ME/FM Society of BC
@mefmsocietyofbc.bsky.social
Pinned
The @bcndp.bsky.social budget has once again failed our community. @josieosborne.bsky.social we urge you to act immediately and prioritize the care this community deserves. Please see our response here -https://www.mefm.bc.ca/post/response-to-the-2025-bc-budget-me-fm-society-of-british-columbia
Building a strong support network is essential for every caregiver! 🤝 Discover strategies to connect with others and find the support you need. You're not alone in this journey! Download your Caregivers Toolkit - www.mefm.bc.ca/caregiver-re... #Caregivers #SupportNetwork #MEFM #LongCOVID
April 30, 2025 at 8:14 PM
Building a strong support network is essential for every caregiver! 🤝 Discover strategies to connect with others and find the support you need. You're not alone in this journey! Download your Caregivers Toolkit - www.mefm.bc.ca/caregiver-re... #Caregivers #SupportNetwork #MEFM #LongCOVID
🌟 Excited to launch our Caregivers Toolkit! A must-have for those supporting loved ones with ME, FM, & Long-COVID. Packed w tips & support resources. Download & share now! #MECommunityStrength #MEBCCommunitystrength #MEFMBC #Longcovid #FM #BChealthcare mefm.bc.ca/caregiver-re...
April 22, 2025 at 7:09 PM
🌟 Excited to launch our Caregivers Toolkit! A must-have for those supporting loved ones with ME, FM, & Long-COVID. Packed w tips & support resources. Download & share now! #MECommunityStrength #MEBCCommunitystrength #MEFMBC #Longcovid #FM #BChealthcare mefm.bc.ca/caregiver-re...
Caregiving for someone with #MEcfs, #LongCovid or Fibromyalgia? A new resource is launching THIS FRIDAY to support YOU. 💪 Stay tuned! #caregiver #resources #comingsoon
April 15, 2025 at 4:23 PM
Caregiving for someone with #MEcfs, #LongCovid or Fibromyalgia? A new resource is launching THIS FRIDAY to support YOU. 💪 Stay tuned! #caregiver #resources #comingsoon
🌟 #IWD2025: 80% of ME cases are women. Menopause + ME? Hormonal shifts can worsen fatigue, pain, & brain fog. MYTH: “It’s just aging.” FACT: ME is a distinct illness. Rest isn’t failure—it’s survival. 💪💜
👉 Tips + support: shorturl.at/qDWU0
#MEAwareness #MenopauseAndME
👉 Tips + support: shorturl.at/qDWU0
#MEAwareness #MenopauseAndME
Celebrating Strength on International Women’s Day: Navigating ME and Menopause with Compassion
Today, as we honor the resilience and achievements of women worldwide, we want to shine a light on a community that embodies unwavering strength: women living with ME/CFS. Did you know that women make...
shorturl.at
March 7, 2025 at 10:37 PM
🌟 #IWD2025: 80% of ME cases are women. Menopause + ME? Hormonal shifts can worsen fatigue, pain, & brain fog. MYTH: “It’s just aging.” FACT: ME is a distinct illness. Rest isn’t failure—it’s survival. 💪💜
👉 Tips + support: shorturl.at/qDWU0
#MEAwareness #MenopauseAndME
👉 Tips + support: shorturl.at/qDWU0
#MEAwareness #MenopauseAndME
The @bcndp.bsky.social budget has once again failed our community. @josieosborne.bsky.social we urge you to act immediately and prioritize the care this community deserves. Please see our response here -https://www.mefm.bc.ca/post/response-to-the-2025-bc-budget-me-fm-society-of-british-columbia
March 7, 2025 at 1:46 AM
The @bcndp.bsky.social budget has once again failed our community. @josieosborne.bsky.social we urge you to act immediately and prioritize the care this community deserves. Please see our response here -https://www.mefm.bc.ca/post/response-to-the-2025-bc-budget-me-fm-society-of-british-columbia
More Myth Busting! 'GET' isn’t a cure for ME/CFS or Long-COVID and can be harmful. Protect your health with accurate info! #MECFS #ChronicIllnessAwareness
February 19, 2025 at 9:27 PM
More Myth Busting! 'GET' isn’t a cure for ME/CFS or Long-COVID and can be harmful. Protect your health with accurate info! #MECFS #ChronicIllnessAwareness
Myth Busting!! Symptoms of ME/CFS & Long-COVID can fluctuate. Yesterday’s abilities don’t mean today’s. Let’s understand and support! #ChronicIllnessSupport #LongCovid #MECFS
February 12, 2025 at 5:36 PM
Myth Busting!! Symptoms of ME/CFS & Long-COVID can fluctuate. Yesterday’s abilities don’t mean today’s. Let’s understand and support! #ChronicIllnessSupport #LongCovid #MECFS
Myth Busting! ME/CFS & Long-COVID are real, with biological changes like immune dysfunction. They're not psychosomatic myths. Let's spread awareness! #MECFS #LongCOVID
February 6, 2025 at 5:33 PM
Myth Busting! ME/CFS & Long-COVID are real, with biological changes like immune dysfunction. They're not psychosomatic myths. Let's spread awareness! #MECFS #LongCOVID
Feeling festive without fatigue? Discover pacing strategies to manage your energy this holiday season. Learn more in our free email series! - www.mefm.bc.ca/need-support... 🎉 #ME #FM #LongCOVID #PacingTips
December 23, 2024 at 9:27 PM
Feeling festive without fatigue? Discover pacing strategies to manage your energy this holiday season. Learn more in our free email series! - www.mefm.bc.ca/need-support... 🎉 #ME #FM #LongCOVID #PacingTips
🌟 Your voice matters! Help shape better healthcare in BC. If you're in Canada with ME/CFS, Fibromyalgia, Lyme Disease, or Long-COVID, we want to hear from you. Share your experiences to drive real change.
