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moerakijo.bsky.social
jo
@moerakijo.bsky.social
1.3K followers 1.9K following 390 posts
#LongCovid #ME #WearAMask😷 #CovidIsNotOver
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Aotearoa New Zealand
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moerakijo.bsky.social
At 8.00 pm I’m turning my #LightLowForME in solidarity with those who live in darkness. Not by choice, but because their bodies cannot tolerate light, sound or touch. Join us in a quiet act of solidarity to symbolise the isolation experienced by people with Severe ME.
#RememberTheUnseen
A single candle burns in the centre of the image with a light glow around the candle - the rest of the background is dark. The text on the image says 8PM FRIDAY 8th August we're turning our #LightsLowForME Severe ME Day 2025 #SevereMeDay #RememberTheUnseen Then ME ANZMES Logo which is a white outline of a bird in flight with the ME ANZMES words next to the bird
August 8, 2025 at 12:09 AM
moerakijo.bsky.social
Myth: Only certain groups of people can develop ME.
Fact: ME affects people of all races, genders, ages, and socioeconomic backgrounds.
While about 75% of those affected are women, ME can affect anyone.
Marginalized communities face more challenges due to bias in the medical system.
#WorldMEDay
World ME Day 12TH MAY Myth vs Fact The Myalgic Encephalomyelitis Edition Fact The misconception that ME primarily affects certain groups stems from disparities in diagnosis and healthcare access. While about 75% of those affected are women, ME can affect anyone, regardless of age, gender, race or income. In addition, marginalized communities face more challenges getting diagnosed and treated due to bias in the medical system and lack of awareness. What facts do you want the world to understand this World ME Day?
May 7, 2025 at 10:24 PM
moerakijo.bsky.social
Myth: You can exercise your way to recovery from ME
Fact: Exercise can be dangerous for people with ME
In the past, graded exercise therapy (GET) was recommended, but after reviewing the evidence people with ME are encouraged to pace themselves balancing activity and rest to avoid deterioration.
World ME Day 12TH MAY Myth vs Fact The Myalgic Encephalomyelitis Edition Fact In the past, graded exercise therapy (GET) was recommended, but after reviewing the evidence, health organisations like NICE in the UK and the CDC in the US have warned against it. Instead, people with ME are encouraged to pace themselves-balancing activity and rest-to avoid deterioration. What facts do you want the world to understand this World ME Day?
May 6, 2025 at 10:01 PM
moerakijo.bsky.social
It is ME Awareness Month

ME- Myalgic Encephalomyelitis

Myth: ME is just about feeling tired.

Fact: The defining symptom of ME is Post-Exertional Malaise (PEM) - an extreme worsening of symptoms after even minor physical or mental exertion.

