@neunistiva.bsky.social
Reposted
OMF’s Melbourne ME/CFS Collaboration is conducting a study on cerebral blood flow in people with ME/CFS and how it might influence symptom severity and post-exertional malaise.
Read more about the study on our website 👉 ow.ly/ir5E50VWng7.
#MECFS #Orthostaticintolerance #MECFSresearch #PEM
Read more about the study on our website 👉 ow.ly/ir5E50VWng7.
#MECFS #Orthostaticintolerance #MECFSresearch #PEM
Blood Flow and Exercise in ME/CFS and Orthostatic Intolerance - Open Medicine Foundation
Exploring exercise's effects on ME/CFS patients with orthostatic intolerance, focusing cerebral blood flow, heart rate, and symptom severity.
ow.ly
May 21, 2025 at 3:06 PM
OMF’s Melbourne ME/CFS Collaboration is conducting a study on cerebral blood flow in people with ME/CFS and how it might influence symptom severity and post-exertional malaise.
Read more about the study on our website 👉 ow.ly/ir5E50VWng7.
#MECFS #Orthostaticintolerance #MECFSresearch #PEM
Read more about the study on our website 👉 ow.ly/ir5E50VWng7.
#MECFS #Orthostaticintolerance #MECFSresearch #PEM
Reposted
In ME/CFS, issues with cerebral blood flow often present as orthostatic intolerance, when a person feels dizzy or faint after standing upright. In these cases, orthostatic intolerance may be a result of low blood flow to the brain.
May 21, 2025 at 3:06 PM
In ME/CFS, issues with cerebral blood flow often present as orthostatic intolerance, when a person feels dizzy or faint after standing upright. In these cases, orthostatic intolerance may be a result of low blood flow to the brain.
Reposted
🧬Science Wednesdays: Cerebral Blood Flow
Cerebral blood flow is a measure of how much blood reaches the brain in a specific period of time. For example, a typical value for cerebral blood flow is approximately 50 milliliters of blood per 100 grams of brain tissue per minute (mL/100g/min).
Cerebral blood flow is a measure of how much blood reaches the brain in a specific period of time. For example, a typical value for cerebral blood flow is approximately 50 milliliters of blood per 100 grams of brain tissue per minute (mL/100g/min).
May 21, 2025 at 3:06 PM
🧬Science Wednesdays: Cerebral Blood Flow
Cerebral blood flow is a measure of how much blood reaches the brain in a specific period of time. For example, a typical value for cerebral blood flow is approximately 50 milliliters of blood per 100 grams of brain tissue per minute (mL/100g/min).
Cerebral blood flow is a measure of how much blood reaches the brain in a specific period of time. For example, a typical value for cerebral blood flow is approximately 50 milliliters of blood per 100 grams of brain tissue per minute (mL/100g/min).
Reposted
The BMJ's recent propaganda piece about severe ME/CFS hijacked Maeve Boothby O'Neill's death to bolster its arguments. The lead author of the piece did that last summer as well: virology.ws/2025/05/21/t...
Trial By Error: BMJ Publishes New Propaganda Piece on Severe ME/CFS | Virology Blog
By David Tuller, DrPH Last week, The BMJ published a commissioned propaganda piece—er, “opinion”—written by confirmed members of the cognitive behavior ther ...
virology.ws
May 21, 2025 at 5:37 PM
The BMJ's recent propaganda piece about severe ME/CFS hijacked Maeve Boothby O'Neill's death to bolster its arguments. The lead author of the piece did that last summer as well: virology.ws/2025/05/21/t...
Reposted
I’d love to compare my to do list with Simon Wessely’s. Bring it! 🔥 I mean if Simon insists on reducing people to this kind of “quantified desire for life” theory then how about we see how an ME/CFS patient compares to Simon on his own BS terms. Direct challenge 👊
May 22, 2025 at 9:51 PM
I’d love to compare my to do list with Simon Wessely’s. Bring it! 🔥 I mean if Simon insists on reducing people to this kind of “quantified desire for life” theory then how about we see how an ME/CFS patient compares to Simon on his own BS terms. Direct challenge 👊
Reposted
The BMJ has a long history of publishing stuff promoting the "biopsychosocial" approach to ME and ME/CFS: virology.ws/2025/05/24/t...
