But relatives have Ehlers-Danlos and a collection of autoimmune disorders
January 22, 2026 at 2:12 AM
But relatives have Ehlers-Danlos and a collection of autoimmune disorders
ehlers danlos syndrome/MCAS/MECFS is SCREAMING and BAWLING your eyes out in genuinely the WORST pain youve ever been in that would send anyone else to their death bed and then a few moments later being back to your baseline and fine like nothing ever happened bc you're so used to it
January 22, 2026 at 2:02 AM
ehlers danlos syndrome/MCAS/MECFS is SCREAMING and BAWLING your eyes out in genuinely the WORST pain youve ever been in that would send anyone else to their death bed and then a few moments later being back to your baseline and fine like nothing ever happened bc you're so used to it
They needed Ehlers (or any other legit Top 6 forward) badly when everyone was healthy. When PLD and a rotating number of other Top 6 guys have been down, the need for a guy like became unquantifiable
January 21, 2026 at 11:16 PM
They needed Ehlers (or any other legit Top 6 forward) badly when everyone was healthy. When PLD and a rotating number of other Top 6 guys have been down, the need for a guy like became unquantifiable
as always, i would prefer the elite playmaker who is not a sex creep, and in retrospect, missing out on nik ehlers ended up hurting very much more than i thought
If the Caps are going to pay premium assets for Panarin, the trade has to happen very soon.
There would be no point in getting him if we couldn’t use the Olympic break to fit him in and ended up so down the standings that we couldn’t climb up.
There would be no point in getting him if we couldn’t use the Olympic break to fit him in and ended up so down the standings that we couldn’t climb up.
January 21, 2026 at 10:30 PM
as always, i would prefer the elite playmaker who is not a sex creep, and in retrospect, missing out on nik ehlers ended up hurting very much more than i thought
Conversely, testosterone results in more water in the tendons and ligaments, resulting in thicker and stiffer tissues. This increased volume has a small growing effect and for some people can improve the symptoms of disorders like hypermobile Ehlers-Danlos syndrome.
January 21, 2026 at 7:50 PM
Conversely, testosterone results in more water in the tendons and ligaments, resulting in thicker and stiffer tissues. This increased volume has a small growing effect and for some people can improve the symptoms of disorders like hypermobile Ehlers-Danlos syndrome.
Creation. Maybe Error is a full glass canon? He can destroy but easily destroyed himself. Hollow bones that bruise with a touch- which coincidentally explains haphephobia. Maybe ehlers danlos? Little hard to come across with purely bones, but what if his fragile flexible bones make for magic
January 21, 2026 at 5:02 PM
Creation. Maybe Error is a full glass canon? He can destroy but easily destroyed himself. Hollow bones that bruise with a touch- which coincidentally explains haphephobia. Maybe ehlers danlos? Little hard to come across with purely bones, but what if his fragile flexible bones make for magic
crease" trend continues, Frederik Andersen would be in line to face the Blackhawks tomorrow night.
Svechnikov - Aho - Jarvis
Hall - Stankoven - Blake
Ehlers - Staal - Martinook
Kotkaniemi - Jankowski - Carrier
Slavin - Chatfield
Miller - Walker
Nikishin - Nystrom
Reilly
Andersen | Bussi (2/2)
Svechnikov - Aho - Jarvis
Hall - Stankoven - Blake
Ehlers - Staal - Martinook
Kotkaniemi - Jankowski - Carrier
Slavin - Chatfield
Miller - Walker
Nikishin - Nystrom
Reilly
Andersen | Bussi (2/2)
January 21, 2026 at 4:13 PM
crease" trend continues, Frederik Andersen would be in line to face the Blackhawks tomorrow night.
