Tom Molmans, MD
@molbaas.bsky.social
Psychiatrist | Life on hold since Oct. '21 due to long Covid | LC foundation NL | Carpe diem sed non inpensa crastina | Tweets are my own | No medical advice
Reposted by Tom Molmans, MD
Here is our Rapid Response to that hugely problematic BMJ review of treatments for #LongCovid
Delighted to have contributed with @ellecarnitine.bsky.social, @fvrhijn.bsky.social, @lauravictorine.bsky.social, and Xandra Westerhuis
We need to learn from the history of #MECFS
Delighted to have contributed with @ellecarnitine.bsky.social, @fvrhijn.bsky.social, @lauravictorine.bsky.social, and Xandra Westerhuis
We need to learn from the history of #MECFS
Long COVID needs real therapeutics: time to move past disproven approaches
www.bmj.com
December 5, 2024 at 10:46 PM
Here is our Rapid Response to that hugely problematic BMJ review of treatments for #LongCovid
Delighted to have contributed with @ellecarnitine.bsky.social, @fvrhijn.bsky.social, @lauravictorine.bsky.social, and Xandra Westerhuis
We need to learn from the history of #MECFS
Delighted to have contributed with @ellecarnitine.bsky.social, @fvrhijn.bsky.social, @lauravictorine.bsky.social, and Xandra Westerhuis
We need to learn from the history of #MECFS
Reposted by Tom Molmans, MD
„How can we be sure we are not gaslighting our patients? By remaining humble.“
Sehr guter Artikel einer betroffenen Ärztin über die nötige Haltung von Mediziner*innen gegenüber Patient*innen mit #LC, #MECFS, #PCVS et al.
Anbei ein paar Zitate: 🧵
1/8
Sehr guter Artikel einer betroffenen Ärztin über die nötige Haltung von Mediziner*innen gegenüber Patient*innen mit #LC, #MECFS, #PCVS et al.
Anbei ein paar Zitate: 🧵
1/8
When We Don’t Have All the Answers: Long COVID and the Need for Humility in Medicine
pmc.ncbi.nlm.nih.gov
September 28, 2025 at 5:38 AM
Reposted by Tom Molmans, MD
Artsen kunnen ook #ME, #Lyme of #longCOVID krijgen.
@anilvanderzee.bsky.social vroeg me als cameraman-interviewer mee te werken aan deze documentaire.
Dr. Laura de Vries vertelde me openhartig over haar studie en ziekte. Ze heeft ME, hetzelfde dat mijn zus Céline had.
youtu.be/J0ywwLIfH_w?...
@anilvanderzee.bsky.social vroeg me als cameraman-interviewer mee te werken aan deze documentaire.
Dr. Laura de Vries vertelde me openhartig over haar studie en ziekte. Ze heeft ME, hetzelfde dat mijn zus Céline had.
youtu.be/J0ywwLIfH_w?...
Doctors as Patients (with subtitles)
YouTube video by Anil about ME
youtu.be
May 5, 2025 at 12:03 PM
Artsen kunnen ook #ME, #Lyme of #longCOVID krijgen.
@anilvanderzee.bsky.social vroeg me als cameraman-interviewer mee te werken aan deze documentaire.
Dr. Laura de Vries vertelde me openhartig over haar studie en ziekte. Ze heeft ME, hetzelfde dat mijn zus Céline had.
youtu.be/J0ywwLIfH_w?...
@anilvanderzee.bsky.social vroeg me als cameraman-interviewer mee te werken aan deze documentaire.
Dr. Laura de Vries vertelde me openhartig over haar studie en ziekte. Ze heeft ME, hetzelfde dat mijn zus Céline had.
youtu.be/J0ywwLIfH_w?...
Another gem @theguardian.com
The ever marginalized @paulgarnerwoof.bsky.social is (again) given a podium to conflate (his own) primary psych disorders with LC.
A feat expected from this author,
a 'psychosomatic' neurologist who's made similar mistakes.
www.theguardian.com/society/2025...
1/5
The ever marginalized @paulgarnerwoof.bsky.social is (again) given a podium to conflate (his own) primary psych disorders with LC.
A feat expected from this author,
a 'psychosomatic' neurologist who's made similar mistakes.
www.theguardian.com/society/2025...
1/5
The number of people with chronic conditions is soaring. Are we less healthy than we used to be – or overdiagnosing illness?
Are ordinary life experiences, bodily imperfections and normal differences being unnecessarily pathologised? One doctor argues just that
www.theguardian.com
March 1, 2025 at 8:32 PM
Another gem @theguardian.com
The ever marginalized @paulgarnerwoof.bsky.social is (again) given a podium to conflate (his own) primary psych disorders with LC.
