If you would like to know more about our HEER (PPIE) research group please visit:
🔗 www.leedsandyorkpft.nhs.uk/research/for...
We believe this group is an invaluable resource to ensure the perspectives of lay people on research and it's related documents
#MentalHealth #ExpertsByExperience
🔗 www.leedsandyorkpft.nhs.uk/research/for...
We believe this group is an invaluable resource to ensure the perspectives of lay people on research and it's related documents
#MentalHealth #ExpertsByExperience
For Researchers - Research
Our Research and Development team works with Trust staff and professionals from other organisations to help support their research projects.
www.leedsandyorkpft.nhs.uk
February 9, 2026 at 12:19 PM
If you would like to know more about our HEER (PPIE) research group please visit:
🔗 www.leedsandyorkpft.nhs.uk/research/for...
We believe this group is an invaluable resource to ensure the perspectives of lay people on research and it's related documents
#MentalHealth #ExpertsByExperience
🔗 www.leedsandyorkpft.nhs.uk/research/for...
We believe this group is an invaluable resource to ensure the perspectives of lay people on research and it's related documents
#MentalHealth #ExpertsByExperience
Some of the key points from the care leavers brief - will be linked in our stories and highlight!
#youngpeople #livingassesments #expertsbyexperience #mediarepresentation
www.ncb.org.uk/sites/defaul...
#youngpeople #livingassesments #expertsbyexperience #mediarepresentation
www.ncb.org.uk/sites/defaul...
February 11, 2026 at 4:28 PM
Some of the key points from the care leavers brief - will be linked in our stories and highlight!
#youngpeople #livingassesments #expertsbyexperience #mediarepresentation
www.ncb.org.uk/sites/defaul...
#youngpeople #livingassesments #expertsbyexperience #mediarepresentation
www.ncb.org.uk/sites/defaul...
An absolute delight to be part of the team and privileged to have been part of their journey. They arrived 3 days ago as strangers and left as friends.
#Classof25
#WAVEfamily
#expertsbyexperience
#traumainformed
#traumaeducated
#Yearofgratitude2025
#Classof25
#WAVEfamily
#expertsbyexperience
#traumainformed
#traumaeducated
#Yearofgratitude2025
March 11, 2025 at 10:17 PM
An absolute delight to be part of the team and privileged to have been part of their journey. They arrived 3 days ago as strangers and left as friends.
#Classof25
#WAVEfamily
#expertsbyexperience
#traumainformed
#traumaeducated
#Yearofgratitude2025
#Classof25
#WAVEfamily
#expertsbyexperience
#traumainformed
#traumaeducated
#Yearofgratitude2025
Are you 16-25 and have you lived in a children’s home? NCB @kingstonuniversity.bsky.social & @ofstednews.bsky.social funded by NIH Research are doing research to help improve placements and we want to hear from you. Sign up buff.ly/x5rljxA #YouthVoice #ChildrensHomes #SocialCare #ExpertsByExperience
August 15, 2025 at 10:25 AM
Are you 16-25 and have you lived in a children’s home? NCB @kingstonuniversity.bsky.social & @ofstednews.bsky.social funded by NIH Research are doing research to help improve placements and we want to hear from you. Sign up buff.ly/x5rljxA #YouthVoice #ChildrensHomes #SocialCare #ExpertsByExperience
How can working with #ExpertsbyExperience transform the perspective of #Academics? In today's article, Research Assistant Lauren Low talks about the RE-STAR research programme.
Read now:
www.inspirethemind.org/post/my-thin...
Read now:
www.inspirethemind.org/post/my-thin...
"My Thinking Has Shifted Completely"
How Working with Experts by Experience Transforms Academics' PerspectivesResearchers working with “experts by experience” often talk about the benefits of this for research outputs, such as results th...
www.inspirethemind.org
January 29, 2025 at 4:22 PM
How can working with #ExpertsbyExperience transform the perspective of #Academics? In today's article, Research Assistant Lauren Low talks about the RE-STAR research programme.
Read now:
www.inspirethemind.org/post/my-thin...
Read now:
www.inspirethemind.org/post/my-thin...
My first teaching session (ever) for our Health Sciences PhD students on #PPIE with Rebecca O'Brien, our #co-design partners and #expertsbyexperience. Big thanks for sharing their personal experiences of research including all things inclusivity, practicality and making sure we provide food!
