#Retinitispigmentosa
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uhnresearch.ca
A @dkjei-uhn.bsky.social team is moving us closer to a future where blindness may not be inevitable in #RetinitisPigmentosa (RP). 👁️

In a new study, the team offer a new lab RP model and a first look at the disease’s development.

🔗 Read more: www.uhnresearch.ca/news/retinal...
December 15, 2025 at 5:19 PM
coinfurytv.bsky.social
Stressful Shots! | #CoinFuryTV on #Twitch #StardewValley #BlindGamer #RetinitisPigmentosa
December 12, 2025 at 4:45 PM
heidigraymcgill.bsky.social
During this season of giving, many of us look for opportunities to directly bless someone we know is deserving — someone who is already working hard to overcome obstacles.

Amy is one of those people. heidigraymcgill.com/2025/12/08/h...

#RetinitisPigmentosa #RP #VisionLoss #Blind #PayitForward
Restoring Joy and Independence Through Vision Support
Support Christian author Amy Bovaird as she battles vision loss, or buy her books to help her regain independence and keep writing.
heidigraymcgill.com
December 11, 2025 at 8:58 PM
usherireland.org
Updates that matter - Connecting patients, researchers, and organisations in the Usher community. Sign up today: tinyurl.com/SignUpToUSI

#UsherSyndrome #RareDisease #HearingLoss #RetinitisPigmentosa #BlindnessAwareness #NonProfit #PatientAdvocacy #SpeirGorm #Ireland
A cute Jack Russell rests its paw on a laptop keyboard. The on-screen caption reads “Hey you,” and a QR code beside it links to a sign-up form.
October 23, 2025 at 1:07 PM
cueyecenter.bsky.social
Madison Maidenberg of Love Is Blind is living with retinitis pigmentosa. 👁️

Marc Mathias, MD, explains how this inherited eye disease affects night & peripheral vision and why awareness matters.

#RetinitisPigmentosa #EyeHealth #LoveIsBlind #MedSky
October 21, 2025 at 6:25 PM
ophthalmologyadv.bsky.social
#AAO2025: Investigators conducted a large-scale retrospective cohort study of the prevalence and age of onset of #RetinalDetachment and #Cataracts among patients with #RetinitisPigmentosa. Presented at AAO 2025.

Read here: https://bit.ly/4oxMZwo

#Ophthalmology #MedSky #EyeSky
Early Onset Cataract, Retinal Detachment Risk Higher With Retinitis Pigmentosa - Ophthalmology Advisor
Investigators conducted a large-scale retrospective cohort study of the prevalence and age of onset of retinal detachment and cataracts among patients with retinitis pigmentosa.
bit.ly
October 20, 2025 at 6:56 PM
usherireland.org
This week is Invisible Disabilities Week, and we are asking you to share: What invisible challenges do you wish others could understand better? Let us know in the comments below.

#SeeTheInvisible #SeeUSH #UsherSyndrome #HearingLoss #RP #RetinitisPigmentosa #BlindnessAwarenessMonth #SpeirGorm
A woman wearing a jumper is covering her eyes with her hands. There is a pair of hands also covering her ears. Caption in image reads, Invisible Disabilities Week.
October 20, 2025 at 10:21 AM
rnibcymru.bsky.social
Un o gystadleuwyr #Hunted eleni ydy Ste, sy’n llywio’r profiad yma wrth fyw â retinitis pigmentosa - cyflwr llygaid genetig sy’n effeithio ar y celloedd sy’n sensitif i olau yn y retina sydd yng nghefn eich llygaid.

Dysgwch fwy am RP: rnib.in/RetinitisPigmentosa
Llun o giât bren wrth ymyl coeden mewn cae. Mae’r llun cyfan yn anodd ei weld, gan fod cylch du yn cuddio’r ymylon allanol. Testun mewn blwch pinc yn dweud: Sut y gallai rhywun â Retinitis Pigmentosa brofi bod 'ar ffo'
October 19, 2025 at 7:35 PM
rnibcymru.bsky.social
One of this year’s #Hunted contestants is Ste, who's navigating this experience whilst living with retinitis pigmentosa - a genetic eye condition which affects the light-sensitive cells in the retina at the back of your eyes.
Learn more about RP: rnib.in/RetinitisPigmentosa
An image of a wooden gate next to a tree in a field. The full image is difficult to see fully, owing black circle obscuring its outer edges. Text in a pink box reads: How someone with Retinitis Pigmentosa might experience being ‘on the run’
October 19, 2025 at 7:32 PM
blindnewworld.bsky.social
Are you watching Netflix's #LoveIsBlind? 💕

