jo
@moerakijo.bsky.social
#LongCovid #ME #WearAMask😷 #CovidIsNotOver
books, libraries, histories
she/her
Aotearoa New Zealand
books, libraries, histories
she/her
Aotearoa New Zealand
Reposted by jo
🔬🧠Brain‑training games for LC cognitive dysfunction? The RECOVER‑NEURO trial shows they don’t address the underlying pathology. Games can’t fix inflammation, microvascular issues, or neuro‑immune dysfunction - we need interventions that understand the biology not candy crush 🍭
November 10, 2025 at 9:25 PM
🔬🧠Brain‑training games for LC cognitive dysfunction? The RECOVER‑NEURO trial shows they don’t address the underlying pathology. Games can’t fix inflammation, microvascular issues, or neuro‑immune dysfunction - we need interventions that understand the biology not candy crush 🍭
Reposted by jo
Mount Sinai: 'Ask Me Anything with Dr. Putrino: 10/31/25'
'..features audience questions about international access to IACCI healthcare, Long COVID migraines..viral persistence, and the relationship between ME/CFS and IACCIs like Chronic Lyme and Long COVID'
www.youtube.com/watch?v=mngp...
'..features audience questions about international access to IACCI healthcare, Long COVID migraines..viral persistence, and the relationship between ME/CFS and IACCIs like Chronic Lyme and Long COVID'
www.youtube.com/watch?v=mngp...
Ask Me Anything with Dr. Putrino: 10/31/25
YouTube video by CoRE at Mount Sinai
www.youtube.com
November 11, 2025 at 12:37 AM
Mount Sinai: 'Ask Me Anything with Dr. Putrino: 10/31/25'
'..features audience questions about international access to IACCI healthcare, Long COVID migraines..viral persistence, and the relationship between ME/CFS and IACCIs like Chronic Lyme and Long COVID'
www.youtube.com/watch?v=mngp...
'..features audience questions about international access to IACCI healthcare, Long COVID migraines..viral persistence, and the relationship between ME/CFS and IACCIs like Chronic Lyme and Long COVID'
www.youtube.com/watch?v=mngp...
Reposted by jo
Very cloudy, overcast morning at the beach. Tuesday, 11 November, from Makorori Beach, Aotearoa / New Zealand.
Ata mārie / Good Morning ☀️.
Ata mārie / Good Morning ☀️.
November 10, 2025 at 6:57 PM
Very cloudy, overcast morning at the beach. Tuesday, 11 November, from Makorori Beach, Aotearoa / New Zealand.
Ata mārie / Good Morning ☀️.
Ata mārie / Good Morning ☀️.
Reposted by jo
Casual reminder that the myth of “pulling yourself up by your bootstraps” is a cruel hoax designed to convince poor people from all walks of life that the injustices they face are a result of their own actions, rather than an oppressive system rigged against them.
November 10, 2025 at 12:00 AM
Casual reminder that the myth of “pulling yourself up by your bootstraps” is a cruel hoax designed to convince poor people from all walks of life that the injustices they face are a result of their own actions, rather than an oppressive system rigged against them.
Reposted by jo
There's a new #BarrelAgedBeer Box, and our 12-Days Boxes (and a few remaining #BeerAdventCalendars) are all available. Our #BlackFriday specials are on for the rest of November - Coupon Code BF2025 saves you 12% when you order online.
www.kererubrewing.co.nz/shop
www.kererubrewing.co.nz/shop
November 9, 2025 at 2:33 AM
There's a new #BarrelAgedBeer Box, and our 12-Days Boxes (and a few remaining #BeerAdventCalendars) are all available. Our #BlackFriday specials are on for the rest of November - Coupon Code BF2025 saves you 12% when you order online.
www.kererubrewing.co.nz/shop
www.kererubrewing.co.nz/shop
Reposted by jo
Mōrena, Aotearoa
We are expecting 🌡️summer weather, with max temps above 20°C in many areas. Napier should hit 29°C, nearly 10°C higher than the average November max. Hastings will be the warmest, hitting 31°C.