April 2, 2025 at 2:59 PM
My first teaching session (ever) for our Health Sciences PhD students on #PPIE with Rebecca O'Brien, our #co-design partners and #expertsbyexperience. Big thanks for sharing their personal experiences of research including all things inclusivity, practicality and making sure we provide food!
“abolitionist politics must be informed and led by the individuals most familiar with carceral structures:...” https://theappeal.org/nia-wilson/ #UserVoice #ExpertsByExperience
Against Innocence
theappeal.org
November 25, 2024 at 8:01 AM
“abolitionist politics must be informed and led by the individuals most familiar with carceral structures:...” https://theappeal.org/nia-wilson/ #UserVoice #ExpertsByExperience
May 20, 2025 at 10:28 PM
@MentalHealthCop says for #policing to be effective where #mentalhealth concerned, we need to involve #ServiceUsers to inform practice #ExpertsByExperience #MentalHealthPolicing
November 25, 2024 at 8:01 AM
@MentalHealthCop says for #policing to be effective where #mentalhealth concerned, we need to involve #ServiceUsers to inform practice #ExpertsByExperience #MentalHealthPolicing
Patient and Public Involvement and Engagement (PPIE) is a vital part of the work we do. To show our appreciation, we have created a page on our website to publicly thank everyone involved in our PPIE work this year: tinyurl.com/PPIE-thanks
#PPIE #PPI #Acknowldgement #ThankYou #braininjury
#PPIE #PPI #Acknowldgement #ThankYou #braininjury
Thanks to our Public Contributors - NIHR Brain Injury HRC
The researchers we work with really value the input from those with lived experience. These thoughts and opinions help direct research and bring forward ideas which may have otherwise been overlooked....
hrc-braininjury.nihr.ac.uk
April 16, 2025 at 8:45 PM
So much research happens about us without us.
@autgeek.bsky.social and I co-wrote this piece for @isrfoundation.bsky.social on why lived experience needs to be central to research, not an afterthought.
isrf.org/blog/why-is-...
#ResearchWithUs #ExpertsByExperience #Inclusion
@autgeek.bsky.social and I co-wrote this piece for @isrfoundation.bsky.social on why lived experience needs to be central to research, not an afterthought.
isrf.org/blog/why-is-...
#ResearchWithUs #ExpertsByExperience #Inclusion
Why Is There So Much Research About Us Without Us?
isrf.org
November 7, 2025 at 10:00 AM
So much research happens about us without us.
@autgeek.bsky.social and I co-wrote this piece for @isrfoundation.bsky.social on why lived experience needs to be central to research, not an afterthought.
isrf.org/blog/why-is-...
#ResearchWithUs #ExpertsByExperience #Inclusion
@autgeek.bsky.social and I co-wrote this piece for @isrfoundation.bsky.social on why lived experience needs to be central to research, not an afterthought.
isrf.org/blog/why-is-...
#ResearchWithUs #ExpertsByExperience #Inclusion
Looking forward to meeting up with the @uservoiceorg crew in Birmingham this week to hear about their #PeerToPeer work in prisons and in the community, supporting post-prison transitions @errolpcole #UserVoice #ExpertsByExperience
November 25, 2024 at 10:35 AM
Looking forward to meeting up with the @uservoiceorg crew in Birmingham this week to hear about their #PeerToPeer work in prisons and in the community, supporting post-prison transitions @errolpcole #UserVoice #ExpertsByExperience
Proud to see our #Swale #Pathfinders dementia engagement & empowerment group in the latest #DEEP Newsletter with their review of 2024. If you want to make sense of dementia, talk to people living with it. #ChallengeStereotypes #ExpertsByExperience
December 27, 2024 at 11:58 AM
Proud to see our #Swale #Pathfinders dementia engagement & empowerment group in the latest #DEEP Newsletter with their review of 2024. If you want to make sense of dementia, talk to people living with it. #ChallengeStereotypes #ExpertsByExperience
We are excited to share highlights from our first "Train the Trainer" session at Lillias Gillies House, part of our Experts by Experience (EbE) programme supported by the National Lottery Community Fund. 👉 bit.ly/44uYQ78
#expertsbyexperience #mentalhealth #livedexperience #training #croydon
#expertsbyexperience #mentalhealth #livedexperience #training #croydon
Highlights from our first Experts by Experience "Train the Trainer" session at Lillias Gillies House
Earlier this month, four staff and four residents from our Lilias Gillies House, our CQC-regulated high-support residential recovery community in Croydon, attended our first Experts by Experience 'Tra...