Take the survey now: info595.questionpro.com/Health2024 #HealthcareBC #PatientVoices
Take the survey now: info595.questionpro.com/Health2024 #HealthcareBC #PatientVoices
December 18, 2024 at 9:00 PM
🌟 Your voice matters! Help shape better healthcare in BC. If you're in Canada with ME/CFS, Fibromyalgia, Lyme Disease, or Long-COVID, we want to hear from you. Share your experiences to drive real change.
Take the survey now: info595.questionpro.com/Health2024 #HealthcareBC #PatientVoices
Take the survey now: info595.questionpro.com/Health2024 #HealthcareBC #PatientVoices
Our FREE Holiday Pacing Module is OUT!! What's your biggest holiday energy-zapper? Share with us! 🌟 www.mefm.bc.ca/holiday-module #HolidayPacing
Holiday Module| MEFM SOCIETY OF BC
www.mefm.bc.ca
December 17, 2024 at 8:29 PM
Our FREE Holiday Pacing Module is OUT!! What's your biggest holiday energy-zapper? Share with us! 🌟 www.mefm.bc.ca/holiday-module #HolidayPacing
We need your voice! Help inform better healthcare in BC.
GO TO SURVEY NOW
(info595.questionpro.com/Health2024)
Click on image below to read entire article or view it on our website (www.mefm.bc.ca/.../we-need-...).
GO TO SURVEY NOW
(info595.questionpro.com/Health2024)
Click on image below to read entire article or view it on our website (www.mefm.bc.ca/.../we-need-...).
We need your voice! Help inform better healthcare for people living with ME, FM, Lyme and Post COVID in BC.Thank you for your time in completing this survey. By clicking
We need your voice! Help inform better healthcare for people living with ME, FM, Lyme and Post COVID in BC. Thank you for your time in completing this survey. By clicking "Start", you consent to the ...
info595.questionpro.com
December 9, 2024 at 7:27 PM
We need your voice! Help inform better healthcare in BC.
GO TO SURVEY NOW
(info595.questionpro.com/Health2024)
Click on image below to read entire article or view it on our website (www.mefm.bc.ca/.../we-need-...).
GO TO SURVEY NOW
(info595.questionpro.com/Health2024)
Click on image below to read entire article or view it on our website (www.mefm.bc.ca/.../we-need-...).
Reposted by ME/FM Society of BC
Having #LongCovid has made it crystal clear that we do not have a robust, systematic way to support caregivers. We need a co-designed person-centred system where supports are built in
Q: What happens when a #caregiver becomes a #Patient in Canada?
A: Nothing....absolutely nothing
Q: What happens when a #caregiver becomes a #Patient in Canada?
A: Nothing....absolutely nothing
December 5, 2024 at 3:14 PM
Having #LongCovid has made it crystal clear that we do not have a robust, systematic way to support caregivers. We need a co-designed person-centred system where supports are built in
Q: What happens when a #caregiver becomes a #Patient in Canada?
A: Nothing....absolutely nothing
Q: What happens when a #caregiver becomes a #Patient in Canada?
A: Nothing....absolutely nothing
Reposted by ME/FM Society of BC
Burnley Express: 'ME: 'My daughter has ME, she went into the appointments able to walk and came out in a wheelchair''
'We speak with Michiel van Zanten who lives with ME & Janet Sylvester from MEAction whose daughter Emma has been living with ME for 12 years'
www.burnleyexpress.net/health/me-ch...
'We speak with Michiel van Zanten who lives with ME & Janet Sylvester from MEAction whose daughter Emma has been living with ME for 12 years'
www.burnleyexpress.net/health/me-ch...
