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moerakijo.bsky.social
jo
@moerakijo.bsky.social
1.3K followers 1.9K following 390 posts
#LongCovid #ME #WearAMask😷 #CovidIsNotOver
books, libraries, histories
she/her
Aotearoa New Zealand
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Reposted by jo
betsyladyzhets.bsky.social
Live blog is updated with presentations from the first two hours: thesicktimes.org/2025/11/14/l...
Live blog: PolyBio’s Fall 2025 Symposium shares Long COVID and related disease research updates - The Sick Times
Leading Long COVID and related disease researchers are set to present updates to their work today at the PolyBio Research Foundation’s Fall 2025 Symposium. PolyBio supports some of the most highly-ant...
thesicktimes.org
November 14, 2025 at 7:02 PM
Reposted by jo
betsyladyzhets.bsky.social
As usual, @thesicktimes.org is live blogging today's PolyBio Fall 2025 Symposium, where leading Long COVID and IACC researchers will share updates on their work. Check this article throughout the day for our summaries of the presentations. thesicktimes.org/2025/11/14/l...
Live blog: PolyBio’s Fall 2025 Symposium shares Long COVID and related disease research updates - The Sick Times
Leading Long COVID and related disease researchers are set to present updates to their work today at the PolyBio Research Foundation’s Fall 2025 Symposium. PolyBio supports some of the most highly-ant...
thesicktimes.org
November 14, 2025 at 4:42 PM
Reposted by jo
tairawhitidoc.bsky.social
Sunrise, Saturday, 15 November, from Makorori Headlands, Aotearoa / New Zealand.

Ata mārie / Good Morning ☀️
November 14, 2025 at 4:59 PM
Reposted by jo
vomalley.bsky.social
"It’s deeply alarming...Why are they trying to reframe this history? We need to grapple with it.”

www.theguardian.com/world/2025/n...
‘Reframes history’: fears Māori knowledge diluted in plan to revise New Zealand curriculum
Minister rejects claims Māori history is being sidelined in rewrite which includes cutting some references to the Treaty of Waitangi
www.theguardian.com
November 14, 2025 at 3:58 AM
Reposted by jo
thecovidinfoguy.bsky.social
🇳🇿New Zealand COVID weekly update: 9 Nov 2025

3 Nov to 9 Nov 2025:

🔹Reported cases: 181 (+19.8%)
🔹Reported Deaths: 4 (-20.0%)
🔹Total deaths: 5,475 (+4)

21 Oct to 27 Oct 2025:

🔹Hospitalisations: 23 (-20.6%)

#COVID19NZ

Source: www.tewhatuora.govt.nz/for-health-p...
Health New Zealand Te Whatu Ora COVID-19 Reporting dashboard dated November 9, 2025. Line graph shows COVID cases from 2020–2025 with a major spike in 2022 and smaller waves afterward. Totals: 2.7M cases since 2020, 655 in past 30 days, 181 in past 7 days. Sidebar filters for Age, Ethnicity, District, and Deprivation.
November 12, 2025 at 1:11 AM
moerakijo.bsky.social
Accessibility is good for everyone

The D*List Delivered, your weekly dose of disability joy.

Each week this newsletter provides news and views from the local and global disability community.
Accessibility is good for everyone ✳️
Plus: Want to learn circus skills? 🎪
open.substack.com
November 14, 2025 at 12:33 AM
Reposted by jo
julierehmeyer.bsky.social
Rachel Riggs has a gorgeous, delicious new cookbook out — and I got to have a really interesting conversation with her about it. It'll help you make wonderful food even when one friend is gluten free and one is dairy free and one doesn't eat nightshades... jrehmeyer.substack.com/p/deliciousn...
Deliciousness, Born from the Fire of Chronic Illness
Rachel Riggs's beautiful new cookbook
jrehmeyer.substack.com
November 13, 2025 at 4:29 PM
Reposted by jo
stickmancomms.bsky.social
This is such an important concept for many of us disabled people: Sometimes we can do something - and other times we can't. We aren't lying or being dramatic, we genuinely sometimes can't. And, ironically, often the reason we can't do something now is *because* we did it before. For example,
card with striped border. Disabled person saying "I can't do that". Non disabled person saying "But I saw you do it before!" Then further text "My condition is variable. I did it before, but right now my symptom levels are different, and/or it cause an increase in symptoms which I cannot risk repeating now. Please don't try to encourage me - instead please respect my limits, and, if I ask you to, help me find a suitable alternative."
November 13, 2025 at 7:58 PM
Reposted by jo
thesicktimes.org
🧠 RECOVER-NEURO clinical trial found that “cognitive rehabilitation” failed in treating Long COVID