The West Coast of the South Island will stay cooler, with temps in the mid to high teens.
We are expecting 🌡️summer weather, with max temps above 20°C in many areas. Napier should hit 29°C, nearly 10°C higher than the average November max. Hastings will be the warmest, hitting 31°C.
The West Coast of the South Island will stay cooler, with temps in the mid to high teens.
November 9, 2025 at 7:16 PM
Mōrena, Aotearoa
We are expecting 🌡️summer weather, with max temps above 20°C in many areas. Napier should hit 29°C, nearly 10°C higher than the average November max. Hastings will be the warmest, hitting 31°C.
The West Coast of the South Island will stay cooler, with temps in the mid to high teens.
We are expecting 🌡️summer weather, with max temps above 20°C in many areas. Napier should hit 29°C, nearly 10°C higher than the average November max. Hastings will be the warmest, hitting 31°C.
The West Coast of the South Island will stay cooler, with temps in the mid to high teens.
Reposted by jo
The govt is considering banning homeless people and rough sleepers in city centres.
My Stuff #cartoon today #homelessness #poverty #homeless
My Stuff #cartoon today #homelessness #poverty #homeless
November 8, 2025 at 7:09 PM
The govt is considering banning homeless people and rough sleepers in city centres.
My Stuff #cartoon today #homelessness #poverty #homeless
My Stuff #cartoon today #homelessness #poverty #homeless
Reposted by jo
#nzpol Pay attention, Aotearoa New Zealand!!!!
Don't let this awful National Party/NZ First/ACT coalition government permanently change who we are as a nation. We are better than them, and it's time for us to stand up, speak up, and show up. We are empathetic and powerful. Take action NOW!
Don't let this awful National Party/NZ First/ACT coalition government permanently change who we are as a nation. We are better than them, and it's time for us to stand up, speak up, and show up. We are empathetic and powerful. Take action NOW!
Remember: There is nothing natural or inevitable about extreme inequality; it’s the result of an economic system that values wealth and power over human dignity and justice.
It doesn't have to be this way.
It doesn't have to be this way.
November 8, 2025 at 8:19 PM
#nzpol Pay attention, Aotearoa New Zealand!!!!
Don't let this awful National Party/NZ First/ACT coalition government permanently change who we are as a nation. We are better than them, and it's time for us to stand up, speak up, and show up. We are empathetic and powerful. Take action NOW!
Don't let this awful National Party/NZ First/ACT coalition government permanently change who we are as a nation. We are better than them, and it's time for us to stand up, speak up, and show up. We are empathetic and powerful. Take action NOW!
Reposted by jo
Sunrise, Saturday, 8 November, from Wainui Beach, Aotearoa / New Zealand.
Ata mārie / Good Morning ☀️.
Ata mārie / Good Morning ☀️.
November 7, 2025 at 5:01 PM
Sunrise, Saturday, 8 November, from Wainui Beach, Aotearoa / New Zealand.
Ata mārie / Good Morning ☀️.
Ata mārie / Good Morning ☀️.
Reposted by jo
Here’s the direct link to my introduction chapter to ‘Long COVID and Society’, open access and free to read for all, either directly online or downloaded as a PDF
link.springer.com/chapter/10.1...
link.springer.com/chapter/10.1...
The Social Aspects and Impacts of Long COVID
This chapter provides a substantial introduction to the book, giving an overview of the social, cultural and political aspects and impacts of Long COVID. Drawing on perspectives and theories from heal...
link.springer.com
November 7, 2025 at 9:16 PM
Here’s the direct link to my introduction chapter to ‘Long COVID and Society’, open access and free to read for all, either directly online or downloaded as a PDF
link.springer.com/chapter/10.1...
link.springer.com/chapter/10.1...