Trial By Error: More on the BMJ Opinion Piece from the Psychobabblers | Virology Blog
By David Tuller, DrPH When it comes to ME and ME/CFS, The BMJ—formerly called The British Medical Journal but now, like the food franchise once known as Ken ...
virology.ws
May 25, 2025 at 1:42 PM
The BMJ has a long history of publishing stuff promoting the "biopsychosocial" approach to ME and ME/CFS: virology.ws/2025/05/24/t...
Reposted
1) I'm really proud to share that one of the most prominent Dutch medical magazines for doctors, Medisch Contact, has published a short review of our film Doctors as Patients.
When you make a film like this, you hope it reaches beyond the #PAIS/IACC bubble—that it finds its way to healthcare
When you make a film like this, you hope it reaches beyond the #PAIS/IACC bubble—that it finds its way to healthcare
May 26, 2025 at 6:35 PM
1) I'm really proud to share that one of the most prominent Dutch medical magazines for doctors, Medisch Contact, has published a short review of our film Doctors as Patients.
When you make a film like this, you hope it reaches beyond the #PAIS/IACC bubble—that it finds its way to healthcare
When you make a film like this, you hope it reaches beyond the #PAIS/IACC bubble—that it finds its way to healthcare
Reposted
May 10, 2025 at 1:29 PM
Reposted
It’s almost May 12, almost #millionsmissing
What’s that? Millions of people r missing. Missing fr work, fr school, fr their families, fr their own lives.
Where r they? Home, sick; struggling; some r homeless. Some can’t care for themselves.
They r hoping tomorrow’s better.
Help us get there!
What’s that? Millions of people r missing. Missing fr work, fr school, fr their families, fr their own lives.
Where r they? Home, sick; struggling; some r homeless. Some can’t care for themselves.
They r hoping tomorrow’s better.
Help us get there!
May 10, 2025 at 9:15 PM
It’s almost May 12, almost #millionsmissing
What’s that? Millions of people r missing. Missing fr work, fr school, fr their families, fr their own lives.
Where r they? Home, sick; struggling; some r homeless. Some can’t care for themselves.
They r hoping tomorrow’s better.
Help us get there!
What’s that? Millions of people r missing. Missing fr work, fr school, fr their families, fr their own lives.
Where r they? Home, sick; struggling; some r homeless. Some can’t care for themselves.
They r hoping tomorrow’s better.
Help us get there!
Reposted
ME is one of the cruellest diseases you can possibly have. Most people think it’s as insignificant as having a cold.
#May12 #MEAwarenessDay #StillTheSaME #StillSickStillFighting #ME #MECFS #SevereME #LongCovid #EndMEcfs #MEAction #MillionsMissing #GreatestMEdicalScandal #ThereForME #BerlinBuyers
#May12 #MEAwarenessDay #StillTheSaME #StillSickStillFighting #ME #MECFS #SevereME #LongCovid #EndMEcfs #MEAction #MillionsMissing #GreatestMEdicalScandal #ThereForME #BerlinBuyers
May 12, 2025 at 8:06 AM
ME is one of the cruellest diseases you can possibly have. Most people think it’s as insignificant as having a cold.
#May12 #MEAwarenessDay #StillTheSaME #StillSickStillFighting #ME #MECFS #SevereME #LongCovid #EndMEcfs #MEAction #MillionsMissing #GreatestMEdicalScandal #ThereForME #BerlinBuyers
#May12 #MEAwarenessDay #StillTheSaME #StillSickStillFighting #ME #MECFS #SevereME #LongCovid #EndMEcfs #MEAction #MillionsMissing #GreatestMEdicalScandal #ThereForME #BerlinBuyers
Reposted
404,000 pairs of shoes. One invisible illness.👟
This is what ME looks like in the UK: thousands lost to a disabling illness.
Symbolised by shoes that stretch around London.
🛌Yet there is still no effective care
Time for action!
@ashleydaltonmp.bsky.social
#MEAwarenessDay #MillionsMissing
This is what ME looks like in the UK: thousands lost to a disabling illness.
