Randi Chance
@randi615.bsky.social
ME/CFS for over 3 decades. JAFF (Jane Austen Fan Fiction) is my jam. Don't know what I would do without my Christian faith and my husband and daughter.
I have had ME since 1991. I also used to do cross-stitch until wrist pain forced me to stop. Nothing profound to say, but I love your medium, and love that you embody the pain and the hope in one short msg. Brava! 💙💙💙
March 23, 2025 at 7:44 PM
I have had ME since 1991. I also used to do cross-stitch until wrist pain forced me to stop. Nothing profound to say, but I love your medium, and love that you embody the pain and the hope in one short msg. Brava! 💙💙💙
And then at the end of the article he describes his "experiment" with avoiding internet time and the positive effect that had on his cognitive sys. Glad for him, but dude, that's called "pacing," and you could learn a lot about it from the ME/CFS folks you dismiss! 🙄
February 9, 2025 at 12:28 AM
And then at the end of the article he describes his "experiment" with avoiding internet time and the positive effect that had on his cognitive sys. Glad for him, but dude, that's called "pacing," and you could learn a lot about it from the ME/CFS folks you dismiss! 🙄
Reposted by Randi Chance
If you’re struggling to learn how to rest and really take care of yourself - you’re not alone.
I wrote an entire article about it - and then immediately went into a flare because I was unable to follow my own advice.
It’s ok - all we can do is get up the next day and try again:
I wrote an entire article about it - and then immediately went into a flare because I was unable to follow my own advice.
It’s ok - all we can do is get up the next day and try again:
It's Time to Throw Away the 'Coulda, Woulda, Shouldas' and Practice Radical Rest
When you're chronically ill you can't push your body the way non disabled people do. You have to learn to rest. There's few words more damaging to us than the 'coulda, woulda, shouldas'
www.disabledginger.com
December 9, 2024 at 3:48 AM
If you’re struggling to learn how to rest and really take care of yourself - you’re not alone.
I wrote an entire article about it - and then immediately went into a flare because I was unable to follow my own advice.
It’s ok - all we can do is get up the next day and try again:
I wrote an entire article about it - and then immediately went into a flare because I was unable to follow my own advice.
It’s ok - all we can do is get up the next day and try again:
I had no idea. Thanks for posting this.
December 5, 2024 at 2:47 AM
I had no idea. Thanks for posting this.
Thanks, that's fine. I'm in no hurry. Just want to connect more with other pwme
November 25, 2024 at 12:21 AM
Thanks, that's fine. I'm in no hurry. Just want to connect more with other pwme
Please add me to the patient community as well. Thanks!
November 23, 2024 at 4:50 PM
Please add me to the patient community as well. Thanks!
(1981) When you get better from this mystery illness, it won't be a recovery, just a remission. Don't push yourself or we'll both regret it.
November 21, 2024 at 6:30 AM
(1981) When you get better from this mystery illness, it won't be a recovery, just a remission. Don't push yourself or we'll both regret it.