Renegade Research
@renegaderesearch.bsky.social
Patient/Caregiver-led nonprofit 501c3 focused on #MECFS and #LongCovid • https://Renegade-Research.org 💙 Runs project @remissionbiome.bsky.social • Donate now ▶️ https://tinyurl.com/44azdsxm
Pinned
Please sign up our next Clinician's Roundtable with @jackamatica.bsky.social & Nicholas Boyd-Gibbins of @amaticahealth.bsky.social on Friday, Nov. 21!
They'll discuss their MECFS and Long Covid 31 Marker and RNA Sequencing Tests plus their new Clinician Dashboard
Register in next post 1/2 #MedSky
They'll discuss their MECFS and Long Covid 31 Marker and RNA Sequencing Tests plus their new Clinician Dashboard
Register in next post 1/2 #MedSky
Reposted by Renegade Research
This event just got underway. Still time to join and learn about this exciting company dedicated to M E C F S and L C advances and the sophisticated tests: 31 marker and RNA sequencing.
We'll host a Clinician's Roundtable with @amaticahealth.bsky.social. Researchers, patients, caregivers are also welcome.
Amatica is a patient-founded data science company focused on chronic neuro-immune diseases (Long COVID, ME/CFS, MCAS, Fibromyalgia)
Register: us06web.zoom.us/webinar/regi... 2/2
Amatica is a patient-founded data science company focused on chronic neuro-immune diseases (Long COVID, ME/CFS, MCAS, Fibromyalgia)
Register: us06web.zoom.us/webinar/regi... 2/2
Welcome! You are invited to join a webinar: Amatica Health Adds Dashboard for Clinicians. After registering, you will receive a confirmation email about joining the webinar.
Renegade Research is hosting a roundtable for clinicians to learn about how to implement Amatica Health tools in their clinical practices. Researchers, patients, and caregivers are also welcome.
Amat...
us06web.zoom.us
November 21, 2025 at 5:22 PM
This event just got underway. Still time to join and learn about this exciting company dedicated to M E C F S and L C advances and the sophisticated tests: 31 marker and RNA sequencing.
This event with @jackamatica.bsky.social @amaticahealth.bsky.social is in 3 days! We'd love to see you there, register here: us06web.zoom.us/webinar/regi...
November 18, 2025 at 6:19 AM
This event with @jackamatica.bsky.social @amaticahealth.bsky.social is in 3 days! We'd love to see you there, register here: us06web.zoom.us/webinar/regi...
Reposted by Renegade Research
Please help our non-profit with your purchase or by sharing with others
If you use prodrome products you can get 35% off now with our affiliate code FALOR35. The affiliate income goes to our non-profit which is a way you can help us.
Please like and share widely to help us fund research, education and care in MECFS, Long Covid & associated conditions
Please like and share widely to help us fund research, education and care in MECFS, Long Covid & associated conditions
November 16, 2025 at 6:39 PM
Please help our non-profit with your purchase or by sharing with others
If you use prodrome products you can get 35% off now with our affiliate code FALOR35. The affiliate income goes to our non-profit which is a way you can help us.
Please like and share widely to help us fund research, education and care in MECFS, Long Covid & associated conditions
Please like and share widely to help us fund research, education and care in MECFS, Long Covid & associated conditions
November 16, 2025 at 6:38 PM
If you use prodrome products you can get 35% off now with our affiliate code FALOR35. The affiliate income goes to our non-profit which is a way you can help us.
Please like and share widely to help us fund research, education and care in MECFS, Long Covid & associated conditions
Please like and share widely to help us fund research, education and care in MECFS, Long Covid & associated conditions
We held a Volunteer Info Session today for people wanting to volunteer for Renegade Research!
Resources below include the volunteer session recording and slideshow, past recordings and research presentations, volunteer application, newsletter signup, published research, YouTube channel, more
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Resources below include the volunteer session recording and slideshow, past recordings and research presentations, volunteer application, newsletter signup, published research, YouTube channel, more
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November 15, 2025 at 10:52 PM
We held a Volunteer Info Session today for people wanting to volunteer for Renegade Research!
Resources below include the volunteer session recording and slideshow, past recordings and research presentations, volunteer application, newsletter signup, published research, YouTube channel, more
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Resources below include the volunteer session recording and slideshow, past recordings and research presentations, volunteer application, newsletter signup, published research, YouTube channel, more
🧵
1/
Thanks @spichaksimon.bsky.social for covering @isabelrb.bsky.social & @tessfalor.bsky.social presenting on our #TheAcidTest research project for #ICanCME2025!