Symbolised by shoes that stretch around London.
🛌Yet there is still no effective care
Time for action!
@ashleydaltonmp.bsky.social
#MEAwarenessDay #MillionsMissing
May 12, 2025 at 9:14 AM
404,000 pairs of shoes. One invisible illness.👟
This is what ME looks like in the UK: thousands lost to a disabling illness.
Symbolised by shoes that stretch around London.
🛌Yet there is still no effective care
Time for action!
@ashleydaltonmp.bsky.social
#MEAwarenessDay #MillionsMissing
This is what ME looks like in the UK: thousands lost to a disabling illness.
Symbolised by shoes that stretch around London.
🛌Yet there is still no effective care
Time for action!
@ashleydaltonmp.bsky.social
#MEAwarenessDay #MillionsMissing
Reposted
12.Mai ist #MEcfsAwarenessDay.
Es genügt NICHT zu sagen, das Ihr uns hört & seht.
#millionsmissing
Fotos von der liegenddemo.bsky.social 10.05.25 #Berlin
©Maria Wagner
Es genügt NICHT zu sagen, das Ihr uns hört & seht.
#millionsmissing
Fotos von der liegenddemo.bsky.social 10.05.25 #Berlin
©Maria Wagner
May 12, 2025 at 10:07 AM
12.Mai ist #MEcfsAwarenessDay.
Es genügt NICHT zu sagen, das Ihr uns hört & seht.
#millionsmissing
Fotos von der liegenddemo.bsky.social 10.05.25 #Berlin
©Maria Wagner
Es genügt NICHT zu sagen, das Ihr uns hört & seht.
#millionsmissing
Fotos von der liegenddemo.bsky.social 10.05.25 #Berlin
©Maria Wagner
Reposted
1) OMG we did it‼️‼️
In this film for #MEawarenessmonth, five medical doctors open up about living with #PAIS/#IACC conditions like ME, #longCOVID, and chronic #Lyme. It’s a format that I believe has never been shown before.
They speak candidly about their experiences
youtu.be/J0ywwLIfH_w?...
In this film for #MEawarenessmonth, five medical doctors open up about living with #PAIS/#IACC conditions like ME, #longCOVID, and chronic #Lyme. It’s a format that I believe has never been shown before.
They speak candidly about their experiences
youtu.be/J0ywwLIfH_w?...
Doctors as Patients (with subtitles)
YouTube video by Anil about ME
youtu.be
May 1, 2025 at 11:01 AM
1) OMG we did it‼️‼️
In this film for #MEawarenessmonth, five medical doctors open up about living with #PAIS/#IACC conditions like ME, #longCOVID, and chronic #Lyme. It’s a format that I believe has never been shown before.
They speak candidly about their experiences
youtu.be/J0ywwLIfH_w?...
In this film for #MEawarenessmonth, five medical doctors open up about living with #PAIS/#IACC conditions like ME, #longCOVID, and chronic #Lyme. It’s a format that I believe has never been shown before.
They speak candidly about their experiences
youtu.be/J0ywwLIfH_w?...
Reposted
Well the NIH has cancelled the Women's Health Initiative, the largest study of women in history
It has been running continuously since 1991 and has provided massive key knowledge about diseases in women
Unreal
www.science.org/content/arti...
It has been running continuously since 1991 and has provided massive key knowledge about diseases in women
Unreal
www.science.org/content/arti...
NIH cancels its first and largest study centered on women
The Women’s Health Initiative has produced numerous influential findings
www.science.org
April 23, 2025 at 12:29 PM
Well the NIH has cancelled the Women's Health Initiative, the largest study of women in history
It has been running continuously since 1991 and has provided massive key knowledge about diseases in women
Unreal
www.science.org/content/arti...
It has been running continuously since 1991 and has provided massive key knowledge about diseases in women
Unreal
www.science.org/content/arti...
Reposted
OMF’s Melbourne ME/CFS Collaboration is conducting a study evaluating a variety of treatments that are being trialed through #MECFS and #LongCOVID patients’ general practitioners, including those using different routes of administration.
Read more about this study 👉 ow.ly/Roux50VGjyG.
Read more about this study 👉 ow.ly/Roux50VGjyG.
