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lowenergylounge.bsky.social
Low Energy Lounge
@lowenergylounge.bsky.social
120 followers 110 following 66 posts
Coping with confidence, together.
Let's change the way chronic illness is seen and understood. Rooted in ME Awareness.

https://linktr.ee/LowEnergyLounge?utm_source=linktree_profile_share&ltsid=c2537ded-e594-4115-9a8f-d9a63c91277d
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lowenergylounge.bsky.social
Good news❣️

Every hat you’ve purchased in our Etsy shop just turned into research funding for ME/CFS and Long COVID.

Yesterday, we sent our first donation to OMF, fueled entirely by shop sales. You helped us give $22, which was tripled into $66 thanks to their current matching campaign :)
December 2, 2025 at 6:41 PM
Reposted by Low Energy Lounge
openmedf.bsky.social
🌍 People worldwide used their limited energy to finish “ME/CFS is…” Their voices show the challenges, losses & urgent need for change. Thanks to matching donors, every gift to OMF is tripled up to $500K!

👉 Donate: www.omf.ngo?form=donate-....

#mecfs #pwME #mecfsresearch
November 6, 2025 at 4:23 PM
lowenergylounge.bsky.social
This November, 10% of profits from our shop will go to the Open Medicine Foundation through Triple Giving November, where every donation is triple-matched to fund ME/CFS and Long Covid research.

Shop now on Etsy, link in bio 🩵

@openmedf.bsky.social
November 2, 2025 at 3:27 PM
lowenergylounge.bsky.social
Made you a little something, designed with low-energy days in mind. ❤️

Officially live in 24 hrs
October 26, 2025 at 8:02 PM
lowenergylounge.bsky.social
Something’s brewing 👀 Any guesses?

Been quietly working on this for a while. Can’t wait to share more soon!
October 15, 2025 at 8:24 PM
lowenergylounge.bsky.social
TIPS for Social Pacing

#Spoonie #SpoonieSky #Pacing
September 11, 2025 at 10:33 PM
lowenergylounge.bsky.social
simple and effective
July 8, 2025 at 4:25 PM
lowenergylounge.bsky.social
What’s your go-to trick for staying cool in this heatwave? 🫠☀️
June 23, 2025 at 3:00 PM
lowenergylounge.bsky.social
What if we stopped calling it “doing nothing” when it’s actually…

✨ Choosing to rest
✨ Prioritizing your health
✨ Listening to your body
✨ Looking after yourself
✨ Practicing stillness
✨ Pacing intentionally
✨ Resisting the pressure to overdo it
✨ Unlearning that productivity defines your worth
June 18, 2025 at 9:24 PM
Reposted by Low Energy Lounge
tomkindlon.bsky.social
A Quiet Storm: An online art gallery showcasing the artwork of people living with severe ME/CFS

www.aquietstorm.me/about

Image is from the AMMES June 2025 e-newsletter

#SevereME #MEcfs #SevereMECFS #CFS #PwME
One of the pieces of art with a woman lying in her bed plus the following text A Quiet Storm: An online art gallery showcasing the artwork of people living with severe ME/CFS A Quiet Storm is founded and run by volunteers with ME/CFS, many with severe forms. This site is a testament that although we may be too ill to accomplish things individually, together as a community, we can achieve great things.
June 9, 2025 at 1:11 AM
lowenergylounge.bsky.social
Huge thank you to everyone who participated in the #MECFSis campaign, shared, or simply witnessed. You made this what it is. 🙏

Awareness Month may be over, but we’re not done. The need for visibility, funding, and change continues all year long.

🔗 See more voices on the @openmedf.bsky.social site
June 2, 2025 at 5:12 PM
Reposted by Low Energy Lounge
maddyobart.bsky.social
Today is #MEAwarenessDay.

Here’s a tiny glimpse into life with this debilitating disease.