bit.ly
June 24, 2025 at 12:55 PM
We are excited to share highlights from our first "Train the Trainer" session at Lillias Gillies House, part of our Experts by Experience (EbE) programme supported by the National Lottery Community Fund. 👉 bit.ly/44uYQ78
#expertsbyexperience #mentalhealth #livedexperience #training #croydon
#expertsbyexperience #mentalhealth #livedexperience #training #croydon
Four of our #ExpertsByExperience focus on a different aspect of transport each month, and have already reviewed trains, buses, taxis, community transport, and hire vehicles. #LearningDisabilityWeek2025 (2/7)
June 18, 2025 at 11:18 AM
Four of our #ExpertsByExperience focus on a different aspect of transport each month, and have already reviewed trains, buses, taxis, community transport, and hire vehicles. #LearningDisabilityWeek2025 (2/7)
At aves, we work with partners worldwide to embed lived experience in leadership, governance, and design.
We understand that systems built without us will never truly serve us. #ExpertsByExperience #NothingAboutUsWithoutUs
We understand that systems built without us will never truly serve us. #ExpertsByExperience #NothingAboutUsWithoutUs
November 21, 2025 at 9:00 AM
At aves, we work with partners worldwide to embed lived experience in leadership, governance, and design.
We understand that systems built without us will never truly serve us. #ExpertsByExperience #NothingAboutUsWithoutUs
We understand that systems built without us will never truly serve us. #ExpertsByExperience #NothingAboutUsWithoutUs
Mental health is shaped by where we live, work, and belong.
Exclusion and insecurity harm wellbeing. Supportive environments are not a privilege.
They are essential.
#MentalHealthEquity #SocialDeterminants #ExpertsByExperience
Exclusion and insecurity harm wellbeing. Supportive environments are not a privilege.
They are essential.
#MentalHealthEquity #SocialDeterminants #ExpertsByExperience
January 12, 2026 at 9:00 AM
Mental health is shaped by where we live, work, and belong.
Exclusion and insecurity harm wellbeing. Supportive environments are not a privilege.
They are essential.
#MentalHealthEquity #SocialDeterminants #ExpertsByExperience
Exclusion and insecurity harm wellbeing. Supportive environments are not a privilege.
They are essential.
#MentalHealthEquity #SocialDeterminants #ExpertsByExperience
#Coproduction #PPIE #LivedExperience #ExpertsByExperience #PatientEngagement #PPI #ConsumerInvolvement
Your regular reminder that people who are labeled 'patients' by various systems also have lives, friends, families, skills and expertise, and so on... #PatientEngagement #PPI #ConsumerInvolvement
April 18, 2025 at 6:12 PM
The best research comes from real people 💛
Families and teachers ARE their research team when creating childhood cancer resources.
Lived experience > academic theory
#ExpertsByExperience #Hopecam #Livestrong #MyBraveFriend #ListenFirst #LivedExperience #ChildhoodCancerAwareness #Schoolutions
Families and teachers ARE their research team when creating childhood cancer resources.
Lived experience > academic theory
#ExpertsByExperience #Hopecam #Livestrong #MyBraveFriend #ListenFirst #LivedExperience #ChildhoodCancerAwareness #Schoolutions
September 9, 2025 at 7:27 AM
The best research comes from real people 💛
Families and teachers ARE their research team when creating childhood cancer resources.
Lived experience > academic theory
#ExpertsByExperience #Hopecam #Livestrong #MyBraveFriend #ListenFirst #LivedExperience #ChildhoodCancerAwareness #Schoolutions
Families and teachers ARE their research team when creating childhood cancer resources.
Lived experience > academic theory
#ExpertsByExperience #Hopecam #Livestrong #MyBraveFriend #ListenFirst #LivedExperience #ChildhoodCancerAwareness #Schoolutions
If you would like to know more about our HEER (PPIE) research group please visit:
🔗 www.leedsandyorkpft.nhs.uk/research/for...
We believe this group is an invaluable resource to ensure the perspectives of lay people on research and it's related documents
#MentalHealth #ExpertsByExperience
🔗 www.leedsandyorkpft.nhs.uk/research/for...