🩸 Scientists are revealing more about microclots and Long COVID

🍳 A study about ME was retracted by the journal Food Science and Nutrition

#LongCOVID research updates: bit.ly/47F2xc7
A microscopic image shows a microclot, or tiny blood clot, that apparently originated from the combination of two microclots resulting from NETs association. The photo labels different parts of the microclot, which appears red, blue, green, and yellow. The text reads, "The Sick Times. Long COVID research updates. RECOVER-NEURO clinical trial found that “cognitive rehabilitation” failed in treating Long COVID. Scientists are revealing more about microclots and Long COVID. A study about myalgic encephalomyelitis (ME) was retracted by the journal Food Science and Nutrition." The RECOVER-NEURO clinical trial found that “cognitive rehabilitation” failed in treating Long COVID. The National Institutes of Health (NIH) study included 328 people who underwent interventions of either online cognitive training (computer games), a cognitive rehabilitation program, or received electric currents on their heads, called transcranial direct current stimulation. The 10-week study used a type of scale that measures neurodegenerative disease as a primary end point and found no significant improvements across all interventions. When it was announced in 2023, the study was heavily criticized by people with Long COVID, and has been called a waste of funding that could have been used to trial pharmaceutical interventions. Scientists are revealing more about microclots and Long COVID. A recent study in the Journal of Medical Virology found a strong association between microclots and net-like structures that some white blood cells (called neutrophils) release to attack pathogens, known as neutrophil extracellular traps (NETs). Researchers assessed the blood of 50 people with Long COVID and compared those samples with blood from controls, finding more, and larger, microclots in people with Long COVID. The authors concluded that biomarkers for blood clotting and related inflammation and cardiac issues could be used to study Long COVID. A study about myalgic encephalomyelitis (ME) was retracted by the journal Food Science and Nutrition. The study claimed that “dietary choices can potentially mitigate the syndrome,” stating that eating cheese protected people from ME, while eating peppers or “having an affinity for breakfast” contributed to ME. Some research commentators have applauded the decision, stating it is rare for poor studies on ME to be retracted.
November 13, 2025 at 2:51 PM
Reposted by jo
longcovidadvoc.com
💜 Protecting others is kindness.💜

Kindness isn’t abstract. It’s wearing an N95 on the train. It’s staying home when sick. It’s sending a message to the friend who’s still housebound with Long Covid.

#WorldKindnessDay #LongCovid #MaskUp 😷
A man wearing a green cardigan, green knit cap, and a black N95 mask is sitting on a subway car, holding a drink and looking off to the side. The image is framed by purple borders and includes a logo in the top left corner and the hashtag #WORLDKINDNESSDAY at the bottom.
November 13, 2025 at 7:47 PM
Reposted by jo
drbex.bsky.social
A quick word on kindness - mentions still being a fan of kindness. Frames kindness as fundamental part of being human. Every day people engage in acts of kindness, and even more so when things are tough. Kindness builds trust and results in better performance overall.

#BeKind #nzpol
November 11, 2025 at 9:26 PM
moerakijo.bsky.social
Actionstation petition
Protect Te Tiriti in Education in Aotearoa
Protect Te Tiriti in Education
Aotearoa should be a place where everyone, regardless of their background, is respected and part of a vibrant connected community. Where everyone feels a sense of belonging and knows their children wi...
our.actionstation.org.nz
November 11, 2025 at 9:03 PM
Reposted by jo
aliheritage.bsky.social
Ōamaru Historic Town Centre and Port could sure use your support for its National Historic Landmarks proposal! Its easy peasy to submit www.heritage.org.nz/places/natio...
Ōamaru Historic Town Centre and Port: Proposed Landmark
We’re proposing to include Ōamaru Historic Town Centre and Port as a Ngā Manawhenua o Aotearoa me ōna Kōrero Tūturu National Historic Landmark – and we would love your feedback.
www.heritage.org.nz
November 11, 2025 at 8:20 PM
Reposted by jo
phcc.bsky.social
NZ’s ranking for protection from tobacco industry interference has fallen dramatically from 2nd to 53rd in global ranking, with repealed smokefree laws and a tax cut for heated tobacco products noted as key factors. @janethoek.bsky.social

tinyurl.com/yfek4fwm
Aotearoa plummets from 2nd to 53rd in Global Tobacco Industry Interference Index ranking
Recent policy changes have led to a dramatic drop in NZ’s global ranking for tobacco interference protection.
tinyurl.com
November 11, 2025 at 8:09 PM
Reposted by jo
dpanz.bsky.social
Being clipped by an EV was the final straw for Josaiah Fue to take action and make roads safer for the blind and low-vision community.