Svechnikov - Aho - Jarvis
Hall - Stankoven - Blake
Ehlers - Staal - Martinook
Kotkaniemi - Jankowski - Carrier
Slavin - Chatfield
Miller - Walker
Nikishin - Nystrom
Reilly
Andersen | Bussi (2/2)
Svechnikov - Aho - Jarvis
Hall - Stankoven - Blake
Ehlers - Staal - Martinook
Kotkaniemi - Jankowski - Carrier
Slavin - Chatfield
Miller - Walker
Nikishin - Nystrom
Reilly
Andersen | Bussi (2/2)
Canes practice lines (1/21):
Svechnikov-Aho-Jarvis
Hall-Stankoven-Blake
Ehlers-Staal-Martinook
Carrier-Jankowski-Kotkaniemi
Slavin-Chatfield
Miller-Walker
Nikishin-Nystrom
Reilly
Andersen
Bussi
Svechnikov-Aho-Jarvis
Hall-Stankoven-Blake
Ehlers-Staal-Martinook
Carrier-Jankowski-Kotkaniemi
Slavin-Chatfield
Miller-Walker
Nikishin-Nystrom
Reilly
Andersen
Bussi
January 21, 2026 at 4:02 PM
Canes practice lines (1/21):
Svechnikov-Aho-Jarvis
Hall-Stankoven-Blake
Ehlers-Staal-Martinook
Carrier-Jankowski-Kotkaniemi
Slavin-Chatfield
Miller-Walker
Nikishin-Nystrom
Reilly
Andersen
Bussi
Svechnikov-Aho-Jarvis
Hall-Stankoven-Blake
Ehlers-Staal-Martinook
Carrier-Jankowski-Kotkaniemi
Slavin-Chatfield
Miller-Walker
Nikishin-Nystrom
Reilly
Andersen
Bussi
Credit: Ivan Ehlers, New Yorker
January 21, 2026 at 3:18 PM
Credit: Ivan Ehlers, New Yorker
I saw this thumbnail and i was like ‘who is ed and why is he in pain’
January 21, 2026 at 2:24 PM
I saw this thumbnail and i was like ‘who is ed and why is he in pain’
--and the one with the black box about tendon damage (ciprofloxacin) which is extra counterindicated for me because I have Ehlers Danlos. Everything else was an allergy to various degrees. So I took the Cipro! (And now there's gepotidacin and I have THREE antibiotics I can take!)
January 20, 2026 at 10:22 PM
--and the one with the black box about tendon damage (ciprofloxacin) which is extra counterindicated for me because I have Ehlers Danlos. Everything else was an allergy to various degrees. So I took the Cipro! (And now there's gepotidacin and I have THREE antibiotics I can take!)
Julian en ik hebben al een tijdje geleden schriftelijke vragen gesteld over Ehlers-Dantos, de antwoorden geven genoeg redenen om hier een vervolg aan te geven: www.tweedekamer.nl/kamerstukken...
De behandeling van patiënten met Ehlers-Dantos. | Tweede Kamer der Staten-Generaal
www.tweedekamer.nl
January 20, 2026 at 10:14 PM
Julian en ik hebben al een tijdje geleden schriftelijke vragen gesteld over Ehlers-Dantos, de antwoorden geven genoeg redenen om hier een vervolg aan te geven: www.tweedekamer.nl/kamerstukken...
I heard about the wegovy pill. actually on a forum for ehlers Danlos ( hyper mobility). they are saying it has anti inflammatory benefits for people who suffer from EDS. I guess we shall see.
January 20, 2026 at 10:13 PM
I heard about the wegovy pill. actually on a forum for ehlers Danlos ( hyper mobility). they are saying it has anti inflammatory benefits for people who suffer from EDS. I guess we shall see.
Lizzie Perez grew up dancing. Ehlers-Danlos Syndrome forced her to stop, but pediatric pain care helped her find her way back. https://stanford.io/3UCUsNx
"I Didn’t Think I’d Dance Again": A Young Performer’s Journey Through Chronic Pain
Facing a life-altering diagnosis, Lizzie Perez reclaimed her future through science, support, and sheer will
stanford.io
January 20, 2026 at 7:29 PM
Lizzie Perez grew up dancing. Ehlers-Danlos Syndrome forced her to stop, but pediatric pain care helped her find her way back. https://stanford.io/3UCUsNx
Need some Ehlers-Danlos Syndrome Management Resources?
Take a look here- you may find just what you have been looking for: www.ehlers-danlos.com/management/
#ehlersdanlossyndrome #EDS #hEDS #raredisease #chronicillness #HSD #hypermobility #healthcare
Take a look here- you may find just what you have been looking for: www.ehlers-danlos.com/management/
#ehlersdanlossyndrome #EDS #hEDS #raredisease #chronicillness #HSD #hypermobility #healthcare
January 20, 2026 at 6:56 PM
Need some Ehlers-Danlos Syndrome Management Resources?