Personalized Treatment Trials: Monitoring and Improving the Connection of Treatments to Patients - Open Medicine Foundation
Personalized treatment trial that analyses pre, during, and post-treatment data to develop a predictive algorithm for better outcomes.
ow.ly
April 23, 2025 at 2:41 PM
OMF’s Melbourne ME/CFS Collaboration is conducting a study evaluating a variety of treatments that are being trialed through #MECFS and #LongCOVID patients’ general practitioners, including those using different routes of administration.
Read more about this study 👉 ow.ly/Roux50VGjyG.
Read more about this study 👉 ow.ly/Roux50VGjyG.
Reposted
🧬Routes of Treatment Administration
When you think about medications for different diseases, an important factor for some patients can be how the medication is taken, or the route of treatment administration.
There are 3 major routes of administration:
When you think about medications for different diseases, an important factor for some patients can be how the medication is taken, or the route of treatment administration.
There are 3 major routes of administration:
April 23, 2025 at 2:41 PM
🧬Routes of Treatment Administration
When you think about medications for different diseases, an important factor for some patients can be how the medication is taken, or the route of treatment administration.
There are 3 major routes of administration:
When you think about medications for different diseases, an important factor for some patients can be how the medication is taken, or the route of treatment administration.
There are 3 major routes of administration:
Reposted
If “cognitive dissonance” is a term, can we use “cognitive chasm” to refer to the distance between our thoughts and our ability to act on those thoughts? I can dream of the entire world but I can only touch the very edge of those thoughts. A chasm between thought and action. A cognitive chasm.
April 17, 2025 at 10:42 PM
If “cognitive dissonance” is a term, can we use “cognitive chasm” to refer to the distance between our thoughts and our ability to act on those thoughts? I can dream of the entire world but I can only touch the very edge of those thoughts. A chasm between thought and action. A cognitive chasm.
Reposted
Berkeley's current crowdfunder for Trial By Error is closing in on 200 donations, and has reached 36% of the goal. Thanks to past, current and future donors!!
crowdfund.berkeley.edu/project/46120
crowdfund.berkeley.edu/project/46120
David Tuller's Trial by Error Spring 2025
Help UC Berkeley raise $68,000 for the project: David Tuller's Trial by Error Spring 2025. Your gift will make a difference!
crowdfund.berkeley.edu
April 18, 2025 at 11:04 PM
Berkeley's current crowdfunder for Trial By Error is closing in on 200 donations, and has reached 36% of the goal. Thanks to past, current and future donors!!
crowdfund.berkeley.edu/project/46120
crowdfund.berkeley.edu/project/46120
Reposted
NOTICE: The International Association for Chronic Fatigue Syndrome/ Myalgic Encephalomyelitis (IACFS/ME) 17th Research and Clinical Conference changed to a virtual format!
🗓️ Date: October 22-25, 2025
Learn more 👉 ow.ly/x8Zs50Vz4BY.
🗓️ Date: October 22-25, 2025
Learn more 👉 ow.ly/x8Zs50Vz4BY.
April 11, 2025 at 7:23 PM
NOTICE: The International Association for Chronic Fatigue Syndrome/ Myalgic Encephalomyelitis (IACFS/ME) 17th Research and Clinical Conference changed to a virtual format!
🗓️ Date: October 22-25, 2025
Learn more 👉 ow.ly/x8Zs50Vz4BY.
🗓️ Date: October 22-25, 2025
Learn more 👉 ow.ly/x8Zs50Vz4BY.
Reposted
More bad news for those interested in ME/CFS research it seems: Cornell funds suspended ☹️
"Trump administration’s attack on university research accelerates"
arstechnica.com/science/2025...
#MEcfs #CFS
"Trump administration’s attack on university research accelerates"
arstechnica.com/science/2025...
#MEcfs #CFS
Trump administration’s attack on university research accelerates
With billions in grants put on hold, targeted universities will see research crippled.
arstechnica.com
April 10, 2025 at 7:53 PM
More bad news for those interested in ME/CFS research it seems: Cornell funds suspended ☹️
"Trump administration’s attack on university research accelerates"
arstechnica.com/science/2025...