'My daughter has ME, she went into appointments walking and came out in a wheelchair'
There are an estimated 1.3 million people in the UK with ME 🏥
www.burnleyexpress.net
December 5, 2024 at 3:16 PM
Burnley Express: 'ME: 'My daughter has ME, she went into the appointments able to walk and came out in a wheelchair''
'We speak with Michiel van Zanten who lives with ME & Janet Sylvester from MEAction whose daughter Emma has been living with ME for 12 years'
www.burnleyexpress.net/health/me-ch...
'We speak with Michiel van Zanten who lives with ME & Janet Sylvester from MEAction whose daughter Emma has been living with ME for 12 years'
www.burnleyexpress.net/health/me-ch...
Reposted by ME/FM Society of BC
N95s work because of how they are designed:
November 29, 2024 at 6:45 PM
N95s work because of how they are designed:
Reposted by ME/FM Society of BC
Chiming in to add that my spouse and I have had zero respiratory infections since the last one in January 2020. The only reason: Masks. All public places. We started off with cloth, upgraded to KN95s, and then finally N95s when Omicron popped up. Our prepandemic average was 2-3 per person per year.
November 29, 2024 at 9:09 PM
Chiming in to add that my spouse and I have had zero respiratory infections since the last one in January 2020. The only reason: Masks. All public places. We started off with cloth, upgraded to KN95s, and then finally N95s when Omicron popped up. Our prepandemic average was 2-3 per person per year.
Reposted by ME/FM Society of BC
Today, on the International Day for Persons with Disabilities, I am beyond proud that the Canadian Institutes for Health Research have released their Anti-Ableism Action Plan, entitled "From Intention to Impact". 1/3
cihr-irsc.gc.ca/e/54121.html...
cihr-irsc.gc.ca/e/54121.html...
From Intention to Impact: CIHR Anti-Ableism Action Plan - CIHR
cihr-irsc.gc.ca
December 3, 2024 at 10:08 PM
Today, on the International Day for Persons with Disabilities, I am beyond proud that the Canadian Institutes for Health Research have released their Anti-Ableism Action Plan, entitled "From Intention to Impact". 1/3
cihr-irsc.gc.ca/e/54121.html...
cihr-irsc.gc.ca/e/54121.html...
Reposted by ME/FM Society of BC
Immune cells become exhausted in #MECFS. Read about the latest findings of the PNAS research paper of M. Hanson et al. here: news.cornell.edu/stories/2024...
Immune T cells become exhausted in chronic fatigue syndrome patients | Cornell Chronicle
The study found that key CD8+ T cells showed signs of constant stimulation that lead to an exhausted state, a condition that is well-studied in cancer.
news.cornell.edu
December 4, 2024 at 1:21 AM
Immune cells become exhausted in #MECFS. Read about the latest findings of the PNAS research paper of M. Hanson et al. here: news.cornell.edu/stories/2024...
Reposted by ME/FM Society of BC
The BMJ will remunerate patient and public reviewers | The BMJ www.bmj.com/content/387/...
#PatientEngagement
#PatientEngagement
The BMJ will remunerate patient and public reviewers
The BMJ will offer £50 for reviews by patients and the public
From January 2025 patients and members of the public who complete a review for The BMJ will be offered £50 or a 12 month online subscript...
www.bmj.com
December 1, 2024 at 4:13 PM
The BMJ will remunerate patient and public reviewers | The BMJ www.bmj.com/content/387/...
#PatientEngagement
#PatientEngagement
This #GivingTuesday, support those living with ME, FM, & Long-COVID! Your gift can funds vital support groups & email series that empower individuals. 💌🤝 www.canadahelps.org/en/dn/9932?v...
Monthly or 1-time donations make a difference! Not able to give? Share our mission or sign up for membership.
Monthly or 1-time donations make a difference! Not able to give? Share our mission or sign up for membership.
www.canadahelps.org
December 3, 2024 at 6:08 PM
This #GivingTuesday, support those living with ME, FM, & Long-COVID! Your gift can funds vital support groups & email series that empower individuals. 💌🤝 www.canadahelps.org/en/dn/9932?v...
Monthly or 1-time donations make a difference! Not able to give? Share our mission or sign up for membership.
Monthly or 1-time donations make a difference! Not able to give? Share our mission or sign up for membership.
Reposted by ME/FM Society of BC
We made a zine! @thesicktimes.bsky.social commissioned artist Katie Drackert to create a printable mini-magazine of our first year’s highlights, as well as top Long COVID and COVID-19 resources. Check it out: thesicktimes.org/2024/12/02/s...
Special edition zine: One year of The Sick Times - The Sick Times
We made a zine! To celebrate our first anniversary, we commissioned artist Katie Drackert to create a printable mini-magazine of our first year’s highlights, as well as top Long COVID and COVID-19 res...
thesicktimes.org
December 2, 2024 at 4:41 PM
We made a zine! @thesicktimes.bsky.social commissioned artist Katie Drackert to create a printable mini-magazine of our first year’s highlights, as well as top Long COVID and COVID-19 resources. Check it out: thesicktimes.org/2024/12/02/s...