See our March 2025 Roundtable with @sunsopeningband.bsky.social & @ciarawrightphd.bsky.social for more info: www.youtube.com/watch?v=6BUZ...
See our March 2025 Roundtable with @sunsopeningband.bsky.social & @ciarawrightphd.bsky.social for more info: www.youtube.com/watch?v=6BUZ...
November 13, 2025 at 10:56 PM
Thanks @spichaksimon.bsky.social for covering @isabelrb.bsky.social & @tessfalor.bsky.social presenting on our #TheAcidTest research project for #ICanCME2025!
See our March 2025 Roundtable with @sunsopeningband.bsky.social & @ciarawrightphd.bsky.social for more info: www.youtube.com/watch?v=6BUZ...
See our March 2025 Roundtable with @sunsopeningband.bsky.social & @ciarawrightphd.bsky.social for more info: www.youtube.com/watch?v=6BUZ...
In 2 days, we'll host our next volunteer session for patients, caregivers, researchers and clinicians who'd like to get involved with Renegade Research!
Register:
us06web.zoom.us/webinar/regi...
Register:
us06web.zoom.us/webinar/regi...
November 13, 2025 at 10:40 PM
In 2 days, we'll host our next volunteer session for patients, caregivers, researchers and clinicians who'd like to get involved with Renegade Research!
Register:
us06web.zoom.us/webinar/regi...
Register:
us06web.zoom.us/webinar/regi...
Reposted by Renegade Research
Calling volunteers interested in giving time to a science-driven nonprofit helping people with a variety of chronic conditions.
Able-bodied & folks with energy-limiting syndromes welcome.
Virtual Info Session, Sat Nov 15. 12 pm Eastern US.
Host nonprofit is @renegaderesearch.bsky.social
Able-bodied & folks with energy-limiting syndromes welcome.
Virtual Info Session, Sat Nov 15. 12 pm Eastern US.
Host nonprofit is @renegaderesearch.bsky.social
We will host a Volunteer Info Session on Sat., Nov. 15! We're seeking volunteers to help with nonprofit tasks and research projects such as our upcoming Vielight studies
Email event@renegade-research.org with event questions and contact@renegade-research.org to volunteer
Register in next post 1/2
Email event@renegade-research.org with event questions and contact@renegade-research.org to volunteer
Register in next post 1/2
November 11, 2025 at 3:10 PM
Calling volunteers interested in giving time to a science-driven nonprofit helping people with a variety of chronic conditions.
Able-bodied & folks with energy-limiting syndromes welcome.
Virtual Info Session, Sat Nov 15. 12 pm Eastern US.
Host nonprofit is @renegaderesearch.bsky.social
Able-bodied & folks with energy-limiting syndromes welcome.
Virtual Info Session, Sat Nov 15. 12 pm Eastern US.
Host nonprofit is @renegaderesearch.bsky.social
Reposted by Renegade Research
The Amatica team is doing amazing patient-led decentralized work.
Can't wait to hear more on the 21st!
Can't wait to hear more on the 21st!
Please sign up our next Clinician's Roundtable with @jackamatica.bsky.social & Nicholas Boyd-Gibbins of @amaticahealth.bsky.social on Friday, Nov. 21!
They'll discuss their MECFS and Long Covid 31 Marker and RNA Sequencing Tests plus their new Clinician Dashboard
Register in next post 1/2 #MedSky
They'll discuss their MECFS and Long Covid 31 Marker and RNA Sequencing Tests plus their new Clinician Dashboard
Register in next post 1/2 #MedSky
November 12, 2025 at 5:33 PM
The Amatica team is doing amazing patient-led decentralized work.
Can't wait to hear more on the 21st!
Can't wait to hear more on the 21st!
Reposted by Renegade Research
This is coming up this Saturday at noon ET.
Join us to meet our awesome team and learn out how you can get involved!
Join us to meet our awesome team and learn out how you can get involved!
We will host a Volunteer Info Session on Sat., Nov. 15! We're seeking volunteers to help with nonprofit tasks and research projects such as our upcoming Vielight studies
Email event@renegade-research.org with event questions and contact@renegade-research.org to volunteer
Register in next post 1/2
Email event@renegade-research.org with event questions and contact@renegade-research.org to volunteer
Register in next post 1/2
November 12, 2025 at 5:34 PM
This is coming up this Saturday at noon ET.