#MECFS #MissingMillions #MECFSis #MEAwarenessMonth
Mixed media photograph and digital painting of headshot of women with long dark hair, eyes closed and strap top. There’s a green vine wrapped around her eyes and neck/hair. In the background is abstract dark green bush. Caption: M.E. is being trapped in your body. Everything you do can make you sicker. Photo in black & white of a woman sitting in bed with doona over her bent knees. She has long hair, and is looking at the camera with a serious expression on her face. Most of the room is dark, with her face & part of the wall to her left lit up by leaf speckled light filtering into her room through the window behind the camera. Beside the bed is a shadowed bedside table with lamp and drink bottle on top. A door is partially visible. Caption: M.E. is being bedbound or housebound for the 25%. Some have not seen the sun in decades. Blurred double vision image of woman standing in front of a large gum tree. The angle is looking slightly upward with just the shoulders and head visible as well as the top of the tree behind the sky is blue and cloudy. Caption: M.E. is underfunded. Under researched. Under diagnosed. Under treated. Under supported. Misunderstood. Neglected. Dismissed. Harmed. Digital drawing of a hand holding a phone, with a simple drawing of the earth on the screen. The background is black. Caption: M.E. is experiencing the world through a screen. For many, their only portal to community, connection, knowledge & advocacy.
May 12, 2025 at 9:28 AM
Reposted by Low Energy Lounge
diatoma.bsky.social
What a stunning (and heart-breaking and galvanizing) gallery of #pwME #MECFSis by @openmedf.bsky.social and @lowenergylounge.bsky.social . Thank you for the worldwide invitation, and my love to everyone who shared their words and images, and to every person with #MyalgicEncephalomyelitis 💙
openmedf.bsky.social Open Medicine Foundation (OMF) @openmedf.bsky.social · May 12
How do you fight for visibility when you’re too sick to leave your bed?

This May, individuals around the world used their limited energy to share powerful messages, completing the sentence “ME/CFS is…”

Explore community voices on our website: www.omf.ngo/community-vo...
Community Voices - “ME/CFS Is..” - Open Medicine Foundation
For ME/CFS Awareness Day, individuals shared powerful messages about the reality of living with ME/CFS. Explore the gallery of voices and help raise awareness.
www.omf.ngo
May 12, 2025 at 4:37 PM
lowenergylounge.bsky.social
It’s ME/CFS Awareness Day.

Over 150 people living with ME/CFS have already shared how they’d finish this sentence:

“ME/CFS is…”

Their words expose the truth—a complex reality of living with this disease.

See more at: www.omf.ngo/community-vo...

@openmedf.bsky.social
#MECFSis #MECFSAwareness
May 12, 2025 at 4:58 PM
Reposted by Low Energy Lounge
suzanneforbes.bsky.social
May is #mecfsawarenessmonth. @openmedf.bsky.social is a nonprofit leading the effort to find treatments and a cure for ME/CFS & Long COVID. Their #mecfsis awareness campaign with @lowenergylounge.bsky.social is showing some faces of ME - some of us who can safely afford to disclose our disability.
Color photo of Suzanne, a fat older white woman, lying down holding a sign. The sign reads: ME/CFS is waking up every day feeling hungover and in heroin withdrawal - when you've been sober and off drugs since 1989.
May 3, 2025 at 10:40 PM
Reposted by Low Energy Lounge
carriekellenberger.bsky.social
#MECFSis my cage.

All it took was a virus for #ME to take me prisoner & become my cage.

@openmedf.bsky.social

"Every photo helps raise visibility, reduce stigma & reach others. Let’s make ME/CFS visible.

#MillionsMissing #MyalgicE #MySeveralWorlds #pwME
#MECFSAwareness #MEAwarenessMonth
Carrie is wearing her millions missing t-shirt from 2021 from MEAction Network. She's holding a sign that says MECFS is my cage. She's wearing noise canceling earphones and she is lying in bed with her head on a silk pillowcase with birds on it. "Hope is the thing with feathers"
April 29, 2025 at 4:43 PM
Reposted by Low Energy Lounge
openmedf.bsky.social
Samantha’s words speak to the devastating reality of #MECFS —a disease that isolates and steals.

“ME/CFS is watching life happen to other people while you slowly fade away.”

Support ME/CFS research: www.omf.ngo?form=donatenow
Samatha is holding a sign that reads: "ME/CFS is watching life happen to other people while you slowly fade away.
May 2, 2025 at 1:56 PM
Reposted by Low Energy Lounge
germainehypher.bsky.social
ME/CFS is in desperate need of medical research. How can you help?

By taking part in Open Medicine Foundation’s #MECFSis photo campaign by May 7th.

Every photo helps raise visibility, reduce stigma, and reach others.

