Ray Asher
@raythethey.bsky.social
Neurodivergent non-binary nerd.
Chronically Ill - Primary Biliary Cholangitis/Familial Mediterranean Fever
Chronically Ill - Primary Biliary Cholangitis/Familial Mediterranean Fever
I guess I forgot to post this here but, they found the faulty genes. It IS FMF.
January 21, 2025 at 4:43 AM
I guess I forgot to post this here but, they found the faulty genes. It IS FMF.
One of the worst parts of having FMF is the prodromal period when you’re stuck wondering “Am I having another attack or am I overreacting?”
I was not over-reacting.
Thank fuck for prednisone. Just waiting for it to kick in.
#rarediseases #chronicillness
I was not over-reacting.
Thank fuck for prednisone. Just waiting for it to kick in.
#rarediseases #chronicillness
January 16, 2025 at 1:59 PM
One of the worst parts of having FMF is the prodromal period when you’re stuck wondering “Am I having another attack or am I overreacting?”
I was not over-reacting.
Thank fuck for prednisone. Just waiting for it to kick in.
#rarediseases #chronicillness
I was not over-reacting.
Thank fuck for prednisone. Just waiting for it to kick in.
#rarediseases #chronicillness
If you wanna know what it’s like to get diagnosed with a rare illness in the US I got this message this morning.
I gave my sample a month ago. The test is supposed to take 14-21 days.
I gave my sample a month ago. The test is supposed to take 14-21 days.
January 7, 2025 at 6:08 PM
If you wanna know what it’s like to get diagnosed with a rare illness in the US I got this message this morning.
I gave my sample a month ago. The test is supposed to take 14-21 days.
I gave my sample a month ago. The test is supposed to take 14-21 days.
That feeling when your genetic test is supposed to take 14-21 days and it’s been 24.
#chronicillnesslife
#chronicillnesslife
December 30, 2024 at 9:48 PM
That feeling when your genetic test is supposed to take 14-21 days and it’s been 24.
#chronicillnesslife
#chronicillnesslife
This photo sums up what it’s like to have a chronic illness.
My mom snapped this photo of her sullen teenage child being cranky.
I wasn’t cranky.
I was in pain.
My mom snapped this photo of her sullen teenage child being cranky.
I wasn’t cranky.
I was in pain.
December 11, 2024 at 4:12 AM
This photo sums up what it’s like to have a chronic illness.
My mom snapped this photo of her sullen teenage child being cranky.
I wasn’t cranky.
I was in pain.
My mom snapped this photo of her sullen teenage child being cranky.
I wasn’t cranky.
I was in pain.
During my long autoimmune journey, I spent a period of time misdiagnosed with Crohns.
During that time I was prescribed a medication that was formulated to act in a specific part of my small intestine.
UnitedHealthcare denied that medication…
During that time I was prescribed a medication that was formulated to act in a specific part of my small intestine.
UnitedHealthcare denied that medication…
December 8, 2024 at 8:18 PM
During my long autoimmune journey, I spent a period of time misdiagnosed with Crohns.
During that time I was prescribed a medication that was formulated to act in a specific part of my small intestine.
UnitedHealthcare denied that medication…
During that time I was prescribed a medication that was formulated to act in a specific part of my small intestine.
UnitedHealthcare denied that medication…
Reposted by Ray Asher
oh this is bad. far right dictatorship is back on the menu. welcome back Syngman Rhee
December 3, 2024 at 5:34 PM
oh this is bad. far right dictatorship is back on the menu. welcome back Syngman Rhee
Reposted by Ray Asher
TWO percent of voters saw "issues related to transgender people" as one of their top three issues and Kamala won them by nearly 40 points. The narrative around this issue is backward.
December 3, 2024 at 2:31 PM
TWO percent of voters saw "issues related to transgender people" as one of their top three issues and Kamala won them by nearly 40 points. The narrative around this issue is backward.
No wonder I’m tired all the time —
I have anti-mitochondrial antibodies.
—my body is literally attacking the powerhouse of its own cells.
I have anti-mitochondrial antibodies.
—my body is literally attacking the powerhouse of its own cells.
November 20, 2024 at 2:47 AM
No wonder I’m tired all the time —
I have anti-mitochondrial antibodies.
—my body is literally attacking the powerhouse of its own cells.
I have anti-mitochondrial antibodies.
—my body is literally attacking the powerhouse of its own cells.
Gonna need to find a new doctor because my current one won’t adjust vital medications because I’m on T.
November 19, 2024 at 11:15 PM
Gonna need to find a new doctor because my current one won’t adjust vital medications because I’m on T.
Reposted by Ray Asher
Remember
Don’t give money to the Salvation Army
Not one thin, red cent
Don’t give money to the Salvation Army
Not one thin, red cent
November 15, 2024 at 5:49 PM
Remember
Don’t give money to the Salvation Army
Not one thin, red cent
Don’t give money to the Salvation Army
Not one thin, red cent
Medical Transphobia Update:
One of my doctors is resisting putting me on an add-on treatment for my liver disorder because I’m on T.
