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renegaderesearch.bsky.social
Renegade Research
@renegaderesearch.bsky.social
Patient/Caregiver-led nonprofit 501c3 focused on #MECFS and #LongCovid • https://Renegade-Research.org 💙 Runs project @remissionbiome.bsky.social • Donate now ▶️ https://tinyurl.com/44azdsxm
Jacob Hartman's handle is @hiimjakekthx.bsky.social!
November 16, 2025 at 6:52 PM
A 2025 Keystone Conference presentation for “Identifying transient remissions from ME/CFS associated with antibiotics: A mixed-methods study” by @thosvarley.bsky.social, @taraf.bsky.social, @katboniface.bsky.social, @ellybrosius.bsky.social, @isabelrb.bsky.social, @tessfalor.bsky.social, Mike

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November 16, 2025 at 6:51 PM
Lightning Talks and Discussion webinar by Jeff Wood,
@katboniface.bsky.social, @thosvarley.bsky.social in Oct. 2024 youtu.be/8w09X_AJWjM?...

Also presented at a Stanford MECFS research symposium in Sept. 2024

A great example of what it's like at RR and @remissionbiome.bsky.social meetings!

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Renegade Research Lightning Talks and Discussion
YouTube video by Renegade Research
youtu.be
November 15, 2025 at 11:47 PM
Our July 2025 Community Briefing webinar about our Medical Coaching Program introduced a few months ago, led by
@isabelrb.bsky.social, @doc4care.bsky.social, @katboniface.bsky.social, @taraf.bsky.social youtu.be/r_N9apL7k1E?...

Apply here if you’re an interested patient:

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Renegade Research Medical Coaching and Consulting Program
YouTube video by Renegade Research
youtu.be
November 15, 2025 at 11:44 PM
Check out (and subscribe to!) our YouTube channel: youtube.com/@renegaderes...

Watch all of our past webinars including our Roundtables, Volunteer Sessions, Community Discussions, Coaching Program news and Research Project updates

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Renegade Research
Decentralized patient-led research and clinical education. Focused on ME/CFS, Long Covid, and co-morbidities.
youtube.com
November 15, 2025 at 11:32 PM
Our Data Analysis Team reviewed our @remissionbiome.bsky.social project’s preliminary results in a presentation from Jan. 2024 youtu.be/Y4Un2rQLKTw?...

With @isabelrb.bsky.social, @ellybrosius.bsky.social, @thosvarley.bsky.social, @katboniface.bsky.social, @doc4care.bsky.social, Mike, Sam, Lisa

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Remission Biome Project - Preliminary Results Community Meeting by Renegade Research. Jan 17, 2024
YouTube video by Renegade Research
youtu.be
November 15, 2025 at 11:31 PM
Work we published, presented, set up:

“A Mechanical Basis: Brainstem Dysfunction as a Potential Etiology of ME/CFS and Long COVID” by @tessfalor.bsky.social, Jeff Wood, @thosvarley.bsky.social, @kaufmanmd.bsky.social, @artasemita.bsky.social, Jacob Hartman www.preprints.org/manuscript/2...

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www.preprints.org
November 15, 2025 at 11:29 PM
Please submit an application to volunteer with Renegade Research! docs.google.com/forms/d/e/1F...

We offer remote and flexible organizational, research project, coaching program work with no experience required

And please subscribe to our newsletter: www.renegade-research.org/join-email-l...