Reposted by jo
Berkeley's crowdfunding campaign for Trial By Error, which investigates problematic psycho-behavioral research involving ME, ME/CFS, Long COVID, etc., has reached 98% of the goal, with one day remaining:
crowdfund.berkeley.edu/project/47768
crowdfund.berkeley.edu/project/47768
David Tuller's Trial by Error Fall 2025
Help UC Berkeley raise $68,000 for the project: David Tuller's Trial by Error Fall 2025. Your gift will make a difference!
crowdfund.berkeley.edu
November 7, 2025 at 4:50 PM
Berkeley's crowdfunding campaign for Trial By Error, which investigates problematic psycho-behavioral research involving ME, ME/CFS, Long COVID, etc., has reached 98% of the goal, with one day remaining:
crowdfund.berkeley.edu/project/47768
crowdfund.berkeley.edu/project/47768
Reposted by jo
This year has been heavy—political whiplash, uncertainty, and real harm for our community. #MEAction is here, advocating on the ground.
Remember, HOPE is a sweet rebellion.
#MEAction is a lantern in the darkness.
We can only continue our work with your support. www.meaction.net/lantern-in-t...
Remember, HOPE is a sweet rebellion.
#MEAction is a lantern in the darkness.
We can only continue our work with your support. www.meaction.net/lantern-in-t...
November 7, 2025 at 5:00 PM
This year has been heavy—political whiplash, uncertainty, and real harm for our community. #MEAction is here, advocating on the ground.
Remember, HOPE is a sweet rebellion.
#MEAction is a lantern in the darkness.
We can only continue our work with your support. www.meaction.net/lantern-in-t...
Remember, HOPE is a sweet rebellion.
#MEAction is a lantern in the darkness.
We can only continue our work with your support. www.meaction.net/lantern-in-t...
Reposted by jo
Very glad to have a chapter in the Long COVID and Society book curated by D. Lupton.
In my chapter, I show how #LongCovid patient-driven advocacy-research was critical in 2020-1 to identifying LC as a novel multi-system disease entity, and achieving recognition from policymakers and WHO
In my chapter, I show how #LongCovid patient-driven advocacy-research was critical in 2020-1 to identifying LC as a novel multi-system disease entity, and achieving recognition from policymakers and WHO
Now published! My edited book ‘Long COVID and Society’ - my introduction is free to read for everyone. Download from the link below and check out the others chapters too (Chapter 14, about LC children and families, is also open access)
link.springer.com/book/10.1007...
link.springer.com/book/10.1007...
Long COVID and Society
This is the first book to bring together academics and activists living with Long COVID to explore the social impacts of the new complex chronic condition.
link.springer.com
November 7, 2025 at 7:13 PM
Very glad to have a chapter in the Long COVID and Society book curated by D. Lupton.
In my chapter, I show how #LongCovid patient-driven advocacy-research was critical in 2020-1 to identifying LC as a novel multi-system disease entity, and achieving recognition from policymakers and WHO
In my chapter, I show how #LongCovid patient-driven advocacy-research was critical in 2020-1 to identifying LC as a novel multi-system disease entity, and achieving recognition from policymakers and WHO
Reposted by jo
University of Alberta: 'Women are three times more likely than men to get severe long COVID: Here’s why'
"New U of A research reveals underlying mechanisms of how long COVID affects women and men differently"
www.ualberta.ca/en/folio/202...
"New U of A research reveals underlying mechanisms of how long COVID affects women and men differently"
www.ualberta.ca/en/folio/202...
Women are three times more likely than men to get severe long COVID: Here’s why
U of A research published in Cell Reports Medicine reveals the underlying mechanisms that explain why women are three times more likely than men to have severe long COVID.
www.ualberta.ca
November 7, 2025 at 7:59 PM
University of Alberta: 'Women are three times more likely than men to get severe long COVID: Here’s why'
"New U of A research reveals underlying mechanisms of how long COVID affects women and men differently"
www.ualberta.ca/en/folio/202...
