Randi Chance
@randi615.bsky.social
ME/CFS for over 3 decades. JAFF (Jane Austen Fan Fiction) is my jam. Don't know what I would do without my Christian faith and my husband and daughter.
Reposted by Randi Chance
HOPE
It's 1001 nights since I got COVID-19. 1001 nights of uncertainty, instability and loss. My world turned upside down. But somehow, after 1001 nights, hope is still alive.
#ME/CFS #LongCovid
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It's 1001 nights since I got COVID-19. 1001 nights of uncertainty, instability and loss. My world turned upside down. But somehow, after 1001 nights, hope is still alive.
#ME/CFS #LongCovid
1/-
March 23, 2025 at 1:21 PM
HOPE
It's 1001 nights since I got COVID-19. 1001 nights of uncertainty, instability and loss. My world turned upside down. But somehow, after 1001 nights, hope is still alive.
#ME/CFS #LongCovid
1/-
It's 1001 nights since I got COVID-19. 1001 nights of uncertainty, instability and loss. My world turned upside down. But somehow, after 1001 nights, hope is still alive.
#ME/CFS #LongCovid
1/-
Having a debilitating chronic illness like #MECFS is hard enough, but when your already-disabled spouse suddenly develops serious physical and cognitive problems, needing your constant care, it's a whole new level of shit-show. 😢😫🫨🤯
March 23, 2025 at 7:37 PM
Having a debilitating chronic illness like #MECFS is hard enough, but when your already-disabled spouse suddenly develops serious physical and cognitive problems, needing your constant care, it's a whole new level of shit-show. 😢😫🫨🤯
Reposted by Randi Chance
December 22, 2024 at 8:05 PM
I love this. So many of us with #MEcfs and #LongCovid have wrestled with the same compromises in order to see people. For me, not only am I usually sporting dirty hair, but my bedroom is a mess! I am trying to get more comfortable with people coming in to say hello to me. Very poignant and relatable
(3 minutes)
A man with long Covid shares how he chose "vulnerability over isolation" so we could see his daughter (and her friend)
www.youtube.com/watch?v=WNqs...
#LongCovid #chronicillness #MEcfs #Spoonielife
A man with long Covid shares how he chose "vulnerability over isolation" so we could see his daughter (and her friend)
www.youtube.com/watch?v=WNqs...
#LongCovid #chronicillness #MEcfs #Spoonielife
Vulnerability Over Isolation
YouTube video by Long Covid Musings
www.youtube.com
December 22, 2024 at 10:31 PM
I love this. So many of us with #MEcfs and #LongCovid have wrestled with the same compromises in order to see people. For me, not only am I usually sporting dirty hair, but my bedroom is a mess! I am trying to get more comfortable with people coming in to say hello to me. Very poignant and relatable
Reposted by Randi Chance
If you’re struggling to learn how to rest and really take care of yourself - you’re not alone.
I wrote an entire article about it - and then immediately went into a flare because I was unable to follow my own advice.
It’s ok - all we can do is get up the next day and try again:
I wrote an entire article about it - and then immediately went into a flare because I was unable to follow my own advice.
It’s ok - all we can do is get up the next day and try again:
It's Time to Throw Away the 'Coulda, Woulda, Shouldas' and Practice Radical Rest
When you're chronically ill you can't push your body the way non disabled people do. You have to learn to rest. There's few words more damaging to us than the 'coulda, woulda, shouldas'
www.disabledginger.com
December 9, 2024 at 3:48 AM
If you’re struggling to learn how to rest and really take care of yourself - you’re not alone.
I wrote an entire article about it - and then immediately went into a flare because I was unable to follow my own advice.
It’s ok - all we can do is get up the next day and try again:
I wrote an entire article about it - and then immediately went into a flare because I was unable to follow my own advice.
It’s ok - all we can do is get up the next day and try again:
Reposted by Randi Chance
Welcome Collective: 'Living with ME'
'Jeremy Jeffs is a filmmaker and photographer whose experience of living with ME/CFS inspired him to talk to and photograph others with the same illness.'
wellcomecollection.org/stories/livi...