Join us to meet our awesome team and learn out how you can get involved!
Join us to meet our awesome team and learn out how you can get involved!
Reposted by Renegade Research
Did you miss a past #Research or #Clinician Roundtable? Do you have questions? Are you an MD interested in speaking at a future event?
Email: event@renegade-research.org
✅️ Upcoming 2025 Events
www.renegade-research.org/events-list
✅️ Past Roundtables
m.youtube.com/@renegaderes... #medSky
Email: event@renegade-research.org
✅️ Upcoming 2025 Events
www.renegade-research.org/events-list
✅️ Past Roundtables
m.youtube.com/@renegaderes... #medSky
April 15, 2025 at 4:42 PM
Did you miss a past #Research or #Clinician Roundtable? Do you have questions? Are you an MD interested in speaking at a future event?
Email: event@renegade-research.org
✅️ Upcoming 2025 Events
www.renegade-research.org/events-list
✅️ Past Roundtables
m.youtube.com/@renegaderes... #medSky
Email: event@renegade-research.org
✅️ Upcoming 2025 Events
www.renegade-research.org/events-list
✅️ Past Roundtables
m.youtube.com/@renegaderes... #medSky
Reposted by Renegade Research
If you're looking to donate to a worthy cause, I highly recommend Renegade Research! More information in the linked post below:
✅️ Accelerate research and care for ME/CFS and Long COVID
Our work has already made an impact on the lives of our participants, both in terms of quality of life improvements and developing a community where patients and their caregivers are listened to and empowered.
www.zeffy.com/en-US/fundra...
Our work has already made an impact on the lives of our participants, both in terms of quality of life improvements and developing a community where patients and their caregivers are listened to and empowered.
www.zeffy.com/en-US/fundra...
Accelerate research and care for ME/CFS & Long COVID
Renegade Research (RR) is a non-profit, 501c3 decentralized organization pioneering patient and caregiver-led research with a focus on ME/CFS, Long COVID (LC) and other infection associated chronic il...
www.zeffy.com
June 1, 2025 at 8:40 PM
If you're looking to donate to a worthy cause, I highly recommend Renegade Research! More information in the linked post below:
Reposted by Renegade Research
Ladies, when you have some quiet time, I highly recommend that you check out this video as it contains new information specifically regarding women's health and well-being! #vulvodynia
This video recording is now live on our YouTube channel ▶️
Renegade Research #Clinician's Roundtable with Steve Smith, MD - Orthostatic Flow Syndromes
Share the video with your network, clinicians, and other providers who may also find this information of interest. Thanks!
youtu.be/Km06OwcCXq4?...
Renegade Research #Clinician's Roundtable with Steve Smith, MD - Orthostatic Flow Syndromes
Share the video with your network, clinicians, and other providers who may also find this information of interest. Thanks!
youtu.be/Km06OwcCXq4?...
April 11, 2025 at 11:37 PM
Ladies, when you have some quiet time, I highly recommend that you check out this video as it contains new information specifically regarding women's health and well-being! #vulvodynia
Reposted by Renegade Research
Next time you shop on #Amazon, use our affiliate link below to help support Renegade Research “at no additional cost to you” by shopping as you usually do. Our non-profit organization will receive a small percentage from Amazon. This helps our NPO operate. 💙 Thank you!
🔗 amzn.to/3DKgOaX
🔗 amzn.to/3DKgOaX
Today's Deals
amzn.to
June 22, 2025 at 2:45 PM
Next time you shop on #Amazon, use our affiliate link below to help support Renegade Research “at no additional cost to you” by shopping as you usually do. Our non-profit organization will receive a small percentage from Amazon. This helps our NPO operate. 💙 Thank you!
🔗 amzn.to/3DKgOaX
🔗 amzn.to/3DKgOaX
Reposted by Renegade Research
Can't make it or need to watch it at different speed? @renegaderesearch.bsky.social Roundtable recordings are posted to Renegade Research YouTube channel here:
www.youtube.com/@renegaderes...
www.youtube.com/@renegaderes...