#MEcfs #CFS
"Trump administration’s attack on university research accelerates"
arstechnica.com/science/2025...
#MEcfs #CFS
Reposted
This means that the treatments being tested, low-dose naltrexone (LDN) and pyridostigmine, are compared to placebos.
Read more about the LIFT: www.omf.ngo/the-life-imp....
#pwME #pwLC #clinicaltrial #OMF
Read more about the LIFT: www.omf.ngo/the-life-imp....
#pwME #pwLC #clinicaltrial #OMF
The Life Improvement Trial - Open Medicine Foundation
The Life Improvement Trial (LIFT) investigates the efficacy of Pyridostigmine and Low-Dose Naltrexone (LDN) in ME/CFS patients.
www.omf.ngo
April 2, 2025 at 3:20 PM
This means that the treatments being tested, low-dose naltrexone (LDN) and pyridostigmine, are compared to placebos.
Read more about the LIFT: www.omf.ngo/the-life-imp....
#pwME #pwLC #clinicaltrial #OMF
Read more about the LIFT: www.omf.ngo/the-life-imp....
#pwME #pwLC #clinicaltrial #OMF
Reposted
In #MECFS, like other conditions, it’s important to demonstrate that a treatment provides more health improvement than a placebo before it can be approved for use. OMF’s Life Improvement Trial (LIFT) is therefore a placebo-controlled clinical trial.
April 2, 2025 at 3:20 PM
In #MECFS, like other conditions, it’s important to demonstrate that a treatment provides more health improvement than a placebo before it can be approved for use. OMF’s Life Improvement Trial (LIFT) is therefore a placebo-controlled clinical trial.
Reposted
For nearly 3 years, Open Medicine Foundation & Bateman Horne Center have partnered to close the gap in #MECFS & #LongCOVID medical education through MERC.
🎥Watch OMF Dr. Bateman interview: ow.ly/cXog50Vu1XE
💙Donate: ow.ly/ICv850Vu1XC
#pwME #pwLC @batemanhornecenter.bsky.social
🎥Watch OMF Dr. Bateman interview: ow.ly/cXog50Vu1XE
💙Donate: ow.ly/ICv850Vu1XC
#pwME #pwLC @batemanhornecenter.bsky.social
April 3, 2025 at 4:36 PM
For nearly 3 years, Open Medicine Foundation & Bateman Horne Center have partnered to close the gap in #MECFS & #LongCOVID medical education through MERC.
🎥Watch OMF Dr. Bateman interview: ow.ly/cXog50Vu1XE
💙Donate: ow.ly/ICv850Vu1XC
#pwME #pwLC @batemanhornecenter.bsky.social
🎥Watch OMF Dr. Bateman interview: ow.ly/cXog50Vu1XE
💙Donate: ow.ly/ICv850Vu1XC
#pwME #pwLC @batemanhornecenter.bsky.social
Reposted
launches shortly...
crowdfund.berkeley.edu/project/46120
crowdfund.berkeley.edu/project/46120
David Tuller's Trial by Error Spring 2025
Help UC Berkeley raise $68,000 for the project: David Tuller's Trial by Error Spring 2025. Your gift will make a difference!
crowdfund.berkeley.edu
April 6, 2025 at 5:29 AM
launches shortly...
crowdfund.berkeley.edu/project/46120
crowdfund.berkeley.edu/project/46120
Reposted
Patients with rheumatic diseases report serious harm from misdiagnoses perceived to be psychosomatic and/or psychiatric in nature, according to a new study led by a Cambridge U investigator. virology.ws/2025/03/31/t...
Trial By Error: New Study Documents Iatrogenic Harm from Perceived Psychosomatic and Psychiatric Misdiagnoses of Rheumatic Diseases | Virology Blog
By David Tuller, DrPH In 2020, I wrote a post about a paper, published by the journal Rheumatology Advances in Practice, called “Medically explained symptom ...
virology.ws
March 31, 2025 at 3:07 PM
Patients with rheumatic diseases report serious harm from misdiagnoses perceived to be psychosomatic and/or psychiatric in nature, according to a new study led by a Cambridge U investigator. virology.ws/2025/03/31/t...