Reposted by ME/FM Society of BC
Canada's proposed Long COVID recommendations (CAN-PCC) pose harm to patients.
I spoke with experts + advocates including @sunsopeningband.bsky.social, Adriana Patino, @sabrinapoirier.bsky.social to breakdown why.
#pwME #LongCOVID #CanadaSky
simonspichak.beehiiv.com/p/everything...
I spoke with experts + advocates including @sunsopeningband.bsky.social, Adriana Patino, @sabrinapoirier.bsky.social to breakdown why.
#pwME #LongCOVID #CanadaSky
simonspichak.beehiiv.com/p/everything...
Everything Wrong with Canada's Proposed Long COVID Recommendations
The proposed Canadian guidelines for treating Long COVID pose harm to patients and risk psychologizing the disease.
simonspichak.beehiiv.com
November 25, 2024 at 10:17 PM
Canada's proposed Long COVID recommendations (CAN-PCC) pose harm to patients.
I spoke with experts + advocates including @sunsopeningband.bsky.social, Adriana Patino, @sabrinapoirier.bsky.social to breakdown why.
#pwME #LongCOVID #CanadaSky
simonspichak.beehiiv.com/p/everything...
I spoke with experts + advocates including @sunsopeningband.bsky.social, Adriana Patino, @sabrinapoirier.bsky.social to breakdown why.
#pwME #LongCOVID #CanadaSky
simonspichak.beehiiv.com/p/everything...
Reposted by ME/FM Society of BC
Those who continue to push the FND/psych narrative should lose their medical licenses for wilfully ignoring scientific advances and their Hippocratic oath “to do no harm”
Long Covid isn’t FND. Pass it on. www.mdpi.com/2075-4426/14...
Long COVID Is Not a Functional Neurologic Disorder
Long COVID is a common sequela of SARS-CoV-2 infection. Data from numerous scientific studies indicate that long COVID involves a complex interaction between pathophysiological processes. Long COVID m...
www.mdpi.com
November 26, 2024 at 3:56 AM
Those who continue to push the FND/psych narrative should lose their medical licenses for wilfully ignoring scientific advances and their Hippocratic oath “to do no harm”
Reposted by ME/FM Society of BC
You can protect yourself & your loved ones from COVID with these 6 steps:
😷 Wear a respirator mask
🏠 Stay home if sick
⏰ Test if you have symptoms
🌳 Let fresh air in or meet outdoors
💉 Stay up to date with your vaccinations
💡 Talk to your GP about COVID medicines.
youtu.be/FlBfq22nxt8?...
😷 Wear a respirator mask
🏠 Stay home if sick
⏰ Test if you have symptoms
🌳 Let fresh air in or meet outdoors
💉 Stay up to date with your vaccinations
💡 Talk to your GP about COVID medicines.
youtu.be/FlBfq22nxt8?...
Jordan’s long COVID story
YouTube video by Department of Health Victoria
youtu.be
November 15, 2024 at 12:03 PM
You can protect yourself & your loved ones from COVID with these 6 steps:
😷 Wear a respirator mask
🏠 Stay home if sick
⏰ Test if you have symptoms
🌳 Let fresh air in or meet outdoors
💉 Stay up to date with your vaccinations
💡 Talk to your GP about COVID medicines.
youtu.be/FlBfq22nxt8?...
😷 Wear a respirator mask
🏠 Stay home if sick
⏰ Test if you have symptoms
🌳 Let fresh air in or meet outdoors
💉 Stay up to date with your vaccinations
💡 Talk to your GP about COVID medicines.
youtu.be/FlBfq22nxt8?...
Reposted by ME/FM Society of BC
Advocacy alert ‼️ New Canadian draft recommendations for Long Covid are out, & they include concerning guidance to EXERCISE to prevent Long Covid, & to use CBT as a treatment.
Have your say by Wednesday Nov 27 at 8:45 pm Pacific / 11:45 pm Eastern: www.research.net/r/CAN-PCCRec...
Have your say by Wednesday Nov 27 at 8:45 pm Pacific / 11:45 pm Eastern: www.research.net/r/CAN-PCCRec...
November 21, 2024 at 12:58 PM
Advocacy alert ‼️ New Canadian draft recommendations for Long Covid are out, & they include concerning guidance to EXERCISE to prevent Long Covid, & to use CBT as a treatment.
Have your say by Wednesday Nov 27 at 8:45 pm Pacific / 11:45 pm Eastern: www.research.net/r/CAN-PCCRec...
Have your say by Wednesday Nov 27 at 8:45 pm Pacific / 11:45 pm Eastern: www.research.net/r/CAN-PCCRec...