If so, you may recognize Madison Maidenberg, the season 9 contestant who's opening up about losing her vision to #RetinitisPigmentosa. #BlindNewWorld

(Story via Cosmopolitan ⬇️)
Love Is Blind's Madison on 'high chance' she'll lose eyesight from rare disease: what is retinitis pigmentosa?
"There's a good chance that I’m going to go blind"
www.cosmopolitan.com
October 3, 2025 at 7:02 PM
eye-tuebingen.bsky.social
Three young scientists from the IOR Tübingen earned prestigious #RD2025 Travel Awards to present their retinal research in Prague! Congrats 💪
#RetinitisPigmentosa #AMD
@tueneurocampus.bsky.social @unituebingen.bsky.social

👉 www.eye-tuebingen.de?tx_news_pi1%...
September 29, 2025 at 2:19 PM
febsletters.bsky.social
🔔 Issue 18 of FEBS Letters features articles on #photoreceptors, #immunology, and more, including:

👁️ Perspective: cGMP and cAMP systems in #RetinitisPigmentosa
🧬 In a Nutshell: #mRNA metabolism in immune cells
🫧 Editor's Choice: Genomic modifiers of #NiemannPick severity

➡️ bit.ly/4mIaSQE
September 24, 2025 at 3:16 PM
juliebwriter.bsky.social
#rp #retinitispigmentosa
seeingwithsound.bsky.social The vOICe vision BCI 🧠🇪🇺 @seeingwithsound.bsky.social · Sep 21
(YouTube, Chinese w/o captions but graphical English subtitles) Blind patient treated with ZM-02 optogenetic gene therapy www.youtube.com/watch?v=4kFO... Zhongmou Therapeutics; #RP #blindness #optogenetics
Hear our patient treated with ZM-02 optogenetic gene therapy
YouTube video by Alvin Luk
www.youtube.com
September 22, 2025 at 2:10 AM
bellacosper.bsky.social
#4 there was no damage to my remaining vision. She omitted an entire paragraph of 11 ELEVEN blind-related diagnoses. and added "shows a serious lack of credibility in her claims". For those who aren't familiar with #retinitispigmentosa, you are losing your sight since childhood, and your tunnel
September 20, 2025 at 2:06 AM
grahamdowns.mastodon.africa.ap.brid.gy
P.S. If you're not in #southafrica, or don't want to enter the draw, you can still donate any amount you want here: https://retinasa.org.za/shop/Donate-Now-p672620095/?utm_source=MastodonAfrica

#retinitispigmentosa #visuallyimpaired
Donate Now - Shop - Retina South Africa
Make a difference with just a click! Our Donate Now option allows you to contribute directly to our cause. Your donation supports Retina South Africa with our commitment to ensure that all South Africans have access to promising therapies to break the bonds of retinal blindness Every contribution, big or small, brings us one step closer to our goal. Donations over R250 are eligible for a Section
retinasa.org.za
September 5, 2025 at 7:09 AM
grahamdowns.mastodon.africa.ap.brid.gy
If anyone in #southafrica is interested, Retina South Africa is running a raffle where you can win a trip to Zanzibar. Tickets are R100, and you get to support research into a cure for #retinitispigmentosa (of which I am a sufferer) and other inherited retinal conditions […]
Original post on mastodon.africa
mastodon.africa
September 5, 2025 at 7:04 AM
usherireland.org
(Post 2/2) What happens to vision in Usher syndrome? Let’s take a look in today’s post!

Follow along & share to help spread awareness. 🩷

#USDay2025
#UsherSyndrome #UsherSyndromeAwarenessDay #RareDisease #RP #RetinitisPigmentosa
Text “Vision loss is part of all types of Usher syndrome. When it starts and how it progresses can depend on the type and even then, it’s different for each person, even within the same USH subtype. Everyone’s experience with vision loss is unique. A range of tools, technology, and supports can help, depending on individual needs.”. Text is in a circle on a background showing icons of guide dog, canes, braille, mobile phones with magnifiers. Text “Repost. Follow. Help spread USH awareness by reposting and following us. We’ll be diving deeper into Usher syndrome and its symptoms in the lead-up to #USHDay2025 on 20th September.”. A cut-out of a man making a heart shape with his hands.
September 4, 2025 at 8:45 AM
usherireland.org
What happens to vision in Usher syndrome? Let’s take a look in today’s post!