'Jeremy Jeffs is a filmmaker and photographer whose experience of living with ME/CFS inspired him to talk to and photograph others with the same illness.'
wellcomecollection.org/stories/livi...
Living with ME
Nine people with ME reveal their unremitting struggles as they negotiate life with their illness, including their battles to be believed, diagnosed and supported.
wellcomecollection.org
December 3, 2024 at 7:38 PM
Welcome Collective: 'Living with ME'
'Jeremy Jeffs is a filmmaker and photographer whose experience of living with ME/CFS inspired him to talk to and photograph others with the same illness.'
wellcomecollection.org/stories/livi...
'Jeremy Jeffs is a filmmaker and photographer whose experience of living with ME/CFS inspired him to talk to and photograph others with the same illness.'
wellcomecollection.org/stories/livi...
📢📢📢 PUBLIC SERVICE ANNOUNCEMENT:
One month from today, we will be entering the calendar year in which the oldest 👩🦳👨🦳 members of Generation X will turn 60! 😳
and yes, I 🙋 am one of this group 😳😳😳 Trying to wrap my head around it but not entirely sure of how I feel. How about the rest of you?????
One month from today, we will be entering the calendar year in which the oldest 👩🦳👨🦳 members of Generation X will turn 60! 😳
and yes, I 🙋 am one of this group 😳😳😳 Trying to wrap my head around it but not entirely sure of how I feel. How about the rest of you?????
December 1, 2024 at 10:34 PM
📢📢📢 PUBLIC SERVICE ANNOUNCEMENT:
One month from today, we will be entering the calendar year in which the oldest 👩🦳👨🦳 members of Generation X will turn 60! 😳
and yes, I 🙋 am one of this group 😳😳😳 Trying to wrap my head around it but not entirely sure of how I feel. How about the rest of you?????
One month from today, we will be entering the calendar year in which the oldest 👩🦳👨🦳 members of Generation X will turn 60! 😳
and yes, I 🙋 am one of this group 😳😳😳 Trying to wrap my head around it but not entirely sure of how I feel. How about the rest of you?????
Reposted by Randi Chance
. @meresearchuk.bsky.social :
Today (20th November) is World Children’s Day - UNICEF’s global day of action for children. A key aim of the day is to highlight critical issues affecting children’s lives – regrettably, this includes ME/CFS.
Read more: bit.ly/4hY2xXw
#MEcfs #PwME
#WorldChildrensDay
Today (20th November) is World Children’s Day - UNICEF’s global day of action for children. A key aim of the day is to highlight critical issues affecting children’s lives – regrettably, this includes ME/CFS.
Read more: bit.ly/4hY2xXw
#MEcfs #PwME
#WorldChildrensDay
November 26, 2024 at 6:00 PM
. @meresearchuk.bsky.social :
Today (20th November) is World Children’s Day - UNICEF’s global day of action for children. A key aim of the day is to highlight critical issues affecting children’s lives – regrettably, this includes ME/CFS.
Read more: bit.ly/4hY2xXw
#MEcfs #PwME
#WorldChildrensDay
Today (20th November) is World Children’s Day - UNICEF’s global day of action for children. A key aim of the day is to highlight critical issues affecting children’s lives – regrettably, this includes ME/CFS.
Read more: bit.ly/4hY2xXw
#MEcfs #PwME
#WorldChildrensDay
For #TonyCampolo, Sunday has arrived.
Via @rns.org: Tony Campolo, sociologist and famed Red Letter Christian, has died religionnews.com/2024/11/19/t...
Tony Campolo, sociologist and famed Red Letter Christian, has died
(RNS) — Known as a powerful evangelist and social justice preacher, Campolo had long advocated that Christian faith can transform the world — and people’s everyday lives.
religionnews.com
November 21, 2024 at 4:50 AM
For #TonyCampolo, Sunday has arrived.