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Renegade Research Volunteer Application
docs.google.com
November 15, 2025 at 11:03 PM
Renegade Research Volunteer Information Session
YouTube video by Renegade Research
www.youtube.com
November 15, 2025 at 11:00 PM
"Semaglutide and Tirzepatide: A Look at the Surprising Benefits," a webpage article on Dr. Tania Dempsey's website

On how these medications aid mast cell stability, inflammation, cardiovascular health, immune and autoimmune support, mental health, gut, neurology drtaniadempsey.com/semaglutide-...
Semaglutide and Tirzepatide: A Look At Their Surprising Benefits
Chances are you’ve heard the buzz about medications like Semaglutide and Tirzepatide – the so-called “miracle” weight loss drugs that have helped countless people shed pounds and transform their healt...
drtaniadempsey.com
November 13, 2025 at 11:54 PM
Podcast recording by Drs. David Kaufman @kaufmanmd.bsky.social & Ilene Ruhoy @ruhoy.bsky.social:

“GLP1 RA - A Surprise Entry” discussing GLP-1 RAs used to treat chronic illnesses including #LongCovid and #MCAS www.youtube.com/watch?v=e_i3...
GLP1 RA - A Surprise Entry
YouTube video by Unraveled: Understanding Complex Illness
www.youtube.com
November 13, 2025 at 11:48 PM
The first case series paper on GLP-1s used to treat #MCAS:

“Utility of glucagon-like-peptide-1-receptor agonists in mast cell activation syndrome” pubmed.ncbi.nlm.nih.gov/40675372/

By Drs. Lawrence Afrin, Leonard Weinstock, Tania Dempsey, Katja Aschenbrenner, Svetlana Blitshteyn, Jill Schofield
Utility of glucagon-like-peptide-1-receptor agonists in mast cell activation syndrome - PubMed
GLP-1RAs may have substantial benefit in MCAS. Randomized controlled trials are needed to assess the efficacy, and identify optimal dosing, of GLP-1RA treatment in MCAS.
pubmed.ncbi.nlm.nih.gov
November 13, 2025 at 11:45 PM
From Dr. Tania Dempsey's website: Could GLP-1 Medications be a game-changer for #MCAS?

"GLP-1s: They can influence other immune cells: T cells, macrophages, and eosinophils that interact with mast cells" drtaniadempsey.com/could-glp-1-...
Could GLP-1 Medications Be a Game-Changer for MCAS?
If you’re living with Mast Cell Activation Syndrome (MCAS), you already know what it feels like to be “on high alert” all the time. One day it’s a rash, the next your stomach is in knots…
drtaniadempsey.com
November 13, 2025 at 11:36 PM
Dr. Kaufman @kaufmanmd.bsky.social speaking at RECOVER-TLC 2025:

"Discussion on Glucose-like Peptide-1 Receptor Agonists (GLP-1 RAs)” in patients with #LongCovid, #MECFS #pwME, #POTS, #MCAS and related comorbidities www.youtube.com/watch?v=Cev3...
Discussion on Glucose-like Peptide-1 Receptor Agonists (GLP-1 RAs)
YouTube video by Foundation for the National Institutes of Health
www.youtube.com
November 13, 2025 at 11:35 PM
3 related research papers on GLP-1s used to treat intracranial hypertension we dug up for those interested: bsky.app/profile/rene...
The paper Dr. Stuart Malcolm cited at our Microdosing GLP-1/GIP Receptor Agonists in #MECFS #LongCovid roundtable: pubmed.ncbi.nlm.nih.gov/36907221/

More research on GLP-1/GIP RAs treating intracranial hypertension symptoms: tinyurl.com/ennwun4x

tinyurl.com/u6ad2xa4

tinyurl.com/2hramz8n #MedSky
November 13, 2025 at 11:32 PM
Research papers and links from our Clinician's Roundtable with Drs. Tania Dempsey & @kaufmanmd.bsky.social 🧵

We linked these in the YouTube transcript too

The effect of GLP-1RA exenatide on idiopathic intracranial hypertension: a randomized clinical trial: pmc.ncbi.nlm.nih.gov/articles/PMC...
The effect of GLP-1RA exenatide on idiopathic intracranial hypertension: a randomized clinical trial
Therapeutics to reduce intracranial pressure are an unmet need. Preclinical data have demonstrated a novel strategy to lower intracranial pressure using glucagon-like peptide-1 (GLP-1) receptor signalling. Here, we translate these findings into ...
pmc.ncbi.nlm.nih.gov
November 13, 2025 at 11:30 PM