. People are desensitised because it happens so often.
robinince.bsky.social Robin Ince @robinince.bsky.social · Apr 17
Putting the trans community front and centre of the problems of the world has certainly taken the heat off cis male predators - no wonder so many of them are so supportive of the anti trans movement
robinince.bsky.social Robin Ince @robinince.bsky.social · Apr 16
A message for everyone but in particular for trans and non binary followers - let us fight against dehumanisation
April 17, 2025 at 12:57 PM
Really useful summary of #NeuroDivergent related terms from @SEDSconnective.org

Language matters, especially when we are being faced with SO MUCH misinformation and bias.

Also, please capitalise your hashtags and user tags for people with accessibility needs.

Thank you 🙏

#ActuallyAutistic
sedsconnective.org SEDSConnective @sedsconnective.org · Apr 17
Language matters - ♾️
Note: You can use neurominority instead of neurodivergent same for neuromajority for neurotypical
Note: It is likely that our connective tissue differs in specified neurodivergent groups like Autism ADHD Dyspraxia, Dyslexia, Dyscalculia TS plus more.
An infographic from SEDSConnective explaining key terms related to neurodivergence set against a white background with a gradient border on the left in yellow, blue, orange and pink. Terms and definitions include: Neurotypical: Brains that function like the majority. Neurodivergence: Any brain that functions differently from the neurotypical. Neurodiverse: A group that includes both neurotypical and neurodivergent people. Neurodiversity: The range of human brain types; no one brain is neurodiverse. Neurodiversity Movement: A disability rights movement promoting acceptance and inclusion for those with neurological differences. Neurodiversity Paradigm: The belief that all brains have equal value, and neurological differences include both strengths and weaknesses. Neurodivergence Affirming: Language that supports and accepts different ways of thinking, learning, and behaving. Colorful text highlights key terms and the SEDSConnective logo appears in the bottom left corner.
April 17, 2025 at 11:59 AM
Yesterday's ruling on #women and #genderidentity is both wrong and right - and has answered the wrong question.

Of course being a woman is defined by biological sex. But that is not the only way to be a woman. And that does not adequately represent gender expression either.
April 17, 2025 at 11:54 AM
RIP David.

Thank you for making the normal seem so weird and the weird seem so normal.

And for your quiet wisdom.

#DavidLynch #Obituary #filmmaking #storytelling #meditation #cultfilms
Photograph of the film director, David Lynch. He is sitting facing us shown from the shoulders upwards. He is wearing a black shirt and is leaning slightly in towards the camera. His face is lit to show the lines and experience. His hair is short at the sides and longer on top. His facial expression is serious, but he also looks approachable. There appears to be a wall behind him with texture. It's grey.
January 17, 2025 at 9:57 AM
Reposted by Lucy K Wills
dwagner.bsky.social
There have been so many braindead, obviously wrong posts getting amplified on social media about the L.A. fires. Please get your information from trusted news sources and reporters, like @laist.com and @yusramf.bsky.social:
As fires ravage the LA region, so too are conspiracy theories and misinformation
Let us help you separate fact from fiction.
laist.com
January 14, 2025 at 2:49 AM
Reposted by Lucy K Wills
democracystorm.bsky.social
PSA for 2025 and beyond:
If you know someone with a chronic illness, don’t say any of these things to them.
#StormTipOfTheDay
Bingo card with unhelpful comments about others’ chronic illness.
December 31, 2024 at 9:47 PM
I had hope that this post would be somewhat less relevant by now, however...

* Sigh *
 Lucy K Wills @lucywills.bsky.social · Sep 29
It's an open secret that some folks believe there's another notional World To Come tm so trashing this one to extract 'value' is just fine.. To others, we are mere collateral, resource, to be exploited at will. Jeesh, humans.
November 14, 2024 at 7:56 AM
Bluesky now has over 10 million users, and I was #2,020,071! :)
A virtual certificate with text "Celebrating 10M users on Bluesky, #2,020,071, Lucy K Wills ‪@lucywills.bsky.social‬, joined on Nov 16, 2023"
September 23, 2024 at 8:04 AM
Is current digital health accessible & inclusive enough for people with rare & complex health issues? Our research says no & we need to do more.

I'm working to fix this, if you are too, lets connect!

#digitalhealth #startups #accessibility #ehlersdanlos #mcas #pots #chronicillness #healthheard
3.5 million people in the UK are affected by 'rare' diseases, and 7 million more live with a disability. Some of us have both! Living with health issues can be really difficult Sharing your concerns doesn’t have to be #Get Your Health Heard
September 5, 2024 at 10:13 AM