#MillionsMissing #mecfs #chronicillness #chronicpain #Chronicfatigue #me/cfs
A photo of a white woman with faded red, messy, short hair. She is smiling but fatigued, wearing green pyjamas, is under a green and white leaf print blanket and is propped up against a pile of cushions while lying with legs up on a sofa. Black text on a white rectangle with the texture of paper is superimposed on the photo. It reads: ME/CFS is stronger than pain relief, positive thinking or willpower. ME/CFS is suffering for the exertion of smiling and being semi-upright. ME/CFS is 40 years (and counting) of my life. Black typed text in a white background reads: This ME awareness month, Open Medicine Foundation has initiated the #MECFSis photo campaign to raise awareness and vital funds for their research. To take part with your own picture: 1. Take a photo of yourself with a sign that finishes the sentence: ME/CFS is 2. Post (by May 7th to be part of their ME/CFS May 12th Awareness Day feature) tagging Open Medicine Foundation and using the hashtag #MECFSis To support: Like, share and, if possible, donate. Thank you!
May 3, 2025 at 10:51 AM
Reposted by Low Energy Lounge
nikosuvisto.com
It’s ME/CFS Awareness Month, and I wonder — what is life?
According to Wikipedia, life consists of these seven traits ⬇️

1/10
@openmedf.bsky.social @lowenergylounge.bsky.social
#Photography
#SelfDocumentary
#MECFS
#MECFSis
#pwME
A black and white top down photo of Niko, a man with a dark beard and a dark sweatshirt, he is laying on his bed, having a white sign on his chest, which says ‘ME/CFS is… the absence of life’ written in dark letters.
May 2, 2025 at 6:55 PM
Reposted by Low Energy Lounge
openmedf.bsky.social
#MECFSis submission from Angela:

"ME/CFS is the world missing out on millions of brilliant & beautiful people."

#mecfsis #mecfs #millionsmissing #pwme @lowenergylounge.bsky.social
A spiral-bound notebook rests on a soft, textured blanket. On the open page, handwritten text reads: “ME/CFS is... the world missing out on millions of brilliant & beautiful people.” A red awareness ribbon is drawn in the bottom right corner. A red ribbon bookmark peeks out from the notebook.
May 2, 2025 at 4:54 PM
Reposted by Low Energy Lounge
liebelumi.bsky.social
ME/CFS is...
... a disabled body&brain.
The person is still fabulous though!

#mecfsis
#MECFSAwarenessMonth
@openmedf.bsky.social
A smiling frog
April 19, 2025 at 6:46 AM
lowenergylounge.bsky.social
When you know a crash is coming
April 26, 2025 at 2:36 PM
lowenergylounge.bsky.social
What's one small thing that brings you joy, even on hard days?

We asked people living with chronic illness to share the small moments that make a difference. Here’s what they had to say 🥰

www.instagram.com/p/DIrP6bfsod...
Login • Instagram
Welcome back to Instagram. Sign in to check out what your friends, family & interests have been capturing & sharing around the world.
www.instagram.com
April 25, 2025 at 4:27 PM
lowenergylounge.bsky.social
Launching a photo campaign in collaboration with @openmedf.bsky.social for ME/CFS Awareness month and we’d love to see YOU in it!

Repost to help spread the word. 🩵 Together, we’re stronger—and louder!
openmedf.bsky.social Open Medicine Foundation (OMF) @openmedf.bsky.social · Apr 14
ME/CFS is misunderstood. Let’s change that.

This May, for ME/CFS Awareness Month, we’re launching a photo campaign to highlight real faces and real experiences.

📅 Submit by May 7 to be part of our ME/CFS Awareness Day (May 12) feature—and help us speak louder than ever.
A person stands blurred in the background, holding up a white sign. Text on the image reads: What is ME/CFS? ME/CFS is misunderstood, underfunded, and often invisible. Let’s change that—together. It announces a community photo campaign launching in May, with a bold call to action: "Ask the people living it every day." Here’s how to participate: 1. Write ‘ME/CFS IS..” on a sign or paper, 2. Complete the sentence with your experience, 3. Take a photo holding it, 4. Post it with #MECFSis and tag us @OpenMedF! Bonus: Tag a friend to join in! Your story matters: Every photo helps raise visibility, reduce stigma, and reach others who need to feel less alone. Together, we’re stronger-and louder! Use #MECFSis a tag us @OpenMedF to share your experience. Know someone who should participate? Tag them to join in!
April 14, 2025 at 4:32 PM