Mind you my untreated liver enzyme levels from last year are the same as my *treated* levels this year.
One of my doctors is resisting putting me on an add-on treatment for my liver disorder because I’m on T.
Mind you my untreated liver enzyme levels from last year are the same as my *treated* levels this year.
November 19, 2024 at 11:15 PM
Medical Transphobia Update:
One of my doctors is resisting putting me on an add-on treatment for my liver disorder because I’m on T.
Mind you my untreated liver enzyme levels from last year are the same as my *treated* levels this year.
One of my doctors is resisting putting me on an add-on treatment for my liver disorder because I’m on T.
Mind you my untreated liver enzyme levels from last year are the same as my *treated* levels this year.
Reposted by Ray Asher
Today is a good day to learn more about @workingfamilies.org
November 7, 2024 at 5:56 PM
Today is a good day to learn more about @workingfamilies.org
The working class includes Black people.
The working class includes trans people.
The working class includes indigenous people.
The working class includes women.
The working class includes seniors.
The working class includes disabled people.
The working class includes trans people.
The working class includes indigenous people.
The working class includes women.
The working class includes seniors.
The working class includes disabled people.
November 19, 2024 at 11:15 PM
The working class includes Black people.
The working class includes trans people.
The working class includes indigenous people.
The working class includes women.
The working class includes seniors.
The working class includes disabled people.
The working class includes trans people.
The working class includes indigenous people.
The working class includes women.
The working class includes seniors.
The working class includes disabled people.
I really am tired of people who cannot comprehend that the dose makes the poison fearmongering about what is in our food supply.
November 19, 2024 at 11:15 PM
I really am tired of people who cannot comprehend that the dose makes the poison fearmongering about what is in our food supply.
Reposted by Ray Asher
The nomination of Gaetz for AG should establish once and for all that Republicans have a bigger problem with kids being trans than they do with child rape. They view teenage girls as sex objects and want to ban transness because it reduces the number of teenage girls they can use as sex objects.
November 14, 2024 at 4:04 PM
The nomination of Gaetz for AG should establish once and for all that Republicans have a bigger problem with kids being trans than they do with child rape. They view teenage girls as sex objects and want to ban transness because it reduces the number of teenage girls they can use as sex objects.
As a 36th birthday present to myself I decided to come back here lol.
November 19, 2024 at 11:15 PM
As a 36th birthday present to myself I decided to come back here lol.
Reposted by Ray Asher
“The believed death toll of 22 in tonight’s shooting is almost or more than the annual number of homicides in all of Maine.”
https://www.nbcnews.com/news/us-news/live-blog/active-shooter-incident-reported-lewiston-maine-live-updates-rcna122249
https://www.nbcnews.com/news/us-news/live-blog/active-shooter-incident-reported-lewiston-maine-live-updates-rcna122249
October 26, 2023 at 2:15 AM
“The believed death toll of 22 in tonight’s shooting is almost or more than the annual number of homicides in all of Maine.”
https://www.nbcnews.com/news/us-news/live-blog/active-shooter-incident-reported-lewiston-maine-live-updates-rcna122249
https://www.nbcnews.com/news/us-news/live-blog/active-shooter-incident-reported-lewiston-maine-live-updates-rcna122249
Out of the top 25 deadliest mass shootings in US history, 80% happened after the prohibitions lapsed on the manufacture, transfer, or possession of semiautomatic assault weapons in 2004.
There is only one reason why this keeps happening.
My thoughts are with Lewiston tonight.
There is only one reason why this keeps happening.
My thoughts are with Lewiston tonight.
November 19, 2024 at 11:15 PM
Out of the top 25 deadliest mass shootings in US history, 80% happened after the prohibitions lapsed on the manufacture, transfer, or possession of semiautomatic assault weapons in 2004.
There is only one reason why this keeps happening.
My thoughts are with Lewiston tonight.
There is only one reason why this keeps happening.
My thoughts are with Lewiston tonight.
There need to be more queer, neurodivergent, antifascist fitness spaces focused on moving our bodies in ways we enjoy and making us strong enough to punch nazis
November 19, 2024 at 11:15 PM
There need to be more queer, neurodivergent, antifascist fitness spaces focused on moving our bodies in ways we enjoy and making us strong enough to punch nazis
Why does the MBTI test feel like it's a psych screener for if you have Autism, ADHD, or CPTSD??
www.16personalities.com/free-persona...
www.16personalities.com/free-persona...
November 19, 2024 at 11:15 PM
Why does the MBTI test feel like it's a psych screener for if you have Autism, ADHD, or CPTSD??
www.16personalities.com/free-persona...
www.16personalities.com/free-persona...
Star Wars Timeline Order Update: Currently Watching Rogue One
November 19, 2024 at 11:15 PM
Star Wars Timeline Order Update: Currently Watching Rogue One
This seems far more effective than crawling into my hoodie as I usually do.
November 19, 2024 at 11:15 PM
This seems far more effective than crawling into my hoodie as I usually do.
I'm here. I'm queer. I really need a nap.
November 19, 2024 at 11:15 PM
I'm here. I'm queer. I really need a nap.