Renegade Research
Decentralized patient-led research and clinical education. Focused on ME/CFS, Long Covid, and co-morbidities.
www.youtube.com
June 24, 2025 at 6:09 PM
Can't make it or need to watch it at different speed? @renegaderesearch.bsky.social Roundtable recordings are posted to Renegade Research YouTube channel here:
www.youtube.com/@renegaderes...
www.youtube.com/@renegaderes...
Reposted by Renegade Research
#disability people, here’s a link to the Renegade Research lecture about our research. BTW, I am not a consultant, not looking for patients or subjects, not selling snake oil, and don’t want anything from anyone. We have some hopeful news for many chronic illnesses. www.youtube.com/watch?v=J_WR...
Orthostatic Flow Syndrome (Presentation Only Version) by SJ Smith, MD Clinician's Roundtable 04/25
YouTube video by Renegade Research
www.youtube.com
August 12, 2025 at 6:47 PM
#disability people, here’s a link to the Renegade Research lecture about our research. BTW, I am not a consultant, not looking for patients or subjects, not selling snake oil, and don’t want anything from anyone. We have some hopeful news for many chronic illnesses. www.youtube.com/watch?v=J_WR...
Here's the letter we signed with @meactnet.bsky.social, @openmedf.bsky.social, @batemanhornecenter.bsky.social, @solveme.bsky.social, @massmecfs.bsky.social, @simmaronresearch.bsky.social, Complex Disorders Alliance (CODA) & CORe Community, Inc.
Our goal? A RECOVER TLC redesign tinyurl.com/57f5kmb3
Our goal? A RECOVER TLC redesign tinyurl.com/57f5kmb3
November 6, 2025 at 8:53 PM
Here's the letter we signed with @meactnet.bsky.social, @openmedf.bsky.social, @batemanhornecenter.bsky.social, @solveme.bsky.social, @massmecfs.bsky.social, @simmaronresearch.bsky.social, Complex Disorders Alliance (CODA) & CORe Community, Inc.
Our goal? A RECOVER TLC redesign tinyurl.com/57f5kmb3
Our goal? A RECOVER TLC redesign tinyurl.com/57f5kmb3
The paper Dr. Stuart Malcolm cited at our Microdosing GLP-1/GIP Receptor Agonists in #MECFS #LongCovid roundtable: pubmed.ncbi.nlm.nih.gov/36907221/
More research on GLP-1/GIP RAs treating intracranial hypertension symptoms: tinyurl.com/ennwun4x
tinyurl.com/u6ad2xa4
tinyurl.com/2hramz8n #MedSky
More research on GLP-1/GIP RAs treating intracranial hypertension symptoms: tinyurl.com/ennwun4x
tinyurl.com/u6ad2xa4
tinyurl.com/2hramz8n #MedSky
November 6, 2025 at 7:49 PM
The paper Dr. Stuart Malcolm cited at our Microdosing GLP-1/GIP Receptor Agonists in #MECFS #LongCovid roundtable: pubmed.ncbi.nlm.nih.gov/36907221/
More research on GLP-1/GIP RAs treating intracranial hypertension symptoms: tinyurl.com/ennwun4x
tinyurl.com/u6ad2xa4
tinyurl.com/2hramz8n #MedSky
More research on GLP-1/GIP RAs treating intracranial hypertension symptoms: tinyurl.com/ennwun4x
tinyurl.com/u6ad2xa4
tinyurl.com/2hramz8n #MedSky
Reposted by Renegade Research
Lots more details on Kaufman's use of GLP-1 drugs in his practice in this video/podcast: https://www.youtube.com/watch?v=e_i3d6_I8Y8
October 17, 2025 at 7:07 PM
Lots more details on Kaufman's use of GLP-1 drugs in his practice in this video/podcast: https://www.youtube.com/watch?v=e_i3d6_I8Y8
Reposted by Renegade Research
Dempsey's case series on 47 patients with mast cell activation syndrome: https://pubmed.ncbi.nlm.nih.gov/40675372/
Utility of glucagon-like-peptide-1-receptor agonists in mast cell activation syndrome - PubMed
GLP-1RAs may have substantial benefit in MCAS. Randomized controlled trials are needed to assess the efficacy, and identify optimal dosing, of GLP-1RA treatment in MCAS.
pubmed.ncbi.nlm.nih.gov
October 17, 2025 at 6:52 PM
Dempsey's case series on 47 patients with mast cell activation syndrome: https://pubmed.ncbi.nlm.nih.gov/40675372/
Thanks for live posting our Microdosing GLP/GIP Receptor Agonists in #MECFS and #LongCovid Clinician's Roundtable from October 17, @brianvastag.mas.to.ap.brid.gy!