Follow along & share to help spread awareness. 🩷

(Post1/2)

#USDay2025
#UsherSyndrome #UsherSyndromeAwarenessDay #RareDisease #RP #RetinitisPigmentosa
Text “What happens to vision in Usher syndrome?”. A cut-out of a woman holding two fingers on one eye. Text “At the back of the eye is the retina. It’s lined with millions of light-sensitive cells known as rods and cones. Rods help us see in dim light. It also gives us peripheral vision. Cones help us see colour, detail, and depth in bright light.” An anatomy of an eye highlights the retina and icons of a rod and cone. Text “Retinitis pigmentosa (RP), a symptom of Usher syndrome, is an eye-condition where these rod and cone cells slowly die. Rods are usually affected first leading to poor night vision and tunnel vision. This is why night-blindness is often the first sign of RP.”. A cut-out of a woman appearing to have an ‘aha’ moment. Text “The fovea lies at the centre of the retina and is densely packed with cone cells. While rods degenerate first, cones often stay intact until later helping preserve central vision. This is why many people with Usher syndrome keep useful central vision for reading, colour, and detail well into the later stages.”. Several icons of cones are seen.
September 4, 2025 at 8:45 AM
mustikkasoppa.mementomori.social.ap.brid.gy
Legosetin kasausta pienemmän kanssa. BWT Alpine F1 Team A524 -kilpa-auto vuorossa.

Nyt tarvitsin jo suurennuslasin, jott a näin mikä legopalikka olikaan vuorossa seuraavana.

Vuosia sitten en ole tarvinnut suurennuslasia. Niin se vain etenee tuo retinitis.

#retinitispigmentosa #nakovamma […]
Original post on mementomori.social
mementomori.social
August 28, 2025 at 4:19 PM
blindnewworld.bsky.social
Emma Nicoson, a Missouri doctoral student, and her friend Aaron See, who has #RetinitisPigmentosa, are on a mission to improve fashion #accessibility for folks who are blind. #BlindNewWorld

(Story via KOMU ⬇️)
Missouri doctoral student takes on fashion accessibility for blind people
Emma Nicoson and Aaron See, who has retinitis pigmentosa, want to make fashion websites more accessible for people with blindness and low vision.
www.komu.com
August 18, 2025 at 11:00 PM
schreibeeinfach.bsky.social
3/3 Ich weine beim Schreiben dieser Zeilen.

#RetinitisPigmentosa #Gentherapie #MCO010 #Nanoscope #Blindheit #Hoffnung #EinfacheSprache
July 30, 2025 at 3:28 AM
blindbibliophile.bsky.social
It’s nice to meet you!! #disabilitypridemonth #retinitispigmentosa #booksky #bookskycommunity
July 7, 2025 at 1:12 PM
pouringpotions.bsky.social
🎧 “Deaf at birth… blind by adulthood: his world is closing in.”

Subscribe to read more on www.pouringpotions.com

#UsherSyndrome #DeafBlindness #ChicagoMed #RetinitisPigmentosa #CochlearImplant #GeneticDisorder #MedicalAwareness #RareDisease #Audiology #Ophthalmology
June 26, 2025 at 8:10 PM
grahamdowns.mastodon.africa.ap.brid.gy
Retina #southafrica is selling raffle tickets, where you can win a trip to #zanzibar: https://retinasa.org.za/shop/Zanzibar-Raffle-p744675228/?utm_source=MastodonAfrica

Enter at the link above, and help support them in their efforts to find a cure for #retinitispigmentosa and other inherited […]
Original post on mastodon.africa
mastodon.africa
June 3, 2025 at 9:22 AM
tonnyjohnson.bsky.social
Translational Gene Therapy Breakthroughs for Inherited and Acquired Blindness

#blindness #RetinitisPigmentosa #StargardtDisease, #UsherSyndrome #LeberCongenitalAmaurosis #LCA #glaucoma #GeographicAtrophy #MacularDegeneration #genetherapy
www.marinbio.com/from-bench-t...
Translational Gene Therapy Breakthroughs for Inherited and Acquired Blindness
Discover advanced gene therapy strategies for blindness at ASGCT 2025, featuring innovative cell based assays and transformative treatments for inherited vision loss.
www.marinbio.com
June 2, 2025 at 2:06 AM