#WorldMEDay
#MEAwareness
#MillionsMissing
World ME Day 12TH MAY Myth vs Fact The Myalgic Encephalomyelitis Edition Fact Post-exertional malaise makes even basic activities difficult or impossible. Attempting to push through can significantly worsen symptoms and may lead to long-term deterioration. For those with severe ME, even minimal exertion-such as sitting up, light conversation, or sensory stimuli like sound and light-can be intolerable, leaving them extremely disabled and dependent on full-time care.
May 5, 2025 at 10:36 PM
moerakijo.bsky.social
Sunset on Raumati Beach, Aotearoa - 29 March 2024
Sunset on the beach at Raumati looking towards the South Island in Aotearoa. A beautiful orange and red glow on the horizon with the silhouette of islands on the horizon. In the foreground the waves break very gently on the shore. It is low tide and it is a black sand beach.
March 29, 2025 at 7:12 AM
moerakijo.bsky.social
Today is International Long Covid Awareness Day. I am one of the millions of people who never recovered from a Covid-19 infection and is living with Long Covid
Covid is not over - Please don't forget about us
We need recognition, support and treatments 1/2
#LongCovidAwarenessDay2025
#CureLongCovid
A dark green/teal square with a light green border. In white capital letters at the top it says FUND LONG COVID Underneath it says we need recognition, support and treatments. Underneath that in capital letters it says DON'T FORGET ABOUT US Underneath it says We aren't recovered then in smaller white letters it says International Long Covid Awareness Day 15 March 2025 Underneath is the Long Covid Support Aotearoa Logo and wording In the bottom right hand corner is a teal. grey and black circle with the Long Covid ribbon and the words Long Covid Awareness and a large Teal Five with circles of dark green and light green as part of the number
March 15, 2025 at 12:42 AM
moerakijo.bsky.social
It is Day Five of International Long Covid Awareness Week. Today is about honouring the lives lost to Long Covid and supporting and recognising all of us living with the impact of Long Covid.5 years have passed - we need support and action.Change must happen!! #5YearsLongCovid #UnitedForLongCovid
On a white background - in the top right hand corner in teal it says Five years since Long Covid and underneath in Red Capital Letters it says Changed Lives. In top right hand corner is the Long Covid Ribbon- positioned horizontally Underneath are five statements- each statement starts with Five years in Teal and then the rest of the statement in red. All in capital letters. Five years of Uncertainty, Five Years of searching for answers, Five Years of Waiting for Recognition, Five Years of Waiting for Research, Five Years of Waiting for Care
March 13, 2025 at 10:55 PM
moerakijo.bsky.social
Today is the start of Long Covid International Awareness Week.
For five years millions of lives all around the world have been changed by Long Covid.
We need recognition, support, funding and treatments.
#FundLongCovid
#5YearsLongCovid
#LongCovidSupport
A flyer for Long Covid Awareness Teal- one of the colours for Long Covid is the background Wording all in white In capitals at top FUND LONG COVID Underneath We need recognition, support, and treatments. In right hand top corner A Long Covid Awareness visual in black, teal and grey With a long Covid ribbon and a stylised 5 Underneath it says Five years of Long Covid changing lives Long Covid Support AOTEAROA New Zealand With the Long Covid Support Logo
March 10, 2025 at 3:38 AM
moerakijo.bsky.social
Here is Luna lying on her favourite rug.
A tabby cat lying in a half curl in a white fluffy rug lying on the corner of a grey couch up against the armrest. She is Luna and has white tips on her paws and ginger on her tummy and face. She has one paw lying across the edge of her face
January 7, 2025 at 12:56 AM
moerakijo.bsky.social
Christmas Day in Aotearoa
Pohutukawa tree - a close up of a branch with the beautiful red flowers which are lots of thin long red stamens tinged with yellow at the end.
December 24, 2024 at 11:10 PM
moerakijo.bsky.social
Beautiful summer afternoon - in the Pākuratahi Forest,
Te Awa Kairangi ki Uta Upper Hutt, Aotearoa
Beautiful green tree ferns and other trees on the side of Tane's Track in the Pākuratahi Forest, Te Awa Kairangi ki Uta Upper Hutt, Aotearoa
December 2, 2024 at 3:03 AM
moerakijo.bsky.social
#MedEdMonday

Understanding Post-Exertional Malaise - Dr. Brayden Yellman

Implementing Pacing to Prevent PEM - Dr. Todd E. Davenport

PEM and Pacing in Mental Health - Brittany Spencer, LCPC

PEM and Pacing for the Pediatric Patient Dr. Katherine Rowe
This image shows a visual of each of the four videos in the series MedEdMonday Understanding Post-Exertional Malaise - Dr. Brayden Yellman Implementing Pacing to Prevent PEM - Dr. Todd E. Davenport PEM and Pacing in Mental Health - Brittany Spencer, LCPC PEM and Pacing for the Pediatric Patient Dr. Katherine Rowe
October 8, 2024 at 5:04 AM
moerakijo.bsky.social
Fact Three about Dysautonomia from
@dysautonomia.bsky.social for Dysautonomia Awareness Month