Anyone who missed the event can watch the recording here: www.youtube.com/watch?v=lC3c...
Anyone who missed the event can watch the recording here: www.youtube.com/watch?v=lC3c...
November 6, 2025 at 7:21 PM
Thanks for live posting our Microdosing GLP/GIP Receptor Agonists in #MECFS and #LongCovid Clinician's Roundtable from October 17, @brianvastag.mas.to.ap.brid.gy!
Anyone who missed the event can watch the recording here: www.youtube.com/watch?v=lC3c...
Anyone who missed the event can watch the recording here: www.youtube.com/watch?v=lC3c...
Reposted by Renegade Research
To get the Renegade Research Newsletter which includes events and more, sign up at the website on Home Page or Subscribe Page.
www.renegade-research.org
www.renegade-research.org
Renegade Research
Renegade Research is a 501(c)(3) nonprofit. bringing together a dynamic community of patients, caregivers, scientists, and clinicians to drive innovation in healthcare for those with ME/CFS, Long Covi...
www.renegade-research.org
October 16, 2025 at 5:58 PM
To get the Renegade Research Newsletter which includes events and more, sign up at the website on Home Page or Subscribe Page.
www.renegade-research.org
www.renegade-research.org
Reposted by Renegade Research
Please register! Would love to see you at the next @renegaderesearch.bsky.social volunteer info session!
I began volunteering a few months ago, it’s great if you’re looking for remote and flexible ways to help patient-led research and community care
I began volunteering a few months ago, it’s great if you’re looking for remote and flexible ways to help patient-led research and community care
We will host a Volunteer Info Session on Sat., Nov. 15! We're seeking volunteers to help with nonprofit tasks and research projects such as our upcoming Vielight studies
Email event@renegade-research.org with event questions and contact@renegade-research.org to volunteer
Register in next post 1/2
Email event@renegade-research.org with event questions and contact@renegade-research.org to volunteer
Register in next post 1/2
November 5, 2025 at 11:30 PM
Please register! Would love to see you at the next @renegaderesearch.bsky.social volunteer info session!
I began volunteering a few months ago, it’s great if you’re looking for remote and flexible ways to help patient-led research and community care
I began volunteering a few months ago, it’s great if you’re looking for remote and flexible ways to help patient-led research and community care
We will host a Volunteer Info Session on Sat., Nov. 15! We're seeking volunteers to help with nonprofit tasks and research projects such as our upcoming Vielight studies
Email event@renegade-research.org with event questions and contact@renegade-research.org to volunteer
Register in next post 1/2
Email event@renegade-research.org with event questions and contact@renegade-research.org to volunteer
Register in next post 1/2
November 5, 2025 at 10:26 PM
We will host a Volunteer Info Session on Sat., Nov. 15! We're seeking volunteers to help with nonprofit tasks and research projects such as our upcoming Vielight studies
Email event@renegade-research.org with event questions and contact@renegade-research.org to volunteer
Register in next post 1/2
Email event@renegade-research.org with event questions and contact@renegade-research.org to volunteer
Register in next post 1/2
Please sign up our next Clinician's Roundtable with @jackamatica.bsky.social & Nicholas Boyd-Gibbins of @amaticahealth.bsky.social on Friday, Nov. 21!
They'll discuss their MECFS and Long Covid 31 Marker and RNA Sequencing Tests plus their new Clinician Dashboard
Register in next post 1/2 #MedSky
They'll discuss their MECFS and Long Covid 31 Marker and RNA Sequencing Tests plus their new Clinician Dashboard
Register in next post 1/2 #MedSky
November 5, 2025 at 3:37 AM
Please sign up our next Clinician's Roundtable with @jackamatica.bsky.social & Nicholas Boyd-Gibbins of @amaticahealth.bsky.social on Friday, Nov. 21!
They'll discuss their MECFS and Long Covid 31 Marker and RNA Sequencing Tests plus their new Clinician Dashboard
Register in next post 1/2 #MedSky
They'll discuss their MECFS and Long Covid 31 Marker and RNA Sequencing Tests plus their new Clinician Dashboard
Register in next post 1/2 #MedSky