A feat expected from this author,
a 'psychosomatic' neurologist who's made similar mistakes.
www.theguardian.com/society/2025...
1/5
The ever marginalized @paulgarnerwoof.bsky.social is (again) given a podium to conflate (his own) primary psych disorders with LC.
A feat expected from this author,
a 'psychosomatic' neurologist who's made similar mistakes.
www.theguardian.com/society/2025...
1/5
Reposted by Tom Molmans, MD
This is deeply shocking and disturbing, the opposite of scientific good practice. As I see it, a group of diehards promoting a discredited treatment (exercise "therapy" for ME/CFS patients) are seeking to stifle medical progress - to protect their reputations. And Cochrane has kowtowed to them. 🧵
I never thought a day would come when I would write a post this critical about the Cochrane Collaboration. But today was that day:
absolutelymaybe.plos.org/2025/01/24/w...
#mecfs
absolutelymaybe.plos.org/2025/01/24/w...
#mecfs
When Journal, Scientific Society, and Community Values Clash - Absolutely Maybe
A process I’ve been involved with at a journal recently exploded. It was meant to resolve a controversy about a publication, not…
absolutelymaybe.plos.org
January 29, 2025 at 8:57 AM
This is deeply shocking and disturbing, the opposite of scientific good practice. As I see it, a group of diehards promoting a discredited treatment (exercise "therapy" for ME/CFS patients) are seeking to stifle medical progress - to protect their reputations. And Cochrane has kowtowed to them. 🧵
Reposted by Tom Molmans, MD
Documentary “Hirschhausen & the Long Shadow of the Pandemic” now on YouTube with English subtitles. Footage from the #UniteToFight2024 conference @unitetofight.bsky.social @virusesimmunity.bsky.social & International ME/CFS Day @scheibenbogen.bsky.social
t.co/XvNHvrnsPp
t.co/XvNHvrnsPp
December 29, 2024 at 7:48 PM
Documentary “Hirschhausen & the Long Shadow of the Pandemic” now on YouTube with English subtitles. Footage from the #UniteToFight2024 conference @unitetofight.bsky.social @virusesimmunity.bsky.social & International ME/CFS Day @scheibenbogen.bsky.social
t.co/XvNHvrnsPp
t.co/XvNHvrnsPp
Reposted by Tom Molmans, MD
Cochrane’s decision to not update the erroneous 2017 exercise in ME/CFS systematic review is here, citing inadequate resources and insufficient new research. Of course, how you find and grade the research without finding and grading it seems very un-Cochrane to me. www.cochrane.org/news/update-...
Update on ‘Exercise therapy for chronic fatigue syndrome’
www.cochrane.org
December 16, 2024 at 3:06 PM
Cochrane’s decision to not update the erroneous 2017 exercise in ME/CFS systematic review is here, citing inadequate resources and insufficient new research. Of course, how you find and grade the research without finding and grading it seems very un-Cochrane to me. www.cochrane.org/news/update-...
Reposted by Tom Molmans, MD
That MID calculation for CIS seems dubious at best. They averaged a literature value with a calculated one based on data from a study that was not designed to give an MID. Big surprise that averaging them really brought down the threshold MID in the meta-analysis so they could say it was achieved.
A systematic review of 24 randomized trials for #LongCovid
www.bmj.com/content/387/... open-access
No drug, diet, or device intervention has supportive evidence for efficacy. CBT, rehab provided some relief of symptoms (moderate certainty).
We're still in desperate need for a validated treatment!
www.bmj.com/content/387/... open-access
No drug, diet, or device intervention has supportive evidence for efficacy. CBT, rehab provided some relief of symptoms (moderate certainty).
We're still in desperate need for a validated treatment!
November 28, 2024 at 6:58 PM
That MID calculation for CIS seems dubious at best. They averaged a literature value with a calculated one based on data from a study that was not designed to give an MID. Big surprise that averaging them really brought down the threshold MID in the meta-analysis so they could say it was achieved.
Reposted by Tom Molmans, MD
Maybe why exercise isn't a panacea for dysautonomia is because of unrecognized PEM/PENE in that population. And the reason some people with apparent PEM/PENE respond exercise is because it's working on some level for dysautonomia--but potentially at the expense of the rest of the clinical picture.
November 17, 2024 at 10:02 AM
Maybe why exercise isn't a panacea for dysautonomia is because of unrecognized PEM/PENE in that population. And the reason some people with apparent PEM/PENE respond exercise is because it's working on some level for dysautonomia--but potentially at the expense of the rest of the clinical picture.