To find out more go to their website
DysautonomiaInternational.org/whatisdys
Fact 3 DYSAUTONOMIA AWARENESS MONTH There are many different types of dysautonomia, including, but not limited to, neurocardiogenic syncope, postural orthostatic tachycardia syndrome, inappropriate sinus tachycardia, orthostatic hypotension, autoimmune autonomic ganglionopathy, pure autonomic failure, and multiple system atrophy. dysautonomiainternational.org/whatisdys dysautonomiainternational.org/whatisdys Dysautonomia International Logo A white rectangle has the words Dysautonomia International in black writing. Underneath the title are three squares. The words are in black text underneath each square. first Awareness - a group of white hands stretching upwards on a turquoise background Second Advocacy A white USA style government building on a dark blue background Third Advancement A white microscope on a lime green background
October 8, 2024 at 2:03 AM
moerakijo.bsky.social
Fact 2 about Dysautonomia from @dysautonomia.bsky.social for Dysautonomia Awareness Month
#Dysautomia
2 10 Facts About Dysautonomia Dysautonomia means "dysfunction" of the "autonomic nervous system." The autonomic nervous system controls all of your involuntary bodily functions like your heart rate, breathing, maintaining proper blood pressure, digestion, sleep cycles, body temperature control, sweating and more. dysautonomiainternational.org/whatisdys Dysautonomia International Logo A white rectangle has the words Dysautonomia International in black writing. Underneath the title are three squares. The words are in black text underneath each square. first Awareness - a group of white hands stretching upwards on a turquoise background second Advocacy A white USA style government building on a dark blue background Third Advancement A white microscope on a lime green background
October 5, 2024 at 8:57 PM
moerakijo.bsky.social
October is Dysautonomia Awareness Month.

Over 70 million people live with various forms of #dysautonomia

@dysautonomia.bsky.social
On a turquoise background it says Dysautonomia is pronounced dis'-oughta-know'-me-uh. Dysautonomia is a group of neurological conditions that impact over 70 million people around the world. Above and below the words are dark blue stripes. In the top stripe it says 10 Facts about Dysautonomia with the number 1 in a large green circle. St the bottom is the turquoise ribbon symbol and it says Dysautonomia Awareness Month and the website Dysautonomiainternstio al.irg/whatisdys and then the Dysautonomia International logo Awareness advocacy and Advancement
October 4, 2024 at 10:44 PM
moerakijo.bsky.social
For Mental Health Awareness Week it's
Whakawhetai Friday
Show your gratitude today to someone who helps make your community what it is.

For me a big thank you to all the researchers and advocates working to support people with ME/CFS and Long COVID and other chronic illnesses.

#MHAWNZ
On a pink, purple and yellow background it says Whakawhetai Friday What better way to finish off the week, than by saying thank you to someone in your community? Spread some good vibes by showing your gratitude - it could be to the courier driver, to a local volunteer, or to a workmate. MHAW Mental Health Awareness Week mhaw.nz | #MHAWNZ
September 26, 2024 at 10:35 PM
moerakijo.bsky.social
It's Tūhono Thursday
Building relationships with people living locally can create a supportive network.
For people living with chronic illnesses like Long Covid and ME|CFS
supportive networks are also online.
A big thank you to the chronic illness network that is here on Bluesky.

#MHAWNZ
On a pink, purple and yellow background Tūhono Thursday Introduce yourself to a neighbour, a parent at your child's school, or someone at your local café. Building relationships with people living locally can create a supportive network, right at your doorstep. MHAW Mental Health Awareness Week mhaw.nz | #MHAWNZ
September 25, 2024 at 9:45 PM
moerakijo.bsky.social
For Mental Health Awareness Week it's Whānau Wednesday

Feeling connected to others is strongly associated with better wellbeing.

If you know someone living with a chronic illness like Long COVID or ME/CFS reach out to them today- it really helps when people check in.