We believe this group is an invaluable resource to ensure the perspectives of lay people on research and it's related documents
#MentalHealth #ExpertsByExperience
Get Involved - the HEER group - Research
The Help from Experts by Experience for Researchers (HEER) group is a well-established service user and carer group helping to shape research at LYPFT. We are a Patient and Public Involvement (PPI)…
www.leedsandyorkpft.nhs.uk
November 11, 2025 at 12:37 PM
If you would like to know more about our HEER (PPIE) research group please visit:
🔗 www.leedsandyorkpft.nhs.uk/research/for...
We believe this group is an invaluable resource to ensure the perspectives of lay people on research and it's related documents
#MentalHealth #ExpertsByExperience
🔗 www.leedsandyorkpft.nhs.uk/research/for...
We believe this group is an invaluable resource to ensure the perspectives of lay people on research and it's related documents
#MentalHealth #ExpertsByExperience
NEW GUIDANCE 📢 According to LeDeR, respiratory disease - particularly pneumonia and aspiration pneumonia - is one of the biggest causes of death among #autistic people and people with a #LearningDisability. To help take action on early deaths, our #ExpertsByExperience... 1/
March 13, 2025 at 10:46 AM
NEW GUIDANCE 📢 According to LeDeR, respiratory disease - particularly pneumonia and aspiration pneumonia - is one of the biggest causes of death among #autistic people and people with a #LearningDisability. To help take action on early deaths, our #ExpertsByExperience... 1/
NHS Coventry and Warwickshire ICB is asking local people to help shape the future of autism support. Both the 'All Age Autism Strategy' and feedback survey were co-produced with autistic people and their families—including #ExpertsByExperience working on our co-production service: bit.ly/4erZqGk
June 26, 2025 at 10:56 AM
NHS Coventry and Warwickshire ICB is asking local people to help shape the future of autism support. Both the 'All Age Autism Strategy' and feedback survey were co-produced with autistic people and their families—including #ExpertsByExperience working on our co-production service: bit.ly/4erZqGk
In an effort to make briefings more accessible, before posting sum ups, here are some key terms and questions answered. Feel free to put any questions in the comments :)
#youngpeople #childrenhealthandsocialcare #livingassessments #expertsbyexperience #careexperienced
#youngpeople #childrenhealthandsocialcare #livingassessments #expertsbyexperience #careexperienced
February 4, 2026 at 11:32 AM
In an effort to make briefings more accessible, before posting sum ups, here are some key terms and questions answered. Feel free to put any questions in the comments :)
#youngpeople #childrenhealthandsocialcare #livingassessments #expertsbyexperience #careexperienced
#youngpeople #childrenhealthandsocialcare #livingassessments #expertsbyexperience #careexperienced
Join us tomorrow at our Employability Skills Workshop, Led by the Expert-By-Experience Employment Initiative. This workshop is free and open to everyone! www.eventbrite.com/e/rise-lead-...?
#Hiring #LivedExperience #ExpertsByExperience #AdviceSectorJobs #RiseandLead
#Hiring #LivedExperience #ExpertsByExperience #AdviceSectorJobs #RiseandLead
Rise & Lead Fellowship: Employability Skills Workshop
Hear from about employability skills by experts at the Expert by Experience Employment Initiative
www.eventbrite.com
January 14, 2026 at 3:02 PM
Join us tomorrow at our Employability Skills Workshop, Led by the Expert-By-Experience Employment Initiative. This workshop is free and open to everyone! www.eventbrite.com/e/rise-lead-...?
#Hiring #LivedExperience #ExpertsByExperience #AdviceSectorJobs #RiseandLead
#Hiring #LivedExperience #ExpertsByExperience #AdviceSectorJobs #RiseandLead
11/ How does your service or organisation ensure meaningful partnerships with communities?
Let’s discuss how we can make engagement genuine, inclusive, and impactful. #HealthEquity #ExpertsByExperience
Let’s discuss how we can make engagement genuine, inclusive, and impactful. #HealthEquity #ExpertsByExperience
February 15, 2025 at 9:36 AM
11/ How does your service or organisation ensure meaningful partnerships with communities?
Let’s discuss how we can make engagement genuine, inclusive, and impactful. #HealthEquity #ExpertsByExperience
Let’s discuss how we can make engagement genuine, inclusive, and impactful. #HealthEquity #ExpertsByExperience