"New U of A research reveals underlying mechanisms of how long COVID affects women and men differently"
www.ualberta.ca/en/folio/202...
Reposted by jo
PolyBio: 'PolyBio adds key resources to Long COVID immunotherapy pilot trial analysis'
'Funds will allow gut, lymph node, and blood samples collected from trial participants to be maximally analyzed for signs of SARS-CoV-2 persistence'
polybio.org/polybio-adds...
'Funds will allow gut, lymph node, and blood samples collected from trial participants to be maximally analyzed for signs of SARS-CoV-2 persistence'
polybio.org/polybio-adds...
PolyBio adds key resources to Long COVID immunotherapy pilot trial analysis - PolyBio Research Foundation
Funds will allow gut, lymph node, and blood samples collected from trial participants to be maximally analyzed for signs of SARS-CoV-2...
polybio.org
November 7, 2025 at 8:27 PM
PolyBio: 'PolyBio adds key resources to Long COVID immunotherapy pilot trial analysis'
'Funds will allow gut, lymph node, and blood samples collected from trial participants to be maximally analyzed for signs of SARS-CoV-2 persistence'
polybio.org/polybio-adds...
'Funds will allow gut, lymph node, and blood samples collected from trial participants to be maximally analyzed for signs of SARS-CoV-2 persistence'
polybio.org/polybio-adds...
Reposted by jo
My recent piece on the impact of post-exertional malaise. #PEM #LongCovid #MECFS #Disability #ChronicIllness
substack.com/home/post/p-...
substack.com/home/post/p-...
Why I Can’t Just Meet You for Dinner
The Reality of Post-Exertional Malaise
substack.com
November 7, 2025 at 7:04 PM
My recent piece on the impact of post-exertional malaise. #PEM #LongCovid #MECFS #Disability #ChronicIllness
substack.com/home/post/p-...
substack.com/home/post/p-...
Reposted by jo
Hi all, across our six centers serving people with spinal cord injury, stroke, TBI, #LongCOVID, #MECFS, chronic #lyme, new parents, cerebral palsy and many other conditions, roughly 20% are dependent on SNAP benefits for survival. So we're trying to pull together a food drive! 1/
November 7, 2025 at 3:29 PM
Hi all, across our six centers serving people with spinal cord injury, stroke, TBI, #LongCOVID, #MECFS, chronic #lyme, new parents, cerebral palsy and many other conditions, roughly 20% are dependent on SNAP benefits for survival. So we're trying to pull together a food drive! 1/
Reposted by jo
Our #LongCOVID journalism requires reader support — with your help, we can prepare our non-profit newsroom for whatever 2026 brings.
Will you donate today and help us keep this vital work going? the-sick-times.fundjournalism.org/donate/
Will you donate today and help us keep this vital work going? the-sick-times.fundjournalism.org/donate/
November 7, 2025 at 4:30 PM
Our #LongCOVID journalism requires reader support — with your help, we can prepare our non-profit newsroom for whatever 2026 brings.
Will you donate today and help us keep this vital work going? the-sick-times.fundjournalism.org/donate/
Will you donate today and help us keep this vital work going? the-sick-times.fundjournalism.org/donate/
Reposted by jo
Paywall lifted: At every turn, the Govt has opted for whatever would actually lead to more pollution and a warmer world – even if it costs more, jeopardises NZ’s reputation, overturns a campaign promise or clashes with the Govt’s other priorities.
The long retreat:
newsroom.co.nz/2025/11/07/g...
The long retreat:
newsroom.co.nz/2025/11/07/g...