Disabled people face higher risks on New Zealand roads. Safer speeds, more signage in high-risk areas, and sound emitters on EVs are the way forward!
Petition launched for mandatory sound emitters on electric cars
Being clipped by an EV was the final straw for Josaiah Fue to take action and make roads safer for the blind and low-vision community.
thedlist.co.nz
November 11, 2025 at 8:15 PM
Reposted by jo
chloedecanson.bsky.social
Many Long COVID trials have reported negative results in 2024 and 2025. In our Comment for @thelancetinfdis.bsky.social we argue that inadequate outcome measures might have played a role. (1/12)
THE LANCET Infectious Diseases COMMENT • Online first, November 07, 2025 Negative results in long COVID clinical trials: choosing outcome measures for a heterogeneous disease Lara Goxhaj • Lisa McCorkell • Femke van Rhijn-Brouwer . Letícia Soares . Julia Moore Vogel . Chloé de Canson
November 8, 2025 at 12:08 AM
Reposted by jo
bhanlon15.bsky.social
The Lancet, Infectious Disease: 'Negative results in long COVID clinical trials: choosing outcome measures for a heterogeneous disease'

By Lisa McCorkell, Femke van Rhijn-Brouwerb, Letícia Soares, Julia Moore Vogel, Lara Goxhaj, Chloé de Canson

www.thelancet.com/journals/lan...
Negative results in long COVID clinical trials: choosing outcome measures for a heterogeneous disease
Long COVID is an umbrella term for the heterogeneous long-term consequences of SARS-CoV-2 infection. It encompasses a wide spectrum of phenotypes (sometimes overlapping), and its underlying mechanisms...
www.thelancet.com
November 8, 2025 at 4:18 PM
Reposted by jo
paulapenfold.bsky.social
Honestly, the IPCA report into the police (mis)handling of the McSkimming case makes for jaw-dropping reading.

But it’s 135 pages long so I’ve read it for you.

Here’s my report on one of the most serious failures of integrity in modern policing history⬇️⬇️
The inside story of how police protected a senior cop, and prosecuted his accuser instead
For years, police leadership ignored warnings about Jevon McSkimming. The IPCA has set out the chain of failures.
www.stuff.co.nz
November 11, 2025 at 6:48 PM
Reposted by jo
bhanlon15.bsky.social
The Sick Times: “Long COVID advocacy is more than lobbying Congress: Here are some ways to get involved”

By Chelsea Rudman

People with infection associated chronic conditions (IACCs) use a broad range of strategies to fight for awareness and better care

thesicktimes.org/2025/11/11/l...
Long COVID advocacy is more than lobbying Congress: Here are some ways to get involved - The Sick Times
People with infection associated chronic conditions (IACCs) use a broad range of strategies to fight for awareness and better care.
thesicktimes.org
November 11, 2025 at 7:51 PM
Reposted by jo
longcovidadvoc.com
🔬🧠Brain‑training games for LC cognitive dysfunction? The RECOVER‑NEURO trial shows they don’t address the underlying pathology. Games can’t fix inflammation, microvascular issues, or neuro‑immune dysfunction - we need interventions that understand the biology not candy crush 🍭
November 10, 2025 at 9:25 PM
Reposted by jo
bhanlon15.bsky.social
Mount Sinai: 'Ask Me Anything with Dr. Putrino: 10/31/25'

'..features audience questions about international access to IACCI healthcare, Long COVID migraines..viral persistence, and the relationship between ME/CFS and IACCIs like Chronic Lyme and Long COVID'

www.youtube.com/watch?v=mngp...
Ask Me Anything with Dr. Putrino: 10/31/25
YouTube video by CoRE at Mount Sinai
www.youtube.com
November 11, 2025 at 12:37 AM
Reposted by jo
emilymbender.bsky.social
That is, incidentally, the same question I propose here:

buttondown.com/maiht3k/arch...

>>
Reflecting on "AI" in the Himalayan foothills
By Emily The Himalayan foothills, as seen from the kora walk around the Dalai Lama’s temple complex Last week, I had the immense good fortune to participate...
buttondown.com
November 10, 2025 at 8:34 PM
Reposted by jo
tairawhitidoc.bsky.social
Very cloudy, overcast morning at the beach. Tuesday, 11 November, from Makorori Beach, Aotearoa / New Zealand.

Ata mārie / Good Morning ☀️.
November 10, 2025 at 6:57 PM
Reposted by jo
rbreich.bsky.social
Casual reminder that the myth of “pulling yourself up by your bootstraps” is a cruel hoax designed to convince poor people from all walks of life that the injustices they face are a result of their own actions, rather than an oppressive system rigged against them.
November 10, 2025 at 12:00 AM
Reposted by jo
kererubrewing.beer
There's a new #BarrelAgedBeer Box, and our 12-Days Boxes (and a few remaining #BeerAdventCalendars) are all available. Our #BlackFriday specials are on for the rest of November - Coupon Code BF2025 saves you 12% when you order online.
www.kererubrewing.co.nz/shop
A Kereru Brewing branded carton with 6 individually wrapped 500 mL Barrel-Aged beer bottles.
November 9, 2025 at 2:33 AM