Take a look here- you may find just what you have been looking for: www.ehlers-danlos.com/management/
#ehlersdanlossyndrome #EDS #hEDS #raredisease #chronicillness #HSD #hypermobility #healthcare
Take a look here- you may find just what you have been looking for: www.ehlers-danlos.com/management/
#ehlersdanlossyndrome #EDS #hEDS #raredisease #chronicillness #HSD #hypermobility #healthcare
Even de basics: Ehlers-Danlos (afgekort EDS) is een erfelijke bindweefselziekte. Van de hypermobiele variant is niet bekend welke genen het veroorzaken, dus de diagnose wordt gesteld obv een lijst criteria. Je moet oa hypermobiel zijn in een minimum aantal specifieke gewrichten. /2
January 20, 2026 at 6:27 PM
Even de basics: Ehlers-Danlos (afgekort EDS) is een erfelijke bindweefselziekte. Van de hypermobiele variant is niet bekend welke genen het veroorzaken, dus de diagnose wordt gesteld obv een lijst criteria. Je moet oa hypermobiel zijn in een minimum aantal specifieke gewrichten. /2
🧵 De zorg voor mensen met de hypermobiele variant van Ehlers-Danlos ligt op z’n gat. Een diagnose krijgen is bijna onmogelijk. En omdat ik het belachelijk vind, ga ik er even een draadje over maken. Komt ie. /1
January 20, 2026 at 6:27 PM
🧵 De zorg voor mensen met de hypermobiele variant van Ehlers-Danlos ligt op z’n gat. Een diagnose krijgen is bijna onmogelijk. En omdat ik het belachelijk vind, ga ik er even een draadje over maken. Komt ie. /1
oh wow! Im also suspected to have Ehlers Danlos too.
January 20, 2026 at 4:01 PM
oh wow! Im also suspected to have Ehlers Danlos too.
I have kyphoscoliotic ehlers danlos with pots, MCAS, and more. Getting my spine checked because my broken rod from my back surgery is rubbing my nerves again, and now I’m paralyzed but imaging shows it isn’t from that. Docs think maybe Arnold chiari based on past MRIs.
Weather is making it so bad!!
Weather is making it so bad!!
January 20, 2026 at 2:17 PM
I have kyphoscoliotic ehlers danlos with pots, MCAS, and more. Getting my spine checked because my broken rod from my back surgery is rubbing my nerves again, and now I’m paralyzed but imaging shows it isn’t from that. Docs think maybe Arnold chiari based on past MRIs.
Weather is making it so bad!!
Weather is making it so bad!!
Woohoo, officially completed the ADHD/Ehlers Danlos/POTS trifecta. What else am I statistically likely to have wrong with me?
January 20, 2026 at 12:20 PM
Woohoo, officially completed the ADHD/Ehlers Danlos/POTS trifecta. What else am I statistically likely to have wrong with me?
major upside of the ehlers-danlos is being able to reach around my own back easily but its still not the same as someone being able to actually apply it For me >:(
January 20, 2026 at 6:38 AM
major upside of the ehlers-danlos is being able to reach around my own back easily but its still not the same as someone being able to actually apply it For me >:(
Re: Ehlers-Danlos.
“Tangled in an unwieldy combination of chronic pain, a library job for which she is ill-suited, and her wife's mystifying health problems, her body starts to unravel in ways she can no longer ignore.”
“Tangled in an unwieldy combination of chronic pain, a library job for which she is ill-suited, and her wife's mystifying health problems, her body starts to unravel in ways she can no longer ignore.”
January 20, 2026 at 1:58 AM
Re: Ehlers-Danlos.
“Tangled in an unwieldy combination of chronic pain, a library job for which she is ill-suited, and her wife's mystifying health problems, her body starts to unravel in ways she can no longer ignore.”
“Tangled in an unwieldy combination of chronic pain, a library job for which she is ill-suited, and her wife's mystifying health problems, her body starts to unravel in ways she can no longer ignore.”
Funny how they said the concern about Ehlers was he played with such an incredible player Drouin who helped his offensive stats. Maybe it was the other way around. Dal Colle was sure a bust.
January 20, 2026 at 1:29 AM
Funny how they said the concern about Ehlers was he played with such an incredible player Drouin who helped his offensive stats. Maybe it was the other way around. Dal Colle was sure a bust.
To be fair, a lot of that was my body being very dumb, lol. Ehlers-Danlos: not even once! If I have one bit of advice: get the surgery before there's so much bone damage they can't use the artificial disc replacement and have to do the fusion instead.
January 20, 2026 at 1:24 AM
To be fair, a lot of that was my body being very dumb, lol. Ehlers-Danlos: not even once! If I have one bit of advice: get the surgery before there's so much bone damage they can't use the artificial disc replacement and have to do the fusion instead.