Govt's climate strategy: Let it burn
Comment: The Government has relentlessly pursued policies that boost climate pollution – even if they cost more or jeopardise NZ's reputation, Marc Daalder writes
newsroom.co.nz
November 7, 2025 at 6:33 PM
Paywall lifted: At every turn, the Govt has opted for whatever would actually lead to more pollution and a warmer world – even if it costs more, jeopardises NZ’s reputation, overturns a campaign promise or clashes with the Govt’s other priorities.
The long retreat:
newsroom.co.nz/2025/11/07/g...
The long retreat:
newsroom.co.nz/2025/11/07/g...
Reposted by jo
We just cannot give up on the climate. Remember the Greens published He Ara Anamaria - the alternative Emissions Reduction Plan last year. There are solutions and other options
newsroom.co.nz/2025/11/07/g...
newsroom.co.nz/2025/11/07/g...
Govt's climate strategy: Let it burn
Comment: The Government has relentlessly pursued policies that boost climate pollution – even if they cost more or jeopardise NZ's reputation, Marc Daalder writes
newsroom.co.nz
November 7, 2025 at 8:08 PM
We just cannot give up on the climate. Remember the Greens published He Ara Anamaria - the alternative Emissions Reduction Plan last year. There are solutions and other options
newsroom.co.nz/2025/11/07/g...
newsroom.co.nz/2025/11/07/g...
Reposted by jo
Reminder: Sign by November 10th
The open letter to the World Health Organization urging them to recommend true respiratory protection (N95/FFP2–3) for all healthcare workers is still accepting signatures until November 10th.
The open letter to the World Health Organization urging them to recommend true respiratory protection (N95/FFP2–3) for all healthcare workers is still accepting signatures until November 10th.
November 7, 2025 at 4:18 AM
Reminder: Sign by November 10th
The open letter to the World Health Organization urging them to recommend true respiratory protection (N95/FFP2–3) for all healthcare workers is still accepting signatures until November 10th.
The open letter to the World Health Organization urging them to recommend true respiratory protection (N95/FFP2–3) for all healthcare workers is still accepting signatures until November 10th.
Reposted by jo
Are you or do you know an Allied Health professional who supports people with #MECFS & #long COVID?
One of the biggest barriers for people in our community is finding a healthcare practitioner who understands their unique needs.
List on our directory zurl.co/EyPp5
One of the biggest barriers for people in our community is finding a healthcare practitioner who understands their unique needs.
List on our directory zurl.co/EyPp5
November 7, 2025 at 4:00 AM
Are you or do you know an Allied Health professional who supports people with #MECFS & #long COVID?
One of the biggest barriers for people in our community is finding a healthcare practitioner who understands their unique needs.
List on our directory zurl.co/EyPp5
One of the biggest barriers for people in our community is finding a healthcare practitioner who understands their unique needs.
List on our directory zurl.co/EyPp5
Reposted by jo
Recent research in New Zealand shows that Long Covid sufferers feel let down by the health system:
"The picture painted by participants was bleak with a sense that the world had moved on from Covid-19 and left them behind."
www.rnz.co.nz/news/nationa...
#longcovid
"The picture painted by participants was bleak with a sense that the world had moved on from Covid-19 and left them behind."
www.rnz.co.nz/news/nationa...
#longcovid
Researchers say healthcare system failing long Covid patients
A researcher is calling on the government to provide dedicated funding for long Covid.
www.rnz.co.nz
November 7, 2025 at 3:48 AM
Recent research in New Zealand shows that Long Covid sufferers feel let down by the health system:
"The picture painted by participants was bleak with a sense that the world had moved on from Covid-19 and left them behind."
www.rnz.co.nz/news/nationa...
#longcovid
"The picture painted by participants was bleak with a sense that the world had moved on from Covid-19 and left them behind."
www.rnz.co.nz/news/nationa...
#longcovid
The latest edition from The D*list
Sometimes you have to be naughty⚡️😝
Plus: What to say when people feel entitled to your advice
open.substack.com
November 7, 2025 at 2:39 AM
The latest edition from The D*list