#MHAWNZ
On a pink purple and yellow background the words say Whānau Wednesday Feeling connected to others is strongly associated with better wellbeing. Give yourself and your loved ones a mid-week boost, by reaching out to a friend or whānau member you would like to catch up with. A purple twisted string with three photos of people. Underneath MHAW Mental Health Awareness Week MHAW.nz. #MHAWNZ
September 24, 2024 at 9:27 PM
moerakijo.bsky.social
For Mental Health Awareness Week it is Tautoko Tuesday

Tautoko/support a local business or community
#MHAWNZ

Here is the list of accredited Living Wage Employers for when you are shopping or looking for services
www.livingwage.org.nz/accredited_e...

@livingwageaotearoa.bsky.social
On a pink, purple and yellow background. The words say Discover and support a local business or community organisation. Make a small purchase, shout them out on social media, or recommend them to a friend. A little tautoko can go a long way in difficult times. Then a purple twisting string with three photos of people. Underneath MHAW Mental Health Awareness Week MHAW.nz|#MHAWNZ
September 23, 2024 at 9:03 PM
moerakijo.bsky.social
It's Mental Health Awareness Week in Aotearoa.

The overall theme is Community is... what we create together

Today is Manaaki Monday

Start the week off with an act of kindness.

#MHAWNZ
mhaw.nz
On a pink and yellow background the words say Manaaki Monday Help someone in a small but meaning ful way. Even one single act, lime carrying groceries or holding a door open for a stranger can set off a chain reaction of kindness that uplifts the whole community. Then a spiral purple cord with three photos in circles of people . Underneath is MHAW Mfaw.nz/#MHAWNZ
September 22, 2024 at 11:04 PM
moerakijo.bsky.social
Bluesky now has over 10 million users, and I was #1,206,242!
On a white background the text says celebrating 10m users (celebration emoji) #1,206,242 In top left corner the blue butterfly blue Sky symbol In bottom right joined September 25,2023 In bottom left jo@moerakijo.bsky.social
September 17, 2024 at 3:07 AM
moerakijo.bsky.social
The same thing happened to me. My dog Jack died and the grief was intense. This cat adopted us. He was a stray cat that started living in our back garden and eventually my partner coaxed him inside. His name is Buddy.
A tabby cat with a white belly and back legs with white front paws. He has his front paws crossed across his face. He is lying on a multi coloured crocheted blanket
September 8, 2024 at 2:27 AM
moerakijo.bsky.social
If you see this, quote post with a beach photo from your gallery
Two red billed gulls standing next to each other on a concrete sea wall in front of a calm blue sea. The gulls are looking out towards the sea. In the background are two paddleboarders and behind them are green hills.
August 31, 2024 at 11:21 PM
moerakijo.bsky.social
This is Buddy - he adopted us a few years ago. Sleeping is his favourite thing.
A tabby cat with a white belly, white back legs and white paws on his front legs lies on a multi coloured crochet squared blanket. His right paw is over his eyes. He looks very cute and sleepy
August 30, 2024 at 9:24 PM
moerakijo.bsky.social
#BriefsWithBeliefs
If you need some new underwear, activewear or sleepwear try out Nisa. All made with care at the Nisa workshop in Pōneke|Wellington, Aotearoa New Zealand, where they provide employment opportunities to women from refugee and migrant backgrounds.
nisa.co.nz
#MadeInNz
#EthicalFashion
This is a white poster with a pair of black underwear with nisa on the waistband. Above the underwear in black writing it says Enabling former refugees independence through employment and underneath it says one pair of briefs at a time This is a poster from NISA who are an ethical label that creates sustainable, beautifully crafted, high quality, low to zero waste underwear, activewear and swimwear and provides meaningful employment opportunities to women from refugee and migrant backgrounds. Nisa products are proudly made in New Zealand. Shop online and find out more at NISA.co.nz
August 30, 2024 at 12:31 AM